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Welcome to the Rosacea Research and Development Institute [RRDi] official web site. The RRDi is a 501 (c) 3 non profit organization. If you suffer from rosacea you are a rosacean. Join us to find the cure.
We are rosaceans. Our non profit organization for rosacea patient advocacy web site is a digital data repository of rosacea information. You can add more information to our web site by joining and posting in our member forum becoming a part of 'finding the cure' for rosacea if you post.
Where to Begin Your Search
Tapatalk • About Us • What Causes Rosacea? • What Should I Ask My Physician? • Rosacea Newbies • Famous Rosaceans • Rosacea in the News • Contact us
Suggest you read our FAQs for at least a half hour. After that browse our member forum for another half hour.What is Rosacea?
Rosacea is a chronic and sometimes progressive disorder of the face, characterized by some or all of the following symptoms:Extremely sensitive facial skin with blushing, flushing, permanent redness, burning, stinging, swelling, papules, pustules, broken red capillary veins, red gritty eyes (which can lead to visual disturbances) and in more advanced cases, a disfiguring bulbous nose. Men and women of all ages can be affected, with over 415 million estimated rosacea sufferers worldwide.
"Rosacea is probably a collection of many different diseases that are lumped together inappropriately." Zoe Diana Draelos, MD.
Dr. Draelos is a member of the ROSIE [ROSacea International Expert] Group that says the subtype classification of rosacea is controversial. Dr. Draelos is also a member of the RRDi MAC. Just because you have a red face might mean you have another skin condition instead of or with rosacea, since other skin conditions may co-exist with rosacea, mimic rosacea or you might have a rosacea variant (a dozen variants to differentiate)."Rosacea is a multifactorial, hyper-reactivity, vascular and neural based disease with a broad range of facial manifestations where normal vasodilation is greater and more persistent and involves an autoimmune component of microscopic amounts of extravasated plasma induce localized dermal inflammation that may induce repeated external triggers, vasodilation, telangiectasias, redness with eventual fibrosis and hypertrophic scarring of the dermis." Sandra Cremers, M.D., F.A.C.S., RRDi MAC Member.
If you note, there are different definitions of what constitutes rosacea which is common. Clarity with phenotypes (see below) helps in a differential diagnosis.
Treatment
'There are a number of topical, oral and systemic treatments available. Yet, treatment for rosacea remains difficult." Expert Opinion Pharmacotherapy“There’s no one treatment that’s going to work for everybody, but we evaluate each patient individually and try to select the treatments from our armamentarium that we think will be the simplest and safest for long-term control.” John Meisenheimer, MD, Orlando, The City's Magazine
Phenotypes
In November 2016, the RRDi endorsed the phenotype classification of rosacea which was announced by the ROSCO panel as a better approach of diagnosising rosacea than using subtypes.Rosacea Differential Diagnosis and Misdiagnosis
Your physician should differentiate rosacea from a plethora of other skin conditions. If you need photos of rosacea click here.Sometimes rosacea is misdiagnosed.
Cause of Rosacea
No one really knows what causes rosacea and there are a number of theories for your consideration. Our latest article on this subject, Rosacea Theories Revisited is worth your time to consider.What will the RRDi Do For Me?
You can view the list of prescription treatments prescribed for rosacea. There is a list of non prescription treatments for rosacea to consider. We have an affiliate store dedicated to rosacea books, treatments and odd and ends. You can browse our public member forum and learn about rosacea. The digital medical revolution can assist you in your search for a treatment to improve your condition. Your rosacea is an individual case and you need to find what treatment will work for your rosacea and not a treatment aimed at the masses. Individuals can come together and share data, using collaboration tools that the RRDi offers for free. If you have the volunteer spirit and want to become part of this innovative non profit, learn how you can volunteer and be part of this digital medical revolution. You can post in our member forum if you join and register simply with an email address. If you have concerns regarding your privacy, please consider this post.Once you join you have a number of tools to collaborate with other members. You can create your own rosacea blog, with easy step by step directions on how to do this. Our Gallery application lets members share photos and videos with the community. Volunteers who contribute their time and energy may receive a free G Suite account through a generous contribution of Google, one of our sponsors.
