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smart2005ct

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About smart2005ct

  • Rank
    Newbie

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  • Location
    Romania
  • Country
    România

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  • Are you a rosacean?
    Yes

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  1. smart2005ct

    Prednisone

    Dear Brady, Thank you very much for your message and arguments. I am very glad that you can take 3000 mg a day of vitamin C. If I do that I will be burnt alive(my photosensitivity will become unberable). Once again it is swown that we are unique individuals with unique reactions. I have read this aricle of "Mental Health Treatment That Works" (knowing that Rosacea may cause Anxiety and Depression) and I have noticed the same mega doses(http://orthomolecular.org/resources/omns/v01n11.shtml) and Linus Pauling was mentioned in the article. In this article https://rosadyn.com/rosacea/suppliments-vitamin/vitamins-supplements-rosacea-triggers/ is mentioned that if taken in mega doses vitamin C should be taken only in buffered form, Nobody is warrning Rosaceans about that. "High Doses of Vitamin C— Vitamin C is a superb vitamin for rosacea sufferers. It not only strengthens blood vessels throughout the skin, but it stimulates the production of new collagen and elastin which helps to strengthen thin, fragile rosacea skin.The two variables that one must be cautious of is the use of pure, unbuffered Vitamin C (ascorbic acid) and the dose. If you take more than 250 mgs at a sitting there is a good chance that this high dose of unbuffered Vitamin C can cause gastric upset — which in turn, stimulates the release of multiple dilator and inflammatory hormones from the stomach and intestine — causing facial redness and flushing.Most M.D. Naturopaths and Certified Nutritionists recommend taking only buffered forms of Vitamin C (Chelated Vitamin C or Ester C) to prevent gastric side effects and in doing so, one can often take much larger doses — even taking 1,000 mgs several times a day."
  2. smart2005ct

    Prednisone

    Dear Brady, Thank you very much for your feedback and for your explanations about soy. The truth abouth soy maybe somewhere in the middle. Maybe one day we will know the whole truth. I would like to notice another thing. Why are large quantities of Vitamins C recommended for Rosceans? I had the chance to discuss with Dr. Madalene Heng, MD, FRACP, FACD, FAAD from Psoria-Gold with the help of her daughter Siana Cutter about high doses of vitamin C. Dr. Heng said that they may cause photosensitivity and in her book called Below the Surface: A Guide to Better Understanding Acne and Rosacea, 2014, ISBN-10: 1490469583 she said that high doses are common histamine releasers. Also doing my own research I found out that Vitamin C is the nr. 3 vasodilatator supplement (https://drgapin.com/11-supplement-vasodilators-ease-ed). The three ones - photosensitivity, histamine and vasodilatation are known as not being good Rosaceans. So why the recommandations for high doses of Vitamin C for Rosaceans??? Thank you very much for contacting Dr. Bowe for my questions.
  3. smart2005ct

    Prednisone

    Hi Brady, Wow You look fantastic. I am very glad you found a quick fix that works for you. I am not a fan of corticosteroid drugs too. I remember that being in the hospital in the 90s for my seborrheic acne after one week of Prednisone my kidneys were blocked(I was not able to pee anymore) so they stopped giving me Prednison. So we may have different reactions to the same drug. We are all so unique. I have read your book Rosacea 101 many times and I would like to ask you what do you think about this? I also asked on of the MAC members a couple of a few questions after reading her most recent book Do you think there are chances to get a reply from dr. Whitney Bowe? Thank you for your feedback. Take care. Hugs.
  4. Dear Madam, I have read with great interest your new book called the Beauty of Dirty Skin and I have four questions for you (I am very glad to find out from your book that are very specific probiotics that can help Rosaceans and there is hope at the horizon). Reading the chapter 8 of your book I have discovered that you recommend exfoliating the skin with Alpha hydroxy acids( AHAs, also called lactic or glycolic acids) and beta hydroxy acids (BHAs) and also retinoids. My questions are: 1. Can a person with Rosacea Erythematous, with very dry, sensitive, intolerant, reactive and photosensitive skin do that? 2. From the five strains you have mentined in your book as being good for Rosacea which one/ones is/are the best choice for a very dry, sensitive, intolerant, reactive and photosensitive skin? 3. On the internet there is a very interesting article about vitamins and supplements that says that some vitamins are good in small doses rather than big ones like vitamin E (100 to 150 iu), vitamine C(250 mgs) and so on (https://rosadyn.com/rosacea/suppliments-vitamin/vitamins-supplements-rosacea-triggers). In the chapter 9 of your book you recommend higher doses. Are the doses you recommend for Acne or Rosacea? 4. In the chapter 11 of your book you recommend a detox water. I would like to know if drinking alcaline water (made from Coral Calcium and Microhydrinase) can be done while taking probiotics? Thank you very much for answering my questions.
  5. smart2005ct

