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Everything posted by Guide

  1. Guide

    Final Appeal

    If you have been diagnosed with Phenotype 5, it usually responds to treatment quite well. We have a list of treatment options to consider listed in this post which requires you join the RRDi as an active member to view. Have you been diagnosed with Phenotype 5? What 2 prescription treatments have you used?
  2. Green tea hasn't been on an rosacea trigger list. What is on most rosacea trigger lists is HOT BEVERAGES may cause a flush, whether it is green tea, black tea, white tea, coffee, hot water, etc. FOR MORE INFORMATION
  3. If you are a RRDi member, you need to login to your account. Then simply post anywhere guests are able to post, like this thread where you asked this question. That reactivates your account. Once you are reactivated, under your display name it shows 'Active Member.' This gives you 30 days of access to our website where guests are restricted. If you haven't posted in the last thirty days your account is then deactivated. Repeat the process to re-activate your account. If you remember the email address you used to register your account but forgot the password, use the forgot password tool to reactivate your account: https://irosacea.org/lostpassword/ If you don't remember your login credentials, our volunteers can assist. Use the contact form and give us what you remember you used to register your account, i.e., your display name? We can then reset your password for you if we can figure out what EMAIL you used to register your account.
  4. Just saw a new page on the NRS website designated, 'key staff' and you can see a screen shot below: If you will note in the above paragraph, Mr Huff is stated as 'president of the Glendale Communications Group, which provides infrastructure and personnel for for the NRS program services at no cost to its members.' If this is correct, why do the past 22 years of public Form 990s (1998 thru 2019) show that over $10 million of the donations to the NRS have been spent on private contractors that are owned by Mr. Huff, including Glendale Communications Group? For example, in 2019 the NRS spent $285,871 on 'private contractors' including Glendale Communications Group which happens to be 94% of the donations given to the NRS in 2019. If this is 'no cost to its members' then why report this expense on Form 990 for 2019? In the previous year, 2018, the NRS spent $432,408 on private contractors, one of which is Glendale Communications Group, which happens to be 93% of the total donations given to the NRS in 2018. For a complete list of these Form 990s click here. For a breakdown of how the NRS spends its donations click here.
  5. Guide

