Jump to content
  • Welcome to the Rosacea Research and Development Institute [RRDi] official web site. The RRDi is a 501 (c) 3 non profit organization. If you suffer from rosacea you are a rosacean. Join us to find the cure. 

    We are rosaceans (rosacea sufferers). Our non profit rosacea for patient advocacy web site is a repository of rosacea information.. You can add more information to our web site by joining and posting in our member forum

    Where to Begin Your Search
    Tapatalk • About Us • What Causes Rosacea? • What Should I Ask My Physician?Rosacea NewbiesFamous RosaceansRosacea in the News • Contact us
    Suggest you read our FAQs for at least a half hour. After that browse our member forum for another half hour. 

    What is Rosacea?
    Rosacea is a chronic and sometimes progressive disorder of the face, characterized by some or all of the following symptoms:

    Extremely sensitive facial skin with blushing, flushing, permanent redness, burning, stinging, swelling, papules, pustules, broken red capillary veins, red gritty eyes (which can lead to visual disturbances) and in more advanced cases, a disfiguring bulbous nose. Men and women of all ages can be affected, with over 415 million estimated rosacea sufferers worldwide

    "Rosacea is probably a collection of many different diseases that are lumped together inappropriately." Zoe Diana Draelos, MD. 
    Dr. Draelos is a member of the ROSIE [ROSacea International Expert] Group that says the subtype classification of rosacea is controversial. Dr. Draelos is also a member of the RRDi MAC. Just because you have a red face might mean you have another skin condition instead of or with rosacea, since other skin conditions may co-exist with rosaceamimic rosacea or you might have a rosacea variant (a dozen variants to differentiate).  

    "Rosacea is a multifactorial, hyper-reactivity, vascular and neural based disease with a broad range of facial manifestations where normal vasodilation is greater and more persistent and involves an autoimmune component of microscopic amounts of extravasated plasma induce localized dermal inflammation that may induce repeated external triggers, vasodilation, telangiectasias, redness with eventual fibrosis and hypertrophic scarring of the dermis." Sandra Cremers, M.D., F.A.C.S., RRDi MAC Member.

    If you note, there are different definitions of what constitutes rosacea which is common. Clarity with phenotypes (see below) helps in a differential diagnosis. 

    Treatment
    'There are a number of topical, oral and systemic treatments available. Yet, treatment for rosacea remains difficult." Expert Opinion Pharmacotherapy 

    “There’s no one treatment that’s going to work for everybody, but we evaluate each patient individually and try to select the treatments from our armamentarium that we think will be the simplest and safest for long-term control.” John Meisenheimer, MD, Orlando, The City's Magazine

    Phenotypes
    In November 2016, the RRDi endorsed the phenotype classification of rosacea which was announced by the ROSCO panel as a better approach of diagnosising rosacea than using subtypes.

    Rosacea Differential Diagnosis and Misdiagnosis
    Your physician should differentiate rosacea from a plethora of other skin conditions. If you need photos of rosacea click here.

    Sometimes rosacea is misdiagnosed.

    Cause of Rosacea
    No one really knows what causes rosacea and there are a number of theories for your consideration. Our latest article on this subject, Rosacea Theories Revisited is worth your time to consider. 

    What will the RRDi Do For Me?
    You can view the list of prescription treatments prescribed for rosacea. There is a list of non prescription treatments for rosacea to consider. We have an affiliate store dedicated to rosacea books, treatments and odd and ends. You can browse our public member forum and learn about rosacea. The digital medical revolution can assist you in your search for a treatment to improve your condition. Your rosacea is an individual case and you need to find what treatment will work for your rosacea and not a treatment aimed at the masses. Individuals can come together and share data, using collaboration tools that the RRDi offers for free. If you have the volunteer spirit and want to become part of this innovative non profit, learn how you can volunteer and be part of this digital medical revolution. You can post in our member forum if you join and register simply with an email address. If you have concerns regarding your privacy, please consider this post.

    Once you join you have a number of tools to collaborate with other members. You can create your own rosacea blog, with easy step by step directions on how to do this. Our Gallery application lets members share photos and videos with the community. Volunteers who contribute their time and energy may receive a free G Suite account through a generous contribution of Google, one of our sponsors.  

    You may receive a free ebook, Rosacea 101: Includes the Rosacea Diet as a gift from the founder/director if you mention in your registration application that you want the free ebook (write in the volunteer box you want the free ebook).

    You can post in our member forum about your rosacea experience. However, we want real members, not spammers, hackers or trolls. We provide a safe, secure forum for our members, so our membership registration is very secure requiring your accepting our terms for membership.

