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Guide

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  1. Just saw a new page on the NRS website designated, 'key staff' and you can see a screen shot below: If you will note in the above paragraph, Mr Huff is stated as 'president of the Glendale Communications Group, which provides infrastructure and personnel for for the NRS program services at no cost to its members.' If this is correct, why do the past 22 years of public Form 990s (1998 thru 2019) show that over $10 million of the donations to the NRS have been spent on private contractors that are owned by Mr. Huff, including Glendale Communications Group? For example, in 2019 the NRS spent $285,871 on 'private contractors' including Glendale Communications Group which happens to be 94% of the donations given to the NRS in 2019. If this is 'no cost to its members' then why report this expense on Form 990 for 2019? In the previous year, 2018, the NRS spent $432,408 on private contractors, one of which is Glendale Communications Group, which happens to be 93% of the total donations given to the NRS in 2018. For a complete list of these Form 990s click here. For a breakdown of how the NRS spends its donations click here.
  2. Guide

    Final Appeal

    Thanks for your insight into all this. Very few, as you have pointed out, are motivated to express any thought on this subject. The RRDi has social media accounts. Would you like to volunteer to moderate and manage one or more of them?
  3. Every dermatological disease assessed had a significant increase in TME when compared to the prior year. This increase was most significant for acne vulgaris (808%), psoriasis (792%), malignant skin neoplasms (716%), atopic dermatitis (609%), rosacea (566%) and contact dermatitis (529%). Published online 2021 Aug 19. doi: 10.1016/j.jid.2021.07.109 LB767 A multicenter analysis of patients using telemedicine for dermatological conditions during the COVID-19 pandemic
  4. Rosacea-like eruptions following COVID-19 vaccination More Information
  5. Rosacea-like eruptions following COVID-19 vaccination More Information
  6. While guests can view a significant number of posts and pages on the RRDi website, Guests cannot view the PRIVATE member forum. For example, here are the topics posted today, August 11, 2021. To view these topics, Guests need to register an email address. See this screen shot below for the topics posted today:
  7. The RRDi is pleased to announce a new page, Rosacea Episodes.
  8. You may be having issues trying to navigate our website using a mobile device so here is a helpful tutorial to find Rosacea Topics. Watch Video. Step one - Finding the Menu on the Home page (iOS - hopefully Android users are similar) - Look for the three bars top right corner (click): You should then see the following menu: Just under the HOME button find the NAVIGATOR button and click on it and you should see the following menu: The first word 'Navigator' is simply the title of this menu (don't click on it). The menu choices are now shown below this word, 'Navigator,' and you should begin scrolling down till you see the following: The menu button ROSACEA TOPICS is the second to the last choice. Click on ROSACEA TOPICS which brings you to the following screen: You may want to turn your mobile device horizontally to view the videos and subforums and scroll down to see all the choices: Now you can view the subforums but you are not allowed to enter a subforum without being a member of the RRDi. Membership is free and all you do register and then you can view over 7K posts and over 5.4K rosacea topics. Learn more. Hope this helps mobile device users on how to navigate our website. If you have questions, find the reply to this topic button and ask.
  9. Just to clarify, when a member doesn't post for 30 days, the active member is then automatically switched to the inactive member group. When an inactive member logs in and posts in any area open to guests, the member is automatically switched back to the active member group.
  10. A novel topical consisting of 15% Azelaic Acid and 1% Dihydro Avenanthramide D for rosacea is mentioned in a clinical paper posted in our member forum at this link. You will need to join the RRDi to view this post. Membership is free. We happen to have the MOST private rosacea forum on the internet, if you join using Sign in with Apple and use Apple's Hide My Email. Android users can still join as well as Windows users are welcome.