    Final Appeal

    Thanks for your insight into all this. Very few, as you have pointed out, are motivated to express any thought on this subject. The RRDi has social media accounts. Would you like to volunteer to moderate and manage one or more of them?
  6. Every dermatological disease assessed had a significant increase in TME when compared to the prior year. This increase was most significant for acne vulgaris (808%), psoriasis (792%), malignant skin neoplasms (716%), atopic dermatitis (609%), rosacea (566%) and contact dermatitis (529%). Published online 2021 Aug 19. doi: 10.1016/j.jid.2021.07.109 LB767 A multicenter analysis of patients using telemedicine for dermatological conditions during the COVID-19 pandemic
  7. Rosacea-like eruptions following COVID-19 vaccination More Information
  8. Rosacea-like eruptions following COVID-19 vaccination More Information
  9. While guests can view a significant number of posts and pages on the RRDi website, Guests cannot view the PRIVATE member forum. For example, here are the topics posted today, August 11, 2021. To view these topics, Guests need to register an email address. See this screen shot below for the topics posted today:
  10. The RRDi is pleased to announce a new page, Rosacea Episodes.
  11. You may be having issues trying to navigate our website using a mobile device so here is a helpful tutorial to find Rosacea Topics. Watch Video. Step one - Finding the Menu on the Home page (iOS - hopefully Android users are similar) - Look for the three bars top right corner (click): You should then see the following menu: Just under the HOME button find the NAVIGATOR button and click on it and you should see the following menu: The first word 'Navigator' is simply the title of this menu (don't click on it). The menu choices are now shown below this word, 'Navigator,' and you should begin scrolling down till you see the following: The menu button ROSACEA TOPICS is the second to the last choice. Click on ROSACEA TOPICS which brings you to the following screen: You may want to turn your mobile device horizontally to view the videos and subforums and scroll down to see all the choices: Now you can view the subforums but you are not allowed to enter a subforum without being a member of the RRDi. Membership is free and all you do register and then you can view over 7K posts and over 5.4K rosacea topics. Learn more. Hope this helps mobile device users on how to navigate our website. If you have questions, find the reply to this topic button and ask.
  12. Just to clarify, when a member doesn't post for 30 days, the active member is then automatically switched to the inactive member group. When an inactive member logs in and posts in any area open to guests, the member is automatically switched back to the active member group.
  13. A novel topical consisting of 15% Azelaic Acid and 1% Dihydro Avenanthramide D for rosacea is mentioned in a clinical paper posted in our member forum at this link. You will need to join the RRDi to view this post. Membership is free. We happen to have the MOST private rosacea forum on the internet, if you join using Sign in with Apple and use Apple's Hide My Email. Android users can still join as well as Windows users are welcome.
  14. An article published at mgblifestyle, discusses 'cold and formaldehyde-containing foods' as well as 'a pretty fancy-sounding protein' (actually a couple of fancy sounding proteins) that 'sets off a chain reaction that ultimately results in the release of histamines and cathelicidins by your skin's immune system.' The two proteins discussed in the article are transient receptor potential vanilloid 4 (TRPV4) and transient receptor potential alkyrin 1 (TRPA1). New Research Shows How Certain Foods & Drinks Affect Rosacea, Alexandra Engler, mgblifestyle Grapefruit image courtesy of Wikimedia Commons
  15. Received the 2019 Form 990 from the AARS. Total revenue received $258,366. Who contributed most of the revenue? The 'skin industry.' GALDERMA LABORATORIES L.P. $87.5K LA ROCHE POSAY $15K ORTHO DERMATOLOGICS $35K SOL-GEL TECHNOLOGIES INC. $15K SUN PHARMACEUTICALS $36K ALMIRALL, LLC (FORMERLY AQUA PHARMA) $35K BOTANIX PHARMACEUTICALS $5K EPI HEALTH, LLC $5K Total donations from the skin industry is $233.5K. The AARS was refunded one of the grants given out last year in the amount of $10K and also received $10,150 in membership dues from dermatologists. See below: What did the AARS spend most of its donations on? Again, the largest amount was on 'Conferences, conventions, and meetings' in the amount of $167,836. Two other large expenses was $48K on 'management' and $12,280 on 'website expenses.' See below: Is this the way you think a non profit organization for rosacea should be run? If you are a dermatologist it seems appropriate to run this non profit the way it is run. However, if you are a rosacea sufferer, is this the rosacea non profit organization you want to support? Why should there be a rosacea non profit run by rosaceans? You can read the Form 990 below: AARS-2020Form990.pdf
  16. Received the 2019 Form 990 from the AARS. Total revenue received $195,638 and here is the breakdown of the top contributors who donate at least $5K: ACLARIS THERAPEUTICS $10K CUTANEA LIFE SCIENCES (NOW OWNED BY BIOFRONTERA) $35K CASSIOPEA S.P.A. $10K FOAMIX PHARMACEUTICALS $10K GALDERMA LABORATORIES L.P. $50K RODAN AND FIELDS, LLC $35K THE PROACTIV COMPANY $35K Total from 'skin industry' $185K It would be safe to say that the vast majority of donations are from the 'skin industry.' In addition to this, $10,450.00 revenue came from membership dues (dermatologists). It would be prudent to note that there is little, if any, public support donations to the AARS. This organization operates more like a 501 6 c which is a business league. What did the AARS spend most of the 'donations' on? $234,961 on "Conferences, conventions, and meetings." You ask, how can the AARS spend more than it received in revenue? Answer: carry over assets. One expense worth noting is how the AARS spent $3,830.00 on its website. Here is a screen shot of all the expenses: The AARS did spend $40K on research grants in 2019 and you can review below who received the money: Your can read the form 990 yourself below: AARS-2019-Form990.pdf
  17. Watch the Trailer Learn More
  18. Guide

