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  • Welcome to the RRDi official web site. Finding the Cure. 

    Where to Begin Your Search

    Suggest you read our FAQs for at least a half hour. After that browse our member forum for another half hour. 
    About Us • What Causes Rosacea? • What Should I Ask My Physician?Rosacea NewbiesFamous Rosaceans •  Contact us

    What is Rosacea?

    Rosacea is a chronic and sometimes progressive disorder of the face, characterized by some or all of the following symptoms:

    Extremely sensitive facial skin with blushing, flushing, permanent redness, burning, stinging, swelling, papules, pustules, broken red capillary veins, red gritty eyes (which can lead to visual disturbances) and in more advanced cases, a disfiguring bulbous nose. Men and women of all ages can be affected, with over 75 million estimated Rosacea Sufferers worldwide

    "Rosacea is probably a collection of many different diseases that are lumped together inappropriately." Zoe Diana Draelos, MD. Dr. Draelos is a member of the ROSIE [ROSacea International Expert] Group that says the subtype classification of rosacea is controversial. Dr. Draelos is also a member of the RRDi MAC. Just because you have a red face might mean you have another skin condition besides rosacea.

    "Rosacea is a multifactorial, hyper-reactivity, vascular and neural based disease with a broad range of facial manifestations where normal vasodilation is greater and more persistent and involves an autoimmune component of microscopic amounts of extravasated plasma induce localized dermal inflammation that may induce repeated external triggers, vasodilation, telangiectasias, redness with eventual fibrosis and hypertrophic scarring of the dermis." Sandra Cremers, M.D., F.A.C.S., RRDi MAC Member.

    Phenotypes

    The RRDi has endorsed the phenotype classification of rosacea which was announced by the ROSCO panel as a better approach of diagnosising rosacea than subtypes.

    Rosacea Differentiation and Misdiagnosis

    Your physician should differentiate rosacea from a plethora of other skin conditions. If you need photos of rosacea click here.

    Sometimes rosacea is misdiagnosed. No one really knows what causes rosacea and there are a number of theories for your consideration. Our latest article on this subject, Rosacea Theories Revisited is worth your time to consider. 

    What will the RRDi Do For Me?

    You can view the list of prescription treatments prescribed for rosacea. There is a list of non prescription treatments for rosacea to consider. We have an affiliate store dedicated to rosacea books, treatments and odd and ends. You can browse our public member forum and learn about rosacea. The digital medical revolution can assist you in your search for a treatment to improve your condition. Your rosacea is an individual case and you need to find what treatment will work for your rosacea and not a treatment aimed at the masses. Individuals can come together and share data, using collaboration tools that the RRDi offers for free. If you have the volunteer spirit and want to become part of this innovative non profit, learn how you can volunteer and be part of this digital medical revolution. You can post in our member forum if you join and register simply with an email address. If you have concerns regarding your privacy, please consider this post.

    Once you join you have a number of tools to collaborate with other members. You can create your own rosacea blog, with easy step by step directions on how to do this. Our Gallery application lets members share photos and videos with the community. Volunteers who contribute their time and energy may receive a free G Suite account through a generous contribution of Google, one of our sponsors.  

    You may receive a free ebook, Rosacea 101: Includes the Rosacea Diet as a gift from the founder/director if you mention in your registration application that you want the free ebook (write in the volunteer box you want the free ebook).

    Our 2016 Rosacea Survey is completed and available for public viewing.  You may review a list of our education grants

    What Can You Do for the RRDi?

    Your joining and registering with our organization will increase our membership. All that is required is a cryptic display name and and an email address to join (your email address is private and members never see your email address nor does the RRDi give your private email address out to anyone). 

    Any donation you give will assist us to continue to keep this web site going, publish our journal, and sponsor education grantsMahalo for your donation. even if it is small. Every dollar helps us keep going. 

    The RRDi is a volunteeer member driven organization and invites rosacea sufferers to become involved. Volunteering is the force that drives the organization and is an integral spirit of the RRDi philosophy. The RRDi warmly invites rosacea sufferers to participate in this non profit which you can become a part of. You are not required to volunteer when you join, since we still want you to join even if you can't volunteer. If all you can do is become a member, that will increase our membership which is helpful in itself. So if you can volunteer, let us know on the application. Please join

    You can post in our member forum about your rosacea experience. However, we want real members, not spammers, hackers or trolls. We provide a safe, secure forum for our members. So our membership registration is very secure requiring your accepting our terms for membership. Please carefully read the next subheading on how to join and if you have concerns about privacy. 

    How to Join

    Members may now join with just an email address and a cryptic display name (your first and last name is no longer required to be a non voting member). To post in our Member Forum or submit articles for publication you must register to join to become a member. The RRDi no longer requires that you provide us with your contact info and mailing address to be a non voting member. However you still need to agree to our policies, rules, etc., since you become a member of the RRDi whether a voting member or not. If you want to vote, simply include all the profile contact fields. We have over 1000 members who are voting members, so we have plenty. It is your choice if you want to vote or not. 

