• charter.png
    Charter

     

    The purpose of the Rosacea Research & Development Institute [RRDi] is to fund research and development for finding a cure for rosacea by establishing a Medical Advisory Committee [MAC] of the best available minds on rosacea and to publish the results of this endeavor to the public and professional groups. This MAC will provide the direction of the research. Research may also include studying various treatments for the control of rosacea in multi-center, double blind, placebo controlled clinical trial studies. The RRDi is commited to support patient advocacy for those suffering from rosacea. This organization is open to the public and membership is free and has been organized by rosaceans for rosaceans. This organization is a non-profit corporation registered in the State of Hawaii and 501 (c) (3) tax-exempt status approval has been obtained from the IRS effective June 7, 2004. The Articles of Incorporation, the Bylaws, and the Conflict of Interest Policy are available for the public.

     

    Membership is open to the public and is free. Rosaceans are specially invited to join. All who join become members of the corporation and for now this number is not limited but may be revised in the future by the institute.

    A rosacean is anyone who is diagnosed by a physician as having rosacea. All that is necessary to be designated a rosacean institute member is a statement from the member that a diagnosis of rosacea has been obtained from a physician.

    Non-rosaceans are permitted to join and should identify themselves as such upon demand from the institute. Non-rosaceans are those who have not obtained a diagnosis of rosacea by a physician.

    Any member of the institute may be removed from the membership at any time at the sole discretion of the institute. Rules of the institute are published and available to the public. Violation of the rules may be grounds for termination as a member of the institute. Membership in the institute is a privilege.

    Funding will provide a rosacea MAC of the best available minds on finding a cure for this disease. The selection of who is chosen to be in this MAC will be based on not only the qualifications of the individual but also from nominations by both rosacean and non rosaceans members of the institute.

    Sources of funding to the institute will be publicized including the name of the donor unless the donor requests anonymity. Expenses of the institute will be publicized down to the last cent, showing where all the spending went and for what purpose.

    The philosophy and spirit of this institute is that funding should predominately be used for research and development and not for the administration of the institute. Volunteers are an integral part of this spirit and we hope to include member rosaceans and non-rosaceans who are willing to help the purpose of the institute become a reality. We need your help to find a cure for rosacea, to research rosacea, to publish the findings of this research and provide a MAC of the best available minds on rosacea. The views and suggestions of rosaceans will be an integral part in directing the research on rosacea, in choosing the MAC and the directors of the institute. Members of the institute will have a voice in the decision making of the institute, although directors of the institute will make all final decisions.

    Members of the institute will not profit from the institute however the Medical Advisory Committee members or members may be compensated for services rendered to the institute.

    Members will elect a board of directors which will include:

    Director, Assistant Director, Secretary, Treasurer and other board members. The board of directors will decide all matters of the institute and will be volunteers.

    Funding on rosacea research by the RRDi will not be used on animal testing.

    Our Mission Statement may be read by clicking here.

    This charter may be revised from time to time by the institute when deemed appropriate at the sole discretion of the institute.



  • Posts

    • JAAD
      Alcohol intake and risk of rosacea in US women
      Suyun Li, BA, Eunyoung Cho, ScD, Aaron M. Drucker, MD, Abrar A. Qureshi, MD, MPH, Wen-Qing Li, PhD
    • "Researchers have found that women who consume alcohol may be more likely to develop rosacea than non-drinking women, with white wine and liquor being the biggest offenders." White wine linked to rosacea: study, New York Daily News White wine, liquor may raise women's risk of rosacea, by Honor Whiteman, Medical News Today Your Favorite Drink May Increase Your Risk of This Skin Condition, by Brittany Burhop, Senior Editor, NewBeauty Drinking White Wine Raises Your Risk of Developing Rosacea
      By Ashley Weatherford,The Cut, NY Mag White wine may do no favors for a woman's skin, By CBS News, KZBK Alcohol consumption increases rosacea risk in women, Science Daily White Wine Raises Women's Risk for Rosacea, NewsMax
    • ""We also tell our patients to avoid certain ingredients in skin care and cosmetics, such as retinol, alpha hydroxy acids, and beta hydroxy acids, which can be too harsh for sensitive rosacea-prone skin." Concerned your skin care might be making symptoms worse? Read up on the signs your products are secretly damaging your face."" Got Rosacea? These Makeup Tricks Will Make It Disappear, by Lindsay Cohn, Readers Digest
    • "We found white wine and liquor were significantly associated with a higher risk of rosacea," said study senior author Wen-Qing Li. He's an assistant professor of dermatology and epidemiology at Brown University. White wine may increase risk for rosacea in women, study says, By Kathleen Doheny, HealthDay News, UPI
    • Tom Busby posted at RF a .pdf containing two interesting articles. The first is, "What’s all the craze about demodex?" and the second is "Factors in rosacea pathogenesis clearer." What's all the craze about demodex-Gadie-2016.pdf