• Welcome to the RRDi official web site. Finding the Cure. 

    Where to Begin Your Search

    Suggest you read our FAQs for at least a half hour to get you up to speed. After that browse our member forum for another hour to learn about rosacea. 

    What is Rosacea?

    Rosacea is a chronic and sometimes progressive disorder of the face, characterized by some or all of the following symptoms:

    Extremely sensitive skin, blushing, flushing, permanent redness, burning, stinging, swelling, papules, pustules, broken red capillary veins, red gritty eyes (which can lead to visual disturbances) and in more advanced cases, a disfiguring bulbous nose. Men and women of all ages can be affected, with over 74 million estimated sufferers of Rosacea worldwide

    "Rosacea is probably a collection of many different diseases that are lumped together inappropriately." Zoe Diana Draelos, MD. Dr. Draelos is a member of the ROSIE [ROSacea International Expert] Group that says the subtype classification of rosacea is controversial. Dr. Draelos is also a member of the RRDi MAC. Just because you have a red face might mean you have another skin condition besides rosacea.

    "Rosacea is a multifactorial, hyper-reactivity, vascular and neural based disease with a broad range of facial manifestations where normal vasodilation is greater and more persistent and involves an autoimmune component of microscopic amounts of extravasated plasma induce localized dermal inflammation that may induce repeated external triggers, vasodilation, telangiectasias, redness with eventual fibrosis and hypertrophic scarring of the dermis." Sandra Cremers, M.D., F.A.C.S., RRDi MAC Member.

    Phenotypes

    The RRDi has endorsed the phenotype classification of rosacea which was announced by the ROSCO panel as a better approach of diagnosising rosacea than subtypes.

    Rosacea Differentiation and Misdiagnosis

    Your physician should differentiate rosacea from a plethora of other skin conditions. If you need photos of rosacea click here.

    Sometimes rosacea is misdiagnosed. No one really knows what causes rosacea and there are a number of theories for your consideration. Our latest article on this subject, Rosacea Theories Revisited is worth the time. Rosacea, therefore, can be confusing, a bewilderment and a mystery

    What will the RRDi Do For Me?

    You can view the list of prescription treatments prescribed for rosacea which members can review. There is a huge list of non prescription treatments for rosacea to consider. We have an affiliate store dedicated to rosacea books, treatments and odd and ends. You can browse our public member forum and learn about rosacea. The RRDi is way ahead of other rosacea non profit organizations with the digital medical revolution. Your rosacea is an individual case and you need to find what treatment will work for your rosacea and not a treatment aimed at the masses. Individuals can come together and share data, using collaboration tools that the RRDi offers for free. If you have the volunteer spirit and want to become part of this innovative non profit, learn how you can volunteer and be part of this digital medical revolution. You can post in our member forum if you join and register. If you have concerns regarding your privacy, please consider this post.

    Once you join you have a number of tools to collaborate with other members. You can create your own rosacea blog, with easy step by step directions on how to do this. Our Gallery application lets members share photos and videos with the community. We have a chat tool available to members. Volunteers who contribute their time and energy may receive a free G Suite account through a generous contribution of Google, one of our sponsors.  

    You may receive a free ebook, Rosacea 101: Includes the Rosacea Diet as a gift from the founder/director if you mention in your registration application that you want the free ebook (write in the volunteer box you want the free ebook).

    Our 2016 Rosacea Survey is completed and available for public viewing.  You may review a list of our education grants

    What Can You Do for the RRDi?

    Your joining and registering with our organization will increase our membership. Any donation you give will assist us to continue to keep this web site going, publish our journal, and sponsor education grants. Mahalo for your donation. even if it is small. Every dollar helps us keep going. 

    The RRDi is a volunteeer member driven organization and invites rosacea sufferers to become involved. Volunteering is the force that drives the organization and is an integral spirit of the RRDi philosophy. The RRDi warmly invites rosacea sufferers to participate in this non profit which you can become a part of. You are not required to volunteer when you join, since we still want you to join even if you can't volunteer. If all you can do is become a member, that will increase our membership which is helpful in itself. So if you can volunteer, let us know on the application. Please join. If you want to remain anonymous when becoming a member of the RRDi you may find it helpful to read this post before joining. We respect your anonymity and will support your remaining anonymous as a member of the RRDi if that is your preference. 

    You can post in our member forum about your rosacea experience. However, we want real members, not spammers, hackers or trolls. We provide a safe, secure forum for our members. So our membership registration is very secure requiring your accepting our terms for membership. Please carefully read the next subheading on how to join and if you have concerns about privacy. 

    How to Join

    You may want to read our post about Anonymity, Transparency and Posting before joining which explains in a step by step process how to remain anonymous in our member forum. To post in our Member Forum or submit articles for publication you must register to join to become a member. The RRDi requires that you provide us with your contact info and mailing address and agree to our policies since you become a corporate member of the RRDi. Your privacy is our utmost concern and we will take precautions to ensure your privacy will not be violated. Our Privacy Policy is solid. If you have concerns regarding your privacy, please consider this post.

    Once you have joined you can post in our secure members forum which will allow you to post questions to the Medical Advisory Consultants (MAC) and to fellow members or to submit articles for our journal. Yes, members may have an article published on our web site or in our journal. You may receive a free G Suite account with our organization upon approval that you have the volunteer spirit. 

    Conclusion

    The Charter of the Corporation states the purpose and Mission Statement which clearly outlines the goals of our non profit corporation. If you are interested in the history of how and why this non profit organization was formed click here for more information.  Mahalo. 

    The RRDi is registered at GuideStar

  • Recently Browsing   0 members

    No registered users viewing this page.