    Outside-in. Probiotic topical agents

    Very very true. It is what you can read in the most recent book called The Beauty of Dirty Skin: The Surprising Science of Looking and Feeling Radiant from the Inside Out – by doctor Whitney Bowe( one of our MAC). A must read book for Rosaceans. The book can be bought from https://www.amazon.com/Beauty-Dirty-Skin-Surprising-Science/dp/0316509825. Enjoy, learn and apply. A list wit the best Skin-Care Products Infused With Probiotics here https://www.allure.com/gallery/probiotics-skin-care-products.
  6. smart2005ct

    Doctor’s advice: What is Rosacea?

    Dear Brady I tend to not agree with the statment that "Untreated rosacea tends to worsen over time." I am the living proof that the more I tried to find a working solution the worst the situation become. So treated or untreated rosacea worsen anyway. I think some just may be lucky while others are in a vally from hell all the time.
  7. Dear Rosy Friends(how dear Julie B. Campbell likes to call us), Greetings from Romania to all of you! The treatment that I started more than a month ago works for me very well. No more flushing, no burning and no acid sensations. It is so nice to feel great again after so many years of permanent struggle with Rosacea ETR. I am so well that I can enjoy listening to music again, feeling like dancing in every second, start reading books and looking for a new job in European Union. My daily dose is now Coaxil(1 per day), instead of Bromazepam(1) I take Clonazepam(1), Sanval(1) and Romparkin(half). I am so glad that I finally found a solution that works and is no longer necessary to fight each day with Ministry of Health from Romania to have a medical treatment abroad. Easy easy the things will heal. I will never be Prince Charming again but at least I have finally found the peace of mind. Hallelujah. For my skin I use from time to time Dragon Blood Kit from Utsukusy Cosmetics (http://www.utsukusycosmetics.com/indexeng.html) from Barcelona, Spain. I am also waiting for ZZ cream to try it and see what is happening. I will keep you all informed about my trial of ZZ cream. I pray for all of you to find a way that works well for your type of skin and type of Rosacea. If anyone has a question for me I am ready to answer to you with the greatest pleasure. God help us all. Panda hugs
  8. smart2005ct

    Boris Yeltsin suffered from rosacea

    Wow. Good to know that as I am very sure everyone was thinking that Boris Yeltsin skin condtion was caused by Vodka. It happend to me the same thing. Some of my neighbours were thinking that I was an alcoholic because I was severe red all the time.
  9. It is heartbreaking seeing Rosacea organisations spending the little money they collect on other things than research and Roseceans spending money on products that make no difference for them. Sad sad sad. Somehow someone someday should unite these people suffering of diverse forms of Rosacea and find finally a cure. I think all Rosaceans are fed up with trying and hoping. Hallelujah!!!
  10. I agree with: 1. Fewer than half were satisfied with treatment outcomes. - I am among them 2. Conclusion 1: Education is needed to communicate the long-term nature of rosacea and the need for continued treatment to maintain long-term control. - I think they should become members of RRDi as there is so much useful information here but there still is a lot to be done to find a cure. 3. Conclusion 2: Rosaceans should unite their financial efforts in a single organization able to really do a change in what is happening at this moment asap.
  11. smart2005ct

    ROSACEA AND THE BIG NOTHING

    THERE IS NO POWERFULL ACID IN THIS WORLD THAN THAT PRODUCED BY ROSACEA
  12. smart2005ct

    Soolantra Review by Brady Barrows

    Dear Brady Mille Grazie for answering to my inqusitive questions. You are very lucky for not being forced to take any antidepresants. I have the same problem with sunscreens( I have not tried the EmerginC cream yet that you recommended me). As for shaving it was at 3-4 days before now at 2-3 weeks time. I can hardly touch my skin. Enjoy the Pacific Ocean.
  13. smart2005ct

    Soolantra Review by Brady Barrows

    From all the dermatologists I have visited I think only one was fair with and told me the true. He told me that my skin is Hypersensitive and Hyperintolerant and he told me to stop using any cream and to wash my face only with cold water.
  14. smart2005ct