    Our 2016 Rosacea Survey is completed and available for public viewing.  You may review a list of our education grants. Finally, ask not what the RRDi can do for you, ask.....

    What Can You Do for the RRDi?
    Your joining and registering with our organization will increase our membership. All that is required to join is an email address (your email address is private and members never see your email address nor does the RRDi give your private email address out to anyone). Our goal is to reach a membership of 10,000 members. Think about that, 10,000 rosacea sufferers joined together as a non profit organization and you are member. We need you to join to help us reach this goal!

    The RRDi is a volunteeer member driven organization and invites rosacea sufferers to become involved. Volunteering is the force that drives the organization and is an integral spirit of the RRDi philosophy. The RRDi warmly invites rosacea sufferers to participate in this non profit which you can become a part of. You are not required to volunteer when you join, since we still want you to join even if you can't volunteer. If all you can do is become a member, that will increase our membership which is helpful in itself. So if you can volunteer, let us know on the application. Please join

    Please carefully read the next subheading on how to join and if you have concerns about privacy. 

    How to Join
    Members may now join with just an email address and a display name (your first and last name is no longer required to be a non voting member and you can set up a anonymous or cryptic display name so that no one knows who you are). To post in our Member Forum or submit articles for publication you must register to join to become a member. The RRDi no longer requires that you provide us with your contact info and mailing address to be a non voting member. However you still need to agree to our policies, rules, etc., since you become a member of the RRDi whether a voting member or not. If you want to vote, simply include all the profile contact fields. We have over 1000 members who are voting members, so we have plenty. It is your choice if you want to vote or not. 

    If you need assistance contact us. Our volunteers will be happy to assist you. Clarity with phenotypes (read below) helps differentiate a diagnosis. 

    Your privacy is our utmost concern and we will take precautions to ensure your privacy will never be violated. Our Privacy Policy is solid. If you have concerns regarding your privacy, please consider this post.

    Once you have joined you can post in our secure members forum which will allow you to post questions to the Medical Advisory Consultants (MAC) and to fellow members or to submit articles for our journal. Yes, members may have an article published on our web site or in our journal. You may receive a free G Suite account with our organization if you have the volunteer spirit. 

    Charter and Mission Statement
    The Charter of the Corporation states the purpose and Mission Statement which clearly outlines the goals of our non profit corporation. If you are interested in the history of how and why this non profit organization was formed click here for more information

    Of course there are expenses to keep this non profit organization going. Any donation you give will assist us to continue to keep this web site going, publish our journal, and sponsor education grantsMahalo for your donation. even if it is small. Every dollar helps us keep going.  

    The RRDi is registered at GuideStar

    guidestar_logo-230x71.pngguidestar2018goldseal.png

  • Recently Browsing   0 members

    No registered users viewing this page.

  • Member Statistics

    • Total Members
      1,170
    • Most Online
      325

    Newest Member
    Priscilla
    Joined
  • Forum Statistics

    • Total Topics
      3,901
    • Total Posts
      4,995
  • Posts

    • Laser treatment is one of the most popular medical procedures for treatment of rosacea be it cosmetic reasons or to halt its progression.  Clinical studies have proven that lasers can help treat broken blood vessels, chronic redness, blotchiness and reduce flushing, swelling, stinging sensations and even small red inflammatory papules.

