Demodectic Rosacea Research Articles

Research Articles Related to Demodectic Rosacea Rosacea Research & Development Institute www.irosacea.org Complied by Brady Barrows, RRDi Founder and Director Based upon Rosacea 101: Includes the Rosacea Diet Appendix K with permission by the author Click here for more info There are many more clinical papers discussing demodectic rosacea which are not included in this list which was discontinued in 2015. The number of papers on this subject is staggering and continues to grow. Demodectic rosacea is an established rosacea variant.
2015
Turkiye Parazitol Derg. 2015 Mar;39(1):41-6. doi: 10.5152/tpd.2015.3473. Demodex mite, rosacea and skin melanoma; coincidence or association? Talghini S1, Fouladi DF, Babaeinejad S, Shenasi R, Samani SM.	J Clin Exp Dermatol Res 2015, 6:5 Discrete and Coalescing Pustules Masking Severe Recalcitrant Rosacea due to Demodex Chase Wilson, Stefanie Ali, Nico Mousdicas and Megan Brinkworth
2014
Asian Pac J Trop Med. 2014 Sep;7S1:S82-4. doi: 10.1016/S1995-7645(14)60208-X. The Demodex mites and their relation with seborrheic and atopic Dermatitis. Tehrani S, Tizmaghz A, Shabestanipour G.	Adv Clin Exp Med. 2014 March-April;23(2):295-298. Demodex - An Old Pathogen or a New One? Rusiecka-Ziółkowska J, Nokiel M, Fleischer M.
Features of Skin Microflora at Perioral Dermatitis, Combined with Demodicosis Elistratova L.L. 1. Ulyanovsk State University, Ulyanovsk, Russia, 432970, street L. Tolstoy	Skin Res Technol. 2014 Feb 13. Reflectance confocal microscopy vs. standardized skin surface biopsy for measuring the density of Demodex mites. Turgut Erdemir A, Gurel MS, Koku Aksu AE, Bilgin Karahalli F, Incel P, Kutlu Haytoğlu NS, Falay T.
Br J Dermatol. 2014 Jan 28. doi: 10.1111/bjd.12850. Human demodicosis: revisit and a proposed classification. Chen W1, Plewig G.	J Dermatol. 2014 Feb;41(2):195-6. doi: 10.1111/1346-8138.12352. Severe rosacea with prominent Demodex folliculorum in a patient with HIV. Yamaoka T1, Murota H, Tani M, Katayama I.
Turkiye Parazitol Derg. 2014;38(1):9-11. The Prevalence of Demodex sp. in Patients Admitted to the Parasitology Laboratory of the Dursun Odabaş Medical Center in Yüzüncü Yıl University, Van. Cengiz ZT1, Yılmaz H, Ozkol HU, Ekici A, Odemiş N.	Turkiye Parazitol Derg. 2014;38(1):9-11. The Prevalence of Demodex sp. in Patients Admitted to the Parasitology Laboratory of the Dursun Odabaş Medical Center in Yüzüncü Yıl University, Van. Cengiz ZT, Yilmaz H, Ozkol HU, Ekici A, Odemiş N.
Turkiye Parazitol Derg. 2014;38(1):9-11. The Prevalence of Demodex sp. in Patients Admitted to the Parasitology Laboratory of the Dursun Odabaş Medical Center in Yüzüncü Yıl University, Van. Cengiz ZT, Yılmaz H, Ozkol HU, Ekici A, Odemiş N.	Microb Pathog. 2014 Apr 23. Microbiota of Demodex Mites from Rosacea Patients and Controls. Murillo N, Aubert J, Raoult D.
Nathional Geographi, NOT EXACTLY ROCKET SCIENCE: August 27, 2014 You Almost Certainly Have Mites On Your Face by Ed Yong	PLoS One. 2014 Aug 27;9(8):e106265. doi: 10.1371/journal.pone.0106265. eCollection 2014. Ubiquity and Diversity of Human-Associated Demodex Mites Megan S. Thoemmes, Daniel J. Fergus, Julie Urban, Michelle Trautwein, Robert R. Dunn
Int J Dermatol. 2014 Jun 5. doi: 10.1111/ijd.12398. Demodex folliculorum: its association with oily skin surface rather than rosacea lesions. Porta Guardia CA.	Turkiye Parazitol Derg. 2014;38(3):166-71. doi: 10.5152/tpd.2014.3517. The epidemiology of demodex mites at the college students living in dormitories in the city of Ordu. Karaman Ü, Kolören , Enginyurt , Özer A.
Indian Journal of Dermatology 59(1):60-6 · January 2014 Human Demodex Mite: The Versatile Mite of Dermatological Importance Parvaiz Anwar Rather, Iffat Hassan
2013
Indian J Dermatol. 2013 Mar;58(2):157. doi: 10.4103/0019-5154.108069. Evaluation of Demodex folliculorum as a Risk Factor for the Diagnosis of Rosacea In Skin Biopsies. Mexico's General Hospital (1975-2010). Ríos-Yuil JM, Mercadillo-Perez P.x.	Optom Vis Sci. 2013 Jun 6. Demodex. Hom MM, Mastrota KM, Schachter SE..
