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Welcome to the Rosacea Research and Development Institute [RRDi] official web site. The RRDi is a 501 (c) 3 non profit organization. If you suffer from rosacea you are a rosacean. Join us to find the cure.
We are rosaceans (rosacea sufferers). Our web site has more information about rosacea than any other. You can add more information to our web site by joining and posting in our member forum.
Where to Begin Your Search
Tapatalk • About Us • What Causes Rosacea? • What Should I Ask My Physician? • Rosacea Newbies • Famous Rosaceans • Rosacea in the News • Contact us
Suggest you read our FAQs for at least a half hour. After that browse our member forum for another half hour.What is Rosacea?
Rosacea is a chronic and sometimes progressive disorder of the face, characterized by some or all of the following symptoms:Extremely sensitive facial skin with blushing, flushing, permanent redness, burning, stinging, swelling, papules, pustules, broken red capillary veins, red gritty eyes (which can lead to visual disturbances) and in more advanced cases, a disfiguring bulbous nose. Men and women of all ages can be affected, with over 415 million estimated rosacea sufferers worldwide.
"Rosacea is probably a collection of many different diseases that are lumped together inappropriately." Zoe Diana Draelos, MD.
Dr. Draelos is a member of the ROSIE [ROSacea International Expert] Group that says the subtype classification of rosacea is controversial. Dr. Draelos is also a member of the RRDi MAC. Just because you have a red face might mean you have another skin condition instead of or with rosacea, since other skin conditions may co-exist with rosacea, mimic rosacea or you might have a rosacea variant (a dozen variants to differentiate)."Rosacea is a multifactorial, hyper-reactivity, vascular and neural based disease with a broad range of facial manifestations where normal vasodilation is greater and more persistent and involves an autoimmune component of microscopic amounts of extravasated plasma induce localized dermal inflammation that may induce repeated external triggers, vasodilation, telangiectasias, redness with eventual fibrosis and hypertrophic scarring of the dermis." Sandra Cremers, M.D., F.A.C.S., RRDi MAC Member.
If you note, there are different definitions of what constitutes rosacea which is common. Clarity with phenotypes (see below) helps in a differential diagnosis.
Treatment
'There are a number of topical, oral and systemic treatments available. Yet, treatment for rosacea remains difficult." Expert Opinion Pharmacotherapy“There’s no one treatment that’s going to work for everybody, but we evaluate each patient individually and try to select the treatments from our armamentarium that we think will be the simplest and safest for long-term control.” John Meisenheimer, MD, Orlando, The City's Magazine
Phenotypes
In November 2016, the RRDi endorsed the phenotype classification of rosacea which was announced by the ROSCO panel as a better approach of diagnosising rosacea than using subtypes.Rosacea Differential Diagnosis and Misdiagnosis
Your physician should differentiate rosacea from a plethora of other skin conditions. If you need photos of rosacea click here.Sometimes rosacea is misdiagnosed.
Cause of Rosacea
No one really knows what causes rosacea and there are a number of theories for your consideration. Our latest article on this subject, Rosacea Theories Revisited is worth your time to consider.What will the RRDi Do For Me?
You can view the list of prescription treatments prescribed for rosacea. There is a list of non prescription treatments for rosacea to consider. We have an affiliate store dedicated to rosacea books, treatments and odd and ends. You can browse our public member forum and learn about rosacea. The digital medical revolution can assist you in your search for a treatment to improve your condition. Your rosacea is an individual case and you need to find what treatment will work for your rosacea and not a treatment aimed at the masses. Individuals can come together and share data, using collaboration tools that the RRDi offers for free. If you have the volunteer spirit and want to become part of this innovative non profit, learn how you can volunteer and be part of this digital medical revolution. You can post in our member forum if you join and register simply with an email address. If you have concerns regarding your privacy, please consider this post.Once you join you have a number of tools to collaborate with other members. You can create your own rosacea blog, with easy step by step directions on how to do this. Our Gallery application lets members share photos and videos with the community. Volunteers who contribute their time and energy may receive a free G Suite account through a generous contribution of Google, one of our sponsors.
You may receive a free ebook, Rosacea 101: Includes the Rosacea Diet as a gift from the founder/director if you mention in your registration application that you want the free ebook (write in the volunteer box you want the free ebook).
You can post in our member forum about your rosacea experience. However, we want real members, not spammers, hackers or trolls. We provide a safe, secure forum for our members, so our membership registration is very secure requiring your accepting our terms for membership.
Our 2016 Rosacea Survey is completed and available for public viewing. You may review a list of our education grants. Finally, ask not what the RRDi can do for you, ask.....
What Can You Do for the RRDi?
