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Welcome to the RRDi official web site. Finding the Cure.
Where to Begin Your Search
Suggest you read our FAQs for at least a half hour. After that browse our member forum for another half hour.
About Us • What Causes Rosacea? • What Should I Ask My Physician? • Rosacea Newbies • Famous Rosaceans • Contact usRosacea is a chronic and sometimes progressive disorder of the face, characterized by some or all of the following symptoms:
Extremely sensitive facial skin with blushing, flushing, permanent redness, burning, stinging, swelling, papules, pustules, broken red capillary veins, red gritty eyes (which can lead to visual disturbances) and in more advanced cases, a disfiguring bulbous nose. Men and women of all ages can be affected, with over 75 million estimated Rosacea Sufferers worldwide.
"Rosacea is probably a collection of many different diseases that are lumped together inappropriately." Zoe Diana Draelos, MD. Dr. Draelos is a member of the ROSIE [ROSacea International Expert] Group that says the subtype classification of rosacea is controversial. Dr. Draelos is also a member of the RRDi MAC. Just because you have a red face might mean you have another skin condition besides rosacea.
"Rosacea is a multifactorial, hyper-reactivity, vascular and neural based disease with a broad range of facial manifestations where normal vasodilation is greater and more persistent and involves an autoimmune component of microscopic amounts of extravasated plasma induce localized dermal inflammation that may induce repeated external triggers, vasodilation, telangiectasias, redness with eventual fibrosis and hypertrophic scarring of the dermis." Sandra Cremers, M.D., F.A.C.S., RRDi MAC Member.
Phenotypes
The RRDi has endorsed the phenotype classification of rosacea which was announced by the ROSCO panel as a better approach of diagnosising rosacea than subtypes.
Rosacea Differentiation and Misdiagnosis
Your physician should differentiate rosacea from a plethora of other skin conditions. If you need photos of rosacea click here.
Sometimes rosacea is misdiagnosed. No one really knows what causes rosacea and there are a number of theories for your consideration. Our latest article on this subject, Rosacea Theories Revisited is worth your time to consider.
What will the RRDi Do For Me?
You can view the list of prescription treatments prescribed for rosacea. There is a list of non prescription treatments for rosacea to consider. We have an affiliate store dedicated to rosacea books, treatments and odd and ends. You can browse our public member forum and learn about rosacea. The digital medical revolution can assist you in your search for a treatment to improve your condition. Your rosacea is an individual case and you need to find what treatment will work for your rosacea and not a treatment aimed at the masses. Individuals can come together and share data, using collaboration tools that the RRDi offers for free. If you have the volunteer spirit and want to become part of this innovative non profit, learn how you can volunteer and be part of this digital medical revolution. You can post in our member forum if you join and register simply with an email address. If you have concerns regarding your privacy, please consider this post.
Once you join you have a number of tools to collaborate with other members. You can create your own rosacea blog, with easy step by step directions on how to do this. Our Gallery application lets members share photos and videos with the community. Volunteers who contribute their time and energy may receive a free G Suite account through a generous contribution of Google, one of our sponsors.
You may receive a free ebook, Rosacea 101: Includes the Rosacea Diet as a gift from the founder/director if you mention in your registration application that you want the free ebook (write in the volunteer box you want the free ebook).
Our 2016 Rosacea Survey is completed and available for public viewing. You may review a list of our education grants.
What Can You Do for the RRDi?
Your joining and registering with our organization will increase our membership. All that is required is a cryptic display name and and an email address to join (your email address is private and members never see your email address nor does the RRDi give your private email address out to anyone).
Any donation you give will assist us to continue to keep this web site going, publish our journal, and sponsor education grants. Mahalo for your donation. even if it is small. Every dollar helps us keep going.
The RRDi is a volunteeer member driven organization and invites rosacea sufferers to become involved. Volunteering is the force that drives the organization and is an integral spirit of the RRDi philosophy. The RRDi warmly invites rosacea sufferers to participate in this non profit which you can become a part of. You are not required to volunteer when you join, since we still want you to join even if you can't volunteer. If all you can do is become a member, that will increase our membership which is helpful in itself. So if you can volunteer, let us know on the application. Please join.
You can post in our member forum about your rosacea experience. However, we want real members, not spammers, hackers or trolls. We provide a safe, secure forum for our members. So our membership registration is very secure requiring your accepting our terms for membership. Please carefully read the next subheading on how to join and if you have concerns about privacy.
How to Join
Members may now join with just an email address and a cryptic display name (your first and last name is no longer required to be a non voting member). To post in our Member Forum or submit articles for publication you must register to join to become a member. The RRDi no longer requires that you provide us with your contact info and mailing address to be a non voting member. However you still need to agree to our policies, rules, etc., since you become a member of the RRDi whether a voting member or not. If you want to vote, simply include all the profile contact fields. We have over 1000 members who are voting members, so we have plenty. It is your choice if you want to vote or not.