J Am Acad Dermatol. 2013 Sep 5. pii: S0190-9622(13)00811-6. doi: 10.1016/j.jaad.2013.08.006. Potential role of microorganisms in the pathogenesis of rosacea. Holmes AD.	International Journal of Scientific and Research Publications, Vol. 3, Issue 2, February 2013 Demodectic Rosaceae in a Diabetic Patient Deepak Nayak M
J Med Microbiol. 2013 Nov 18. doi: 10.1099/jmm.0.065136-0. Correlation between serum reactivity to Demodex-associated Bacillus oleronius proteins, and altered sebum levels and Demodex populations in erythematotelangiectatic rosacea patients. Jarmuda S, McMahon F, Zaba R, O'Reilly N, Jakubowicz O, Holland A, Szkaradkiewicz A, Kavanagh K.	JAMA Dermatol. 2013 Nov 27.doi:10.1001/jamadermatol.2013.7688. Severe Demodexfolliculorum-Associated Oculocutaneous Rosacea in a Girl Successfully Treated With Ivermectin. Brown M, Hernández-Martín A, Clement A, Colmenero I, Torrelo A.
Turkiye Parazitol Derg. 2013;37(3):195-8. doi: 10.5152/tpd.2013.43. Investigation of the prevalance of Demodex folliculorum and Demodex brevis in rosacea patients. Yücel A, Yilmaz M.	Q&A Library, Weil Do Mites Cause Rosacea? Andrew Weil, M.D.
2012
Positive correlation between serum immuno-reactivity to Demodex-associated Bacillus proteins and Erythematotelangiectic Rosacea. O'Reilly N, Menezes N, Kavanagh K. Br J Dermatol. 2012 Jun 18. doi: 10.1111/j.1365-2133.2012.11114.x.	Non-invasive in vivo detection and quantification of Demodex mites by confocal laser scanning microscopy. Sattler EC, Maier T, Hoffmann VS, Hegyi J, Ruzicka T, Berking C. Br J Dermatol. 2012 Jun 20. doi: 10.1111/j.1365-2133.2012.11096.x.
Quantification of Demodex folliculorum by PCR in rosacea and its relationship to skin innate immune activation. Román-Curto C, Meseguer-Yebra C, Cañueto J, Fraile-Alonso C, Santos-Briz A, Vázquez L, Fernández-López E. Transpl Infect Dis. 2012 Apr 9. doi: 10.1111/j.1399-3062.2012.00729.x	Demodex-associated Bacillus proteins induce an aberrant wound healing response in a corneal epithelial cell line (hTCEpi). O'Reilly N, Gallagher C, Katikireddy K, Clynes M, O'Sullivan F, Kavanagh K. Invest Ophthalmol Vis Sci. 2012 Apr 24.
Demodicidosis simulating acute graft-versus-host disease after allogeneic stem cell transplantation in one patient with acute lymphoblastic leukemia. Casas C, Paul C, Lahfa M, Livideanu B, Lejeune O, Alvarez-Georges S, Saint-Martory C, Degouy A, Mengeaud V, Ginisty H, Durbise E, Schmitt AM, Redoulès D. Exp Dermatol. 2012 Dec;21(12):906-10. doi: 10.1111/exd.12030	The potential role of Demodex folliculorum mites and bacteria in the induction of rosacea. Stanisław Jarmuda, Niamh O'Reilly, Ryszard Żaba, Oliwia Jakubowicz, Andrzej Szkaradkiewicz and Kevin Kavanagh. Journal of Medical Microbiology, 2012 DOI: 10.1099/jmm.0.048090-0 Article at PubMed
Academic Journal of Entomology 5 (1): 62-64, 2012 Prevalence of Demodex Mites (Acari: Demodicidae) Parasitizing Human in Babol, North of Iran Mohammad Reza Youseefi, Rabeeh Tabari Pour, Mohammad Taghi Rahimi	New Scientist Rosacea may be caused by mite faeces in your pores Debora MacKenzie
2011
Risk factors and prevalence of Demodex mites in young adults. Horváth A, Neubrandt DM, Ghidán A, Nagy K Acta Microbiol Immunol Hung. 2011 Jun;58(2):145-55.	Facial dermatosis associated with Demodex: a case-control study. Zhao YE, Peng Y, Wang XL, Wu LP, Wang M, Yan HL, Xiao SX. J Zhejiang Univ Sci B. 2011 Dec;12(12):1008-15.
Demodex-associated bacterial proteins induce neutrophil activation. O’Reilly N, Bergin D, Reeves EP, McElvaney NG, Kavanagh K. Br J Dermatol. 2011 Nov 19. doi: 10.1111/j.1365-2133.2011.10746.x	Density of Demodex folliculorum in Patients Receiving Epidermal Growth Factor Receptor Inhibitors. Gerber PA, Kukova G, Buhren BA, Homey B. Dermatology. 2011 Feb 22
Papulopustular rosacea, skin immunity and Demodex: pityriasis folliculorum as a missing link. Forton FM. J Eur Acad Dermatol Venereol. 2011 Oct 24. doi: 10.1111/j.14683083.2011.04310.x	Rosacea-like demodicidosis and chronic blepharitis Anane S, Mokni M, Beltaief O. Ann Dermatol Venereol. 2011 Jan;138(1):30-34.
Acta Dermato-Venereologica Rosacea-like Demodicosis Mimicking Cutaneous Lymphoma Yukiko Kito, Hideo Hashizume and Yoshiki Tokura Accepted May 31, 2011	Dermatology 2011;222:128–130 Demodex Mites – Commensals, Parasites or Mutualistic Organisms? Noreen Lacey Síona Ní Raghallaigh Frank C. Powell
2010
Retrospective analysis of the association between demodex infestation and rosacea. Zhao YE, Wu LP, Peng Y, Cheng H. Arch Dermatol. 2010 Aug;146(8):896-902.	Demodex mites: Facts and controversies. Elston DM. Clin Dermatol. 2010 September - October;28(5):502-504.
