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Welcome to the RRDi official web site. Finding the Cure.
Where to Begin Your Search
Suggest you read our FAQs for at least a half hour. After that browse our member forum for another half hour.
About Us • What Causes Rosacea? • What Should I Ask My Physician? • Rosacea Newbies • Contact usRosacea is a chronic and sometimes progressive disorder of the face, characterized by some or all of the following symptoms:
Extremely sensitive facial skin with blushing, flushing, permanent redness, burning, stinging, swelling, papules, pustules, broken red capillary veins, red gritty eyes (which can lead to visual disturbances) and in more advanced cases, a disfiguring bulbous nose. Men and women of all ages can be affected, with over 75 million estimated Rosacea Sufferers worldwide.
"Rosacea is probably a collection of many different diseases that are lumped together inappropriately." Zoe Diana Draelos, MD. Dr. Draelos is a member of the ROSIE [ROSacea International Expert] Group that says the subtype classification of rosacea is controversial. Dr. Draelos is also a member of the RRDi MAC. Just because you have a red face might mean you have another skin condition besides rosacea.
"Rosacea is a multifactorial, hyper-reactivity, vascular and neural based disease with a broad range of facial manifestations where normal vasodilation is greater and more persistent and involves an autoimmune component of microscopic amounts of extravasated plasma induce localized dermal inflammation that may induce repeated external triggers, vasodilation, telangiectasias, redness with eventual fibrosis and hypertrophic scarring of the dermis." Sandra Cremers, M.D., F.A.C.S., RRDi MAC Member.
Phenotypes
The RRDi has endorsed the phenotype classification of rosacea which was announced by the ROSCO panel as a better approach of diagnosising rosacea than subtypes.
Rosacea Differentiation and Misdiagnosis
Your physician should differentiate rosacea from a plethora of other skin conditions. If you need photos of rosacea click here.
Sometimes rosacea is misdiagnosed. No one really knows what causes rosacea and there are a number of theories for your consideration. Our latest article on this subject, Rosacea Theories Revisited is worth your time to consider.
What will the RRDi Do For Me?
You can view the list of prescription treatments prescribed for rosacea. There is a list of non prescription treatments for rosacea to consider. We have an affiliate store dedicated to rosacea books, treatments and odd and ends. You can browse our public member forum and learn about rosacea. The digital medical revolution can assist you in your search for a treatment to improve your condition. Your rosacea is an individual case and you need to find what treatment will work for your rosacea and not a treatment aimed at the masses. Individuals can come together and share data, using collaboration tools that the RRDi offers for free. If you have the volunteer spirit and want to become part of this innovative non profit, learn how you can volunteer and be part of this digital medical revolution. You can post in our member forum if you join and register simply with an email address. If you have concerns regarding your privacy, please consider this post.
Once you join you have a number of tools to collaborate with other members. You can create your own rosacea blog, with easy step by step directions on how to do this. Our Gallery application lets members share photos and videos with the community. Volunteers who contribute their time and energy may receive a free G Suite account through a generous contribution of Google, one of our sponsors.
You may receive a free ebook, Rosacea 101: Includes the Rosacea Diet as a gift from the founder/director if you mention in your registration application that you want the free ebook (write in the volunteer box you want the free ebook).
Our 2016 Rosacea Survey is completed and available for public viewing. You may review a list of our education grants.
What Can You Do for the RRDi?
Your joining and registering with our organization will increase our membership. All that is required is your display name and and an email address to join.
Any donation you give will assist us to continue to keep this web site going, publish our journal, and sponsor education grants. Mahalo for your donation. even if it is small. Every dollar helps us keep going.
The RRDi is a volunteeer member driven organization and invites rosacea sufferers to become involved. Volunteering is the force that drives the organization and is an integral spirit of the RRDi philosophy. The RRDi warmly invites rosacea sufferers to participate in this non profit which you can become a part of. You are not required to volunteer when you join, since we still want you to join even if you can't volunteer. If all you can do is become a member, that will increase our membership which is helpful in itself. So if you can volunteer, let us know on the application. Please join.
You can post in our member forum about your rosacea experience. However, we want real members, not spammers, hackers or trolls. We provide a safe, secure forum for our members. So our membership registration is very secure requiring your accepting our terms for membership. Please carefully read the next subheading on how to join and if you have concerns about privacy.
How to Join
Members may now join with just an email address and a display name. To post in our Member Forum or submit articles for publication you must register to join to become a member. The RRDi no longer requires that you provide us with your contact info and mailing address but with no voting privileges. However you still need to agree to our policies since you become a member of the RRDi whether non voting or not. If you want to vote, simply include all your profile fields. If you don't understand how to do this contact us. Your privacy is our utmost concern and we will take precautions to ensure your privacy will not be violated. Our Privacy Policy is solid. If you have concerns regarding your privacy, please consider this post.
Once you have joined you can post in our secure members forum which will allow you to post questions to the Medical Advisory Consultants (MAC) and to fellow members or to submit articles for our journal. Yes, members may have an article published on our web site or in our journal. You may receive a free G Suite account with our organization if you have the volunteer spirit.
Conclusion
The Charter of the Corporation states the purpose and Mission Statement which clearly outlines the goals of our non profit corporation. If you are interested in the history of how and why this non profit organization was formed click here for more information. Mahalo.