  11. An article published at mgblifestyle, discusses 'cold and formaldehyde-containing foods' as well as 'a pretty fancy-sounding protein' (actually a couple of fancy sounding proteins) that 'sets off a chain reaction that ultimately results in the release of histamines and cathelicidins by your skin's immune system.' The two proteins discussed in the article are transient receptor potential vanilloid 4 (TRPV4) and transient receptor potential alkyrin 1 (TRPA1). New Research Shows How Certain Foods & Drinks Affect Rosacea, Alexandra Engler, mgblifestyle Grapefruit image courtesy of Wikimedia Commons
  12. Received the 2019 Form 990 from the AARS. Total revenue received $258,366. Who contributed most of the revenue? The 'skin industry.' GALDERMA LABORATORIES L.P. $87.5K LA ROCHE POSAY $15K ORTHO DERMATOLOGICS $35K SOL-GEL TECHNOLOGIES INC. $15K SUN PHARMACEUTICALS $36K ALMIRALL, LLC (FORMERLY AQUA PHARMA) $35K BOTANIX PHARMACEUTICALS $5K EPI HEALTH, LLC $5K Total donations from the skin industry is $233.5K. The AARS was refunded one of the grants given out last year in the amount of $10K and also received $10,150 in membership dues from dermatologists. See below: What did the AARS spend most of its donations on? Again, the largest amount was on 'Conferences, conventions, and meetings' in the amount of $167,836. Two other large expenses was $48K on 'management' and $12,280 on 'website expenses.' See below: Is this the way you think a non profit organization for rosacea should be run? If you are a dermatologist it seems appropriate to run this non profit the way it is run. However, if you are a rosacea sufferer, is this the rosacea non profit organization you want to support? Why should there be a rosacea non profit run by rosaceans? You can read the Form 990 below: AARS-2020Form990.pdf
  13. Received the 2019 Form 990 from the AARS. Total revenue received $195,638 and here is the breakdown of the top contributors who donate at least $5K: ACLARIS THERAPEUTICS $10K CUTANEA LIFE SCIENCES (NOW OWNED BY BIOFRONTERA) $35K CASSIOPEA S.P.A. $10K FOAMIX PHARMACEUTICALS $10K GALDERMA LABORATORIES L.P. $50K RODAN AND FIELDS, LLC $35K THE PROACTIV COMPANY $35K Total from 'skin industry' $185K It would be safe to say that the vast majority of donations are from the 'skin industry.' In addition to this, $10,450.00 revenue came from membership dues (dermatologists). It would be prudent to note that there is little, if any, public support donations to the AARS. This organization operates more like a 501 6 c which is a business league. What did the AARS spend most of the 'donations' on? $234,961 on "Conferences, conventions, and meetings." You ask, how can the AARS spend more than it received in revenue? Answer: carry over assets. One expense worth noting is how the AARS spent $3,830.00 on its website. Here is a screen shot of all the expenses: The AARS did spend $40K on research grants in 2019 and you can review below who received the money: Your can read the form 990 yourself below: AARS-2019-Form990.pdf
  14. Watch the Trailer Learn More
  15. Guide

    Brady's Blog

    We have made the MEMBER FORUM totally private now. If one registers with Sign in with Apple, hides behind a cryptic, mysterious DISPLAY NAME and hides their email address using Apple's Hide My Email service when registering, this makes the RRDi member forum the most private rosacea forum on the internet. Guests can only view a portion of our website. Registered Active members have full access to the Member Forum.
  16. Registered Active Members Have Access to the Following Over 7K posts on rosacea information! Member Forum • Community Support • Co-Existing Conditions • All the Subforums in Rosacea Topics • Cosmetics • Demodectic Rosacea Forum • Diagnosis • Phenotypes, Subtypes, Rosacea Variants & Mimics Subforum • Rosacea Research • Newbie Rosaceans • All the Subforums in Non Prescription • All the Subforums in Photo Dynamic Therapy (PDT) • All the Subforums in Prescription • Probiotics • Rosacea in Remission • Rosacea & Psychology • All Subforums of Rosacea Theories • Secondary Therapy • All Subforums in Trigger Avoidance • RSS • All the Topics in Ask the MAC • All the Topics in Ask the Board • Funding Committee • Public Relations • Grant Writers Public Forum • OFF TOPIC • All Pages/Posts Guests Can Access • Error Messages If you are seeing error messages when trying to access areas only registered active members are allowed to enter, these areas are not open to guests or inactive registered members. Read more about error messages. Member Information
