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  • Rosacea Research & Development Institute

    We are rosaceans and this is a grassroots rosacea non profit organization. The entire board of directors are rosacea sufferers. Compare that with the other non profit rosacea organizations, run by NON rosaceans. Compare that with your favorite rosacea social media platform, i.e., Facebook, Reddit, Twitter, etc. Is your rosacea social media group a registered 501 c 3 non profit? 

    We now allow guests to post here without registering an account.  Guests can post!  However, to access 95% of our rosacea website data will require a donation of a minimum $2/month of access as a subscriber ($1/month for three or more months). Please donate and register.

    We have an Invision Community platform forum. A private member forum allows the public to view the subforum categories only,  while only members can view the posts and comment (registering an account with your email is required). What is odd is that this format, while older than the social media platforms, i.e., Reddit, Facebook, Instagram, Twitter, etc., requires no more than what the social media platforms require, an email address to register. There is way more rosacea content in the member forum and worth the effort to register.  You want a mobile app?  Mobile apps are in beta version (read below). 

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    You may view the Private Member Forum using the Invision Community Forum.

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    Private Member Forum

    In a Private Member RRDi forum hosted at Invision Community and ALL posts are for members only. You may access the private member forum url here: 

    https://irosacea.org/forums/

    Guests can comment in the Guest Forum.

    Mobile App?

    There was a beta version mobile app for Android (also there was a beta iOS version available for Apple devices but didn't work out)

    We also have a Tapatalk Private Forum hosted at Tapatalk available (scroll below for more information). Private forums are just that, you cannot view the posts unless you join (the public can NOT view the posts)

    Tapatalk Enabled (private forum)

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    Tapatalk App
    You can download from the App Store or Google Playstore.  The Tapatalk app ONLY works for our private rosaceans forum hosted at Tapatalk. 

    Private Tapatalk Rosaceans Group - rosacea-control.com
    The RRDi rosaceans forum is affiliated with Tapatalk and is a PRIVATE Rosaceans [rosaceans are rosacea sufferers]. Tapatalk forum free for users is a private group. If you are not familiar with the difference between a private member forum and a PUBLIC forum, the posts in a private forum are only read if you join. Here is the official announcement about our Rosaceans Tapatalk Private Forum which explains an option about Tapatalk Gold Points (not required but available for your consideration). You may access the private Tapatalk which is totally run on Tapatalk servers and has no issues using the Tapatalk app.  



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  • Posts

    • This is just a helpful tip for those of you with an iPhone using the Photos app so you can show a history of your rosacea to your dermatologist by simply creating an album that shows a history of selfie photos of your rosacea flareups over a period of time.  Follow the directions from Apple on how to do this. You could name the album MyRosacea and designate which photos in the album to easily find it and show these images to your dermatologist.  Android users probably have a similar way to do this. If you really care about helping your fellow rosaceans and have an Android, wouldn't it be helpful to explain in this thread how Android users could similarly have an easy way to show a history of photos of all the selfies taken to record rosacea flareups on an Android?   It is important to have a record of your rosacea flareups for your dermatologist to review to show if your rosacea is progressing worse. You should know about the stages of rosacea. (requires subscription to view)
    • The Rosacea Diet has been around for sometime now. Dr. Ken Berry explains it below:  LEARN MORE Forum Home > Forums > Member Forum > Rosacea Topics > Trigger Avoidance > Diet Triggers (Requires Subscription)
    • If you are not aware of Dr. Zach Bush you should be. Watch this video regarding how inflammatory diseases such as rosacea are on the rise and his insight into this and what to do about it. This is also related to GUT Rosacea. 
    • Int J Dermatol. 2022 May 17. doi: 10.1111/ijd.16235. Online ahead of print. ABSTRACT BACKGROUND AND OBJECTIVES: Ocular rosacea is a special manifestation of rosacea with unknown etiology. Eye involvement in rosacea patients is surprisingly common; however, it is often underdiagnosed, resulting in inappropriate treatment. We aimed to provide an updated epidemiologic perspective on ocular rosacea in Germany to improve patient care. PATIENTS AND METHODS: Data of 777 rosacea patients were assessed using a detailed online questionnaire regarding ocular and skin symptoms, previous dermatological and ophthalmological consults, presence of type 1 hypersensitivities, and Demodex testing. All data were statistically analyzed. RESULTS: Most patients reported ocular symptoms (399/777, 51.4%), including red eyes (179/399, 44.9%), itching (187/399, 46.9%), sty or chalazion (309/399, 77.4%), and dryness (108/399, 27.1%). Ocular rosacea was confirmed in 149/309 cases who consulted an ophthalmologist (45.3%). A total of 159/399 (39.8%) had no pre-existing allergies. Eye involvement was significantly associated with the presence of skin symptoms (P < 0.05), impacting patients' general well-being and overall treatment satisfaction. About half of Demodex-positive patients (21/45, 46.7%) showed ocular symptoms. CONCLUSIONS: Eye involvement in rosacea patients was common, often presenting with unspecific symptoms. PMID:35579395 | DOI:10.1111/ijd.16235 {url} = URL to article
    • Just an update on the previous announcement mentioned above, consider this Version 2.  As the treasurer I have been trying to keep the RRDi non profit organization going with over a hundred videos and keeping the website going switching over to a subscription service (watch Rosacea Episodes S3:E1 and announcement) as well as sending out our latest newsletter to members (read the last newsletter dated 5/12/22). Yesterday, I went to a family reunion with my siblings and in-laws and had a short discussion with my sister-in-law who happens to be an editor for a prestigious journal in the scientific world and she explained to me that calling our ‘magazine’ a ‘journal’ is what is the issue since the title ‘journal’ implies it is a scientific journal with peer reviews and since we don’t have the funds to accomplish this since we have no rich donors, nothing to sell, and our income is derived solely from affiliate links from our store and now subscriptions to our website, we should simply use our newsletter tool we purchase through Invision Community as the medium to provide not only pro bono articles from the RRDi MAC but also from our members who may want to publish an article on rosacea. So instead of any article you wish to submit for our newsletter please follow the instructions mentioned in our previous post if you are a subscribed member of the RRDi. From henceforth, the Newsletter of the RRDi will only be available to subscribed members and we will be asking for a donation from those who do not subscribe to read the newsletter.  Then, if we can obtain the funds through donations we may be able to resume publishing the Journal of the Rosacea Research and Development Institute again properly with a peer review process.  We will mention any featured posts from RRDi members who post in the category of their choice in our member forum with a link to your post. So login to your RRDi member account and post your thoughts on rosacea. It may be considered as worthy of mentioning in a blurb mentioned in the next edition of the Newsletter of the RRDi. 
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