Your joining and registering with our organization will increase our membership. All that is required to join is an email address (your email address is private and members never see your email address nor does the RRDi give your private email address out to anyone). Our goal is to reach a membership of 10,000 members. Think about that, 10,000 rosacea sufferers joined together as a non profit organization and you are member. We need you to join to help us reach this goal!The RRDi is a volunteeer member driven organization and invites rosacea sufferers to become involved. Volunteering is the force that drives the organization and is an integral spirit of the RRDi philosophy. The RRDi warmly invites rosacea sufferers to participate in this non profit which you can become a part of. You are not required to volunteer when you join, since we still want you to join even if you can't volunteer. If all you can do is become a member, that will increase our membership which is helpful in itself. So if you can volunteer, let us know on the application. Please join.
Please carefully read the next subheading on how to join and if you have concerns about privacy.
How to Join
Members may now join with just an email address and a display name (your first and last name is no longer required to be a non voting member and you can set up a anonymous or cryptic display name so that no one knows who you are). To post in our Member Forum or submit articles for publication you must register to join to become a member. The RRDi no longer requires that you provide us with your contact info and mailing address to be a non voting member. However you still need to agree to our policies, rules, etc., since you become a member of the RRDi whether a voting member or not. If you want to vote, simply include all the profile contact fields. We have over 1000 members who are voting members, so we have plenty. It is your choice if you want to vote or not.If you need assistance contact us. Our volunteers will be happy to assist you. Clarity with phenotypes (read below) helps differentiate a diagnosis.
Your privacy is our utmost concern and we will take precautions to ensure your privacy will never be violated. Our Privacy Policy is solid. If you have concerns regarding your privacy, please consider this post.
Once you have joined you can post in our secure members forum which will allow you to post questions to the Medical Advisory Consultants (MAC) and to fellow members or to submit articles for our journal. Yes, members may have an article published on our web site or in our journal. You may receive a free G Suite account with our organization if you have the volunteer spirit.
Charter and Mission Statement
The Charter of the Corporation states the purpose and Mission Statement which clearly outlines the goals of our non profit corporation. If you are interested in the history of how and why this non profit organization was formed click here for more information.Of course there are expenses to keep this non profit organization going. Any donation you give will assist us to continue to keep this web site going, publish our journal, and sponsor education grants. Mahalo for your donation. even if it is small. Every dollar helps us keep going.
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Thanks for the tip and link. I like the article and will study it some more. -
By smart2005ct · Posted
Dear Brady, Thank you very much for your message and arguments. I am very glad that you can take 3000 mg a day of vitamin C. If I do that I will be burnt alive(my photosensitivity will become unberable). Once again it is swown that we are unique individuals with unique reactions. I have read this aricle of "Mental Health Treatment That Works" (knowing that Rosacea may cause Anxiety and Depression) and I have noticed the same mega doses(http://orthomolecular.org/resources/omns/v01n11.shtml) and Linus Pauling was mentioned in the article. In this article https://rosadyn.com/rosacea/suppliments-vitamin/vitamins-supplements-rosacea-triggers/ is mentioned that if taken in mega doses vitamin C should be taken only in buffered form, Nobody is warrning Rosaceans about that. "High Doses of Vitamin C— Vitamin C is a superb vitamin for rosacea sufferers. It not only strengthens blood vessels throughout the skin, but it stimulates the production of new collagen and elastin which helps to strengthen thin, fragile rosacea skin.The two variables that one must be cautious of is the use of pure, unbuffered Vitamin C (ascorbic acid) and the dose. If you take more than 250 mgs at a sitting there is a good chance that this high dose of unbuffered Vitamin C can cause gastric upset — which in turn, stimulates the release of multiple dilator and inflammatory hormones from the stomach and intestine — causing facial redness and flushing.Most M.D. Naturopaths and Certified Nutritionists recommend taking only buffered forms of Vitamin C (Chelated Vitamin C or Ester C) to prevent gastric side effects and in doing so, one can often take much larger doses — even taking 1,000 mgs several times a day." -
Basically Vitamin C along with other nutrients should be added for a healthy diet. We need to boost our immune system and one way is vitamin and mineral supplements. "Vitamin C is generally well tolerated.[1] Large doses may cause gastrointestinal discomfort, headache, trouble sleeping, and flushing of the skin.[1][3] Normal doses are safe during pregnancy.[7] The United States Institute of Medicine recommends against taking large doses." Wikipedia
[1] "Ascorbic Acid". The American Society of Health-System Pharmacists. Archived from the original on December 30, 2016. Retrieved December 8, 2016.
[3] WHO Model Formulary 2008 (PDF). World Health Organization. 2009. p. 496. ISBN 9789241547659. Archived (PDF) from the original on December 13, 2016. Retrieved December 8, 2016.