  17. Guests May View the Following Home • Welcome • Blogs • Clubs • Site Index • Cause of Rosacea • Demodectic Rosacea • Misdiagnosed Rosacea • Phenotypes • Rosacea is a chronic inflammatory disease • Rosacea in the News • Announcements and News • RSS • Research Articles • MAC • Donate • Why Form Another Non Profit for Rosacea Sufferers? • Store • About • Amazon Associates • Board of Directors • Charter • Contact • Financial • Grant Writers • Journal of the RRDi • Legal Disclaimer • Links • Member Information • Message from the Founder • Mission • Publications • Official Documents • Rules • Sponsors • Volunteers • Guidelines • Staff Directory • Recent Activity • Search • Leaderboard • Downloads • 5Min • Alabama • Amazon • Apple • ATP • Benefit Risk Ratio in Rosacea • Butterfly • Carbohydrate • Comorbidities • Conditions • Demodectic Rosacea Articles • Demodex Solutions • Donation Sample Letter • Final Appeal • Google Workspace • Grassroots • Guidestar • GUT Rosacea • Hawaii • History of the RRDi • Horsepaste • How to Find Rosacea Topics on a Mobile Device Video • How To Videos • Invision Community • Isotretinoin • Ivermectin • MAC Alphabetical List • MAC Information • Mimics • Mirvaso • Mobile App • Most Private Rosacea Community • Newsletter • Non Profit • Nutrition • Oracea • Rebound • Recalcitrant • Remission • Is this Rosacea? • Rosaceans • RRF • Social Media • Soolantra • Sponsors • Square • Stages of Rosacea • Steroids • Store Video • Submit Your Paper • Subtypes • Sugar • Survey • Tee Shirts • Theories • Topics • Triggers • Why • ZZ Cream • Members Have Access To Way More Rosacea Information
  18. Hi Liesie, Welcome to the RRDi. I recommend you try posting in natural treatments in the non prescription member forum which is shown below in this category: Forum Home > Forums > Member Forum > Rosacea Topics > Non Prescription > Natural Treatments You will find a number of posts on this subject that may be of interest to you. If you are recommending your own natural products, we do allow members to ask you about your products for rosacea if that is what you are referring to, which you can reply to but the purpose of the RRDi is to help rosaceans. If they are not your own products, instead, natural products for rosacea you have found then that is the spirit we need in our community. Rosaceans helping rosaceans. The purpose of the RRDi is not to profit from other RRDi members, and instead encourages community support. This is a grassroots, non profit, patient advocacy organization for rosacea sufferers.
  19. Good point. The papers on coffee point this out. There may be evidence that caffeine triggers a flush, but there is no evidence that coffee or tea causes a rosacea flareup. Usually the confusion is when rosaceans think flushing is rosacea or rosacea is flushing, which adds to this quandary. However, if avoiding flushing is important to a rosacean, then it would be prudent to carefully avoid caffeine induced flushing.
  20. According to a paper on 'good skin quality,' "there are no standardized criteria for good skin quality." The authors of the paper then attempted "To establish a consensus for good skin quality parameters and measurement and treatment options, a virtual skin quality advisory board consisting of a global panel of highly experienced aesthetic dermatologists/aesthetic physicians was convened." The results were "strong consensus that good skin quality is defined as healthy, youthful in appearance (appearing younger than a person’s chronological age), undamaged skin and that skin quality can be described across all ethnicities by four emergent perceptual categories (EPCs): skin tone evenness, skin surface evenness, skin firmness, and skin glow." You may read the entire paper yourself: Clin Cosmet Investig Dermatol. 2021; 14: 643–654. Skin Quality – A Holistic 360° View: Consensus Results Kate Goldie, Martina Kerscher, Sabrina Guillen Fabi, Cyro Hirano,4 Marina Landau, Ting Song Lim, Heather Woolery-Lloyd, Kavita Mariwalla, Je-Young Park, Yana Yutskovskaya image courtesy of Clin Cosmet Investig Dermatol