You may receive a free ebook, Rosacea 101: Includes the Rosacea Diet as a gift from the founder/director if you mention in your registration application that you want the free ebook (write in the volunteer box you want the free ebook).
You can post in our member forum about your rosacea experience. However, we want real members, not spammers, hackers or trolls. We provide a safe, secure forum for our members, so our membership registration is very secure requiring your accepting our terms for membership.
Our 2016 Rosacea Survey is completed and available for public viewing. You may review a list of our education grants. Finally, ask not what the RRDi can do for you, ask.....
What Can You Do for the RRDi?
Your joining and registering with our organization will increase our membership. All that is required to join is an email address (your email address is private and members never see your email address nor does the RRDi give your private email address out to anyone). Our goal is to reach a membership of 10,000 members. Think about that, 10,000 rosacea sufferers joined together as a non profit organization and you are member. We need you to join to help us reach this goal!The RRDi is a volunteeer member driven organization and invites rosacea sufferers to become involved. Volunteering is the force that drives the organization and is an integral spirit of the RRDi philosophy. The RRDi warmly invites rosacea sufferers to participate in this non profit which you can become a part of. You are not required to volunteer when you join, since we still want you to join even if you can't volunteer. If all you can do is become a member, that will increase our membership which is helpful in itself. So if you can volunteer, let us know on the application. Please join.
Please carefully read the next subheading on how to join and if you have concerns about privacy.
How to Join
Members may now join with just an email address and a display name (your first and last name is no longer required to be a non voting member and you can set up a anonymous or cryptic display name so that no one knows who you are). To post in our Member Forum or submit articles for publication you must register to join to become a member. The RRDi no longer requires that you provide us with your contact info and mailing address to be a non voting member. However you still need to agree to our policies, rules, etc., since you become a member of the RRDi whether a voting member or not. If you want to vote, simply include all the profile contact fields. We have over 1000 members who are voting members, so we have plenty. It is your choice if you want to vote or not.If you need assistance contact us. Our volunteers will be happy to assist you.
Your privacy is our utmost concern and we will take precautions to ensure your privacy will never be violated. Our Privacy Policy is solid. If you have concerns regarding your privacy, please consider this post.
Once you have joined you can post in our secure members forum which will allow you to post questions to the Medical Advisory Consultants (MAC) and to fellow members or to submit articles for our journal. Yes, members may have an article published on our web site or in our journal. You may receive a free G Suite account with our organization if you have the volunteer spirit.
Charter and Mission Statement
The Charter of the Corporation states the purpose and Mission Statement which clearly outlines the goals of our non profit corporation. If you are interested in the history of how and why this non profit organization was formed click here for more information.Of course there are expenses to keep this non profit organization going. Any donation you give will assist us to continue to keep this web site going, publish our journal, and sponsor education grants. Mahalo for your donation. even if it is small. Every dollar helps us keep going.
