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    We're searching for volunteers. Volunteering has been shown to improve not only your health but also your hope.

    Read more about the benefits of volunteering 

    An Active Member is one who has posted within the last thirty days and has full access to the RRDi website. An Inactive Member is one who has not posted in the last thirty days and is therefore restricted to guest privlieges of access to the site until such time as the member becomes active again and full access to the site is restored. Any SUBSCRIBED member is not restricted to post within thirty days. Volunteer Active Members may waive the subscription fee. If you want to have your membership as a volunteer active member and have the subscription fee waived use the fill out this form. If you are an inactive member mention when filling out the form to volunteer that you are already registered with the RRDi but have become inactive so we can activate your membership. 

    Some rosaceans tend to center themselves on their own skin issues resulting in a spiral into reciprocal deep depression with a tendency to isolate themselves. Volunteering breaks this cycle. It forces a rosacean into seeing that there are others out there with even more severe cases of rosacea than what they are experiencing. Helping a fellow rosacea suffer is worth every effort you can muster. The satisfaction of volunteering as a rosacean for other rosaceans is only experienced if you take the step to offer yourself willingly as a RRDi volunteer rosacean. 

    Could you seriously consider volunteering for the RRDi? We are appealing to millennials to think about helping others with rosacea through our non profit organization so we can keep this web site on the internet with its wealth of information on rosacea. If some don't step up to the plate and volunteer the RRDi may eventually close up shop. Seriously, do you want to see this organization cease?  The statistics globally show that volunteering is dropping (read this post). Then read below why you are needed. 

    An Active Member is one who has posted within the last thirty days and has full access to the RRDi website. An Inactive Member is one who has not posted in the last thirty days and is therefore restricted to guest privlieges of access to the site until such time as the member becomes active again and full access to the site is restored. Any SUBSCRIBED member is not restricted to post within thirty days. Volunteer Active Members may waive the subscription fee. 

    If you would like to volunteer by simply joining our cause adding you name to our list and do nothing more that is the easiest way to volunteer. At the very least join the RRDi to increase our membership and if that is all you can do we understand and appreciate whatever you can do. Your email address is all we require to join. Our goal is to reach 10,000 members. And we are a grassroots, non profit organization. 

    If all you can do to volunteer is post on our website, that is probably the best thing you can do. Just post and show you care about other rosacea sufferers. Your experience with rosacea may inspire others to join our cause. Two Steps to Volunteer.

    Social Media
    Where have all the rosaceans gone? Social media. So, if you prefer Facebook, Instagram, Twitter, Reddit or any other social media rosacea PRIVATE group, why not join the RRDi and be a moderator for the RRDi Facebook, Instagram, Twitter or Reddit groups?  That way you can still be in your favorite platform and be a volunteer for the RRDi. We need moderators for our RRDi social media rosacea groups as volunteers. Watch this 3 minute video below for more information:

    Volunteers are needed to recruit more members, for fund raising, public relations, writers to write posts on our member forum, editors for the newsletter, accounting/book keeping, webmasters, forum moderators, board members, researchers, Google AdWords expert, and grant writers. If you have a skill not mentioned, let us know. Why not suggest what you might volunteer to do when you join the RRDi, and in the application to become a corporate member there is a place to add a comment what your volunteer skills are. If you have questions, contact us. If you want to know what will volunteering do for you (?), skip down to the subheading, 'What's in it for me below.' 

    We would like to offer each author reimbursement if we publish the article in the next Journal of the RRDi.  If you want to volunteer to be on the publication team as an editor, author, proofreader, or any other job please join our cause and state in the comment box you want to join the Journal Publication Team.

    Volunteers are needed for the public relations committee or to write requests for donations to major corporations in our Funding Committee. Please join and mention you would like to help on the Funding Committee or for Public Relations. Or you can personally write a fund raiser letter using this sample letter.

    To Volunteer as a Writer please join. Check our announcements for special needs. Writers, editors, graphic artists and proof readers are needed! We have the ability to turn your post into an article. Why not post your article?

    Volunteer to write letters for donations by clicking here.

    Grant Writers are needed.

