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Brady Barrows

Soolantra Review by Brady Barrows

40 posts in this topic

Sorry if I was off topic. I wish I could be one of those who could eat or drink anything. I read somewhere (can't find it now) that at a recent dermatologists convention a discussion of the mystery of how Soolanta improves Rosacea with no data on demodex density counts (whether the count is lowered). However there is data that it works better than Mirvaso or Metronidazole. 

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Brady, from your last 2 posts would I be correct in saying you're not convinced that Soolantra kills demodex? 

 

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3 hours ago, Rory said:

Brady, from your last 2 posts would I be correct in saying you're not convinced that Soolantra kills demodex? 

 

Ivermectin is supposed to kill mites. I am simply not having the success that many have reported happens to them using Soolantra. I was hoping the fourth month would really be more of an improvement but so far I am not impressed. I am seeing the dermatologist on Feb 15 and get a professional evaluation on my progress. I can tell you that using the ZZ cream works way better for me than Soolantra. I guess I am one of those who responds better to sulphur treatment than Ivermectin. 

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I guess some could be sceptical about Soolantra's ability to kill demodex. Especially since there are no studies to prove it. Sometimes oral meds don't work as well, or even not at all, when transformed into a topical device. But I believe there is some proof that Soolantra is as effective as oral ivermectin. You may have read this study http://www.sciencedirect.com/science/article/pii/S120197121201315X

It compares oral ivermectin to oral ivermectin and metronidazole in the reduction of demodex and improvement of symptoms in 4 different skin conditions. The author of this study did make one observartion which is very much identical to so many testimonials we read about from users of Soolantra. Here is a paragraph from the study:

"In the cases who received ivermectin alone, there was a gradual reduction in the mean follicle mite count at the first week visit . However, rebound elevation in the mite count was evident in the third week in some patients with rosacea and those with anterior blepharitis lesions."

This was only a 4 week study so obviously there was no report of a 6th week rebound.

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Went to the dermatologist today and he advised me to stop Soolantra since I am not a candidate for this treatment. After 105 days, I was hoping Soolantra would work for me, but alas, as you can see below, my rosacea seems to inflamed too much from using Soolantra. My dermatologist prescribed a generic sulphur based cream for me to try since I have responded well in the past to similar treatment using the ZZ cream. I have to pick up the prescription and will start another review later. Here are my photos for today: 

Photo on 2-15-17 at 10.37 AM.jpg

Photo on 2-15-17 at 10.37 AM #2.jpg

Photo on 2-15-17 at 10.38 AM.jpg

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Brady, what if you have such a heavy infestation with demodex, that it makes it hard for your skin to deal with the die off by itself? I think you should try taking oral antibiotics along with Soolantra and push through this phase for another month. You have put such an effort to this, it would be a pity if you quit earlier.

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8 hours ago, MariaSt said:

Brady, what if you have such a heavy infestation with demodex, that it makes it hard for your skin to deal with the die off by itself? I think you should try taking oral antibiotics along with Soolantra and push through this phase for another month. You have put such an effort to this, it would be a pity if you quit earlier.

Maria, 

You are so kind. My face has been burning where I have been applying the Soolantra everynight, even when I wash it off in the am, the burning continues. I explained all this the dermatologist who said to stop using it. I really did give it a go. There must be something in the Soolantra that irritates my skin. It has been over 24 hours since I applied the Soolantra and my face has already started to calm down and cool off. The burning has almost completely gone. I am going to let my skin rest for a few days to recover from this and then apply the sulphur generic prescription my dermatologist prescribed since I have experienced good results from the sublimed sulphur in the ZZ cream. However, the ZZ cream costs more than my generic prescription since I have insurance. I am now convinced that Soolantra just isn't for me. My dermatologist says one out of four of his rosacea patients gets excellent results with Soolantra. I may in the future use a dab of Soolantra on a zit to see what happens, but no more night applications for me. 

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Well done Brady. I think you have given Soolantra a fair go. You should have seen something really good by now so I don't blame you for ditching it. I have a similar problem with it and at the moment I need to use Tacrolimus to keep the inflammation at bay. I don't think I'm going to last much longer. 

Anyway I'm curious. Your Derm doesn't seem to be having huge success with his patients on Soolantra. 25% is quite a low success rate, especially when compared to the 70% success rate in the one year study. Of course I accept that a certain percentage could have ditched it too early in their treatments, but 1 in 4 is still quite low. You told your Derm that you have good results with sulfur so obviously he prescribed what you wanted. But I'd love to know what your Derm is having most success with treating the 3 out of 4 who failed on Soolantra. 

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It could be the case that your demodex is resistant to ivermectin and after all these years of sulpur usage it's also resistant to sulfur, so I wouldn't expect much of this generic sulfur cream. I know you have the feeling that sulfur controls it, but obviously it's not a cure, otherwise you wouldn't search for other options, Brady. Maybe you could try the permethrin cream. I just read an article about permethrin being effective in ivermectin-resistant cases of scabies infection, the same should apply for demodex.

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20 hours ago, MariaSt said:

It could be the case that your demodex is resistant to ivermectin and after all these years of sulpur usage it's also resistant to sulfur, so I wouldn't expect much of this generic sulfur cream. I know you have the feeling that sulfur controls it, but obviously it's not a cure, otherwise you wouldn't search for other options, Brady. Maybe you could try the permethrin cream. I just read an article about permethrin being effective in ivermectin-resistant cases of scabies infection, the same should apply for demodex.