Comparison of the two techniques for measurement of the density of Demodex folliculorum: standardized skin surface biopsy and direct microscopic examination. Askin U, Seçkin D. Br J Dermatol. 2010 Feb 25	Reaction to Mites May Mimic Rosacea Signs NRS Rosacea Review, Winter 2010, Article 6
Correlation between Ocular Demodex Infestation and Serum Immunoreactivity to Bacillus Proteins in Patients with Facial Rosacea Li J, O'Reilly N, Sheha H, Katz R, Raju VK, Kavanagh K, Tseng SC. Ophthalmology. 2010 Jan 14.	Mites and Eye Symptoms NRS Web Blog Thursday, July 15, 2010
Pathogenic role of Demodex mites in blepharitis Jingbo Liu, Hosam Sheha, and Scheffer C.G. Tsegn Curr Opin Allergy Clin Immunol. 2010 October; 10(5): 505–510.	Ophthalmology Management Do You Know Demodex? 9/1/2010 Jingbo Liu, MD, PhD, and Scheffer C. G. Tseng, MD, PhD
2009
Demodicosis: a clinicopathological study. Hsu CK, Hsu MM, Lee JY. J Am Acad Dermatol. 2009 Mar;60(3):453-62.	Criotherapy in treatment of skin demodecosis. Georgian Med News. 2009 May;(170):43-5.
Under the lash Demodex mites in human diseases Noreen Lacey, Kevin Kavanagh, and Scheffer C.G. Tseng Biochem (Lond). 2009 August 1; 31(4): 2–6.	PCR analysis for Wolbachia in human and canine Demodex mites. Borgo SN, Sattler EC, Hogardt M, Adler K, Plewig G. Department of Dermatology and Allergology, Ludwig-Maximilian-University, Frauenlobstrasse 9-11, 80337, Munich, Germany. Arch Dermatol Res. 2009 Aug 4
Facial Demodex infection among college students in Tangshan Cao YS, You QX, Wang L, Lan HB, Xu J, Zhang XH, Yang H, Xiong YJ, Tian XF. Laboratory of Medical Examination, Biosciences Department of North China Coal Medical University, Tangshan 063000, China. Zhongguo Ji Sheng Chong Xue Yu Ji Sheng Chong Bing Za Zhi. 2009 Jun;27(3):271-3.	Rejecting common wisdom: Red, scaly faces not always rosacea or seborrheic dermatitis Dermatology Times Publish date: Jun 1, 2009 By: Jane Schwanke
Rosacea-Like Demodicosis Induced by Topical Pimecrolimus: Immunohistochemical Evaluation of Inflammatory Infiltrate Efi Pasmatzi, MD, Maria Melachrinou, MD, Alexandra Monastirli1, MD, Anastasia Tzouma1, MD, Dionysios Tsambaos1, MD, PhD HOSPITAL CHRONICLES 2009, 4(4): 172–174	J Clin Aesthet Dermatol. 2009 January; 2(1): 20–25. Demodex Dermatitis A Retrospective Analysis of Clinical Diagnosis and Successful Treatment with Topical Crotamiton Joseph B. Bikowski and James Q. Del Rosso
Turkiye Parazitoloji Dergisi, 33 (1): 32-36, 2009 Diagnosis and Treatment of Demodectic Blepharaits Tonay Inceboz, Aylin Yaman, Leyla Over, Arif Taylan Ozturk, Ciler Akisu
2008
Rosacea-like demodicidosis. Larios G, Alevizos A, Perimeni D, Rigopoulos D, Katsambas A.Department of Dermatology, University of Athens Medical School, Andreas Sygros Hospital, Athens, Greece. Lancet Infect Dis. 2008 Dec;8(12):804.
Clinical importance of Demodex folliculorum in patients receiving phototherapy. Kulac M, Ciftci IH, Karaca S, Cetinkaya Z Int J Dermatol. 2008 Jan;47(1):72-7	Demodicosis Manolette R Roque, M, Barbara L Roque, MD, eMedicine, WebMD
2007
Mite-related bacterial antigens stimulate inflammatory cells in rosacea. Lacey N, Delaney S, Kavanagh K, Powell FC. Department of Biology, National University of Ireland, Maynooth, Co. Kildare, Ireland. Br J Dermatol. 2007 Jun 26	Frequency of Demodicosis in various patient and age groups. Aycan OM, Otlu GH, Karaman U, Daldal N, Atambay M. Inönü Üniversitesi Tıp Fakültesi, Parazitoloji Anabilim Dalı, Malatya, Turkey. Turkiye Parazitol Derg. 2007;31(2):115-118.
Rosacea Author: Agnieszka Kupiec-Banasikowska, MD, Consulting Staff, Division of Dermatology, Georgetown University Medical Center Coauthor(s): Mana Ogholikhan, MD, Staff Physician, Division of Dermatology, Georgetown University Hospital; Ravi Ratnavel, MD, Consulting Staff, Department of Dermatology, Stoke Mandeville, Thames Valley Nuffield, Paddocks Hospitals, UK - 2007	Electron microscopic investigation into the possible etiology of rosacea and the implication for treatment, Richard Burroughs, MD, National Capital Consortium (Walter Reed Army Medical Center), Washington, DC, United States; Kurt Maggio, MD, Walter Reed Army Medical Center, Washington, DC, United States., Poster Abstract P516, American Academy of Dermatology, 65th Annual Meeting February 2-6, 2007, Washington, DC. Published in Journal of the American Academy of Dermatology Volume 56, Number 2.