  • Member Statistics

    • Total Members
      1,047
    • Most Online
      325

    Newest Member
    Extrifformy
    Joined
  • Forum Statistics

    • Total Topics
      3,282
    • Total Posts
      4,216
  • Who's Online (See full list)

    There are no registered users currently online

  • Posts

    • "Common of adverse effects seen in our study after applying topical corticosteroids and acne or acneiform eruptions was the most common side effects, similar to other authors’ data. A study showed rosacea to be more common than acne. In our study 89 patients suffered from TSDF, a term coined by Sarasswat A., Lahiri K. et al. Various other adverse effects, such as erythema, telengiectasias, dyspigmentation and perioral dermatitis was also seen." J Dermatol Case Rep. 2017 Mar 31; 11(1): 5–8.
      Published online 2017 Mar 31. doi:  10.3315/jdcr.2017.1240
      PMCID: PMC5439689
      Misuse of topical corticosteroids on facial skin. A study of 200 patients.
      Rohini Sharma,, Sameer Abrol, and Mashqoor Wani
    • Related Articles Erythromelalgia involving the face. Dermatol Online J. 2017 Apr 15;23(4): Authors: Gilmore RR, Applebaum DS, Parsons JL, Hsu S Abstract
      Erythromelalgia is a rare disorder characterized by burning pain, erythema, and increased temperature typically involving the distal extremities. Although it can progress to involve the face, erythromelalgia presenting only on the face is particularly rare. This disorder is often misdiagnosed when it presents on the extremities and is even more likely to be misdiagnosed when presenting only on the face, delaying appropriate treatment and causing considerable frustration for the patient. We report a case of a 26-year-old woman with erythromelalgia that involved only the face for a number of years and was treated unsuccessfully as rosacea, seborrheic dermatitis, and contact dermatitis. She subsequently developed involvement of the ears and hands in the more typical distribution of erythromelalgia. We discuss the differential diagnosis of erythromelalgia involving the face and extremities, the proposed pathogenesis and management of the disorder, and the psychological distress this condition can cause. Even when the correct diagnosis of erythromelalgiais made, treatment is difficult, with no single therapy consistently effective.
      PMID: 28541877 [PubMed - in process] {url} = URL to article
    • Related Articles Updating the diagnosis,classification and assessment of rosacea by effacement of subtypes: reply from author. Br J Dermatol. 2017 May 19;: Authors: Tan J Abstract
      The National Rosacea Society Expert Committee (NRSCOR) 2002 publication indicated that the definition and classification system then proposed was based on scientific knowledge, that it was provisional, and that it would be refined with increasing knowledge.(1) A move from subtyping towards a phenotype approach was proposed by the American Acne and Rosacea Society (AARS)(2) and ROSCO presents the first international effort to advance the diagnosis and classification of rosacea. This article is protected by copyright. All rights reserved.
      PMID: 28542720 [PubMed - as supplied by publisher] {url} = URL to article
    • Related Articles Rosacea is associated with Helicobacter pylori: a systematic review and meta-analysis. J Eur Acad Dermatol Venereol. 2017 May 23;: Authors: Jørgensen AR, Egeberg A, Gideonsson R, Weinstock LB, Thyssen EP, Thyssen JP Abstract
      BACKGROUND: Rosacea is a common skin disease characterized by facial erythema, telangiectasia, papules, and pustules. Helicobacter pylori infection has been suggested to play a role in the etiopathogenesis of rosacea.
      OBJECTIVE: Systematically review and meta-analyse the relationship between rosacea and infection with Helicobacter pylori .
      METHODS: A literature search was performed using PubMed, EMBASE, and Web of Science. Data extraction and analyses were performed on descriptive data. Study quality was assessed using the Newcastle-Ottawa Scale. Random effects models with DerSimonian-Laird methods were utilized to estimate pooled odds ratios (ORs), with 95% confidence intervals (95% CIs). Heterogeneity of results was assessed using I² statistics.
      RESULTS: A total of 454 articles were identified and 42 full text articles were chosen for further review. 14 studies were included in the quantitative meta-analysis, comprising a total of 928 rosacea patients and 1,527 controls. The overall association between Helicobacter pylori infection and rosacea was non-significant (OR 1.68, 95% CI 1.00-2.84, p=0.052), but analysis restricted to C-urea-breath test showed a significant association (OR 3.12, 95% CI 1.92-5.07, p<0.0001). Effect of eradication treatment on rosacea symptoms was assessed in seven studies, but without significant effect (RR 1.28, 95% CI 0.98-1.67, p=0.069).
      CONCLUSION: This meta-analysis found weak associations between rosacea and Helicobacter pylori infection as well as an effect of Helicobacter pylori therapy on rosacea symptoms, albeit that these did not reach statistical significance. Whether a pathogenic link between the two conditions exists, or whether Helicobacter pylori infection represents a proxy for other factors remains unknown. This article is protected by copyright. All rights reserved.
      PMID: 28543746 [PubMed - as supplied by publisher] {url} = URL to article
    • "In conclusion, we have found that LCs are essential for maintaining subbasal nerve health and for regulating ocular surface inflammation in DE disease." PLoS One. 2017; 12(4): e0176153.
      Published online 2017 Apr 25. doi:  10.1371/journal.pone.0176153
      PMCID: PMC5404869
      Langerhans cells prevent subbasal nerve damage and upregulate neurotrophic factors in dry eye disease
      Eun Young Choi, Hyun Goo Kang, Chul Hee Lee, Areum Yeo, Hye Mi Noh, Nayeong Gu, Myoung Joon Kim, Jong Suk Song, Hyeon Chang Kim, and Hyung Keun Lee