Jump to content
  • Sign Up
  • rrdiLogo384x64.jpg.3cd1bd79f5d066075bdd9

    Legal Disclaimer

    All use of the Rosacea Research & Development Institute (RRDi or irosacea.org) Web site is subject to the terms and conditions set forth below. When referring to the Rosacea Research & Development Institute (RRDi or irosacea.org) in this legal discaimer includes the following domains:

    irosacea.org
    rosaceans.org
    rosaceans.com
    rrdinstitute.org
    rosacea-control.com
    rosacea-research-and-development-institute.org

    legal_disclaimer.png

    Any use of such Web pages constitutes the user's agreement to abide by the following terms and conditions.

    The Rosacea Research & Development Institute [RRDi] is a non profit corporation in the state of Hawaii, USA recognized June 7, 2004 by USA Internal Revenue Service as a 501 (c) (3) non profit tax exempt organization.

    All medical information on this Web site has been reviewed for accuracy. However, the information posted here by the Rosacea Research & Development Institute or any third party should not be considered medical advice, nor is it intended to replace consultation with a qualified physician. The Institute does not evaluate, endorse or recommend any particular medications, products, equipment or treatments. Rosacea may vary substantially from one patient to another, and treatment must be tailored by a physician for each individual case.

    Links to other Web sites found on irosacea.org are provided as a service to our users. Such linkage does not constitute endorsement of the site by the Rosacea Research & Development Institute, and the Institute is not responsible for the content of external web sites. Links to commercial rosacea web sites are prohibited at this time.

    The Rosacea Research & Development Institute Web pages are designed for educational purposes only. This information is not intended to substitute for informed medical advice. You should not use this information to diagnose or treat a health problem or disease without consulting with a qualified health care provider. The Rosacea Research & Development Institute does not endorse or attest to the validity or accuracy of any treatments or medications discussed herein. Before acting on any information contained on the Web pages, you agree that you will consult your health care provider to determine whether the information you are relying on is appropriate for your medical condition.

    All information provided by the Rosacea Research & Development Institute is owned by or licensed to the Rosacea Research & Development Institute. The Rosacea Research & Development Institute retains all proprietary rights to the information contained on the pages. Except for making one hard copy print of the information or downloading the material for a one-time use, information on the pages may not be reproduced, transmitted, distributed, or displayed, without the express consent of the Rosacea Research & Development Institute.

    THIS WEB SITE IS PROVIDED "AS IS" WITHOUT WARRANTY OF ANY KIND, EITHER EXPRESS OR IMPLIED, INCLUDING, BUT NOT LIMITED TO, THE IMPLIED WARRANTIES OF MERCHANTABILITY, FITNESS FOR A PARTICULAR PURPOSE, OR NON-INFRINGEMENT. THIS WEB SITE COULD INCLUDE TECHNICAL INACCURACIES OR TYPOGRAPHICAL ERRORS. CHANGES ARE PERIODICALLY ADDED TO THE INFORMATION HEREIN; THESE CHANGES WILL BE INCORPORATED IN NEW EDITIONS OF THE WEB SITE. THE ROSACEA RESEARCH & DEVELOPMENT INSTITUTE MAY MAKE IMPROVEMENTS AND/OR CHANGES TO THE PROGRAM(S) DESCRIBED IN THIS WEB SITE AT ANY TIME

    NOTICE AND TAKEDOWN PROCEDURES; COPYRIGHT AGENT

    The RRDi does not knowlingly use any material (images or text) that is copyrighted by others. If you believe any materials accessible on or from this web site infringe your copyright, you may request removal of those materials (or access thereto) from this web site by The RRDi copyright agent (identified below) and providing the following information:
    Identification of the copyrighted work that you believe to be infringed. Please describe the work, and where possible include a copy or the location (e.g., URL) of an authorized version of the work. Identification of the material that you believe to be infringing and its location. Please describe the material, and provide us with its URL or any other pertinent information that will allow us to locate the material. Your name, address, telephone number and (if available) e-mail address.
    A statement that you have a good faith belief that the complained of use of the materials is not authorized by the copyright owner, its agent, or the law.
    A statement that the information that you have supplied is accurate, and indicating that "under penalty of perjury," you are the copyright owner or are authorized to act on the copyright owners behalf.

    A signature or the electronic equivalent from the copyright holder or authorized representative.