Association of rosacea with demodicosis. Moravvej H, Dehghan-Mangabadi M, Abbasian MR, Meshkat-Razavi G: Arch Iran Med. 2007 Apr;10(2):199-203.	Recalcitrant papulopustular rosacea in an immunocompetent patient responding to combination therapy with oral ivermectin and topical permethrin. Allen KJ, Davis CL, Billings SD, Mousdicas N; Cutis. 2007 Aug;80(2):149-51
Corneal manifestations of ocular demodex infestation Kheirkhah A, Casas V, Li W, Raju VK, Tseng SC. Am J Ophthalmol. 2007 May;143(5):743-749. Epub 2007 Mar 21	Clinical treatment of ocular demodecosis by lid scrub with tea tree oil. Gao YY, Di Pascuale MA, Elizondo A, Tseng SC. Cornea. 2007 Feb;26(2):136-43.
Demoodex folliculorum and Demodex brevis as a cause of chronic marginal blepharitis. Czepita D, Ku?na-Grygiel W, Czepita M, Grobelny A. Ann Acad Med Stetin. 2007;53(1):63-7; discussion 67.	Empirical treatment is key to identifying rosacea, other dermatoses Modern Medicine - Publish date: Nov 1, 2007 By: John Jesitu
Granulomatous rosacea-like demodicidos Julia Yu-Yun Lee MD, Chao-Kai Hsu MD Dermatology Online Journal 13 (4): 9; 2007, Vol 13, No.1	Demodex folliculorum and Demodex brevis as a cause of chronic marginal blepharitis. Czepita D, Ku?na-Grygiel W, Czepita M, Grobelny A. Katedra i Klinika Okulistyki Pomorskiej Akademii Medycznej w Szczecinie al. Powsta?ców Wlkp. 72, 70-111 Szczecin. Ann Acad Med Stetin. 2007;53(1):63-7; discussion 67.
Standardized skin surface biopsy: method to estimate the Demodex folliculorum density, not to study the Demodex folliculorum prevalence. Forton F. J Eur Acad Dermatol Venereol. 2007 Oct;21(9):1301-2	Turkiye Parazitol Derg. 2007;31(2):115-8. Frequency of the appearance of Demodex sp. in various patient and age groups. Aycan OM, Otlu GH, Karaman U, Daldal N, Atambay M.
2006
Density of Demodex folliculorum in rosacea: a case-control study using standardized skin-surface biopsy F. FORTON 1 B. SEYS Clinic of Dermatology, Saint Pierre University Hospital, Université Libre de Bruxetles, Brussels, Belgium, Unit of Medical Sciences Pedagogy, Faculty of Medicine, Université Catholique de Louvain, Brussels, Belgium British Journal of Dermatology Volume 128 Issue 6, Pages 650 - 659 Published Online: 29 Jul 2006	Dispelling the Mystery of Demodex Neal Bhatia, MD and James Q Del Rosso, DO, FAOCD US PHARMACY REVIEW 2006, p. 38 - 41
2005
Demodicosis and rosacea: Epidemiology and significance in daily dermatologic practice Journal of the American Academy of Dermatology Volume 52, Issue 1 , January 2005, Pages 74-87 Forton F, Germaux MA, Brasseur T, De Liever A, Laporte M, Mathys C, Sass U, Stene JJ, Thibaut S, Tytgat M, Seys B.	Could matrix metalloproteinase-9 be a link between Demodex folliculorum and rosacea? RR Bonamigo, L Bakos, M Edelweiss, A Cartell Journal of the European Academy of Dermatology & Venereology Volume 19 Page 646 - September 2005 Volume 19 Issue 5
Structural and biological changes in rosacea skin induced by the 595nm long-pulse dye laser and intense pulsed light. Dr. Payam Tristani-Firouzi, assistant professor, and Dr. Nancy Samolitis, visiting professor, department of dermatology, University of Utah. This study being done in 2005 by a grant from the NRS will study among other things and "assess the size of the oil glands and the presence of Demodex mites, normal inhabitants of human skin that have been observed in greater numbers in rosacea patients."	A clinico-pathological approach to the classification of human demodicosis. Akilov OE, Butov YS, Mumcuoglu KY: J Dtsch Dermatol Ges. 2005 Aug;3(8):607-14 Department of Dermatology, Cosmetology Hospital "Aesthetics", Ekaterinburg, Russian Federation.
Demodecidosis in a patient infected by HIV: successful treatment with ivermectin Clyti E, Sayavong K, Chanthavisouk K: Ann Dermatol Venereol. 2005 May;132(5):459-61. Service de Dermatologie, Institut Guyanais de Dermatologie Tropicale, Hopital de Cayenne, Guyane Francaise.	The role of HLA A2 and Cw2 in the pathogenesis of human demodicosis. Mumcuoglu KY, Akilov OE: Dermatology. 2005;210(2):109-14. Department of Parasitology, Hebrew University-Hadassah Medical School, Jerusalem, Israel.
Density of Demodex folliculorum in perioral dermatitis. Dolenc-Voljc M, Pohar M, Lunder T: Acta Derm Venereol. 2005;85(3):211-5: Department of Dermatovenereology, University Medical Centre Ljublana, Zaloska 2, SI-1525 Ljublana, Slovenia.	Assen L. Dourmishev, Lyubomir A. Dourmishev, Robert A. Schwartz (2005) Ivermectin: pharmacology and application in dermatology International Journal of Dermatology 44 (12), 981–988. doi:10.1111/j.1365-4632.2004.02253.x
Demodicidosis in humans as a current problem in dermatology : Wiad Parazytol. 2005;51(3):253-6.	Topical application of 1-methylnicotinamide in the treatment of rosacea: a pilot study. Wozniacka A, Wieczorkowska M, Gebicki J, Sysa-Jedrzejowska A: Clin Exp Dermatol. 2005 Nov;30(6):632-5. Department of Dermatology, Medical University of Lodz, Poland.
