Jump to content

Guide

Root Admin
  • Posts

    3,350
  • Joined

  • Last visited

About Guide

Profile Information

  • Country
    USA

RRDi required

  • Are you a rosacean?
    Yes

Recent Profile Visitors

10,319 profile views

Guide's Achievements

Grand Master

Grand Master (14/14)

  • Dedicated Rare
  • Week One Done
  • One Month Later
  • One Year In
  • Conversation Starter Rare

Recent Badges

0

Reputation

  1. Guide

    Final Appeal

    If you have been diagnosed with Phenotype 5, it usually responds to treatment quite well. We have a list of treatment options to consider listed in this post which requires you join the RRDi as an active member to view. Have you been diagnosed with Phenotype 5? What 2 prescription treatments have you used?
  2. Green tea hasn't been on an rosacea trigger list. What is on most rosacea trigger lists is HOT BEVERAGES may cause a flush, whether it is green tea, black tea, white tea, coffee, hot water, etc. FOR MORE INFORMATION
  3. If you are a RRDi member, you need to login to your account. Then simply post anywhere guests are able to post, like this thread where you asked this question. That reactivates your account. Once you are reactivated, under your display name it shows 'Active Member.' This gives you 30 days of access to our website where guests are restricted. If you haven't posted in the last thirty days your account is then deactivated. Repeat the process to re-activate your account. If you remember the email address you used to register your account but forgot the password, use the forgot password tool to reactivate your account: https://irosacea.org/lostpassword/ If you don't remember your login credentials, our volunteers can assist. Use the contact form and give us what you remember you used to register your account, i.e., your display name? We can then reset your password for you if we can figure out what EMAIL you used to register your account.
  4. Just saw a new page on the NRS website designated, 'key staff' and you can see a screen shot below: If you will note in the above paragraph, Mr Huff is stated as 'president of the Glendale Communications Group, which provides infrastructure and personnel for for the NRS program services at no cost to its members.' If this is correct, why do the past 22 years of public Form 990s (1998 thru 2019) show that over $10 million of the donations to the NRS have been spent on private contractors that are owned by Mr. Huff, including Glendale Communications Group? For example, in 2019 the NRS spent $285,871 on 'private contractors' including Glendale Communications Group which happens to be 94% of the donations given to the NRS in 2019. If this is 'no cost to its members' then why report this expense on Form 990 for 2019? In the previous year, 2018, the NRS spent $432,408 on private contractors, one of which is Glendale Communications Group, which happens to be 93% of the total donations given to the NRS in 2018. For a complete list of these Form 990s click here. For a breakdown of how the NRS spends its donations click here.
  5. Guide

    Final Appeal

    Thanks for your insight into all this. Very few, as you have pointed out, are motivated to express any thought on this subject. The RRDi has social media accounts. Would you like to volunteer to moderate and manage one or more of them?
  6. Every dermatological disease assessed had a significant increase in TME when compared to the prior year. This increase was most significant for acne vulgaris (808%), psoriasis (792%), malignant skin neoplasms (716%), atopic dermatitis (609%), rosacea (566%) and contact dermatitis (529%). Published online 2021 Aug 19. doi: 10.1016/j.jid.2021.07.109 LB767 A multicenter analysis of patients using telemedicine for dermatological conditions during the COVID-19 pandemic
  7. Rosacea-like eruptions following COVID-19 vaccination More Information
  8. Rosacea-like eruptions following COVID-19 vaccination More Information
  9. While guests can view a significant number of posts and pages on the RRDi website, Guests cannot view the PRIVATE member forum. For example, here are the topics posted today, August 11, 2021. To view these topics, Guests need to register an email address. See this screen shot below for the topics posted today:
  10. The RRDi is pleased to announce a new page, Rosacea Episodes.
  11. You may be having issues trying to navigate our website using a mobile device so here is a helpful tutorial to find Rosacea Topics. Watch Video. Step one - Finding the Menu on the Home page (iOS - hopefully Android users are similar) - Look for the three bars top right corner (click): You should then see the following menu: Just under the HOME button find the NAVIGATOR button and click on it and you should see the following menu: The first word 'Navigator' is simply the title of this menu (don't click on it). The menu choices are now shown below this word, 'Navigator,' and you should begin scrolling down till you see the following: The menu button ROSACEA TOPICS is the second to the last choice. Click on ROSACEA TOPICS which brings you to the following screen: You may want to turn your mobile device horizontally to view the videos and subforums and scroll down to see all the choices: Now you can view the subforums but you are not allowed to enter a subforum without being a member of the RRDi. Membership is free and all you do register and then you can view over 7K posts and over 5.4K rosacea topics. Learn more. Hope this helps mobile device users on how to navigate our website. If you have questions, find the reply to this topic button and ask.
  12. Just to clarify, when a member doesn't post for 30 days, the active member is then automatically switched to the inactive member group. When an inactive member logs in and posts in any area open to guests, the member is automatically switched back to the active member group.
  13. A novel topical consisting of 15% Azelaic Acid and 1% Dihydro Avenanthramide D for rosacea is mentioned in a clinical paper posted in our member forum at this link. You will need to join the RRDi to view this post. Membership is free. We happen to have the MOST private rosacea forum on the internet, if you join using Sign in with Apple and use Apple's Hide My Email. Android users can still join as well as Windows users are welcome.
×
×
  • Create New...