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Welcome to the RRDi official web site. Finding the Cure.
Where to Begin Your Search
Suggest you read our FAQs for at least a half hour to get you up to speed. After that browse our member forum for another hour to learn about rosacea.
Rosacea is a chronic and sometimes progressive disorder of the face, characterized by some or all of the following symptoms:
Extremely sensitive skin, blushing, flushing, permanent redness, burning, stinging, swelling, papules, pustules, broken red capillary veins, red gritty eyes (which can lead to visual disturbances) and in more advanced cases, a disfiguring bulbous nose. Men and women of all ages can be affected, with over 75 million estimated sufferers of Rosacea worldwide.
"Rosacea is probably a collection of many different diseases that are lumped together inappropriately." Zoe Diana Draelos, MD. Dr. Draelos is a member of the ROSIE [ROSacea International Expert] Group that says the subtype classification of rosacea is controversial. Dr. Draelos is also a member of the RRDi MAC. Just because you have a red face might mean you have another skin condition besides rosacea.
"Rosacea is a multifactorial, hyper-reactivity, vascular and neural based disease with a broad range of facial manifestations where normal vasodilation is greater and more persistent and involves an autoimmune component of microscopic amounts of extravasated plasma induce localized dermal inflammation that may induce repeated external triggers, vasodilation, telangiectasias, redness with eventual fibrosis and hypertrophic scarring of the dermis." Sandra Cremers, M.D., F.A.C.S., RRDi MAC Member.
Phenotypes
The RRDi has endorsed the phenotype classification of rosacea which was announced by the ROSCO panel as a better approach of diagnosising rosacea than subtypes.
Rosacea Differentiation and Misdiagnosis
Your physician should differentiate rosacea from a plethora of other skin conditions. If you need photos of rosacea click here.
Sometimes rosacea is misdiagnosed. No one really knows what causes rosacea and there are a number of theories for your consideration. Our latest article on this subject, Rosacea Theories Revisited is worth the time. Rosacea, therefore, can be confusing, a bewilderment and a mystery.
What will the RRDi Do For Me?
You can view the list of prescription treatments prescribed for rosacea which members can review. There is a huge list of non prescription treatments for rosacea to consider. We have an affiliate store dedicated to rosacea books, treatments and odd and ends. You can browse our public member forum and learn about rosacea. The RRDi is way ahead of other rosacea non profit organizations with the digital medical revolution. Your rosacea is an individual case and you need to find what treatment will work for your rosacea and not a treatment aimed at the masses. Individuals can come together and share data, using collaboration tools that the RRDi offers for free. If you have the volunteer spirit and want to become part of this innovative non profit, learn how you can volunteer and be part of this digital medical revolution. You can post in our member forum if you join and register. If you have concerns regarding your privacy, please consider this post.
Once you join you have a number of tools to collaborate with other members. You can create your own rosacea blog, with easy step by step directions on how to do this. Our Gallery application lets members share photos and videos with the community. We have a chat tool available to members. Volunteers who contribute their time and energy may receive a free G Suite account through a generous contribution of Google, one of our sponsors.
You may receive a free ebook, Rosacea 101: Includes the Rosacea Diet as a gift from the founder/director if you mention in your registration application that you want the free ebook (write in the volunteer box you want the free ebook).
Our 2016 Rosacea Survey is completed and available for public viewing. You may review a list of our education grants.
What Can You Do for the RRDi?
Your joining and registering with our organization will increase our membership. Any donation you give will assist us to continue to keep this web site going, publish our journal, and sponsor education grants. Mahalo for your donation. even if it is small. Every dollar helps us keep going.
