RTC's, IRBs and Cochrane Reviews:
RCT - randomized controlled studies (I'm not a good typist)
considered the best evidence
IRB - institutional review board - entity doing human research
ethical review, consenting, methodology approval before study begins
Cochrane Reviews (google it)
The producer of evidence for evidence based practice
Dr. Zuren has done reviews, I believe
Thanks for clearing up my understanding on RRDi innitiatives.
Studies of rosaceans, like those done by NRS, can add important information. Rosaceans suggesting their questions for eachother, then survey. "Does x flare, improve or have no effect on your rosacea? Of x, is there one item which is specifically important to your rosacea? x = dairy, etc.
While you gather $ for more rigorous studies (RCT/Cochrane level), I would bet there is much you could do with help of your members (epidemiologist, polling expert).
Apologies for not replying in a timely fashion.