In vitro and in vivo killing of ocular Demodex by tea tree oil. Gao YY, Di Pascuale MA, Li W, Baradaran-Rafii A, Elizondo A, Kuo CL, Raju VK, Tseng SC: Br J Ophthalmol. 2005 Nov;89(11):1468-73.	Rosacea and Demodex Rufli T: J Dtsch Dermatol Ges. 2005 Aug;3 (8):585-6.
Demodex mites as a cause of human disease. Elston DM; Cutis. 2005 Nov;76(5):294-6.	[Investigations on the occurrence as well as the role of Demodex follicuforum and Demodex brevis in the pathogensis of blepharitis] Czepita D, Ku?na-Grygiel W, Kosik-Bogacka D. Klin Oczna. 2005;107(1-3):80-2
Demodex as an etiological factor in chronic blepharitis Czepita D, Ku?na-Grygiel W, Kosik-Bogacka D. Klin Oczna. 2005;107(10-12):722-4.	Consider Demodex mites regardless of immune status Skin; Allergy News, Sept, 2005 by Patrice Wendling
Cutis, August 17, 2005, p 324 Continuing Medical Education Resistant Scalp Folliculitis Secondary to Demodex Infestation Angela M Sanfilippo, MD; Joseph C. English III, MD
2004
Biochemical and immunological characterization of the role of bacterial antigens in the induction of papulopustular rosacea. Dr. Kevin Kavanagh, Department of biology, National University of Ireland, Maynooth, and Dr. Frank Powell, Consultant Dermatologist, Mater Misericordiae Hospital, Dublin. 2004 Dr. Kevin Kavanagh was awarded $25,000 to pursue further research on the potential role of bacterial antigens in papulopustular (subtype 2) rosacea. In an earlier NRS-funded study, he and his colleagues succeeded in isolating a bacterium from Demodex folliculorum, microscopic mites that are a common inhabitant of facial skin. The bacteria produced antigens that induced an inflammatory response in significantly more rosacea patients than controls. In the new study, they will determine whether the presence of the antigens is predictive of the onset of rosacea, in order to establish whether they play a significant role.	Rosacea: I. Etiology, pathogenesis, and subtype classification. Crawford GH, Pelle MT, James WD. Department of Dermatology, University of Pennsylvania Medical Center, USA: J Am Acad Dermatol. 2004 Sep;51(3):327-41; quiz 342-4.
Relationship between the Demodex and bacteria infection in human rosacea Hu Q, Wang Y, Tong L: Zhongguo Ji Sheng Chong Xue Yu Ji Sheng Chong Bing Za Zhi. 2004 Feb 28;22(1):50-3. Department of Parasitology, Medical college of Inner Mongolia National University, Tongliao 028041, China.	Rosacea and the pilosebaceous follicle. Powell FC: Cutis. 2004 Sep;74(3 Suppl):9-12, 32-4. Regional Centre of Dermatology, Mater Misercordiae Hospital, Dublin, Ireland.
New Study Shows Role for Bacteria in Development of Rosacea Symptoms Suzanne Corr / Barbara Palombo; PROVIDENCE, R.I. (May 3, 2004): National Rosacea Society	The clinical importance of demodex folliculorum presenting with nonspecific facial signs and symptoms. Karincaoglu Y, Bayram N, Aycan O, Esrefoglu M: J Dermatol. 2004 Aug;31(8):618-26.
Studies of di-n-butyl phthalate-OP emulsion in the treatment of demodicidosis Xia H, Hu SF, Ma WJ, Ge JH: Zhongguo Ji Sheng Chong Xue Yu Ji Sheng Chong Bing Za Zhi. 2004 Aug;22(4):248-9. Department of Microbiology and Parasitology, Bengbu Medical College, Bengbu 233003, China.	Efficiency of benzoyl peroxide-erythromycin gel in comparison with metronidazole gel in the treatment of acne rosacea. Ozturkcan S, Ermertcan AT, Sahin MT, Afsar FS; J Dermatol. 2004 Aug;31(8):610-7; Department of Dermatology, Medical Faculty of Celal Bayar University, Manisa, Turkiye.
Rosacea: a clinicopathological approach. Aroni K, Tsagroni E, Lazaris AC, Patsouris E, Agapitos E; Dermatology. 2004;209(3):177-82. Department of Dermatopathology, School of Medicine, National and Kapodistrian University of Athens	Facial demodicosis. Zomorodian K, Geramishoar M, Saadat F, Tarazoie B, Norouzi M, Rezaie S; Eur J Dermatol. 2004 Mar-Apr;14(2):121-2. Div. of Molecular Biology, Dept. of Medical Mycology & Parasitology, School of Public Health and Institute of Public Health Research, Tehran University of Medical Sciences, P.O. Box 14155, 64410 Tehran, Iran.
Immune response in demodicosis. Akilov OE, Mumcuoglu KY;J Eur Acad Dermatol Venereol. 2004 Jul;18(4):440-4. Department of Dermatology, Cosmetology Hospital 'Aesthetics', Ekaterinburg, Russian Federation.	Treatment of human Demodex folliculorum by camphor oil and metronidazole. El-Shazly AM, Hassan AA, Soliman M, Morsy GH, Morsy TA; J Egypt Soc Parasitol. 2004 Apr;34(1):107-16. Departments of Parasitology, Faculty of Medicine, Mansoura University, Mansoura, Egypt.
