Jump to content
Sign in to follow this  
Admin

Rosacea Research in Perspective of Idiopathic Diseases

Recommended Posts

?.png
In order to really understand and put rosacea research in perspective it is important to understand where rosacea is in terms of total disease on this planet. Google Answers says, "According to the World Health Organization, there are still no effective treatments available for around three quarters of the 30,000 diseases known today worldwide." [1] “For two thirds of all known sicknesses—about 20,000—there is so far no way of treating the cause.” [2] So rosacea is somewhere between three quarters and two thirds of what is termed idiopathic diseases. [3] Since the cause of rosacea isn't known, and the number of theories on the cause of rosacea has grown exponentially over the years, rosacea is an idiopathic disease. 

According to Michael Detmar, M.D., in 2003, only one paper was published for every 144,000 rosacea patients in the United States, compared to a 1-to-11 ratio for melanoma and 1 to 4,900 for psoriasis. [4] This indicates how rosacea research is compared to other idiopathic skin diseases that have a more devastating impact on sufferers. If you had to choose one of these three diseases as a consequence which one would you choose?  Comparing rosacea to melanoma or psoriasis does put rosacea into perspective when it comes to suffering.  

So any papers published about rosacea is indeed something to be grateful for. With the increase of spending on pharmaceutical treatments for rosacea comes more research spending. The NRS and AARS, being sponsored by pharmaceutical companies, have engaged in most of the rosacea research. 

Dr. Kligman mentions the 'indifference of the National Institutes of Health, which with an annual budget of nearly 30 billion dollars, has not seen fit to fund a single grant for the investigation of rosacea.' Dr. Kligman also says that most research done on rosacea is by the skin industry which is 'voluminous literature, mainly focused on treatments sponsored by commercial interests; perhaps not the most credible source of unbiased research.' ”

A Personal Critique on the State of Knowledge of Rosacea, Albert M. Kligman, M.D., Ph.D.
Department of Dermatology, University of Pennsylvania, Philadelphia, PA, U.S.A.
publikation_kligman.pdf

If rosaceans want to sponsor their own novel rosacea research, they would need to be united, have a volunteer spirit, and use the RRDi to sponsor their own research. Put that into perspective. 

Imagine if 10,000 RRDi members united together and each donated one dollar and we then sponsored a rosacea research clinical study that is peer reviewed, double blind, and placebo controlled using the RRDi MAC as collaboration on this research study. Put that into perspective. 

End Notes

[1] how many diseases are there?

[2] The German pharmaceutical publication Statistics ’97

[3] Idiopathic Disease, Wikipedia

[4] Rosacea: turning all stones for source of pathology, Rebecca Bryant, Dermatology Times, Jun 1, 2004

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Sign in to follow this  

×