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  • Welcome to the RRDi official web site. Finding the Cure. 

    Where to Begin Your Search

    Suggest you read our FAQs for at least a half hour. After that browse our member forum for another half hour. 
    About Us • What Causes Rosacea? • What Should I Ask My Physician?Rosacea NewbiesFamous Rosaceans •  Contact us

    What is Rosacea?

    Rosacea is a chronic and sometimes progressive disorder of the face, characterized by some or all of the following symptoms:

    Extremely sensitive facial skin with blushing, flushing, permanent redness, burning, stinging, swelling, papules, pustules, broken red capillary veins, red gritty eyes (which can lead to visual disturbances) and in more advanced cases, a disfiguring bulbous nose. Men and women of all ages can be affected, with over 75 million estimated Rosacea Sufferers worldwide

    "Rosacea is probably a collection of many different diseases that are lumped together inappropriately." Zoe Diana Draelos, MD. Dr. Draelos is a member of the ROSIE [ROSacea International Expert] Group that says the subtype classification of rosacea is controversial. Dr. Draelos is also a member of the RRDi MAC. Just because you have a red face might mean you have another skin condition besides or with rosacea, since other skin conditions may co-exist with rosaceamimic rosacea or may be a rosacea variant

    "Rosacea is a multifactorial, hyper-reactivity, vascular and neural based disease with a broad range of facial manifestations where normal vasodilation is greater and more persistent and involves an autoimmune component of microscopic amounts of extravasated plasma induce localized dermal inflammation that may induce repeated external triggers, vasodilation, telangiectasias, redness with eventual fibrosis and hypertrophic scarring of the dermis." Sandra Cremers, M.D., F.A.C.S., RRDi MAC Member.

    Phenotypes

    In November 2016, the RRDi endorsed the phenotype classification of rosacea which was announced by the ROSCO panel as a better approach of diagnosising rosacea than subtypes.

    Rosacea Differentiation and Misdiagnosis

    Your physician should differentiate rosacea from a plethora of other skin conditions. If you need photos of rosacea click here.

    Sometimes rosacea is misdiagnosed. No one really knows what causes rosacea and there are a number of theories for your consideration. Our latest article on this subject, Rosacea Theories Revisited is worth your time to consider. 

    What will the RRDi Do For Me?

    You can view the list of prescription treatments prescribed for rosacea. There is a list of non prescription treatments for rosacea to consider. We have an affiliate store dedicated to rosacea books, treatments and odd and ends. You can browse our public member forum and learn about rosacea. The digital medical revolution can assist you in your search for a treatment to improve your condition. Your rosacea is an individual case and you need to find what treatment will work for your rosacea and not a treatment aimed at the masses. Individuals can come together and share data, using collaboration tools that the RRDi offers for free. If you have the volunteer spirit and want to become part of this innovative non profit, learn how you can volunteer and be part of this digital medical revolution. You can post in our member forum if you join and register simply with an email address. If you have concerns regarding your privacy, please consider this post.

    Once you join you have a number of tools to collaborate with other members. You can create your own rosacea blog, with easy step by step directions on how to do this. Our Gallery application lets members share photos and videos with the community. Volunteers who contribute their time and energy may receive a free G Suite account through a generous contribution of Google, one of our sponsors.  

    You may receive a free ebook, Rosacea 101: Includes the Rosacea Diet as a gift from the founder/director if you mention in your registration application that you want the free ebook (write in the volunteer box you want the free ebook).

    Our 2016 Rosacea Survey is completed and available for public viewing.  You may review a list of our education grants

    What Can You Do for the RRDi?

    Your joining and registering with our organization will increase our membership. All that is required is a cryptic display name and and an email address to join (your email address is private and members never see your email address nor does the RRDi give your private email address out to anyone). 

    Any donation you give will assist us to continue to keep this web site going, publish our journal, and sponsor education grantsMahalo for your donation. even if it is small. Every dollar helps us keep going. 

    The RRDi is a volunteeer member driven organization and invites rosacea sufferers to become involved. Volunteering is the force that drives the organization and is an integral spirit of the RRDi philosophy. The RRDi warmly invites rosacea sufferers to participate in this non profit which you can become a part of. You are not required to volunteer when you join, since we still want you to join even if you can't volunteer. If all you can do is become a member, that will increase our membership which is helpful in itself. So if you can volunteer, let us know on the application. Please join

    You can post in our member forum about your rosacea experience. However, we want real members, not spammers, hackers or trolls. We provide a safe, secure forum for our members. So our membership registration is very secure requiring your accepting our terms for membership. Please carefully read the next subheading on how to join and if you have concerns about privacy. 