The RRDi is a volunteeer member driven organization and invites rosacea sufferers to become involved. Volunteering is the force that drives the organization and is an integral spirit of the RRDi philosophy. The RRDi warmly invites rosacea sufferers to participate in this non profit which you can become a part of. You are not required to volunteer when you join, since we still want you to join even if you can't volunteer. If all you can do is become a member, that will increase our membership which is helpful in itself. So if you can volunteer, let us know on the application. Please join. If you want to remain anonymous when becoming a member of the RRDi you may find it helpful to read this post before joining. We respect your anonymity and will support your remaining anonymous as a member of the RRDi if that is your preference.
You can post in our member forum about your rosacea experience. However, we want real members, not spammers, hackers or trolls. We provide a safe, secure forum for our members. So our membership registration is very secure requiring your accepting our terms for membership. Please carefully read the next subheading on how to join and if you have concerns about privacy.
How to Join
You may want to read our post about Anonymity, Transparency and Posting before joining which explains in a step by step process how to remain anonymous in our member forum. To post in our Member Forum or submit articles for publication you must register to join to become a member. The RRDi requires that you provide us with your contact info and mailing address and agree to our policies since you become a corporate member of the RRDi. Your privacy is our utmost concern and we will take precautions to ensure your privacy will not be violated. Our Privacy Policy is solid. If you have concerns regarding your privacy, please consider this post.
Once you have joined you can post in our secure members forum which will allow you to post questions to the Medical Advisory Consultants (MAC) and to fellow members or to submit articles for our journal. Yes, members may have an article published on our web site or in our journal. You may receive a free G Suite account with our organization upon approval that you have the volunteer spirit.
Conclusion
The Charter of the Corporation states the purpose and Mission Statement which clearly outlines the goals of our non profit corporation. If you are interested in the history of how and why this non profit organization was formed click here for more information. Mahalo.
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The Role of Polyphenols in Rosacea Treatment: A Systematic Review. J Altern Complement Med. 2017 Jun 26;: Authors: Saric S, Clark AK, Sivamani RK, Lio PA, Lev-Tov HA Abstract
OBJECTIVES: Various treatment options are available for the management of rosacea symptoms such as facial erythema, telangiectasia, papules and pustules, burning, stinging, and itching. Botanical therapies are commonly used to treat the symptoms. The objective of this review is to evaluate the use of polyphenols in rosacea treatment.
DESIGN: PubMed, Embase, Biosis, Web of Knowledge, and Scopus databases were systematically searched for clinical studies evaluating polyphenols in the management of rosacea.
RESULTS: Of 814 citations, 6 met the inclusion criteria. The studies evaluated licochalcone (n = 2), silymarin (n = 2), Crysanthellum indicum extract (n = 1), and quassia extract (n = 1). The studies only evaluated topical formations of stated polyphenols. Main results were summarized.
CONCLUSIONS: There is evidence that polyphenols may be beneficial for the treatment of rosacea symptoms. Polyphenols appear to be most effective at reducing facial erythema and papule and pustule counts. However, studies included have significant methodological limitations and therefore large-scale, randomized, placebo-controlled trials are warranted to further assess the efficacy and safety of polyphenols in the treatment of rosacea.