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image courtesy of Espiritu Salon and Spa There are now spa treatments using cryotherapy. Will this work for rosacea? Cryotherapy has been used to treat phenotype 5. Will it improve any other phenotype? Time will tell since without a doubt we will be receiving reports whether any other phenotype is improved with cryotherapy. There is a history of using cryotherapy for rosacea going back to an article published in 1948: "Despite the fact that cold may be an aetiological factor in rosacea (Haxthausen, 1930, Lortat- Jacob and Solente, 1930, Sequeira, Ingram, and Brain, 1947), cryotherapy is the most valuable ancillary method of treatment......In U.S.A., Bluefarb (I945) and Hume (I948) recommended that powdered sulphur should be mixed with the slush. Solente (I925) pointed out that its value in rosacea was due to the ultimate diminution, in calibre of the local blood-vessels in the dermis. This is the accepted mechanism of its action but Lortat-Jacob and Solente (I930) claim that there is an additional reflex action via the sympathetic. Some workers, such as Vieira (1947) use the snow only to destroy the small, easily visible, dilated, superficial vessels. This is the only purpose for which a snow stick may be better than slush.... ...Shortly after treatment the skin becomes bright red and remains unsightly for a few hours. This is accompanied by a mild feeling of burning (the actual application of the slush is more painful), which may be relieved by fuller's earth, talcum, or face powder. By next day all sign of the immediate efects of treatment should have gone but there may be some blistering especially after the first treatment when the sensitivity of the skin - is not known. There is less likelihood of blistering after subsequent applications. The total length of treatment is variable and must be judged separately for each patient; four to eight sessions are usual. The treatment nearly always leads gradually to much improvement. Each week the skin can be seen to be paler with fewer obvious dilated vessels and less thickening. Complete cure is less common. It is essential to remember that cryotherapy is only a part of the treatment." CRYOTHERAPY FOR ROSACEA
By E. LIPMAN COHEN, M.A., M.B., B.CHIR.(Cantab.) London
Postgraduate Medical Journal, December 1948 p 656-659
CRYOTHERAPY_FOR_ROSACEA.pdf
image courtesy of Cryo.com.au The Cryo.com.au website uses LED with cryotherapy and states, "CRYO LED uses two wavelengths of light that are Food & Drug Administration (FDA) approved to promote collagen and elastin production, helping to reduce wrinkles and tighten skin. This process feeds cells with wavelengths of light that they convert to the fuel source ATP that promotes cell reproduction and renewal. An increase in local blood circulation helps to flush toxins from the dermal layers of the skin. CRYOTHERAPY AND CRYO LED not only improves your appearance but the experience will make you feel fantastic." So if you try cryotherapy for your rosacea, please post your results in this thread. There are a number of reviews you can read concerning cryotherapy at cryo.com.au. -
Take the $500 Microablation and Triphasic Combination Facial at Cornelia Day Spa in New York City. Aestheticians wave an electromagnetic wand over the skin to stimulate collagen, minimize lines, reduce acne and ease chronic irritation (like eczema or rosacea). They then use a triphasic resonator that relies on heat, vibration and therapeutic electrical force to contour and sculpt the face. World's Most Expensive Spa Treatments
By Lauren Sherman, Forbes -
Related Articles Drugs and Lactation Database (LactMed) Book. 2006 Authors: Abstract
Limited information indicates that maternal use of brimonidine 0.2% ophthalmic drops do not adversely affect their nursing infants. To substantially diminish the amount of drug that reaches the breastmilk after using eye drops, place pressure over the tear duct by the corner of the eye for 1 minute or more, then remove the excess solution with an absorbent tissue. Topical brimonidine gel used to treat rosacea has not been studied during breastfeeding. It is unlikely that the topical gel would affect the breastfed infant, but the manufacturer states that it should not be used during nursing. Until more data are available, an alternative topical agent might be preferred
PMID: 30000738 {url} = URL to article -
Related Articles Relationship between Helicobacter pylori and Rosacea: review and discussion. BMC Infect Dis. 2018 Jul 11;18(1):318 Authors: Yang X Abstract
BACKGROUND: Rosacea is an inflammatory disease affecting the central part of face characterized by persistent or recurrent episodes of erythema, papules, pustules and telangiectasias of unknown etiology. Helicobacter pylori (H. pylori) is a gram-negative bacillus, which is one of the main causes of chronic gastritis, gastric cancer and gastrointestinal ulcers. Recent evidences have suggested that H. pylori infection is closely related to the occurrence of diseases. In recent years, studies have found that Helicobacter pylori infection is associated with the occurrence of acne rosacea. So the treatment of Helicobacter pylori infection may be a therapeutic method of acne rosacea. But it continues to be controversial. In other studies, the treatment of Helicobacter pylori did not significantly reduce the severity of acne rosacea. To further explore the association between acne rosacea and Helicobacter pylori infection, a summarize method was used to study the relationship between acne rosacea and Helicobacter pylori, providing reference for clinical acne rosacea therapy.