    The irosacea.org agent for copyright issues relating to this web site is as follows:

    Copyright Agent
    RRDi
    PO Box 858
    Centre, Alabama, 35960

    In an effort to protect the rights of copyright owners, the irosacea.org maintains a policy for the termination, in appropriate circumstances, of subscribers and account holders of this web site who are repeat infringers.

    International Disclaimer

    This Web site can be accessed from other countries around the world and may contain references to rosacea products, services, treatments or programs that have not been announced in your country. These references do not imply that irosacea.org intends to announce such products, services or programs in your country.

    Governing Law and Jurisdiction

    This web site (excluding linked sites) is controlled by irosacea.org from its office within the state of Hawaii, United States of America. By accessing this Web site, you and irosacea.org agree that all matters relating to your access to, or use of, this Web site shall be governed by the statutes and laws of the state of Hawaii, without regard to the conflicts of laws principles thereof. You and irosacea.org also agree and hereby submit to the exclusive personal jurisdiction and venue of the Superior Court of the District of Honolulu, Honolulu County and the United States District Court for the District of Hawaii with respect to such matters. irosacea.org makes no representation that materials on this Web site are appropriate or available for use in other locations, and accessing them from territories where their contents are illegal is prohibited. Those who choose to access this site from other locations do so on their own initiative and are responsible for compliance with local laws.

    Privacy Policy

    Our Privacy Policy is the commitment to respect the privacy of the information entrusted to our institute with your personal information by not giving your personal information to others or using it inappropriately. If you have any questions or concerns regarding our privacy policy please direct them to privacy@irosacea.org

    You may also send a letter to:

    Rosacea Research & Development Institute, PO Box 858, Centre, Alabama 35960

    irosacea.org does not sell, exchange, or release your personal information (name, e-mail address, mailing address, credit card data, etc.) without your consent to any third parties.

    Information gathered through the use of cookies is not related to any personally identifiable details.

    What information does irosacea.org collect from our users and how do we collect it?

    irosacea.org only contacts individuals who specifically request that we do so. irosacea.org collects personally identifying information from our users during (1) online registration, (2) online public surveys, (3) online purchasing, and (4) messages posted to our public forum board and the private forum. Generally, this information includes name, e-mail address, postal address, and answers to public survey questions. This information is used for internal purposes and helps us determine how to continually improve our site and the institute. Names and email addresses may be posted in public forums and public databases by individual members who post such information on their own. The RRDi is not responsible if a member posts their own real name, address, phone number, or email address. If a member later regrets posting this information the member can report where the post is and have it removed upon request. If you do not want your name listed in any of the public surveys or databases you should use a bogus name or alias (nickname) since the institute is not responsible if you use your real name or email address in a public survey or database. However, the institute will not publicly display any of the members names, email addresses or postal addresses. Each member is responsible for his or her own privacy when using any of the institute's web site when posting. Non voting members can join the RRDi by providing an email address. 

    Members who donate to the RRDi are named in public financial records unless the donor specifically instructs us that the donation is anonymous.

    Corporate Members Forum Guidelines and Privacy Policy

    The corporate members only private forum is provided as a free service of the RRDi. Volunteers of the insitute spent hours working on this forum. The institute will not release any names, mailing addresses or email addresses of who is using this private forum to any third parties without your consent. Privacy is important to the RRDi and you can rest assured your contact information is safe with us and we will not disclose your contact info to anyone without your permission or only if we are required by law to disclose your contact info. The privacy policy also includes the Member Forum, Blog and Gallery areas of our site. The Guidelines policy is enforced and binding on all members and guests.

    Blog, Clubs and Gallery

    The Blog, Clubs and Gallery, if available, are provided as a free service by the RRDi to its members only and you are responsible for your own privacy with regard to this service if you engage with another member and disclose your private information in the Blog, Clubs or post photos in the Gallery. The RRDi cannot be held responsible for your privacy if you use the Blog, Clubs or Gallery and our privacy policy, legal disclaimer, rules, and official documents are still binding if you violate this policy.  We warn you to not disclose your private information or post inappropriate content in the Blog, Clubs or Gallery.

    The institute will not release any names or email addresses of who is using the Blog, Clubs or Gallery service without your consent.

    Cookies

    What are cookies and how do we use them?

    Cookies help track a person''s session while online. They are used on our site to gather basic tracking information. Cookies are not related to any personally identifiable information and are not used to retrieve information from your computer that was not originally sent in a cookie.

