• The Only Non Profit Organization Founded by Rosaceans [rosacea sufferers] for Rosaceans

    Welcome to the RRDi official web site.

    The Rosacea Research & Development Institute [RRDi] is the first 501 (c) (3) non profit corporation established June 7, 2004 in the State of Hawaii, USA for the purpose of finding a cure for rosacea, researching rosacea, and to form a patient advocacy organization established by volunteer rosaceans for rosacea sufferers. State of Hawaii Certificate of Good Standing.

    Please take our 2016 Rosacea Survey now. This will take you 10 to 15 minutes and the general public is invited to participate. If you have any issues with taking the survey please contact us letting us know what issue you experienced.

    In 2015 we polled our members and the general public with a survey about their rosacea experience and you can view the results by clicking here.

    What is Rosacea?

    Rosacea is a chronic and sometimes progressive disorder of the face, characterized by some or all of the following symptoms:

    Extremely sensitive skin, blushing, flushing, permanent redness, burning, stinging, swelling, papules, pustules, broken red capillary veins, red gritty eyes (which can lead to visual disturbances) and in more advanced cases, a disfiguring bulbous nose. Men and women of all ages can be affected, with over 74 million estimated sufferers of Rosacea worldwide. For more info click here.

    "Rosacea is a multifactorial, hyper-reactivity, vascular and neural based disease with a broad range of facial manifestations where normal vasodilation is greater and more persistent and involves an autoimmune component where microscopic amounts of extravasated plasma induce localized dermal inflammation where repeated external triggers lead vasodilation, telangiectasias, redness with eventual fibrosis and hypertrophic scarring of the dermis." Sandra Cremers, M.D., F.A.C.S., RRDi MAC Member.

    "Rosacea is probably a collection of many different diseases that are lumped together inappropriately." Zoe Diana Draelos, MD. Dr. Draelos is a member of the ROSIE [ROSacea International Expert] Group that says the current classification of rosacea is controversial. Dr. Draelos is also a member of the RRDi MAC. Just because you have a red face might mean you have another skin condition besides rosacea. The ROSCO panel recommends a new approach diagnosising rosacea by phenotype. The RRDi has endorsed the ROSCO panel with this new classification of rosacea

    Your physician should differentiate rosacea from a plethora of other skin conditions. If you need photos of rosacea click here.

    Sometimes rosacea is misdiagnosed. No one really knows what causes rosacea and there are a number of theories for your consideration. Rosacea, therefore, can be confusing, a bewilderment and a mystery.

    Check our FAQs.

    What will the RRDi Do For Me?

    You can browse our member forum and learn about rosacea without joining. However, the RRDi is in the forefront of other rosacea non profit organizations with the digital medical revolution. Your rosacea is an individual case and you need to find what treatment will work for your rosacea and not a treatment aimed at the masses. Individuals can come together and share data, using collaboration tools that the RRDi offers for free. If you have the volunteer spirit and want to become part of this innovative non profit, learn how you can volunteer and be part of this digital medical revolution. You can post in our member forum if you join and register. If you have concerns regarding your privacy, please consider this post.

    Once you join you have a number of tools to collaborate with other members. You can create your own rosacea blog with our tools once you join, with easy step by step directions on how to do this. Our Gallery application lets members share photos and videos with the community. We have a chat tool available to members. Volunteers who contribute their time and energy may receive a free G Suite basic account through the generous contribution of Google, one of our sponsors.  

    For a limited time you may receive a free ebook, Rosacea 101: Includes the Rosacea Diet as a free gift from the founder/director if you mention in the application that you want the free ebook (write in the volunteer box).

    RRDI_Vol1No1_Journal-Cover300.jpg

    What Can You Do for the RRDi?

    Your donation will assist us to continue to keep this web site going, publish our journal, and sponsor education grants. Mahalo for your donation..

    The RRDi is a volunteeer member driven organization and invites rosacea sufferers to become involved. Volunteering is the force that drives the organization and is an integral spirit of the RRDi philosophy. The RRDi warmly invites rosacea sufferers to participate in this non profit which you can become a part of. You are not required to volunteer when you join, since we still want you to join even if you can't volunteer. If all you can do is become a member, that will increase our membership which is helpful in itself. But if you can volunteer, let us know on the application. Please join. If you want to remain anonymous when becoming a member of the RRDi you may find it helpful to read this post before joining. We respect your anonymity and will support your remaining anonymous as a member of the RRDi if that is your preference. 

    However, we want real members, not spammers, hackers and trolls. So our membership registration is very secure requiring your contact information. Please carefully read the next subheading on how to join. 

