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Rosacea Research in Perspective of Idiopathic Diseases

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In order to really understand and put rosacea research in perspective it is important to understand where rosacea is in terms of total disease on this planet. Google Answers says, "According to the World Health Organization, there are still no effective treatments available for around three quarters of the 30,000 diseases known today worldwide." [1] “For two thirds of all known sicknesses—about 20,000—there is so far no way of treating the cause.” [2] So rosacea is somewhere between three quarters and two thirds of what is termed idiopathic diseases. [3] Since the cause of rosacea isn't known, and the number of theories on the cause of rosacea has grown exponentially over the years, rosacea is classified as an idiopathic disease

According to Michael Detmar, M.D., in 2003, only one paper was published for every 144,000 rosacea patients in the United States, compared to a 1-to-11 ratio for melanoma and 1 to 4,900 for psoriasis. [4] This indicates how rosacea research is compared to other idiopathic skin diseases that have a more devastating impact on sufferers. If you had to choose one of these three diseases as a consequence which one would you choose?  Comparing rosacea to melanoma or psoriasis does put rosacea into perspective when it comes to suffering.  

So any papers published about rosacea is indeed something to be grateful for. With the increase of spending by pharmaceutical treatments for rosacea comes more research spending. The NRS and AARS, being sponsored by pharmaceutical companies, these two non profit organizations have engaged in most of the rosacea research conducted by non profits. Most of the rosacea research is sponsored by pharmaceutical companies which is noted by Dr. Kligman in the next paragraph.  A typical example is this paper about three over the counter redness control treatments sponsored by a pharmaceutical company. 

Dr. Kligman in a paper he wrote in 2003 mentions the "indifference of the National Institutes of Health, which with an annual budget of nearly 30 billion dollars, has not seen fit to fund a single grant for the investigation of rosacea." Dr. Kligman also says that most research done on rosacea is by the skin industry which is "voluminous literature, mainly focused on treatments sponsored by commercial interests; perhaps not the most credible source of unbiased research.'” 
A Personal Critique on the State of Knowledge of Rosacea, Albert M. Kligman, M.D., Ph.D.
Department of Dermatology, University of Pennsylvania, Philadelphia, PA, U.S.A.

If rosaceans want to sponsor their own novel rosacea research, they would need to be united, have a volunteer spirit, and use the RRDi to sponsor their own research. Put that into perspective. You should also understand another perspective in this, Rosacea Research in Perspective of Funding.

Imagine if 10,000 RRDi members united together and each donated one dollar and we then sponsored a rosacea research clinical study that is peer reviewed, double blind, and placebo controlled using the RRDi MAC as collaboration on this research study. Put that into perspective with research into Idiopathic Diseases such as rosacea. Or you can let the status quo research into rosacea continue as it is with pharmaceutical companies sponsoring most of the research and funding non profit organizations that rely on pharmaceutical companies for most of their spending who the board of directors are made up of NON rosacea sufferers. It is up to you if you want to volunteer with the RRDi and do something about this. 

Joel T. Bamford, M.D., wrote an article in the Journal of the RRDi entitled, "Is it possible for rosaceans to do research?"

End Notes

[1] how many diseases are there?

[2] The German pharmaceutical publication Statistics ’97

[3] Idiopathic Disease, Wikipedia

[4] Rosacea: turning all stones for source of pathology, Rebecca Bryant, Dermatology Times, Jun 1, 2004


Related to the skin industry funding rosacea research is the following posts: 
Dermatological Textbooks Conflict of Interests

Rosacea Research in Perspective of Funding

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