    Many browsers are set to accept cookies. You may prefer to set your browser to refuse cookies. It is possible, however, that some areas of the site will not function properly if you do so. This is especially likely when trying to order a publication.

    Third-Party Advertising

    Advertisements are not currently allowed on this site. If advertisements are allowed then information about your visits to this site, such as the number of times you have viewed an ad (but not your name, address, or other personal information), is used to serve ads to you. In the course of serving advertisements to this site, third-party advertisers may place or recognize unique cookies on your browser. Links to third-party advertising, or commercial web sites are prohibited.

    Amazon Affiliate

    The RRDi has joined Amazon Affiliates and links to items at amazon.com may be placed throughout the site. The RRDi receives a small fee for each item that is purchased by users who click on an item featured on our site.

    Demodex Solutions Affiliate

    The RRDi has joined the Demodex Solutions affiliate program and links to this program are placed throughout the site. The RRDi receives a small fee for each item that is purchased by users who click on an item featured on our site.

    Disclaimer

    This policy may be changed at any time at Rosacea Research & Development Institute's discretion.

    Copyright

    © Rosacea Research & Development Institute. All rights reserved. Reproduction, re-transmission or reprinting of the contents of this Web site, in part or in its entirety, is expressly prohibited without prior written permission from the Rosacea Research & Development Institute.