    How to Join

    Members may now join with just an email address and a cryptic display name (your first and last name is no longer required to be a non voting member). To post in our Member Forum or submit articles for publication you must register to join to become a member. The RRDi no longer requires that you provide us with your contact info and mailing address to be a non voting member. However you still need to agree to our policies, rules, etc., since you become a member of the RRDi whether a voting member or not. If you want to vote, simply include all the profile contact fields. We have over 1000 members who are voting members, so we have plenty. It is your choice if you want to vote or not. 

    If you need assistance contact us. Our volunteers will be happy to assist you. 

    Your privacy is our utmost concern and we will take precautions to ensure your privacy will never be violated. Our Privacy Policy is solid. If you have concerns regarding your privacy, please consider this post.

    Once you have joined you can post in our secure members forum which will allow you to post questions to the Medical Advisory Consultants (MAC) and to fellow members or to submit articles for our journal. Yes, members may have an article published on our web site or in our journal. You may receive a free G Suite account with our organization if you have the volunteer spirit. 

    Conclusion

    The Charter of the Corporation states the purpose and Mission Statement which clearly outlines the goals of our non profit corporation. If you are interested in the history of how and why this non profit organization was formed click here for more information.  Mahalo. 

    The RRDi is registered at GuideStar

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  • Posts

    • Related Articles Miscellaneous skin disease and the metabolic syndrome. Clin Dermatol. 2018 Jan - Feb;36(1):94-100 Authors: Seremet S, Gurel MS Abstract
      The link between the metabolic syndrome (MetS) and skin diseases is increasingly important, with new associations being discovered. The association between MetS and psoriasis or MetS and hidradenitis suppurativa is well known, although the relationship between MetS and various autoimmune or inflammatory diseases has only recently attracted interest. Some inflammatory skin diseases, such as vitiligo, scleredema, recurrent aphthous stomatitis, Behçet disease, rosacea, necrobiosis lipoidica, granuloma annulare, skin tags, knuckle pads, and eruptive xanthomas, have possible associations with MetS. In this review, we examine the state of knowledge involving the relationship between MetS and these dermatologic diseases.
      PMID: 29241760 [PubMed - in process] {url} = URL to article
    • Related Articles Reply to: "Rosacea and alcohol intake". J Am Acad Dermatol. 2018 Jan;78(1):e27 Authors: Li S, Drucker AM, Cho E, Qureshi AA, Li WQ PMID: 29241804 [PubMed - in process] {url} = URL to article
    • Given the evidence for an increased risk of GI disease in rosacea, further research into the role of the microbiome in rosacea is warranted. The role of the gut microbiome is an area of research of multiple inflammatory skin diseases. Synbiotics are a combination of prebiotics and probiotics, substances that support a healthy gut microbiome. In a meta-analysis of published randomized controlled trials (RCTs) in atopic dermatitis (AD), it was found that the use of synbiotics for at least eight weeks had a significant effect on a measure of AD severity. Research is underway into the use of synbiotics in other inflammatory skin diseases. Diet and rosacea: the role of dietary change in the management of rosacea.
    • "The association between inflammatory bowel disease (IBD) and rosacea is another topic of interest. A Taiwanese nationwide cohort study of over 89,000 patients with rosacea found an independent association with IBD incidence, as compared to matched controls. This association has been replicated by Egeberg et al.’s Danish study and Li et al.’s prospective study in American women. Moreover, both IBD and rosacea share possible genetic overlap on the histocompatibility complex class II gene HLA DRB1*03:01." Diet and rosacea: the role of dietary change in the management of rosacea.    
    • "Young men with acne have also been studied with respect to their diet. Smith et al recently studied 43 men (15–25 years) with acne who were given instructions to follow a high carbohydrate diet similar to their current diet (control group) compared to a group given instructions to follow a low glycemic load diet for 12 weeks. There was a significant decrease in the number of acne lesions following diet modification in the low glycemic load group compared to the control group." The Role of Diet in Acne and Rosacea
      JCAD Online Editor | September 16, 2008
      by Jonette E. Keri, MD, PhD, and Adena E. Rosenblatt
      Department of Dermatology, University of Miami Miller School of Medicine, Miami, Florida
    • "Ledesma suggested I undergo a micronutrient testing to determine if any supplements could help me to better control my blood sugar and potentially improve my health in other ways. I underwent a blood draw for the SpectraCell Micronutrient Test, a comprehensive test of the biochemical function of vitamins, minerals, amino acids and antioxidants. It seemed like the best way to find out my specific nutritional deficiencies and not take a typical shotgun approach to choosing a wide array of nutrients. The MNT test retails for more than $1,500. I was surprised to find Medicare covered nearly all of it. My cost would be $88. Ledesma said we would balance the nutrients and address any borderline or deficient nutrients." A Patient's Journey: There's a Vitamin for That
      Howard Wolinsky may have the most expensive urine in Chicago, by Howard Wolinsky, Contributing Writer, MedPage Today  
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