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  • Rosacea Research

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    Rosacea Research

    Rosaceans can make a difference in rosacea research by joining the RRDi as a corporate member. Please join and VOLUNTEER

    The RRDi could engage in some novel rosacea research. You can become involved with this volunteer movement of rosaceans making a difference in the direction of rosacea research. Never underestimate the power of rosaceans volunteering. For example, you could volunteer as a grant writer (if you have no experience you could learn how). If you are a professional grant writer, or would like to learn how to write grants for rosacea research, please click here.

    Joel T. Bamford, M.D., wrote an article in the Journal of the RRDi entitled, "Is it possible for rosaceans to do research?" The answer to that question is joining our cause and making this possible. The RRDi is in the forefront of the medical digital revolution which you can be a part of. For more information click here.

    "However, as another important outcome, their analyses also highlighted the need for better-quality studies evaluating treatments for rosacea....The reviewers also found there were no randomized, controlled trials evaluating other treatments commonly used for rosacea, including doxycycline, minocycline, isotretinoin, laser therapy, erythromycin, dapsone and topical tretinoin." [1]

    According to Michael Detmar, M.D., in 2003, only one paper was published for every 144,000 rosacea patients in the United States, compared to a 1-to-11 ratio for melanoma and 1 to 4,900 for psoriasis. [Source]

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    RRDi Education Grants

    The RRDi has funded educational grants sponsored by Galderma. For more information click here.

    Volunteer

    If you want to become involved as a volunteer you can begin to educate yourself with the following subjects on rosacea research:

    Rosacea Research in Perspective of Idiopathic Diseases

    Rosacea Research in Perspective of Funding

    Rosacea Research Forum

    Rosacea RRDi Research Articles

    Call For Papers - Journal of the RRDi. Volume 2, No. 1

    Rosaceans Funding Rosacea Research
    Could 10K members of the RRDi get together and each donated one dollar and fund a double blind, placebo controlled, peer reviewed clinical study research paper on rosacea? Only if you become involved. That is what volunteering is all about. Donate.

    End Notes

    [1] Rosacea Treatment Studies Scrutinized by Reviewers
    Better-quality assessments essential to evaluate treatments, analysis shows
    Dermatology Times, Publish date: Feb 1, 2005 By: Cheryl Guttman



  • Posts

    • This topic has been researched a lot. There are many, many published articles on this subject. We even have our own extensive post on this subject.   Think about it, is this what you as a rosacea sufferer want clinical studies and scientific medical journals to spend money on? The above article was published by the Dermatology Online Journal. 
    • Front Immunol. 2024 Feb 29;15:1382092. doi: 10.3389/fimmu.2024.1382092. eCollection 2024. ABSTRACT [This corrects the article DOI: 10.3389/fimmu.2023.1285951.]. PMID:38487539 | PMC:PMC10938264 | DOI:10.3389/fimmu.2024.1382092 {url} = URL to article
    • Another study on bacteria and rosacea which adds cutibacterium acens being LOWER and substantiating other papers that staphylococcus epidermis is higher in the 17  in the case group who had rosacea. No mention of other microbes, which is generally what western medicine focuses on including studies on rosacea. There are three other bacteria that are mentioned in rosacea studies which we list in this category Wouldn't it be incredible if 10,000 rosaceans got together and each one donated just one dollar and sponsored through a legal non profit organization for rosacea to investigate microbes other than bacteria, i.e., virus, archea, or for that matter whatever the 10,000 rosaceans wanted investigated by a show of hands? Could rosaceans actually come together and do their own rosacea research?  
    • Dermatol Online J. 2023 Oct 15;29(5). doi: 10.5070/D329562420. NO ABSTRACT PMID:38478655 | DOI:10.5070/D329562420 {url} = URL to article
    • Dermatol Online J. 2023 Dec 15;29(6). doi: 10.5070/D329662989. ABSTRACT Research in dermatology education highlights the lack of skin of color (SOC) instruction for medical students, leading to concerning healthcare outcomes. Because of the already limited opportunity for students to have dedicated teaching in pathophysiology, management, and treatment of dermatologic diseases in medical school, we developed an educational module that addresses these gaps. We created a one-hour virtual lecture for medical students focused on common skin diseases tested on the United States Medical Licensing Examination with visual images across all skin types. A questionnaire was administered before and after the educational module to assess outcomes comparing disease identification in lighter (Fitzpatrick scale I-III) versus darker (Fitzpatrick scale IV-VI) skin tones and to determine medical school student attitudes. An analysis of 43 examination scores before, and after attending the educational module determined rosacea, psoriasis, and basal cell carcinoma to be conditions in SOC patients that demonstrated the most significant improvement (47.3%, 54.9%, and 30.8%, respectively). Our results also highlighted worse performance outcomes for diseases in SOC in the pre-examination questionnaire. Thus, our study indicates that a concise education module focused on disease presentations inclusive of all skin types may efficiently increase students' ability to identify diseases commonly misdiagnosed in the clinical setting. PMID:38478660 | DOI:10.5070/D329662989 {url} = URL to article
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