METHODS: Systematic searches were conducted on Wanfang Data, CQVIP, Springer, Public Health Management Corporation (PHMC), CNKI, and Pubmed, from January 1,2008 to Mar. 1, 2018, using Helicobacter pylori and rosacea to retrieve the literature. Depending on the inclusion and exclusion criteria, 27 articles considered or confirmed the correlation between H. pylori and rosacea.
RESULTS: Epidemiological investigations and experiments have confirmed that H. pylori infection is associated with the development of rosacea. The effect of anti-H. pylori therapy is better than the routine therapy for rosacea. H. pylori can stimulate the immune system to produce a large number of inflammatory mediators, leading to the occurrence and aggravation of rosacea inflammation.
CONCLUSIONS: It is confirmed that H. pylori infection is involved in the development of rosacea. It is suggested that rosacea patients should be tested for H. pylori infection, the H. pylori-positive rosacea patients should be treated with eradication of H. pylori, so as to enhance the therapeutic effect of rosacea. This study adds that H. pylori infection is involved in the development of rosacea. Epidemiological investigations and experiments have confirmed the rationality. The effect of anti-H. pylori therapy is better than the routine therapy for rosacea. H. pylori-positive rosacea patients should be treated with the therapeutic method of eradication of H. pylori.
PMID: 29996790 [PubMed - in process] {url} = URL to article -
AARS 2017 Form 990 Review 2017-Form-990.pdf Total Contributions from public support (99.33%) in the amount of $309,032.
Total Expenses were $440,381.
At the end of the 2017 the AARS has 'unrestricted net assets' totaling $374,176. The AARS spent most of its expenses on 'ANNUAL AND MID-YEAR MEETINGS' for its members in the amount of $261,451. The second highest expense was for 'MENTORSHIP AND CLINICAL RESEARCH GRANTS' in the amount of $109,840. Of these grants three were for ACNE and one was for "bioinformatics analysis of acne and rosacea transcriptomes" by Rivka C. Stone, MD, PhD. One quarter of the research grant money ($26,460) was spent on 'acne and rosacea' so half of that would be $13,730*. So technically of the total donations received that was spent on rosacea research was 4.4%. That means for every dollar donated to the AARS 4 cents was spent on rosacea research, 31 cents spent on acne, 84 cents spent on 'annual and mid-year meetings, and the AARS spent more money than was received drawing on their net assets to accomplish this. The AARS still has a lot of money left in their net assets at the end of the year to draw on for 2018 expenses. You can view the published papers of the grant recipients on its web site to confirm that three grants were for acne and only one grant mentions rosacea. The board of directors received no money and there are no private contractor expenses. So while the AARS did spend more money on acne research (and little for rosacea) than last year which more than doubled 2016's research grants, the same pattern of spending the vast majority on meetings for the AARS professional members seems to be what the priority is when spending the donations of this non profit. *Of the four research grants, three were for acne research and only one was for 'acne and rosacea.' So half of $26,460 is $13,730 which is technically what was spent on 'rosacea' research. It only figures that acne would get primary attention since the name of the organization is 'Acne and Rosacea' and what comes first? Obviously by the way the AARS spends its money on research grants rosacea is considered second. Of course, we have no way of knowing how the total amount ($109,840) was distributed to the recipients of the grant money since the AARS isn't saying how much each one received, so all we can do is divide by four ($26,460). -
I began using the Lutein/Zeazanthin treatment for about three months and recommend you try it. I really do think it helps rosacea. I take 40 mg/Lutein, this one.
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