PMID: 28650692 [PubMed - as supplied by publisher] {url} = URL to article -
By Brady Barrows · Posted
A Journal of Family Practice article says, "Using intention-to-treat analysis, permethrin 5% cream was as effective as metronidazole 0.05% gel and significantly superior to placebo at improving erythema (change from a baseline score of 2.60 to 1.34), papules (change from baseline count of 6.04 to 1.73), and pustules (change from baseline count of 2.30 to 0.56)." This same article reports, "Permethrin 5% cream is superior to metronidazole 0.75% gel and placebo in decreasing Demodex folliculorum, and is as effective as metronidazole 0.75% gel in treating erythema and papules." This may be a prescription or a non prescription treatment for rosacea. Ask your doctor. For more information read this post. -
By Brady Barrows · Posted
A Journal of Family Practice article says, "Using intention-to-treat analysis, permethrin 5% cream was as effective as metronidazole 0.05% gel and significantly superior to placebo at improving erythema (change from a baseline score of 2.60 to 1.34), papules (change from baseline count of 6.04 to 1.73), and pustules (change from baseline count of 2.30 to 0.56)." This same article reports, "Permethrin 5% cream is superior to metronidazole 0.75% gel and placebo in decreasing Demodex folliculorum, and is as effective as metronidazole 0.75% gel in treating erythema and papules." For more information read this post. -
By Brady Barrows · Posted
Em270 from Canada, at RF, posted a link to Kate's Rosacea non prescription treatment for rosacea blog, permethrin 5% scabies, which lists a long list of over the counter treatments for your consideration. If anyone confirms this works for rosacea, please post in this thread. I can't find any product at the USA Amazon site that comes close to this treatment. If anyone does find something at Amazon, please post in this thread. Kate says she uses Quellada Lotion available in Australia. She says it is available outside of Australia as Kwellada-P available at Amazon Canada. U Michigan article
PubMed article A Journal of Family Practice article says, "Using intention-to-treat analysis, permethrin 5% cream was as effective as metronidazole 0.05% gel and significantly superior to placebo at improving erythema (change from a baseline score of 2.60 to 1.34), papules (change from baseline count of 6.04 to 1.73), and pustules (change from baseline count of 2.30 to 0.56)." This same article reports, "Permethrin 5% cream is superior to metronidazole 0.75% gel and placebo in decreasing Demodex folliculorum, and is as effective as metronidazole 0.75% gel in treating erythema and papules." It is apparently odd that you can't purchase this product over the counter in the USA, however, according to this article you can purchase it on ebay. I did find a 1% Permethrin cream at Amazon. -
Related Articles Rosacea in black South Africans with skin phototypes V and VI. Clin Exp Dermatol. 2017 Jun 22;: Authors: Dlova NC, Mosam A Abstract
Rosacea is a chronic facial dermatosis considered to affect primarily white patients with light phototype skin, and is poorly documented in black patients. The aim of this study was to document the clinical features of rosacea in patients with phototypes V and VI. An 8-year retrospective chart review of patients with a clinical and histological diagnosis of rosacea or acne rosacea was undertaken. Of 6700 patients, 15 (0.2%) had rosacea. All were of African descent with skin phototype V or VI. Mean age was 47 years, and female : male ratio was 14 : 1. Of the 15 patients, 5 (33%) were positive for human immunodeficiency virus; 5 (33%) had used topical steroids to treat the roseacea; 6 (40%) had phototype V and presented with erythema, telangiectasia and erythematous papules, while 9 (60%) had phototype VI skin and presented with skin-coloured papules; and 10 (67%) had histology showing granulomatous rosacea, while 5 (33%) declined a facial skin biopsy. A high index of suspicion is required to diagnose rosacea in black patients as the classic signs of erythema and telangiectasia are difficult to discern.
PMID: 28639713 [PubMed - as supplied by publisher] {url} = URL to article -
By Brady Barrows · Posted
Until she was about 25, Chenoweth had never dealt with skin problems, so when she started experiencing bumpy, itchy redness on her face, she treated it with over-the-counter meds. "I tried all the wrong things, of course Cortisone, oils, you name it—anything over the counter I tried it." When she finally saw a dermatologist several years later, she received an instant diagnosis: rosacea. Since then she's tried almost every remedy out there to keep her inflammation at bay, recently settling on a solution that just gained FDA approval, RHOFADE, for which Chenoweth is now the celebrity ambassador. "My redness has gone way down along with the bumps, itchiness, and this has been week four. I use it right after my moisturizer and it keeps my redness in check all day long." Yes, Windy Weather Can Trigger Rosacea—and So Can These 6 Other Things
Grammy- and Tony-winning star Kristin Chenoweth opens up about her battles with rosacea—here's what you need to know about what triggers it, and how you can treat this pesky skin condition.
BY JENN SINRICH, Reader's digest
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