    What's In It For Me?
    There is scientific evidence that volunteering improves health and well being. For more information read this post

    Volunteers may receive a special Gmail account associated with the RRDi domain email which is a Google Workspace (formerly G Suite, Google Apps) account associated with our domain, irosacea.org.

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    To know more about the Google Workspace click here.

    You may receive the RRDi Newsletter by joining as a corporate member and requesting the newsletter by checking the box when you fill out the application.

    You may receive on request a job referral with our letterhead if you volunteer for at least year to add to your resume or need a recommendation letter showing that you have regularly volunteered for our non profit organization. 

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    Volunteers to POST comments in our member forum. 

    Volunteers to Write Donation Letters

    Google AdWords Technician

    Google Analytics Technician

    Grant Writers

    Social Media Moderators

    Webmaster

    Forum Moderator

    Steps to Volunteer

    (1) Join the RRDi

    Mention which job you are volunteering for or create your own volunteer job and mention this in the appropriate box when applying.

    Another way to support is by purchasing our RRDi Tee Shirt, the Journal of the RRDi from Amazon or iUniverse which will help us continue its publication and may lead to some novel rosacea research. If you use Amazon why not check out our Amazon Affiliate Store using our shopping cart is another way to support our non profit. If you care to donate that would be appreciated. Two Steps to Volunteer