    If you need assistance contact us. Our volunteers will be happy to assist you. 

    Your privacy is our utmost concern and we will take precautions to ensure your privacy will never be violated. Our Privacy Policy is solid. If you have concerns regarding your privacy, please consider this post.

    Once you have joined you can post in our secure members forum which will allow you to post questions to the Medical Advisory Consultants (MAC) and to fellow members or to submit articles for our journal. Yes, members may have an article published on our web site or in our journal. You may receive a free G Suite account with our organization if you have the volunteer spirit. 

    Conclusion

    The Charter of the Corporation states the purpose and Mission Statement which clearly outlines the goals of our non profit corporation. If you are interested in the history of how and why this non profit organization was formed click here for more information.  Mahalo. 

    The RRDi is registered at GuideStar

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  • Posts

    • Hello Victoria, Welcome to the Forums! I have not heard of Zo Skin Care either or had laser therapy.  Hope you find the information you need, Cheers!   Thanks for posting a link Brady.     
    • The national survey on rosacea was conducted with over 500 patients suffering from rosacea and about 300 dermatologist, the main finding included the patients struggle emotionally and low self-esteem, don’t feel comfortable talking to their physician, and impact their social and psychological life. Economic productivity loss due to skin diseases is increasing at an alarming rate. According to American Academy of Dermatologists (AAD), skin diseases affect not just productivity but confidence levels of patients, creating passive impact on long term work stature. Exemplifying the above point, AAD noted that ~85 Mn Americans were seen by a physician for at least one skin disease in 2013 in the U.S, leading to direct healthcare costs of US$ 75 Bn and loss due to opportunity cost of US$11 Bn. The symptoms of the rosacea, persist for a week and vanishes and then appear after some time. People generally reach out for either self-treatments or prescription support. According to American Academy of Dermatologists, 90% of the people, who seek professional help, tend to show 40-50% improvement within at least three months. Some of the major players in global rosacea treatment market are Allergan Plc., Galderma S.A., and Valeant Pharmaceuticals International, Inc., Bayer AG, Dermik Laboratories, Inc., Mayne Pharma, Merz Pharmaceuticals GmbH and Others. Rosacea Treatment Market Evolving Industry Trends and Key Insights by 2025, Find Market Research Request for Report Sample @ https://www.persistencemarketresearch.com/samples/18793  
    • Dear Rosy Friends(how dear Julie B. Campbell likes to call us), Greetings from Romania to all of you! The treatment that I started more than a month ago works for me very well. No more flushing, no burning and no acid sensations. It is so nice to feel great again after so many years of permanent struggle with Rosacea ETR. I am so well that I can enjoy listening to music again, feeling like dancing in every second, start reading books and looking for a new job in European Union. My daily dose is now  Coaxil(1 per day), instead of Bromazepam(1) I take Clonazepam(1), Sanval(1) and Romparkin(half). I am so glad that I finally found a solution that works and is no longer necessary to fight each day with Ministry of Health from Romania to have a medical treatment abroad. Easy easy the things will heal. I will never be Prince Charming again but at least I have finally found the peace of mind. Hallelujah. For my skin I use from time to time Dragon Blood Kit from Utsukusy Cosmetics (http://www.utsukusycosmetics.com/indexeng.html) from Barcelona, Spain. I am also waiting for ZZ cream to try it and see what is happening. I will keep you all informed about my trial of ZZ cream. I pray for all of you to find a way that works well for your type of skin and type of Rosacea. If anyone has a question for me I am ready to answer to you with the greatest pleasure. God help us all. Panda hugs
    • Thank you for fixing the links, sent you a message.
    • There is a painting in the Louvre, "The Old Man and His Grandson" by Ghirlandiao around the year 1480, which is an example of phymatous rosacea (Phenotype 5). 
    • The conclusion of a paper on the relationship between pharmaceutical sales representatives (PSRs) and physicians states:  "Physician–pharmaceutical industry and its sales representative’s interactions and acceptance of gifts from the company’s PSRs have been found to affect physicians’ prescribing behaviour and are likely to contribute to irrational prescribing of the company’s drug. Therefore, intervention in the form of policy implementation and education about the implications of these interactions is needed." BMJ Open. 2017; 7(9): e016408.
      Published online 2017 Sep 27. doi:  10.1136/bmjopen-2017-016408
      PMCID: PMC5623540
      Interactions between physicians and the pharmaceutical industry generally and sales representatives specifically and their association with physicians’ attitudes and prescribing habits: a systematic review
      Freek Fickweiler, Ward Fickweiler, and Ewout Urbach
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