  • Member Statistics

    • Total Members
      1,304
    • Most Online
      499

    Newest Member
    Steven Zeigler
    Joined
  • Posts

    • Acuri reports using aspirin improves flushing (at RF).
    • I haven’t figured out how to get the full article. Sometimes in the author information it shows an email address and I ask for the full article and one of authors sometimes sends a copy. If anyone would volunteer to figure out how to get copies of articles like this (without paying for it!) that would be most helpful. We are searching for volunteers!
    • Related Articles Effect of in-office samples on dermatologists' prescribing habits: a retrospective review. Cutis. 2020 Jan;105(1):E24-E28 Authors: DeNigris J, Malachowski SJ, Miladinović B, Nelson CG, Patel NS Abstract The relationship between physicians and pharmaceutical companies has caused the medical community to question the degree to which pharmaceutical interactions and incentives can influence physicians' prescribing habits. Our study aimed to analyze whether a change in institutional policy that restricted the availability of in-office samples for patients resulted in any measurable change in the prescribing habits of faculty physicians in the Department of Dermatology and Cutaneous Surgery at the University of South Florida (USF)(Tampa, Florida). Medical records were retrospectively reviewed for common dermatology diagnoses-acne vulgaris, atopic dermatitis, onychomycosis, psoriasis, and rosacea-before and after the pharmaceutical policy changes, and the prescribed medications were recorded. These medications were then categorized as brand name, generic, and over-the-counter (OTC). Statistical analysis using a mixed effects ordinal logistic regression model accounting for baseline patient characteristics was conducted to determine if a difference in prescribing habits occurred. PMID: 32074163 [PubMed - as supplied by publisher] {url} = URL to article
    • Hi Steven, I read your post, and I sympathize. We are all part of this community trying to help each other with trial and error solutions. After 20 years of rosacea, I decided to research everything I could about the disease. Most of what I learned came from the rosaceagroup.org website and this one. Together they are a fantastic resource and you can read about things you never would have thought of. I am one of the lucky ones who had great success with finding a "cure" which involved multiple components: gut health, (I did a cleanse, a fast and a heavy metal detox), adding specific supplements, changing/reducing the products I used on my face, and treating my skin for demodex mites. I never took oral antibiotics and since November I have not used any medications on my face. Your answers will likely be different than mine, but reading and researching are key. I'm always interested when people say their rosacea came on suddenly. What changed? Environment? Job? Housing? Diet? Lifestyle? Chemical exposure? Relationship? There was probably something; you just have to put the pieces together. That will help you to address the cause, not just treat the symptoms.  Keep us posted!
    • Related Articles Ecological niche differences between two polyploid cytotypes of Saxifraga rosacea. Am J Bot. 2020 Feb 17;: Authors: Decanter L, Colling G, Elvinger N, Heiðmarsson S, Matthies D Abstract PREMISE: Different cytotypes of a species may differ in their morphology, phenology, physiology, and their tolerance of extreme environments. We studied the ecological niches of two subspecies of Saxifraga rosacea with different ploidy levels: the hexaploid Central European endemic subspecies sponhemica and the more widely distributed octoploid subspecies rosacea. METHODS: For both cytotypes, we recorded local environmental conditions and mean plant trait values in populations across their areas of distribution, analyzed their distributions by niche modeling, studied their performance at two transplant sites with contrasting conditions, and experimentally tested their cold resistance. RESULTS: Mean annual temperature was higher in hexaploid than in octoploid populations and experiments indicated that frost tolerance of the hexaploid is lower than that of the octoploid. Reproduction of octoploids from Central Europe was higher than that of hexaploids at a transplant site in subarctic Iceland, whereas the opposite was true in temperate Luxembourg, indicating adaptation of the octoploids to colder conditions. Temperature variables were also most important in niche models predicting the distribution of the two cytotypes. Genetic differences in survival among populations were larger for the octoploids than for the hexaploids in both field gardens, suggesting that greater genetic variability may contribute to the octoploid's larger distributional range. CONCLUSIONS: Our results support the hypotheses that different cytotypes may have different niches leading to spatial segregation, and that higher ploidy levels can result in a broader ecological niche and greater tolerance of more extreme conditions. PMID: 32067225 [PubMed - as supplied by publisher] {url} = URL to article
    • The RRDi financial report shows clearly how we are spending member donations. If the over 1300 members would each donate ONE DOLLAR that would keep us going for another year. If you appreciate the amount of rosacea data preserved on our website and forum would you consider donating one dollar so we can keep this non profit organization for rosacea patient advocacy going? If you have the volunteer spirit you could read our current financial situation and with some math figure out how long our current spending will last. As you can see our funds our meager compared to the other non profit organizations for rosacea which will be the only ones left if the RRDi doesn't receive donations to continue its operation. 
    • A new paper states the following, 'A Western diet rich in fat and sugar may lead to inflammatory skin diseases such as psoriasis, a study by UC Davis Health researchers has found."  The article mentions that "cholestyramine, a drug used to lower cholesterol levels by binding to bile acids in the intestine, helped reduce the risk of skin inflammation.' Western diet rich in fat and sugar linked to skin inflammation, Science Daily, February 18, 2020
    • Trevi has a post that he says just using warm to hot water for three months and he has clearance. He does mention in the initial post he has been using some boric acid as well. We will follow up and see if anyone else confirms that this helps improve SD/Rosacea or not.  Using just warm water to hot water is about as natural as it gets.  You be judge whether boric acid is natural or not. 
    • I am so happy to hear the Borax - Epsom Salt soak is helping you!   Thank you for letting us know.  It is also helpful to know that the Equate Brand Epsom Salt works - always good to save money.  Please keep us posted as to how this works out for you.  That shared knowledge can help us all.
    • Welcome Steven Zeigler to the RRDi.  As Apurva points out you are correct in your research. You can take time in this forum category you posted in, PSYCHOLOGY AND ROSACEA, to continue your research by reading all the posts. One of the many theories on rosacea is the Nervous System Theory which is worth some of your time to investigate since it is related somewhat.  However, your doctor isn't acquainted with the Gold Standard of treatment for rosacea and is old school prescribing [probably] topical metronidazole and doxycycline. What exactly did your doctor prescribe?  There are a number of rosacea theories on the cause of rosacea, but this post is worth considering.  If you want a free copy of Rosacea 101 which includes the Rosacea Diet, just use the contact form [request a copy]. Avoiding sugar and carbohydrate may improve your skin. You may want to read this post about alcohol and rosacea. The RRDi official trigger factor list has a number of environmental triggers.  As for everyone being different with regard to rosacea, we have dubbed this the X-Factor in Rosacea. 
    • Thanks Ruby, keep us posted. 
    • Yes what you have pointed out above is correct. There are more interconnected and internal factors or subordinate factors though which enhance the condition but you sometimes never know what activated this condition and have to go through all the loops. Yes sunscreen is important if you are a very fair skinned person but it all depends on skin makeup (from makeup I am saying composition) because skin of color people like me have more melanin production that kind of gives protection from sun rays and that also depends on how your skin reacts to sunscreen if you have dry or oily skin . I use my homemade zinc sunblock on top of lathered moisturizer since I have a dry skin but you just give it a try buying something. There are recommendations of sunscreens in our rosacea topics. you can read what suits you best.
×
×
  • Create New...