Demodex abscesses: clinical and therapeutic challenges. Schaller M, Sander CA, Plewig G: J Am Acad Dermatol. 2003 Nov;49(5 Suppl):S272-4. Department of Dermatology and Allergology, University of Munich, Germany	Induction of rosaceiform dermatitis during treatment of facial inflammatory dermatoses with tacrolimus ointment. Antille C, Saurat JH, Lubbe J; Arch Dermatol. 2004 Apr;140(4):457-60. Department of Dermatology, University Hospital, Geneva, Switzerland.
Some aspects of the skin infestation by Demodex folliculorum n; Wiad Parazytol. 2004;50(1):41-54
2003
Demodex abscesses: clinical and therapeutic challenges. Schaller M, Sander CA, Plewig G: J Am Acad Dermatol. 2003 Nov;49(5 Suppl):S272-4. full article Department of Dermatology and Allergology, University of Munich, Germany.	It's Enough To Make Your Skin Crawl: Microscopic Mites May Be Linked To Acne, Thinning Hair And Other Skin Disorders Chuck Woods: 04.23.2003 University of Florida's Institute of Food and Agricultural Sciences
Association between human demodicosis and HLA class I. Akilov OE, Mumcuoglu KY: Clin Exp Dermatol. 2003 Jan;28(1):70-3. Department of Dermatology, Cosmetology Hospital Aesthetics, Ekaterinburg, Russian Federation.	Is permethrin 5% cream effective for rosacea? Swenor ME: J Fam Pract. 2003 Mar;52(3):183-4. Harrisburg Family Practice, Residency Program, PinnacleHealth Hospitals, Pa, USA
Rosaceiform dermatitis with follicular Demodex after treatment of facial atopic dermatitis with 1% pimecrolimus cream. Lubbe J, Stucky L, Saurat JH; Dermatology. 2003;207(2):204-5
2002
The role of bacterial antigen(s) in the etiology and persistence of papulopustular bacteria. Dr. Kevin Kavanagh, Department of Biology, National University of Ireland - Maynooth, and Dr. Frank Powell, consultant dermatologist, Mater Misericordiae Hospital, Dublin. 2002 Bacteria associated with microscopic mites known as Demodex folliculorum may play a role in the development of papulopustular (subtype 2) rosacea, according to the results of a study funded by a National Rosacea Society grant and reported at the 2004 annual meeting of the Society for Investigative Dermatology.	Symbiotic intraceullular bacteria of Demodex folliculorum and the pathogenesis of rosacea. Drs. Richard Burroughs, Mark Peake and Richard Vinson, of William Beaumont Army Medical Center; Dr. Scott Norton, chief, Dermatology Service, Walter Reed Army Medical Center; and Dr. John Werren, professor of biology, and Seth Bordenstein, University of Rochester. 2002 The researchers were awarded $12,250 to test Demodex from rosacea patients for the presence of bacteria, and analyze data for a possible statistical or clinical link between the bacteria and the presence of rosacea. They hypothesize that the cutaneous changes of rosacea may be due to an inflammatory response to bacteria within Demodex rather than the mite itself. Status: Interim report submitted April 2003. Study continues [editor's note: what happened to this report? Why pay this and wait this long for a final report?]
Eucalyptus globulus (camphor oil) in the treatment of human demodicidosis. Morsy TA, Morsy GH, Sanad EM: J Egypt Soc Parasitol. 2002 Dec;32(3):797-803. Department of Parasitology, Faculty of Medicine, Ain Shams University, Cairo 11566, Egypt	Effects of intense pulsed light on sun-damaged human skin, routine, and ultrastructural analysis. Prieto VG, Sadick NS, Lloreta J, Nicholson J, Shea CR: Lasers Surg Med. 2002;30(2):82 Department of Pathology, UT-MD Anderson Cancer Center, Houston, Texas 77030, USA.
Rosacea and the pilosebaceous follicle. Powell FC: Cutis. 2004 Sep;74(3 Suppl):9-12, 32-4 Regional Centre of Dermatology, Mater Misercordiae Hospital, Dublin, Ireland	The management of rosacea. Rebora A: Am J Clin Dermatol. 2002;3(7):489-96. Department of Endocrinological and Metabolic Diseases, Section of Dermatology, University of Genoa, Genoa, Italy.
Demodicidosis revisited. Baima B, Sticherling M: Acta Derm Venereol. 2002;82(1):3-6. Department of Dermatology, University of Leipzig, Germany.	Permethrin 5% cream versus metronidazole 0.75% gel for the treatment of papulopustular rosacea. A randomized double-blind placebo-controlled study. Kocak M, Yagli S, Vahapoglu G, Eksioglu M: Dermatology. 2002;205(3):265-70. Department of Dermatology, Kirikkale University, Faculty of Medicine, Kirikkale, Turkey.
Intense pulsed light eradicates demodex mites. (Improves Acne, Rosacea) Timothy F. Kirn, Skin & Allergy News, June 1, 2002	Demodex folliculorum in development of dermatitis rosaceiformis steroidica and rosacea-related diseases Basta-Juzbasi? A, Subi? JS, Ljubojevi? S Clin Dermatol. 2002 Mar-Apr;20(2):135-40..
2001
Increased density of Demodex folliculorum and evidence of delayed hypersensitivity reaction in subjects with papulopustular rosacea. Georgala S, Katoulis AC, Kylafis GD, Koumantaki-Mathioudaki E, Georgala C, Aroni K; J Eur Acad Dermatol Venereol. 2001 Sep;15(5):441-4; National University of Athens, Department of Dermatology and Venereology, A. Sygros' Hospital, Greece. 2001	The pathogenesis of Demodex folliculorum (hair follicular mites) in females with and without rosacea. el-Shazly AM, Ghaneum BM, Morsy TA, Aaty HE: J Egypt Soc Parasitol. 2001 Dec;31(3):867-75. Department of Parasitology, Faculty of Medicine, Mansoura University, Egypt.
