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Guest - Aug 22 2012 12:47 PM
The Only Non Profit Organization Founded by Rosaceans [rosacea sufferers] for Rosaceans
Welcome to the RRDi official web site.
The Rosacea Research & Development Institute [RRDi] is the first 501 (c) (3) non profit corporation established June 7, 2004 in the State of Hawaii, USA for the purpose of finding a cure for rosacea, researching rosacea, and to form a patient advocacy organization established by volunteer rosaceans for rosacea sufferers. The Charter of the Corporation states the purpose and Mission Statement which clearly outlines the goals of the non profit corporation. If you are interested in the history of how and why this non profit organization was formed click here for more information.
What is Rosacea?
Rosacea is a chronic and sometimes progressive disorder of the face, characterized by some or all of the following symptoms:
Extremely sensitive skin, blushing, flushing, permanent redness, burning, stinging, swelling, papules, pustules, broken red capillary veins, red gritty eyes (which can lead to visual disturbances) and in more advanced cases, a disfiguring bulbous nose. Men and women of all ages can be affected, with over 45 million estimated sufferers of Rosacea worldwide. For more info click here.
"Rosacea is a multifactorial, hyper-reactivity, vascular and neural based disease with a broad range of facial and manifestations where normal vasodilation is greater and more persistent and involves an autoimmune component where microscopic amounts of extravasated plasma induce localized dermal inflammation where repeated external triggers lead vasodilation, telangiectasias, redness with eventual fibrosis and hypertrophic scarring of the dermis." Sandra Cremers, M.D., F.A.C.S., RRDi MAC Member.
"Rosacea is probably a collection of many different diseases that are lumped together inappropriately." Zoe Diana Draelos, MD - January 25, 2007. Dr. Draelos is a member of the ROSIE [ROSacea International Expert] Group that says the current classification of rosacea is controversial. Dr. Draelos is also a member of the RRDi MAC. Just because you have a red face might mean you have another skin condition besides rosacea. Your physician should differentiate rosacea from a plethora of other skin conditions. For more info click here.
Sometimes rosacea is misdiagnosed. No one really knows what causes rosacea and there are a number of theories for your consideration. Rosacea, therefore, can be confusing, a bewilderment and a mystery. For more info click here.
Check our FAQs about rosacea.
More Info on the RRDi
The RRDi is in the forefront of other rosacea non profit organizations with the digital medical revolution. Your rosacea is an individual case and you need to find what treatment will work for your rosacea and not a treatment aimed at the masses. Individuals can come together and share data, using collaboration tools that the RRDi offers for free. If you have the volunteer spirit and want to become part of this innovative non profit, learn how you can volunteer and be part of this digital medical revolution.
The inaugural edition of the Journal of the Rosacea Research & Development Institute is available at iUniverse and Amazon. We will continue to publish more editions of the journal with volunteers and print on demand publications if we receive donations or we receive enough volunteer articles to publish. You can become part of this if you have the volunteer spirit or if you donate to make the possible. We would prefer to offer $1,000 to each published article in our journal to authors, including any professionals, who submit articles to us, if we have the funds to accomplish this. However, if enough volunteers write rosacea articles for us to publish we will continue to publish using volunteers as we did with our first publication of the Journal of the RRDi.
The RRDi is a volunteeer member driven organization and invites rosacea sufferers to become involved. Volunteering is the force that drives the organization and is an integral spirit of the RRDi philosophy. The RRDi warmly invites rosacea sufferers to participate in this non profit which you can become a part of. You are not required to volunteer when you join, since we still want you to join even if you can't volunteer. If all you can do is become a member, that will increase our membership which is helpful in itself. But if you can volunteer, let us know on the application. Please join. For a limited time you may receive a free ebook, Rosacea 101: Includes the Rosacea Diet as a free gift from the founder/director. Click here for more info on how to receive this free gift by following the directions when you join.
If you can't volunteer and simply want to join to increase our membership that could be the least you do. Imagine if we had tens of thousands of members we might get the attention of the medical community and the public to our mission. Donating would be appreciated so we can continue to publish our journal, keep this web site going and sponsor rosacea research. Please donate.
If you would like to help us reach our goals and continue to publish rosacea articles and keep this web site going, or write an article for our journal please join and send us your article. We would be happy to consider your article for publication. Members may submit articles in our forum. There are a number of posts on rosacea for your consideration as well.
How to Join
Once you have joined you can post in our secure members forum which will allow you to post questions to the Medical Advisory Consultants (MAC) and to fellow members or to submit articles for our journal. Yes, members may have an article published in our journal.
The RRDi is registered at GuideStar