[7] "Ascorbic acid Use During Pregnancy | Drugs.com". www.drugs.com. Archived from the original on December 31, 2016. Retrieved December 30, 2016. Linus Pauling popularized mega dosing on Vitamin C, which the Wikipedia article says, "The mega-dosing theory is to a large degree discredited." Mega dosing may cause flushing, which obviously should be avoided with rosaceans. Moderate dose of Vitamin C may prove beneficial. As with all treatment for rosacea, everyone is an individual and has to decide for themselves what is an appropriate dose. I take three 1000 mg tabs, one each, with my breakfast, lunch and dinner for a total of 3000 mg a day. Some may say this would be a high dose but I seem to tolerate this without flushing. I think the benefit of taking supplemental Vitamin C outweigh the risks. -
By smart2005ct · Posted
Dear Brady, Thank you very much for your feedback and for your explanations about soy. The truth abouth soy maybe somewhere in the middle. Maybe one day we will know the whole truth. I would like to notice another thing. Why are large quantities of Vitamins C recommended for Rosceans? I had the chance to discuss with Dr. Madalene Heng, MD, FRACP, FACD, FAAD from Psoria-Gold with the help of her daughter Siana Cutter about high doses of vitamin C. Dr. Heng said that they may cause photosensitivity and in her book called Below the Surface: A Guide to Better Understanding Acne and Rosacea, 2014, ISBN-10: 1490469583 she said that high doses are common histamine releasers. Also doing my own research I found out that Vitamin C is the nr. 3 vasodilatator supplement (https://drgapin.com/11-supplement-vasodilators-ease-ed). The three ones - photosensitivity, histamine and vasodilatation are known as not being good Rosaceans. So why the recommandations for high doses of Vitamin C for Rosaceans??? Thank you very much for contacting Dr. Bowe for my questions. -
smart2005ct,
I have read about concerns of soybean ingestion being unhealthy. It is established that eating raw soy is toxic. Cooked soy is edible. For human consumption, soybeans must be cooked with "wet" heat to destroy the trypsin inhibitors (serine protease inhibitors). Raw soybeans, including the immature green form, are toxic to all monogastric animals. Wikipedia source:
Circle, Sidney Joseph; Smith, Allan H. (1972). Soybeans: Chemistry and Technology. Westport, CT: Avi Publishing. pp. 104, 163. ISBN 0-87055-111-6. However, as you probably know, people in Asia eat tons of soy. If cooked soy is as toxic as some say, there should be evidence of this. For example, "According to the American Cancer Society, "Studies in humans have not shown harm from eating soy foods. Moderate consumption of soy foods appears safe for both breast cancer survivors and the general population, and may even lower breast cancer risk." " Wikipedia source:
Marji McCullough, ScD, RD (8 April 2014). "The Bottom Line on Soy and Breast Cancer Risk". American Cancer Society. Retrieved 24 November 2016. Of course, if one has an allergy to soy, i.e., similar to an allergy to peanuts, cashews, etc., then obviously one should steer clear of soy. Personally I don't eat soy (maybe occasionally I will eat something that contains soy, i.e., soy sauce) and don't seem to be bothered by it. Soy is the highest vegatable containing protein and also contains most of the essential nutrients and when you consider how many Asians eat soy and we don't read reports of any health issues or soy toxic reports, it seems odd that we continue to get reports warning us to steer clear of soy. Maybe there is something to these warnings, but as with so many issues like this, it all boils down to the individual. Take for example the cashew. "The shell of the cashew nut contains oil compounds which may cause contact dermatitis similar in severity to that of poison ivy, primarily resulting from the phenolic lipids, anacardic acid, and cardanol. Due to the possible dermatitis, cashews are typically not sold in the shell to consumers." Wikipedia So should be avoid cashews because the shell is toxic? If you are allergic, yes. But millions of people consume cashews all over the world. The same can be said for soy. Maybe someday there will be some evidence that backs up all these concerns about eating soy, but for now eating a little soy in moderation doesn't seem any more unhealthy than eating a few cashews. I have contacted Dr. Bowe asking her to respond to your post. -
By smart2005ct · Posted
Hi Brady, Wow You look fantastic. I am very glad you found a quick fix that works for you. I am not a fan of corticosteroid drugs too. I remember that being in the hospital in the 90s for my seborrheic acne after one week of Prednisone my kidneys were blocked(I was not able to pee anymore) so they stopped giving me Prednison. So we may have different reactions to the same drug. We are all so unique. I have read your book Rosacea 101 many times and I would like to ask you what do you think about this? I also asked on of the MAC members a couple of a few questions after reading her most recent book Do you think there are chances to get a reply from dr. Whitney Bowe? Thank you for your feedback. Take care. Hugs.
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