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    Charter

     

    The purpose of the Rosacea Research & Development Institute [RRDi] is to fund research and development for finding a cure for rosacea by establishing a Medical Advisory Committee [MAC] of the best available minds on rosacea and to publish the results of this endeavor to the public and professional groups. This MAC will provide the direction of the research. Research may also include studying various treatments for the control of rosacea in multi-center, double blind, placebo controlled clinical trial studies. The RRDi is commited to support patient advocacy for those suffering from rosacea. This organization is open to the public and membership is free and has been organized by rosaceans for rosaceans. This organization is a non-profit corporation registered in the State of Hawaii and 501 (c) (3) tax-exempt status approval has been obtained from the IRS effective June 7, 2004. The Articles of Incorporation, the Bylaws, and the Conflict of Interest Policy are available for the public.

     

    Membership is open to the public and is free. Rosaceans are specially invited to join. All who join become members of the corporation and for now this number is not limited but may be revised in the future by the institute. There are two categories of members: 

    Voting Member (a member who choses voluntarily to provide contact information such as first and last name, mailing address and phone number, email addresses)

    Non Voting Member (a member who only provides one email address)

    A rosacean is anyone who is diagnosed by a physician as having rosacea. All that is necessary to be designated a voting member is a statement from the member that a diagnosis of rosacea has been obtained from a physician as well as the contact information mentioned above for voting members. Voting members should be rosacea sufferers (rosaceans). 

    Non-rosaceans are permitted to join and should identify themselves as such upon demand from the institute. Non-rosaceans are those who have not obtained a diagnosis of rosacea by a physician. 

    Any member of the institute may be removed from the membership at any time at the sole discretion of the institute. Rules of the institute are published and available to the public. Violation of the rules may be grounds for termination as a member of the institute. Membership in the institute is a privilege.

    Funding will provide a rosacea MAC of the best available minds on finding a cure for this disease. The selection of who is chosen to be in this MAC will be based on not only the qualifications of the individual but also from nominations by both rosacean and non rosaceans members of the institute.

    Sources of funding to the institute will be publicized including the name of the donor unless the donor requests anonymity. Expenses of the institute will be publicized down to the last cent, showing where all the spending went and for what purpose.

    The philosophy and spirit of this institute is that funding should predominately be used for research and development and not for the administration of the institute. Volunteers are an integral part of this spirit and we hope to include member rosaceans and non-rosaceans who are willing to help the purpose of the institute become a reality. We need your help to find a cure for rosacea, to research rosacea, to publish the findings of this research and provide a MAC of the best available minds on rosacea. The views and suggestions of rosaceans will be an integral part in directing the research on rosacea, in choosing the MAC and the directors of the institute. Voting members of the institute will have a voice in the decision making of the institute, although directors of the institute will make all final decisions.

    Members of the institute will not profit from the institute however the Medical Advisory Committee members or members may be compensated for services rendered to the institute.

    Members will elect a board of directors which will include:

    Director, Assistant Director, Secretary, Treasurer and other board members. The board of directors will decide all matters of the institute and will be volunteers.

    Funding on rosacea research by the RRDi will not be used on animal testing.

    Our Mission Statement may be read by clicking here.

    This charter may be revised from time to time by the institute when deemed appropriate at the sole discretion of the institute.

  • Posts

    • "Praxis Biotechnology is developing a medication to reduce inflammation associated with rosacea without affecting the rest of the body." Albany biotech startup wins $50K at business competition, By Madison Iszler, Albany Times Union
    • I found this article in the Houston Chronicle interesting since I take a 81 mg enteric coated Aspirin every day:  "Q: This is a true story. In the 1950s, my grandmother was taking a "heart pill" her doctor had prescribed. The older doctor retired, and Granny went to see the new doctor to get her heart pill refilled. The young doctor told her: "Mrs. G., this is nothing but aspirin. There is nothing wrong with your heart." He refused to refill her heart pill. Three weeks later she died of a heart attack. That was in the 1950s, before any research had been done on the effects of aspirin and the heart. A: It took decades for the medical profession to recognize how useful aspirin could be in preventing heart attacks. A recent Swedish study discovered that people who discontinued low-dose aspirin were 37 percent more likely to have a hospitalization, heart attack or stroke (Circulation, online, Sept. 26, 2017). The investigators suggest that there may be rebound blood clotting when aspirin is stopped suddenly. Other research also has shown a link between aspirin discontinuation and serious cardiovascular events. If people need to stop aspirin prior to surgery or because of side effects, they should do so under careful medical supervision." Sudden discontinuation of aspirin could create serious issues
      By Joe Graedon and Teresa Graedon, Houston Chronicle
    • A PRACTICAL UNDERSTANDING OF ROSACEA
      PART 1:
      HEAT REGULATION AND THE
      WARM ROOM FLUSH PHENOMENON
      By Colin Dahl
      Chief Scientist, Australian Sciences
    • dazed1 has been posting a lot in RF and recently posted about a natural topical treatment using oils from plants that you can make yourself. Her post at RF explains the process in details. This isn't for the lazy and requires a lot of work. If any of you try this treatment yourself, please post here in this thread the results. 
    • Hi, thanks for including my post.   If you go back to the standard animal diet, you might notice that you wont have issues as well, systematic inflammation caused by animal protein and high glycemic index/insulin foods is not something that is happening very soon. So the rest period of 2 weeks, might give you few days extra before the problem start arise, sure it can happen at once but most of the time is slow process. I can go on and on, but i'm short on time so i will leave out some videos with the subject i'm talking about, and that is the harmful effects of animal protein.                
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