    Brady's Blog

    We have made the MEMBER FORUM totally private now. If one registers with Sign in with Apple, hides behind a cryptic, mysterious DISPLAY NAME and hides their email address using Apple's Hide My Email service when registering, this makes the RRDi member forum the most private rosacea forum on the internet. Guests can only view a portion of our website. Registered Active members have full access to the Member Forum.
  19. Registered Active Members Have Access to the Following Over 7K posts on rosacea information! Member Forum • Community Support • Co-Existing Conditions • All the Subforums in Rosacea Topics • Cosmetics • Demodectic Rosacea Forum • Diagnosis • Phenotypes, Subtypes, Rosacea Variants & Mimics Subforum • Rosacea Research • Newbie Rosaceans • All the Subforums in Non Prescription • All the Subforums in Photo Dynamic Therapy (PDT) • All the Subforums in Prescription • Probiotics • Rosacea in Remission • Rosacea & Psychology • All Subforums of Rosacea Theories • Secondary Therapy • All Subforums in Trigger Avoidance • RSS • All the Topics in Ask the MAC • All the Topics in Ask the Board • Funding Committee • Public Relations • Grant Writers Public Forum • OFF TOPIC • All Pages/Posts Guests Can Access • Error Messages If you are seeing error messages when trying to access areas only registered active members are allowed to enter, these areas are not open to guests or inactive registered members. Read more about error messages. Member Information
  20. Guests May View the Following Home • Welcome • Blogs • Clubs • Site Index • Cause of Rosacea • Demodectic Rosacea • Misdiagnosed Rosacea • Phenotypes • Rosacea is a chronic inflammatory disease • Rosacea in the News • Announcements and News • RSS • Research Articles • MAC • Donate • Why Form Another Non Profit for Rosacea Sufferers? • Store • About • Amazon Associates • Board of Directors • Charter • Contact • Financial • Grant Writers • Journal of the RRDi • Legal Disclaimer • Links • Member Information • Message from the Founder • Mission • Publications • Official Documents • Rules • Sponsors • Volunteers • Guidelines • Staff Directory • Recent Activity • Search • Leaderboard • Downloads • 5Min • Alabama • Amazon • Apple • ATP • Benefit Risk Ratio in Rosacea • Butterfly • Carbohydrate • Comorbidities • Conditions • Demodectic Rosacea Articles • Demodex Solutions • Donation Sample Letter • Final Appeal • Google Workspace • Grassroots • Guidestar • GUT Rosacea • Hawaii • History of the RRDi • Horsepaste • How to Find Rosacea Topics on a Mobile Device Video • How To Videos • Invision Community • Isotretinoin • Ivermectin • MAC Alphabetical List • MAC Information • Mimics • Mirvaso • Mobile App • Most Private Rosacea Community • Newsletter • Non Profit • Nutrition • Oracea • Rebound • Recalcitrant • Remission • Is this Rosacea? • Rosaceans • RRF • Social Media • Soolantra • Sponsors • Square • Stages of Rosacea • Steroids • Store Video • Submit Your Paper • Subtypes • Sugar • Survey • Tee Shirts • Theories • Topics • Triggers • Why • ZZ Cream • Members Have Access To Way More Rosacea Information
  21. Hi Liesie, Welcome to the RRDi. I recommend you try posting in natural treatments in the non prescription member forum which is shown below in this category: Forum Home > Forums > Member Forum > Rosacea Topics > Non Prescription > Natural Treatments You will find a number of posts on this subject that may be of interest to you. If you are recommending your own natural products, we do allow members to ask you about your products for rosacea if that is what you are referring to, which you can reply to but the purpose of the RRDi is to help rosaceans. If they are not your own products, instead, natural products for rosacea you have found then that is the spirit we need in our community. Rosaceans helping rosaceans. The purpose of the RRDi is not to profit from other RRDi members, and instead encourages community support. This is a grassroots, non profit, patient advocacy organization for rosacea sufferers.
  22. Good point. The papers on coffee point this out. There may be evidence that caffeine triggers a flush, but there is no evidence that coffee or tea causes a rosacea flareup. Usually the confusion is when rosaceans think flushing is rosacea or rosacea is flushing, which adds to this quandary. However, if avoiding flushing is important to a rosacean, then it would be prudent to carefully avoid caffeine induced flushing.
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