Rosacea-like demodicidosis associated with acquired immunodeficiency syndrome. Jansen T, Kastner U, Kreuter A, Altmeyer P: Br J Dermatol. 2001 Jan;144(1):139-42. Department of Dermatology and Allergology, Ruhr-University Bochum, Gudrunstrasse 56, 44791 Bochum, Germany. Full Text
2000
Rosacea, acne and other diseases of the seborrheic spectrum Boni R: Schweiz Rundsch Med Prax. 2000 Mar 30;89(14):566-70; Dermatologische Klinik, UniversitatsSpital Zurich.	Is demodex really non-pathogenic? Pena GP, Andrade Filho JS: Rev Inst Med Trop Sao Paulo. 2000 May-Jun;42(3):171-3. Laboratorio Distrital Centro-Sul, Prefeitura de Belo Horizonte, Minas Gerais, Brasil
Rosacea, acne and other diseases of the seborrheic spectrum Boni R: Schweiz Rundsch Med Prax. 2000 Mar 30;89(14):566-70 Dermatologische Klinik, UniversitatsSpital Zurich.	Micscape Magazine, May 2000 Demodex, an inhabitant of human hair follicles, and a mite which we live with in harmony. by M. Halit Umar, The Netherlands
1999
Treatment of rosacea-like demodicidosis with oral ivermectin and topical permethrin cream JAAD, November 1999, part 1 . Volume 41 . Number 5 Christa Forstinger, MD, Harald Kittler, MD Michael Binder, MD Vienna, Austria, and Boston, Massachusetts (Full Report if you scroll down)	Tubero-pustular demodicosis Grossmann B, Jung K, Linse R. Hautarzt. 1999 Jul;50(7):491-4.
1998
Unilateral demodicidosis. Pallotta S, Cianchini G, Martelloni E, Ferranti G, Girardelli CR, Di Lella G, Puddu P: Eur J Dermatol. 1998 Apr-May;8(3):191-2. Department of Immunoderma-tology, Istituto Dermopatico Dell Imma-colata, IRCCS, Via dei Monti di Creta 104, 00167 Rome, Italy. Full Article	Limitations of standardized skin surface biopsy in measurement of the density of Demodex folliculorum. A case report. Forton F, Song M: Br J Dermatol. 1998 Oct;139(4):697-700. Clinic of Dermatology, Universite Libre de Bruxelles, Saint Pierre University Hospital, Brussels, Belgium
The significance of Demodex folliculorum density in rosacea. Erbagci Z, Ozgoztasi O: Int J Dermatol. 1998 Jun;37(6):421-5. Department of Dermatology, Faculty of Medicine, Gaziantep University, Turkey.	Demodex mites in acne rosacea. Roihu T, Kariniemi AL: J Cutan Pathol. 1998 Nov;25(10):550-2. Department of Dermatology, Helsinki University Central Hospital, Finland.
Demodex-associated folliculitis. Forton F. Am J Dermatopathol. 1998 Oct;20(5):536-7	Demodex folliculorum and topical treatment: acaricidal action evaluated by standardized skin surface biopsy. Forton F, Seys B, Marchal JL, Song AM. Br J Dermatol. 1998 Mar;138(3):461-6.
1997
Blepharitis. Demodex folliculorum, associated pathogen spectrum and specific therapy Demmler M; de Kaspar HM; Mohring C; Klauss V - Ophthalmologe - 1997 Mar; 94(3): 191-6	A study on Demodex folliculorum in rosacea. Abd-El-Al AM, Bayoumy AM, Abou Salem EA: J Egypt Soc Parasitol. 1997 Apr;27(1):183-95. Department of Dermatology, Faculty of Medicine, Al-Azhar University, Nasr City, Cairo
1996
Pilocarpine gel for the treatment of demodicosis--a case series. Fulk GW, Murphy B, Robins MD: Optom Vis Sci. 1996 Dec;73(12):742-5. College of Optometry, Northeastern State University, Tahlequah, Oklahoma, USA.	Rosacea-like demodicosis in an HIV-positive child. Barrio J, Lecona M, Hernanz JM, Sanchez M, Gurbindo MD, Lazaro P, Barrio JL: Dermatology. 1996;192(2):143-5. Dermatology, Service, Hospital General Universitario Gregorio Maranon, Madrid, Spain.
1995
Demodicidosis in childhood acute lymphoblastic leukemia; an opportunistic infection occurring with immunosuppression. Ivy SP - Journal of Pediatrics- 1995 Nov; 127(5): 751-4	Demodicidosis or rosacea: what did we treat? Hoekzema R, Hulsebosch HJ, Bos JD: Br J Dermatol. 1995 Aug;133(2):294-9. Department of Dermatology, Academisch Medisch Centrum, University of Amsterdam, The Netherlands.
1994
Acne rosacea complicated with demodicosis Bobrov VM; Vestn Otorinolaringol. 1994 Jul-Aug;(4):43-4.	Demodex mites in rosacea. Diaz-Perez JL: J Am Acad Dermatol. 1994 May;30(5 Pt 1):812-3.
1993
Rosacea Decauchy F, Beauvais L, Meunier L, Meynadier J: Rev Prat. 1993 Nov 15;43(18):2344-8. Service de dermatologie allergologie et photobiologie, hopital Saint-Charles, Montpellier.	Demodex-attributed rosacea-like lesions in AIDS. Redondo Mateo J, Soto Guzmán O, Fernández Rubio E, Domínguez Franjo F: Acta Derm Venereol. 1993 Dec;73(6):437.