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Posts
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By Brady Barrows · Posted
The Rosacea Treatment Clinic offers retinaldehyde capsules for rosacea. -
By Brady Barrows · Posted
IowaDavid, RF poster, has a web site where he is selling the Soothing Rain Light Unit. -
By Brady Barrows · Posted
Romeo Milea has been appointed to the RRDi Board of Directors. The board of directors looks forward to Romeo's volunteer spirit and the energy he brings to our non profit organization. You may read his first post -
By Brady Barrows · Posted
Rosacea affects about 16 million Americans, and most of them don’t know they have it. According to a Gallup survey, almost eight in 10 Americans do not know that rosacea exists. GUEST COLUMN: Rosacea affects about 16 million Americans
By Fred Cicetti, International Falls Journal -
By Brady Barrows · Posted
A Danish population -based cohort study identified a significant association between patients who have rosacea and their risk of having certain other gastrointestinal diseases – specifically celiac disease, Crohn's disease, ulcerative colitis, and irritable bowel syndrome. “While a co-occurrence of rosacea and gastrointestinal disorders has previously been evaluated, the topic remains controversial,” wrote the authors, led by the department of dermatology and allergy, Herlev and Gentofte Hospital, Hellerup, Denmark. Study identifies link between rosacea and GI diseases
YOUR DOSE OF MEDICINE By Charles C. Chante, MD (The Philippine Star) | -
By ROMEO MILEA · Posted
My dear friends in need, My drama story started in 1989 as a result of seborrheic acne and between 1989 and 1997 my face was chemically peeled of thousand of layers and after that treated with a corticoid like Flocinolon N cream. As a resullt of that my face was red all the time(actually the colour of my face was the one of a sour-cherry), the skin was very sensitive and I was dehydrating very fast. Between 1997 and 2012 I had no ideea that what was happening to be could be rosacea. At that time I was still able to go to the beach during summer days(I live close to the Black Sea) but I was not able to shave very often as my skin was immediately irritated and I was not putting any cream on my face or taking any pills other than aspirin. In September 2009 a new problem started at the level of the head - the cronic fatigue of the brain. Till October 2010 I had no neurological or psyhiatrical treatment for that. Somewhere in 2012 my face started to burn and flush at a specific hour 6.30 pm for hours. No dermatological or psychiarical treatment worked for me. No rosacea cream was working for more than 2-3 days and no pill was having a positive result. During the last 7 years I had 2 MRIs, tests for hystamine, bacteria, fungi, malabsorbtion, H. Pylori, food alergies, gluten, vitamin D3, heavy metals and so on. Nothing wrong was found. In November 2015 clonidine was prescribed to me by a dermatologist(Mirvaso was also prescribed by the same dermatologist with no positive result) and the flushing and burning became more rare from daily one to 2-3 per month but very severe. The following antidepresants were prescribed to me in the last years: Anafranil, Esprital, Cymbalta, Zoloft, Cipralex, Alprazolam, Abylifi, Fobiless, Mirtazapine, Trittico and the last one I have tried - Seroxat - I was almost ready to die a couple of times in August 2017. I was on the edge of collaps and I was thinking that the best way out for me from this story it will be to commit suicide(my mind was imagining all kind of scenarios from taking all the pills in the house to throwing in Danube with my car or in a deep vally in the mountains). Despair and disappointment were my only daily so called friends. In these circumstancies I wish I was dead as there was no life in my life anymore. Beyond flushing and burning I was having a permanet acid sensations in the skin that I was not even bearing to sweat on my face(Niacineamide was the second medicine that helped me for a while because I was not sweating any more). In the last four years I have send numberless petitions to the Prime Minister and the President of Romania to determine the Ministry of Health to let me consult a doctor abroad( I wanted to see dr. Chu in London). But after years of waiting they finally analyzed my case from June to July 2017 and decided to not help me as only surgical treatments are a priority to be treated abroad according with Romanian law. So you can imagine my psyhological status every day. Two weeks ago I have chaged the psychiatrist after 3 years of variable results at the same doctor and the month of August in which a new psychiatrist tried on my brain Seroxat(while taking Seroxat I was lethargic and not able to wake up from my bed) with very bad concequencies. What is my new treatment? - Coaxil(3 per day), Bromazepam(1), Sanval(1) and Romparkin(half). What is happening to me now is almost unbelievable: no more acid sensations in the skin from the very first hour of the day, no more sweating, I am able to stay in the sun without exageration, I can shave being able to leave from the house in the same day, I sleep very well, I started to enjoy hearing music again and I am almost ready to dance in every second. God what is this? Am I in remision or am I cured? I have 4 different psyhiatrical diagnostics (In Romania a dermatologist will never prescribe an antidepresant) and the opinion of psychiatrists is that I have a persistent somatic delirium disorder and that I, by my fear of a heavy / incurable disease, set off all my splendor. I can hardly believe it as the medicine for that disorder - Olanzapin is the only medicine known today for persistent somatic delirium disorder - taken for two years changed nothing in the picture. Dear friends keep the fingers crossed for me. I'll keep you up to date with what's happening to me. A great weekend to all of you. Hugs and kisses. God help us all.
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