Jump to content

Guide

Root Admin
 View Profile  See their activity

  • Posts

    3,762

  • Joined

  • Last visited

 Content Type 

Posts posted by Guide

  2. RRDi Announcement

    in Guests

    Posted

    Just an update on the previous announcement mentioned above, consider this Version 2. 

    As the treasurer I have been trying to keep the RRDi non profit organization going with over a hundred videos and keeping the website going switching over to a subscription service (watch Rosacea Episodes S3:E1 and announcement) as well as sending out our latest newsletter to members (read the last newsletter dated 5/12/22).

    Yesterday, I went to a family reunion with my siblings and in-laws and had a short discussion with my sister-in-law who happens to be an editor for a prestigious journal in the scientific world and she explained to me that calling our ‘magazine’ a ‘journal’ is what is the issue since the title ‘journal’ implies it is a scientific journal with peer reviews and since we don’t have the funds to accomplish this since we have no rich donors, nothing to sell, and our income is derived solely from affiliate links from our store and now subscriptions to our website, we should simply use our newsletter tool we purchase through Invision Community as the medium to provide not only pro bono articles from the RRDi MAC but also from our members who may want to publish an article on rosacea. So instead of any article you wish to submit for our newsletter please follow the instructions mentioned in our previous post if you are a subscribed member of the RRDi. From henceforth, the Newsletter of the RRDi will only be available to subscribed members and we will be asking for a donation from those who do not subscribe to read the newsletter. 

    Then, if we can obtain the funds through donations we may be able to resume publishing the Journal of the Rosacea Research and Development Institute again properly with a peer review process. 

    We will mention any featured posts from RRDi members who post in the category of their choice in our member forum with a link to your post. So login to your RRDi member account and post your thoughts on rosacea. It may be considered as worthy of mentioning in a blurb mentioned in the next edition of the Newsletter of the RRDi. 

  5. Azelaic Acid (AZA) for Rosacea

    in Guests

    Posted

    financea60.png.2b66665a2e933cd0456d9e711azelex.png Learn More

    Azelaic Acid has been used to treat rosacea for many years. The brand name is Finacea, which is usually very expensive. We have information on savings card as well as generic azelaic acid prescriptions at this post. (member subscription required)

    There are a number of over the counter treatments using azelaic acid found in our store. Use the search tool and note the results of items found in our store. 

    "Azelaic acid (AzA) is an organic compound with the formula HOOC(CH2)7COOH. This saturated dicarboxylic acid exists as a white powder. It is found in wheat, rye, and barley. It is a precursor to diverse industrial products including polymers and plasticizers, as well as being a component of a number of hair and skin conditioners. AzA inhibits tyrosinase." Wikipedia

  6. Is Coffee A Rosacea Trigger?

    in FAQs

    Posted

    "...Caffeine is both a Vasoconstrictor and a Vasodilator....it acts as a Vasoconstrictor (constricts blood vessels) to the muscles in the head and neck only, which is why it is so helpful for headaches.... it is also a Vasodialator (expands blood vessels) but this is to the rest of the body.  Caffeine has three metabolites (by-products) one of which is Theobromine which when broken down by the liver causes a dilation or opening effect of blood vessels to a majority of the body.  This is where it would come into play pre-workout as it can help with the “pump” or delivery of blood flow to the muscles..."

    What is the deal with Caffeine?  Body Solutions

  14. History of RRDi Registrations

    in Announcements and News

    Posted

    For fifteen years (2006 thru 2020) we encouraged free registrations which required at the very minimum an email address to become a RRDi member. We had over 1000 registrations which included contact information, i.e., names, phone numbers and mailing addresses who were designated VOTING MEMBERS. Then in July 2017 we allowed NON VOTING members to register with JUST AN EMAIL address and this decreased our membership slightly but did notice that more chose this registration over including their contact information! We now had over 500 non voting registrations compared to over 1000 who did give us contact information. From this we discerned that privacy is a paramount issue with rosaceans.

    From April 2006 thru June 2017 members were required to give us names, mailing addresses and phone numbers to be a voting member of the RRDi which is a total of 135 months and we registered 1056 members (average 7.8 registrations/month). From July 2017 thru January 2021 (43 months) we allowed NON VOTING members to just register an email address with out names, addresses, or phone numbers and this period we decreased our registrations  (333 registrations) slightly to an average of 7.7 registrations/month. So this may or may not have helped at all. Then in February 2021 we did something dramatic. We closed off most of our website to just members only and allowed GUESTS to view just a small percentage of our website requiring guests to REGISTER (with just an email address) to view the vast majority of our rosacea content categorized in logical forums. We noticed an increase in registrations dramatically.

    So for one year (February 2021 thru January 2022) we increased our registrations by 262 which is an average of 21.8 registrations/month! However, membership during this period was free! Most only registered with just an email address or used the Sign in with Apple registration.

    Then in February 2022 we required initially a subscription fee of $1 to access the member forum and discovered that PayPal gets 51 cents processing fee and the RRDi only received 49 cents. We decided immediately to increase the subscription to a minimum of $2/month (allowing discount subscriptions at $1/month for three or more months). Registrations decreased significantly to only four paid subscriptions during this period (February thru April).

    We do waive the subscription fees for certain volunteers. However, not everyone wants to volunteer. We have noticed that most guests are not willing to pay for a subscription to view our rosacea data.

    Google Sheet on History of RRDi Registrations

    The current cost of keeping this website going along with keeping up with non profit registrations in two states, etc., and all other expenses is about $1200/year. That is because we don't have salaries or pay private contractors or having board members, or any other members take 60% of the donations (learn more). Everyone here at the RRDi are volunteers in the true sense, no paid salaries like so many other non profit organizations do. We need a core of about 100 members who are willing to pay $1/month for an entire year by subscribing for our 12/month subscription which would keep it going. 

    We are keeping a record in our financial report of the registered subscription members user names if you scroll down to our 2022 Financial Report to the subheading "Donations." All subscriptions are tax deductible. If we can get 100 subscribers donating at least $1/month we could probably keep the RRDi going. Any thoughts on any of this?  If you think you can do a better way to keep this non profit patient advocacy grassroots organization going, all you gotta do is reply to this post and post your thoughts, critique, comment or complaint. 

×
×
  • Create New...

Important Information

Terms of Use

  I accept