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  • Posts

    • Rosacea of the scalp: Results from a retrospective and prospective randomized controlled study
    • Just an update on the RRDi. As the end of 2023 was getting closer, there simply wasn't enough donations to keep our website going, not to mention other costs to keep a legal 501 C 3 non profit going. There hasn't been any activity in our member forum for some time now, many months. i was resigned to close up the RRDi since members don't post, only a few donate a few dollars a month. Then in October 2023 one of our members, David Peterson, donated $1000 which kept us going for another year. You can view our financial situation since we are transparent. I have devoted hundreds of volunteer hours for the RRDi in the hopes that some new members might turn our non profit into an active rosacea research and development but so far just haven't been able to generate the support we need to engage with anyone coming forward to volunteer and help. The other board members don't post. I haven't posted for sometime now and feel that since there really isn't anyone considering volunteering to actively support the mission of the RRDi, it may be time to simply shut it down. If you are an active member (there are only a few subscribers) could you post your thought on this? I am trying to be positive, but it looks rather bleak that rosacea sufferers want to unite and do anything except post on social media about rosacea. Actually engaging in rosacea research is left to the skin industry. Rosaceans just like rosacea social media sites and hang out there and do absolutely nothing about uniting as rosacea sufferers and doing anything but post in their favorite rosacea social media. Sure hope this thread generates some posts from anyone else, but I am losing hope. 
    • North Clin Istanb. 2024 Jan 31;11(1):27-37. doi: 10.14744/nci.2023.33410. eCollection 2024. ABSTRACT OBJECTIVE: Skincare is a part of rosacea treatment; patients benefit from complementary dermo-cosmetic care as well as medical treatments. Some skincare habits are known to trigger and exacerbate rosacea, but there are very few epidemiological studies on this matter. METHODS: A total of 200 people, including 100 patients with rosacea and 100 controls, were included in the study. We questioned the methods used by the participants in daily facial cleansing. Sun and heat exposure, makeup habits, the history of the use of topical steroids, and outdoor working status were noted. A dermoscopic examination, a non-invasive and valuable method to evaluate the presence and severity of Demodex, was performed. RESULTS: We evaluated 30% of our rosacea patients as erythematotelangiectatic rosacea, 13% as papulopustular rosacea, and 57% of our patients had mixed type, which could not be distinguished from one of these subtypes. In the case group, the proportion of people who used daily facial cleansers and daily soaps was lower than in the control group, while the proportion of those who cleaned their face with only water and those who used facial cleansers less frequently was higher (p<0.001). In the case group, while the rate of daily make-up and use of make-up products was lower (p=0.001, p<0.001, respectively), the rate of not wearing make-up was higher (p=0.001). The history of hot bath use was higher in the case group than in the control group (p=0.011). We found a significant relationship between the severity of plaque and dry appearance and the increase in Demodex density (p=0.007, p<0.001, respectively). CONCLUSION: We recommend that patients with rosacea clean their faces daily with soap or facial cleansers and not take a bath with very hot water. Patients should be evaluated for increased Demodex mites, especially if skin dryness is accompanied. PMID:38357320 | PMC:PMC10861432 | DOI:10.14744/nci.2023.33410 {url} = URL to article
    • J Imaging Inform Med. 2024 Jan 12. doi: 10.1007/s10278-023-00962-2. Online ahead of print. ABSTRACT The human body's largest organ is the skin which covers the entire body. The facial skin is one area of the body that needs careful handling. It can cause several facial skin diseases like acne, eczema, moles, melanoma, rosacea, and many other fungal infections. Diagnosing these diseases has been difficult due to challenges like the high cost of medical equipment and the lack of medical competence. However, various existing systems are utilized to detect the type of facial skin disease, but those approaches are time-consuming and inaccurate to detect the disease at early stages. To address various issues, a deep learning-based gate recurrent unit (GRU) has been developed. Non-linear diffusion is used to acquire and pre-process raw pictures, adaptive histogram equalization (AHE) and high boost filtering (HBF). The image noise is removed by using non-linear diffusion. The contrast of the image is maximized using AHE. The image's edges are sharpened by using HBF. After pre-processing, textural and colour features are extracted by applying a grey level run-length matrix (GLRM) and chromatic co-occurrence local binary pattern (CCoLBP). Then, appropriate features are selected using horse herd optimization (HOA). Finally, selected features are classified using GRU to identify the types of facial skin disease. The proposed model is investigated using the Kaggle database that consists of different face skin disease images such as rosacea, eczema, basal cell carcinoma, acnitic keratosis, and acne. Further, the acquired dataset is split into training and testing. Considering the investigation's findings, the proposed method yields 98.2% accuracy, 1.8% error, 97.1% precision, and 95.5% f1-score. In comparison to other current techniques, the proposed technique performs better. The created model is, therefore, the best choice for classifying the various facial skin conditions. PMID:38343253 | DOI:10.1007/s10278-023-00962-2 {url} = URL to article
    • Int Ophthalmol. 2024 Feb 12;44(1):60. doi: 10.1007/s10792-024-03002-2. ABSTRACT PURPOSE: To analyze higher-order aberrations (HOAs) and their visual impact in a pediatric blepharokeratoconjunctivitis (PBKC) cohort compared with healthy controls. METHODS: Prospective case-control study of pediatric patients (≤ 16 years old). Subjects underwent wavefront aberrometry analysis to compare HOAs and their impact on visual quality. RESULTS: A total of 150 eyes from 76 patients were included in the analysis. The PBKC group consisted of 50 eyes and the control group of 100 healthy eyes. Mean age was 10.39 ± 3.81 years for the PBKC group and 10.80 ± 3.61 years for the controls. Mean corrected-distance visual acuity (CDVA) was 0.24 ± 0.21 logMAR in the PBKC group and 0.07 ± 0.1 in the controls (P < 0.001). Mean astigmatism was 1.6 ± 1.98D in the PBKC group vs. 0.67 ± 0.76D in the control group (P = 0.01). Mean RMS of HOAs was 1.05 ± 1.7mm in the PBKC group and 0.41 ± 0.18mm in the controls (P < 0.001). The mean modulation transfer function (MTF) in the PBKC group was significantly lower (16.37 ± 16.32) than controls (30.3 ± 23.57) (P < 0.001). Corneal leukomas, stromal vascularization, peripheral nummular subepithelial scars, and pannus formation are associated with increased HOAs. CONCLUSIONS: There was a significant increase in total HOAs of eyes with PBKC compared to healthy controls. Corneal opacity, vascularization, and scarring are associated with increased HOAs. The PBKC eye aberration profile: coma, secondary astigmatism, quadrafoil, and pentafoil, were associated with decreased CDVA and visual quality (PSF and MTF). PMID:38345707 | DOI:10.1007/s10792-024-03002-2 {url} = URL to article
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