If you need assistance contact us. Our volunteers will be happy to assist you.
Your privacy is our utmost concern and we will take precautions to ensure your privacy will never be violated. Our Privacy Policy is solid. If you have concerns regarding your privacy, please consider this post.
Once you have joined you can post in our secure members forum which will allow you to post questions to the Medical Advisory Consultants (MAC) and to fellow members or to submit articles for our journal. Yes, members may have an article published on our web site or in our journal. You may receive a free G Suite account with our organization if you have the volunteer spirit.
Conclusion
The Charter of the Corporation states the purpose and Mission Statement which clearly outlines the goals of our non profit corporation. If you are interested in the history of how and why this non profit organization was formed click here for more information. Mahalo.
The RRDi is registered at GuideStar
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Posts
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By Brady Barrows · Posted
"Researchers found yeast with high levels of the sugar known as glucose overstimulated the same proteins often found mutated inside human tumors, making cells grow faster. The finding, published in Nature Communications on Friday, aims to shed light on how cancer develops." Relationship between sugar and cancer is now clearer, scientists say, Ashley May, USA TODAY -
By Brady Barrows · Posted
PRWeb announced, "The National Rosacea Society (NRS) announced it has awarded funding for three new studies, in addition to continuing support for three ongoing studies, as part of its research grants program to increase knowledge and understanding of the causes and other key aspects of rosacea that may lead to improvements in its management, prevention or potential cure." On the NRS web site it states, "Since its founding, the research grants program has awarded more than $1.5 million to researchers for a wide range of rosacea-related studies, and the program is funded by donations from many thousands of individuals who wish to improve the lives of those affected by rosacea." The PRWeb announcement says that in 2017 $75,000 was awarded as grants. The NRS announced that in 2016 $65,000 was awarded in grants. In 2015 the NRS Form 990 reported that $75,010 was awarded in grants. These figures are the highest amount of donated money spent on rosacea research grants by any non profit organization. Since we have been following the NRS we have noted that the NRS has spent a total of $1,337,939 on rosacea research grants from 1998 thru 2015. During this same period from 1998 through 2015 the total public support donations amounted to 22% of the total donations, and the NRS insists on its web site that "The NRS research grants program, which is entirely funded by rosacea patients, has played a leadership role in making this important progress possible." It is to be noted that during the period of 1998 through 2015 the NRS received in total donations $13,149,975. If you do the math, this means that 10.17% of the total money donated to the NRS was spent on rosacea research grants. To put this in a way you can understand, for every dollar donated to the NRS about ten cents is spent on rosacea research grants. So what does the NRS do with the other 90% of it donations which amounted to over $13 million dollars? 60% is spent on two private contractors owned by Sam Huff, the President of the NRS, who sits on the board of directors. We have a Google Sheet showing all the donations and expenses for your review. The other 30% is spent on various expenses listed on the Form 990 which is required by law to show the public since the NRS is a non profit organization. To help you understand clearly what the NRS is doing with 60% of its donations, for every dollar donated to the NRS 60 cents is spent on two private contractors that are corporations owned by Sam Huff, President of the NRS. This is, of course, legal, many non profits do this, and most rosacea sufferers who donate to the NRS could care less if the NRS spends over half its donations on two private corporations owned by the president of the NRS. However, the RRDi was chiefly formed because we thought a non profit organization could do much better in spending its donations. For more information on why the RRDi was formed read this article. -
By Brady Barrows · Posted
"Rosacea is an incredibly common condition, but many people will never know that it is the cause of their symptoms. However, in many cases it can bothersome, embarrassing, and sometimes painful. “Whether a patient has mild redness or severe skin thickening, if it bothers you, there are many possible treatment options,” said Tinklepaugh." Taking the Red Out: Treating Rosacea, by Elizabeth Renda, University of Utah Health -
By Brady Barrows · Posted
Two Steps for SD Newbies (1) Read Tom Busby's SD Treatment Protocol (2) Read this thread -
By Brady Barrows · Posted
Hi Mollie, Posted Dr. Heng's interview here. Lilou interviewed me too. -
By Brady Barrows · Posted
Giovanna Lopez
image courtesy of Wendy Gould, PopSugar " "I am such a huge skincare junkie, and I have a set routine that I do every day," said Giovanna Lopez, who modeled at Michael Costello's presentation. She noted that in addition to cleansing and applying serum every day, she's also a huge fan of using rosewater as a toner on her sensitive skin. "I have rosacea flare-ups, so it's one thing that really helps to calm my skin and soothe my redness," she said." 8 Stunning Models Spill Skincare Hacks You Actually Haven't Heard Yet, Photo 7 of 18, by WENDY GOULD, PopSugar
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