• Message from the Founder - Volunteers and Transparency

    director.pngbrady_tn.jpg

    In January 2005 the Board of Directors chose me as the director of the RRDi, and Warren Stuart as the Assistant Director. In 2010 we were again voted to serve another five years on the board. Warren was instrumental in forming and establishing the RRDi, helping out with our web site and setting up our member forum. Warren also established a sister site relationship with his Rosacea Forum. Sadly, Warren passed away in 2012 (for more info click here). In 2015 I was again voted to serve another five years on the board as director. 

    You might be interested in a more detailed history of the RRDi

    An article was written on why I formed the RRDi. You should carefully investigate the other non profit organizations for rosacea and compare how they are run with the RRDi. The big difference is that this non profit is run with a volunteer spirit by rosacea sufferers. 

    Volunteers
    What other non profit organization for rosacea is run by volunteers? This is the driving force behind this non profit organization for rosacea founded by rosacea sufferers. 

    The one thing you can be sure of is that any donations will NOT be spent on private contractors or salaries at this point since everyone associated with the RRDi are volunteers. This can be done because of the volunteer spirit with which this institute was set up. Can you help? When you join, in the comment box let us know you want to volunteer. If you simply join that would increase our numbers. Any small donation helps us keep going. However, volunteering is what makes this non profit different from the other rosacea non profits (read this post). 

    A database of research suggestions is being accumulated which you may access or make suggestions by clicking here.

    The RRDi is the only non profit that allows rosaceans any say in determining who is on the board of directors. The other non profits are closed board of directors and if you aren't happy with the direction there is nothing you can do about it. Whatever the direction the RRDi takes, whether to research the cause, or the cure, or whatever is done you can at least know that rosaceans had a say into what research the RRDi will engage in. The board of directors have the final say on this.

    Transparency
    We believe in transparency. How the RRDi is run is public knowledge. You can clearly review all our financial records. All the other non profits keep their articles of incorporation a deep secret. Their financial records are cryptically revealed in only an IRS Form 990 report that is confusing and difficult to read. That is a big difference. You have a say if you join and become a corporate member. You can vote who is on the board of directors. Can you do that with any other rosacea non profit organization? I have always felt that rosaceans should have a say in what is being done and not leave that up totally to those who may have their own agenda or leave the decision to private contractors. The MAC at the RRDi is just that; a medical ADVISORY committee. The board of directors who are rosaceans make the final decision on the research and all matters. And if you desire, you as a rosacean, if you join the RRDi as a corporate member, can determine who serves on the board of directors.

    Non Profit Organization

    501 (c) (3) tax-exempt status has been approved by the IRS effective June 7, 2004. With such a legacy, you can see the RRDi is a solid non profit organization for rosaceans you can trust. Please join

    Brady Barrows
    RRDi Founder

     



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      Alcohol intake and risk of rosacea in US women
      Suyun Li, BA, Eunyoung Cho, ScD, Aaron M. Drucker, MD, Abrar A. Qureshi, MD, MPH, Wen-Qing Li, PhD
    • "Researchers have found that women who consume alcohol may be more likely to develop rosacea than non-drinking women, with white wine and liquor being the biggest offenders." White wine linked to rosacea: study, New York Daily News White wine, liquor may raise women's risk of rosacea, by Honor Whiteman, Medical News Today Your Favorite Drink May Increase Your Risk of This Skin Condition, by Brittany Burhop, Senior Editor, NewBeauty Drinking White Wine Raises Your Risk of Developing Rosacea
      By Ashley Weatherford,The Cut, NY Mag White wine may do no favors for a woman's skin, By CBS News, KZBK Alcohol consumption increases rosacea risk in women, Science Daily White Wine Raises Women's Risk for Rosacea, NewsMax
    • ""We also tell our patients to avoid certain ingredients in skin care and cosmetics, such as retinol, alpha hydroxy acids, and beta hydroxy acids, which can be too harsh for sensitive rosacea-prone skin." Concerned your skin care might be making symptoms worse? Read up on the signs your products are secretly damaging your face."" Got Rosacea? These Makeup Tricks Will Make It Disappear, by Lindsay Cohn, Readers Digest
    • "We found white wine and liquor were significantly associated with a higher risk of rosacea," said study senior author Wen-Qing Li. He's an assistant professor of dermatology and epidemiology at Brown University. White wine may increase risk for rosacea in women, study says, By Kathleen Doheny, HealthDay News, UPI
    • Tom Busby posted at RF a .pdf containing two interesting articles. The first is, "What’s all the craze about demodex?" and the second is "Factors in rosacea pathogenesis clearer." What's all the craze about demodex-Gadie-2016.pdf