      10 Tips To Get Better Rosacea Laser Treatment Results, Rosadyn
    • Related Articles Cutaneous and Mucosal Manifestations Associated with Celiac Disease. Nutrients. 2018 Jun 21;10(7): Authors: Rodrigo L, Beteta-Gorriti V, Alvarez N, Gómez de Castro C, de Dios A, Palacios L, Santos-Juanes J Abstract
      Celiac disease (CD) is an immune-mediated, gluten-induced enteropathy that affects predisposed individuals of all ages. Many patients with CD do not report gastrointestinal symptoms making it difficult to reach an early diagnosis. On the other hand, CD is related to a wide spectrum of extra-intestinal manifestations, with dermatitis herpetiformis (DH) being the best characterized. These associated conditions may be the clue to reaching the diagnosis of CD. Over the last few years, there have been multiple reports of the association between CD and several cutaneous manifestations that may improve with a gluten-free diet (GFD). The presence of some of these skin diseases, even in the absence of gastrointestinal symptoms, should give rise to an appropriate screening method for CD. The aim of this paper is to describe the different cutaneous manifestations that have been associated with CD and the possible mechanisms involved.
      PMID: 29933630 [PubMed - in process] {url} = URL to article
    • Related Articles [A dog related Demodex spp. infestation in a student: a rare Demodex case]. Mikrobiyol Bul. 2018 Apr;52(2):214-220 Authors: Esenkaya Taşbent F, Dik B Abstract
      Demodicosis is an ectoparasitic cutaneous infestation of pilosebaceous unit caused by Demodex mites. Demodex spp. are considered to be pathogenic when they increase in number and infect dermis.They can be the cause of diseases such as pityriasis folliculorum, papulopustular rosacea, granulomatous rosacea, inflammatory papule, acne vulgaris, perioral dermatitis, blepharitis and folliculitis. These mites can be found in most mammals including human. Canine and feline demodicosis is a well-known example of severe dermatitis caused by the proliferation of Demodex mites. Dogs are one of the most popular pets worldwide with well-being feeling to their owners. However, they may cause a health risk to humans due to their zoonotic diseases potential. Demodicosis is a severe and prevalent dermatologic disease in dogs. In this case report, a Demodex case thought to be related with a dog infestation was presented. A twenty-year-old girl student who feeds a Miniature Pinscher crossbred dog in her house for a while noticed common itchy papulopustular lesions, incrustation and some alopecic loci in her dog and admitted to Selçuk University Faculty of Veterinary Medicine, Department of Parasitology. Itchy papules and pustules were also observed in dog's owner face and arm about three or four weeks later. Skin scrapings and hair samples were taken from the patient and the dog and examined with light microscope. Adult and egg forms of Demodex spp. were detected in both patient and dog specimens in microscopic examination. Ivermectin treatment was recommended as 0.2 mg/kg for the dog. The owner of the dog was sent to a dermatology clinic and topical permethrin was recommended for the treatment. At the end of the first month the dog was controlled again, a whole clinical and microscopic improvement was observed and all of the lesions were disappeared for both the dog and its owner. This demodicosis case, thought to originate from a dog, is a rare condition because of Demodex mites are known to be highly host specific and not a zoonotic parasite. Although host specific cross infections between humans and animals have been rarely reported, D. canis was determined to be more transmissible across species than the other Demodex mites as indicated in the literature. As a result, it is necessary and important to keep in mind about Demodex spp. infestation in patients with skin complaints and pet feeding.
      PMID: 29933739 [PubMed - in process] {url} = URL to article
    • Dr. Whitney Bowe, who volunteers on the RRDi MAC, was interviewed on Good Morning America about probiotics. Watch below:  Dr. Bowe YouTube Channel Dr. Bowe wrote the book, The Beauty of Dirty Skin In Cutis magazine, Dr. Bowe wrote the article, Probiotic use improved acne, rosacea symptoms.  Dr. Bowe responded to an inquiry from smart2005ct in our member forum. 
    • "Added sugar, on the other hand, is processed quickly by the body. Making it more confusing, added sugar likes to “hide” on nutrition labels (an FDA change would have had “added sugars” listed separately, but these changes have been postponed). For now, look for ingredients such as corn syrup, brown sugar, fruit juice concentrates, honey, molasses, agave, and anything ending in “ose”—like dextrose, fructose, glucose, lactose, maltose, or sucrose. Once you can identify sugar and cut foods that contain it from your diet, here are some of the positive (and even lifesaving) ways your body may benefit..." The 9 Ways Your Body Can Change When You Eat Less Added Sugar, BY TINA DONVITO, Healthy Nation, Food
    • Thank you so much for your questions. Please see my responses and opinions below:  Q1: Interestingly, many of my rosacea patients tend to do very well with salicylic acid peels in my office, under controlled circumstances.  The sal acid is actually related to aspirin, and as such, it  has anti-inflammatory properties.  For some patients with extremely sensitive skin and rosacea, they actually do wonderfully on once a month sal acid peels as part of a comprehensive program I put them on in-office including diet, supplements, skincare, etc. Q2: I recommend brands like Aveeno, and La Roche Posay, that have amazingly gentle and hydrating formulations that also take the microbiome into account.  They both use prebiotic ingredients in their newest skincare products.  Some of my patients also love using the Metaderm Heal and Prevent Cream on their face and body. Please check my Dr. Whitney's Picks page on my website at www.drwhitneybowe.com for my other product recommendations and the science behind my recommendations. Q3: There is a lot of information on the internet, and unfortunately a lot of it is not credible or evidence-based.  I used hundreds of references, along with years of treating thousands upon thousands of patients in my office, as a basis for my recommendations.  I stand by them. Best of luck! Q4: There are no studies, to my knowledge, testing the impact of drinking that form of beverage along with taking your probiotic supplements.  I do recommend looking for probiotic supplements that are formulated with technologies that protect the strains from harsh stomach acids, hence delivering them to the gut for maximum impact. Thank you for your interest in my book and for your questions! Best, Dr. Whitney Bowe  
×