  21. Image of naturally burning oil shale on a coast near Kimmeridge, on 18th August 2000, courtesy of Wikimedia Commons What is Sodium Bituminosulfonate? "Ammonium bituminosulfonate or ammonium bituminosulphonate (synonyms of ichthammol, CAS#8029-68-3 brand name: Ichthyol) is a product of natural origin obtained in the first step by dry distillation of sulfur-rich oil shale (bituminous schists)." Wikipedia "There are also no systematic studies on the use of schist oil extracts such as ammonium bituminosulfonate and sodium bituminosulfonate;" [1] "Most tar compounds are derived from coal tars, but oil shale tars (ichthammol), juniper tars (cade oil), or pine tars are sometimes used." [2] Sodium Bituminosulfonate for Rosacea It is of interest to note that a paper states, "Sodium bituminosulfonate is derived from naturally occurring sulphur-rich oil shale and is used for the treatment of the inflammatory skin disease rosacea....The aim of this study was to address the molecular mechanism(s) underlying the therapeutic benefit of the formulation sodium bituminosulfonate dry substance (SBDS), which is indicated for the treatment of skin inflammation, including rosacea....In summary, SBDS reduces the generation of inflammatory mediators from human neutrophils possibly accounting for its anti-inflammatory effects in rosacea." [3] Another paper on this subject states, "The aim of this study was to address the molecular mechanism(s) underlying the therapeutic benefit of the formulation sodium bituminosulfonate dry substance (SBDS), which is indicated for the treatment of skin inflammation, including rosacea." [4] History of Sodium Bituminosulfonate "One of these “old” substances is ammonium bituminosulfonate, which was already introduced in 1882 as “Ichthyol”. Its pale analogue was made known in the 1930s as “Ichthyol, light”. However, the mechanism of the antimicrobial activity of bituminosulfonate is still unclear. These compounds are water-soluble substances obtained from the sulfur-rich oil shale and represent the two fractions, which are the pale sulfonated shale oil (PSSO) and the dark sulfonated shale oil (DSSO), from the dry distillation process. The few available publications on bituminosulfonate involve a variety of microbial species in outdated research experiments and give only very limited insights on the in vitro mechanism and activity. A recent publication by Idelevich and Becker focused on the in vitro activity of sodium bituminosulfonate within the scope of current recommendations for antimicrobial susceptibility testing (AST), revealing activity against Gram-positive pathogens. [bold added for emphasis] [5] "Revival of old antibiotic compounds is a promising strategy to strengthen the antimicrobial armamentarium in the era of increasing resistance and limited development pipelines. To exploit their full potential, their reinvestigation using current standards is needed. We aimed to investigate the in vitro activity of the old antimicrobial agent sodium bituminosulfonate in accordance with the current recommendations for antimicrobial susceptibility testing (AST) and to generate susceptibility data reflecting the current epidemiological situation." [bold added for emphasis] [6] Sodium Sulfacetamide - Sulfur has been used to treat rosacea for many years. [7] Etcetera Sulphur or Sulfur for Rosacea End Notes [1] Dermatological medication and local therapeutics Christof Schaefer, Gudula Kirtschig, in Drugs During Pregnancy and Lactation (Third Edition), 2015, Ichthammol, Science Direct [2] Dermatopharmacology and Topical Formulary William L. Weston MD, ... Joseph G. Morelli MD, in Color Textbook of Pediatric Dermatology (Fourth Edition), 2007, Ichthammol, Science Direct [3] If you cannot view the link above it is because you are not a registered, active member of the RRDi. Join the RRDi to view the article and become involved in our rosacea community. Learn more [4] Journal of Inflammation Research » Volume 14 Sodium Bituminosulfonate Used to Treat Rosacea Modulates Generation of Inflammatory Mediators by Primary Human Neutrophils Susanne Schiffmann, Sandra Gunne, Marina Henke, Thomas Ulshöfer, Dieter Steinhilber, Annette Sethmann, Michael J Parnham [5] Microorganisms, 8 December 2020; Published: 10 December 2020 Investigation of In-Vitro Adaptation toward Sodium Bituminosulfonate in Staphylococcus aureus Marko Blisse, Evgeny A. Idelevich, and Karsten Becker SBDS_microorganisms-08-01962-v2.pdf [6] Microb Drug Resist. 2020 Nov;26(11):1405-1409. doi: 10.1089/mdr.2019.0390. Epub 2020 Mar 17. In Vitro Activity of Sodium Bituminosulfonate: Susceptibility Data for the Revival of an Old Antimicrobial Evgeny A Idelevich, Karsten Becker [7} Sodium Sulfacetamide - Sulfur
  22. Watch the video Rebound vs Allergic Reaction
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