Maria, 
Actually I am cheap, since it costs me around $40/jar for the ZZ cream which I actually prefer. But since I have insurance in my old age now, I would prefer to pay a nominal fee for a sulphur treatment if it works reasonably well. I was using the sulphur butter due to a post made by Joanne Whitehead, PhD, (Assistant Director of the RRDi) since it was cheap and it works sort of ok, but I don't like the oily part of the formula since my skin is already oily. The ZZ cream is so different and it dries up my skin which is wonderful, and it feels cool when you put it on due to the menthol in it. I just love it and have one jar left as an emergency jar. So if the Americans can make a cheaper sulphur topical I am willing to give it a try and apparently there are a number of them. My insurance wouldn't approve the one my dermatologist prescribed yesterday (not sure of the exact Rx that was denied) and it takes days to do the documents to get it approved and my doctor doesn't like having his staff write up these letters (such are the woes of the American Medical System), so I heard he can write a Rx for a generic sulphur drug that my insurance will accept. Time will tell what Rx I get. 

As to the demodex population, I think I nuked all those little buggers with the ivermectin. My face is healing nicely each day now and I plan on doing nothing but washing with water for the next few days and then I will take photos of my face to show you the difference. I read a post in RF from Toen (post #684) how he only uses Soolantra occasionally which seems like a good idea to me, like if I get a pustule, since I noticed the Soolantra seems to work rather nicely on them and reduces them quickly, within a couple of days. I think I just over did the Soolantra. You would think that someone would mention this, that Soolantra is powerful, that more is not good sometimes. I can still get more tubes of Soolantra if I want. But I think the one I have which is half gone will last me months. 

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I haven't used the Soolantra since February 13, 2017 so for more than 72 hours my skin has been healing and I don't have the burning feeling I had, so I thought I would take three more photos to show my skin condition after using Soolantra for 105 days, just three days later. 

Photo on 2-17-17 at 5.12 PM.jpg

Photo on 2-17-17 at 5.12 PM #2.jpg

Photo on 2-17-17 at 5.12 PM #3.jpg

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For the past two weeks have not used Soolantra, even though I have a half tube left and purchased a brand new refill for March. This should last me a while with Soolantra. My insurance would not cover the brand name sulphur cream my dermatologist gave me a Rx for. Called the doctor's office and the girl said there is no generic or other Rx to write for the sulphur prescription (I forgot to write down the brand name). I will be seeing the doc on March 8 for a follow up visit and ask him about it. So, I can either use my last jar of the ZZ cream or the Sulphur butter I have on hand. So far I have been using a little dab of Neosporin Bacitracin Zinc-Neoycin Sulfate-Polymyxin B Sulfate-Pramoxine HCL ointment on some of the red spots left over from the Soolantra. My skin is not burning anymore and it seems a lot healed. See for yourself. I plan on trying the Soolantra again but rarely to see if this keeps the pustules at bay. I am convinced I have nuked all the mites and now only need a little maintenance now and then with this regimen. I do think the Soolantra did actually clear up my face but using it every day is way too much. Maybe once a week or so should suffice, but time will tell. I will keep my regimen in this thread and post more photos. This forum is an excellent format for rosacea sufferers to post photos. We even have a gallery that each one could use and members can create their own blog, or you can even start a chat session. But adding photos in the forum like this is easy. And if you are worried about posting your photos you can always cover the eyes with a black bar or something or worried about posting you name you can put up a fake display name and no one will ever know who you are. This post explains how to change your display name to a cryptic one and any concerns you have about privacy. Can you beat this format that IPS offers? I don't think so. So come on, Join the RRDi

Photo on 3-1-17 at 4.46 PM.jpg

Photo on 3-1-17 at 4.47 PM.jpg

Photo on 3-1-17 at 4.48 PM.jpg

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On 2/7/2017 at 8:22 AM, Rory said:

Sorry Brady but I didn't say that those using Soolantra would notice a better improvement with a low carb diet. I was referring to the 30% of participants in the Soolantra study who failed to see any improvement. 70% of participants were clear/almost clear without any mention of a diet. Also, I have no idea what most of your last post has to do with my previous post. What exactly Soolantra does for Rosacea may very well still be a little up in the air. My previous post was specifically looking at your case, where it seems that Soolantra or ZZ cream will treat your secondary symptoms, and diet addresses the primary cause. Or maybe it's the other way round. I was hoping that Soolantra could have treated both aspects of your Rosacea, but that doesn't seem to be the case so far. 

Like I've said, there have been some people on the Soolantra thread who have reported being able to eat and drink whatever they want while using Soolantra. But I guess this may not apply to all of us.

 

I see. I know that low carb/high protein helps control my rosacea. I think that Soolantra works for some just like just about every other treatment or rosacea. I do think it is worth trying out since so many say it works for them. Soolantra is definitely one of the treatments in the armamentarium for rosacea. 

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Thought I would update my Soolantra thread. I stopped Soolantra as you can review on February 13. I then got some samples from my dermatologist with the following prescription  treatments: 

Avar-e Green Color Corrective Emolilent Cream (sodium sulfacetamide 10%, sulfur 5%)

Ovace Plus Cream (sodium sulfacetamide 10%)

Ovace Plus Lotion (sodium sulfacetamide 9.8%)

My dermatologist gave me a number of Soolantra samples too!

In March, April and through today I would try the above three samples alternatively as well as use Soolantra once in a while (about once a week). I have found that the Avar-e Green seems to work the best for me. However the other day I got a sunburn because I go to the beach and swim just about every day and really got burnt. Not good for rosacea. But I have enclosed some update photos. I will continue to use this thread to post my regimen. 

Photo on 5-17-17 at 5.09 PM.jpg

Photo on 5-17-17 at 5.12 PM.jpg

Photo on 5-17-17 at 5.13 PM.jpg

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Thats a nice improvement Brady. I take it that Avar is a green coloured cream which masks the redness somewhat as well as being antibacterial and anti inflammatory? What about your diet. Do you still have to avoid carbs while using Avar?

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