    Soolantra Review by Brady Barrows

    Wow wow wow. You are a hero true Brady. I have a few questions for you Brady: - how do you deal with heat and humidity from Hawaii(personally I dealt very well with the dry heat from Libya but very bad with the heat and humidity from St Lucia)? - how much do you spent since you have Rosacea?(personally I think I spend the value of a flat with 2 rooms since I had acne and rosacea) - do you take any antidepresants? - how was your experience with the employers? Was Rosacea a disqualifing factor for employment over the years even the employer said that it was an EOE???(In a further message I will tell you what happend in my case)? - can you jog or you only walk daily??? - do you was your face with hot water?(In my case only with luckwarm water, no steams) - can you shave and how often? - looking back how was your life as quality since the day you are fighting with Rosacea?(While I was having acne I was not able to eat any fat and nothing sweet. I went so far with the restrictions that everything I was eating was lettuce with dry bread in the sun - only flour and water). Thank you in advance for your feedback.
  15. My dear friends in need, My drama story started in 1989 as a result of seborrheic acne and between 1989 and 1997 my face was chemically peeled of thousand of layers and after that treated with a corticoid like Flocinolon N cream. As a resullt of that my face was red all the time(actually the colour of my face was the one of a sour-cherry), the skin was very sensitive and I was dehydrating very fast. Between 1997 and 2012 I had no ideea that what was happening to be could be rosacea. At that time I was still able to go to the beach during summer days(I live close to the Black Sea) but I was not able to shave very often as my skin was immediately irritated and I was not putting any cream on my face or taking any pills other than aspirin. In September 2009 a new problem started at the level of the head - the cronic fatigue of the brain. Till October 2010 I had no neurological or psyhiatrical treatment for that. Somewhere in 2012 my face started to burn and flush at a specific hour 6.30 pm for hours. No dermatological or psychiarical treatment worked for me. No rosacea cream was working for more than 2-3 days and no pill was having a positive result. During the last 7 years I had 2 MRIs, tests for hystamine, bacteria, fungi, malabsorbtion, H. Pylori, food alergies, gluten, vitamin D3, heavy metals and so on. Nothing wrong was found. In November 2015 clonidine was prescribed to me by a dermatologist(Mirvaso was also prescribed by the same dermatologist with no positive result) and the flushing and burning became more rare from daily one to 2-3 per month but very severe. The following antidepresants were prescribed to me in the last years: Anafranil, Esprital, Cymbalta, Zoloft, Cipralex, Alprazolam, Abylifi, Fobiless, Mirtazapine, Trittico and the last one I have tried - Seroxat - I was almost ready to die a couple of times in August 2017. I was on the edge of collaps and I was thinking that the best way out for me from this story it will be to commit suicide(my mind was imagining all kind of scenarios from taking all the pills in the house to throwing in Danube with my car or in a deep vally in the mountains). Despair and disappointment were my only daily so called friends. In these circumstancies I wish I was dead as there was no life in my life anymore. Beyond flushing and burning I was having a permanet acid sensations in the skin that I was not even bearing to sweat on my face(Niacineamide was the second medicine that helped me for a while because I was not sweating any more). In the last four years I have send numberless petitions to the Prime Minister and the President of Romania to determine the Ministry of Health to let me consult a doctor abroad( I wanted to see dr. Chu in London). But after years of waiting they finally analyzed my case from June to July 2017 and decided to not help me as only surgical treatments are a priority to be treated abroad according with Romanian law. So you can imagine my psyhological status every day. Two weeks ago I have chaged the psychiatrist after 3 years of variable results at the same doctor and the month of August in which a new psychiatrist tried on my brain Seroxat(while taking Seroxat I was lethargic and not able to wake up from my bed) with very bad concequencies. What is my new treatment? - Coaxil(3 per day), Bromazepam(1), Sanval(1) and Romparkin(half). What is happening to me now is almost unbelievable: no more acid sensations in the skin from the very first hour of the day, no more sweating, I am able to stay in the sun without exageration, I can shave being able to leave from the house in the same day, I sleep very well, I started to enjoy hearing music again and I am almost ready to dance in every second. God what is this? Am I in remision or am I cured? I have 4 different psyhiatrical diagnostics (In Romania a dermatologist will never prescribe an antidepresant) and the opinion of psychiatrists is that I have a persistent somatic delirium disorder and that I, by my fear of a heavy / incurable disease, set off all my splendor. I can hardly believe it as the medicine for that disorder - Olanzapin is the only medicine known today for persistent somatic delirium disorder - taken for two years changed nothing in the picture. Dear friends keep the fingers crossed for me. I'll keep you up to date with what's happening to me. A great weekend to all of you. Hugs and kisses. God help us all.
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