    How to Join

    To repeat, you may want to read our post about Anonymity, Transparency and Posting before joining. To post in our Member Forum or submit articles for publication you must register to join to become a member. The RRDi requires that you provide us with your contact info and mailing address and agree to our policies since you become a corporate member of the RRDi. Your privacy is our utmost concern and we will take precautions to ensure your privacy will not be violated. Our Privacy Policy is solid. If you have concerns regarding your privacy, please consider this post.

    Once you have joined you can post in our secure members forum which will allow you to post questions to the Medical Advisory Consultants (MAC) and to fellow members or to submit articles for our journal. Yes, members may have an article published on our web site or in our journal. You may receive a free G Suite account with our organization upon approval that you have the volunteer spirit. 

    Conclusion

    The Charter of the Corporation states the purpose and Mission Statement which clearly outlines the goals of our non profit corporation. If you are interested in the history of how and why this non profit organization was formed click here for more information. Please take our 2016 Rosacea Survey whether you join or not.  Mahalo. 

    The RRDi is registered at GuideStar

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  • Posts

    • "The pathogenesis of IFAG is still unclear but it is likely to be associated with granulomatous rosacea in childhood....supports the hypothesis that IFAG may belong to the spectrum of rosacea."

      Case Rep Dermatol. 2016 May-Aug;8(2):197-201
      Idiopathic Facial Aseptic Granuloma in a 13-Year-Old Boy Dramatically Improved with Oral Doxycycline and Topical Metronidazole: Evidence for a Link with Childhood Rosacea.
      Orion C, Sfecci A, Tisseau L, Darrieux L, Safa G
    • Related Articles Idiopathic Facial Aseptic Granuloma in a 13-Year-Old Boy Dramatically Improved with Oral Doxycycline and Topical Metronidazole: Evidence for a Link with Childhood Rosacea. Case Rep Dermatol. 2016 May-Aug;8(2):197-201 Authors: Orion C, Sfecci A, Tisseau L, Darrieux L, Safa G Abstract
      Idiopathic facial aseptic granuloma (IFAG) is a rare, benign pediatric dermatological lesion that occurs in children between 8 months and 13 years of age. The pathogenesis of IFAG is still unclear but it is likely to be associated with granulomatous rosacea in childhood. Here we describe a case of IFAG in a 13-year-old boy who showed a dramatic response to oral doxycycline and topical metronidazole, which supports the hypothesis that IFAG may belong to the spectrum of rosacea.
      PMID: 27920676 [PubMed - in process] {url} = URL to article
    • The Effect of Recurrent Pulsed Dye Laser Treatments in Rosacea Patients. J Cosmet Laser Ther. 2016 Dec 06;:1-17 Authors: Strand Do M, Bergqvist G, Griffith S, Bergqvist E Abstract
      BACKGROUND: Rosacea is common chronic skin condition and is known to have a negative impact on patient's quality of life. The use of pulsed dye laser treatment to improve quality of life is well documented in the literature. Prior work has emphasized a single series of laser treatments but we investigated the effect of recurrent pulsed dye laser treatment on patient's symptomalology and quality of life.
      METHODS: We designed an 8 question survey about patient's rosacea symptoms, prior treatments, effectiveness of prior treatments, benefit of the laser treatments, and number of laser treatments. The survey (Figure 1) was offered to all patients over the age of 18 who were beginning or currently undergoing pulsed dye laser treatments who previously failed medical management for their erythematelangiectatic rosacea.
      RESULTS: Fifty patients completed the study. Patients had significant improvement in symptoms and show statistically significant benefit of repeated pulse dye laser treatment for rosacea versus a single series of treatments.
      CONCLUSION: Our study is unique in that it provides evidence that recurrent pulse dye laser treatments are beneficial to patients by improving quality of life and decreasing symptoms. This finding supports the notion that chronic treatment is needed for this chronic disease.
      PMID: 27922281 [PubMed - as supplied by publisher] {url} = URL to article
    • "Conclusions: A majority of patients with erythromelalgia (75%) reported improvement in pain with topical application of a compounded amitriptyline-ketamine formulation. The medication was well tolerated." Neurology, Mayo Clinic
      Topical amitriptyline combined with ketamine for the treatment of erythromelalgia: A retrospective study of 36 patients at mayo clinic
      Timothy J. Poterucha, Sinead L. Murphy, Mark D P Davis, Paola Sandroni, Richard H. Rho, Roger A. Warndahl, William T. Weiss
    • Found one other anecdotal report, Despotic_Monarch, who reports, "The only thing out of 25 or so drugs/medications that worked is a cream base that contains... Ampitriptyline 1.0%/ Ketamine 0.5% cream in a 1 to 1 ratio. In just one week I went from being a tomato to a piece of paper and finally my skin can heal. If you are suffering from Rosacea this might be an amazing/safe treatment for you! Please see your derm."