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Guide

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  1. Just saw a new page on the NRS website designated, 'key staff' and you can see a screen shot below: If you will note in the above paragraph, Mr Huff is stated as 'president of the Glendale Communications Group, which provides infrastructure and personnel for for the NRS program services at no cost to its members.' If this is correct, why do the past 22 years of public Form 990s (1998 thru 2019) show that over $10 million of the donations to the NRS have been spent on private contractors that are owned by Mr. Huff, including Glendale Communications Group? For example, in 2019 the NRS spent $285,871 on 'private contractors' including Glendale Communications Group which happens to be 94% of the donations given to the NRS in 2019. If this is 'no cost to its members' then why report this expense on Form 990 for 2019? In the previous year, 2018, the NRS spent $432,408 on private contractors, one of which is Glendale Communications Group, which happens to be 93% of the total donations given to the NRS in 2018. For a complete list of these Form 990s click here. For a breakdown of how the NRS spends its donations click here.
  2. Guide

    Final Appeal

    Thanks for your insight into all this. Very few, as you have pointed out, are motivated to express any thought on this subject. The RRDi has social media accounts. Would you like to volunteer to moderate and manage one or more of them?
  3. Every dermatological disease assessed had a significant increase in TME when compared to the prior year. This increase was most significant for acne vulgaris (808%), psoriasis (792%), malignant skin neoplasms (716%), atopic dermatitis (609%), rosacea (566%) and contact dermatitis (529%). Published online 2021 Aug 19. doi: 10.1016/j.jid.2021.07.109 LB767 A multicenter analysis of patients using telemedicine for dermatological conditions during the COVID-19 pandemic
  4. Rosacea-like eruptions following COVID-19 vaccination More Information
  5. Rosacea-like eruptions following COVID-19 vaccination More Information
  6. While guests can view a significant number of posts and pages on the RRDi website, Guests cannot view the PRIVATE member forum. For example, here are the topics posted today, August 11, 2021. To view these topics, Guests need to register an email address. See this screen shot below for the topics posted today:
  7. The RRDi is pleased to announce a new page, Rosacea Episodes.
  8. You may be having issues trying to navigate our website using a mobile device so here is a helpful tutorial to find Rosacea Topics. Watch Video. Step one - Finding the Menu on the Home page (iOS - hopefully Android users are similar) - Look for the three bars top right corner (click): You should then see the following menu: Just under the HOME button find the NAVIGATOR button and click on it and you should see the following menu: The first word 'Navigator' is simply the title of this menu (don't click on it). The menu choices are now shown below this word, 'Navigator,' and you should begin scrolling down till you see the following: The menu button ROSACEA TOPICS is the second to the last choice. Click on ROSACEA TOPICS which brings you to the following screen: You may want to turn your mobile device horizontally to view the videos and subforums and scroll down to see all the choices: Now you can view the subforums but you are not allowed to enter a subforum without being a member of the RRDi. Membership is free and all you do register and then you can view over 7K posts and over 5.4K rosacea topics. Learn more. Hope this helps mobile device users on how to navigate our website. If you have questions, find the reply to this topic button and ask.
  9. Just to clarify, when a member doesn't post for 30 days, the active member is then automatically switched to the inactive member group. When an inactive member logs in and posts in any area open to guests, the member is automatically switched back to the active member group.
  10. A novel topical consisting of 15% Azelaic Acid and 1% Dihydro Avenanthramide D for rosacea is mentioned in a clinical paper posted in our member forum at this link. You will need to join the RRDi to view this post. Membership is free. We happen to have the MOST private rosacea forum on the internet, if you join using Sign in with Apple and use Apple's Hide My Email. Android users can still join as well as Windows users are welcome.
  11. An article published at mgblifestyle, discusses 'cold and formaldehyde-containing foods' as well as 'a pretty fancy-sounding protein' (actually a couple of fancy sounding proteins) that 'sets off a chain reaction that ultimately results in the release of histamines and cathelicidins by your skin's immune system.' The two proteins discussed in the article are transient receptor potential vanilloid 4 (TRPV4) and transient receptor potential alkyrin 1 (TRPA1). New Research Shows How Certain Foods & Drinks Affect Rosacea, Alexandra Engler, mgblifestyle Grapefruit image courtesy of Wikimedia Commons
  12. Received the 2019 Form 990 from the AARS. Total revenue received $258,366. Who contributed most of the revenue? The 'skin industry.' GALDERMA LABORATORIES L.P. $87.5K LA ROCHE POSAY $15K ORTHO DERMATOLOGICS $35K SOL-GEL TECHNOLOGIES INC. $15K SUN PHARMACEUTICALS $36K ALMIRALL, LLC (FORMERLY AQUA PHARMA) $35K BOTANIX PHARMACEUTICALS $5K EPI HEALTH, LLC $5K Total donations from the skin industry is $233.5K. The AARS was refunded one of the grants given out last year in the amount of $10K and also received $10,150 in membership dues from dermatologists. See below: What did the AARS spend most of its donations on? Again, the largest amount was on 'Conferences, conventions, and meetings' in the amount of $167,836. Two other large expenses was $48K on 'management' and $12,280 on 'website expenses.' See below: Is this the way you think a non profit organization for rosacea should be run? If you are a dermatologist it seems appropriate to run this non profit the way it is run. However, if you are a rosacea sufferer, is this the rosacea non profit organization you want to support? Why should there be a rosacea non profit run by rosaceans? You can read the Form 990 below: AARS-2020Form990.pdf
  13. Received the 2019 Form 990 from the AARS. Total revenue received $195,638 and here is the breakdown of the top contributors who donate at least $5K: ACLARIS THERAPEUTICS $10K CUTANEA LIFE SCIENCES (NOW OWNED BY BIOFRONTERA) $35K CASSIOPEA S.P.A. $10K FOAMIX PHARMACEUTICALS $10K GALDERMA LABORATORIES L.P. $50K RODAN AND FIELDS, LLC $35K THE PROACTIV COMPANY $35K Total from 'skin industry' $185K It would be safe to say that the vast majority of donations are from the 'skin industry.' In addition to this, $10,450.00 revenue came from membership dues (dermatologists). It would be prudent to note that there is little, if any, public support donations to the AARS. This organization operates more like a 501 6 c which is a business league. What did the AARS spend most of the 'donations' on? $234,961 on "Conferences, conventions, and meetings." You ask, how can the AARS spend more than it received in revenue? Answer: carry over assets. One expense worth noting is how the AARS spent $3,830.00 on its website. Here is a screen shot of all the expenses: The AARS did spend $40K on research grants in 2019 and you can review below who received the money: Your can read the form 990 yourself below: AARS-2019-Form990.pdf
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