The Demodex mite population in rosacea. Bonnar E, Eustace P, Powell FC J Am Acad Dermatol. 1993 Mar;28(3):443-8. University Department of Ophthalmology, Mater Misercordiae Hospital, Dublin, Ireland.	Density of Demodex folliculorum in rosacea: a case-control study using standardized skin-surface biopsy. Forton F, Seys B. Br J Dermatol 1993;128:650-9.
1992
Granulomatous rosacea associated with Demodex folliculorum. Amichai B, Grunwald MH, Avinoach I, Halevy S: Int J Dermatol. 1992 Oct;31(10):718-9 Department of Dermatology, Soroka Medical Center of Kupat Holim, Beer-Sheva, Israel.	Rosacea: a study of clinical patterns, blood flow, and the role of Demodex folliculorum. Sibenge S, Gawkrodger DJ: J Am Acad Dermatol. 1992 Apr;26(4):590-3. Department of Dermatology, University of Sheffield, Royal Hallamshire Hospital, U.K.
The possible role of skin surface lipid in rosacea with epitheloid granulomas. Basta-Juzbasic A, Marinovic T, Dobric I, Bolanca-Bumber S, Sencar J: Acta Med Croatica. 1992;46(2):119-23. University Department of Dermatology, Medical Faculty, University of Zagreb, Croatia.	Demodicidosis in a child with leukemia. Sahn EE, Sheridan DM. J Am Acad Dermatol. 1992 Nov;27(5 Pt 2):799-801.
1991
Topical steroid induced chronic demodicidosis. Sakuntabhai A, Timpatanapong P: J Med Assoc Thai. 1991 Feb;74(2):116-9. Department of Medicine, Faculty of Medicine, Ramathibodi Hospital, Mahidol University, Bangkok, Thailand	Demodicosis and rosacea. Skrlin J, Richter B, Basta-Juzbasic A, Matica B, Ivacic B, Cvrlje M, Kucisec N, Baucic A: 1991 Mar 23;337(8743):734.
Demodicosis, what to do about it? Vroom MW: Tijdschr Diergeneeskd. 1991 Mar 15;116(6):296-7.	[Demodex folliculorum and Demodex brevis (Acarida) as the factors of chronic marginal blepharitis] Humiczewska M. Wiad Parazytol. 1991;37(1):127-30.
Papular pruritic eruption with human immunodeficiency virus infection. Bañuls J, Ramon D, Aniz E, Jorda E, Torres V. Int J Dermatol. 1991 Nov;30(11):801-3
1989
Unilateral demodectic rosacea Shelley WB, Shelley ED, Burmeister V. Department of Medicine, Medical College of Ohio, Toledo. J Am Acad Dermatol. 1989 May;20 (5 Pt 2):915-7.	Papular pruritic eruption of Demodex folliculitis in patients with acquired immunodeficiency syndrome. Ashack RJ, Frost ML, Norins AL. J Am Acad Dermatol. 1989 Aug;21(2 Pt 1):306--7
Papulonodular demodicidosis associated with acquired immunodeficiency syndrome. Dominey A, Rosen T, Tschen J. J Am Acad Dermatol. 1989 Feb;20(2 Pt 1):197-201.	Pityriasis folliculorum revisited. Dominey A, Tschen J, Rosen T, Batres E, Stern JK. J Am Acad Dermatol. 1989 Jul;21(1):81-4.
Demodex mites contain immunoreactive lipase. Jimenez-Acosta F, Planas L, Penneys N. Arch Dermatol. 1989 Oct;125(10):1436-7
1988
Rosacea: histopathologic study of 75 cases Ramelet AA, Perroulaz G: Ann Dermatol Venereol. 1988;115(8):801-6. Service de dermatologie et de venereologie, CHUV, (Centre Hospitalier universitaire vaudois), Lausanne, Suisse.	The hair follicle mites (Demodex spp.). Could they be vectors of pathogenic microorganisms? Wolf R, Ophir J, Avigad J, Lengy J, Krakowski A: Acta Derm Venereol. 1988;68(6):535-7. Department of Dermatology, Ichilov Medical Center, Tel-Aviv, Israel.
Demodex folliculorum Huismans H: Klin Monatsbl Augenheilkd. 1988 Sep;193(3):304-6
1987
Rosacea and rosacea-like demodicidosis. Ayres S: Int J Dermatol. 1987 Apr;26(3):198-9	Demodicidosis mimicking granulomatous rosacea and transient acantholytic dermatosis (Grover's disease). Lindmaier A, Jurecka W, Lindemayr H: Dermatologica. 1987;175(4):200-4.
Demodicosis--a rosaceiform dermatosis Wätzig V, Zollmann 😄 Dermatol Monatsschr. 1987;173(3):158-62.
1986
Clinical manifestations of demodicosis. Heacock CE: J Am Optom Assoc. 1986 Dec;57(12):914-9.	Demodex and perifollicular inflammation in man: review and report of 69 biopsies Forton F. Ann Dermatol Venereol. 1986;113(11):1047-58
1984
T-cell subsets in acne rosacea lesions and the possible role of Demodex folliculorum. Rufli T, Buchner SA: Dermatologica. 1984;169(1):1-5.	Rosacea and demodicosis (a review of the literature) Glukhen'ki? BT, Snitsanenko OV. Vrachebnoe Delo. 1984 Feb;(2):94-6.
1982
Ultrastructural study of demodex infestation of the face in healthy subjects and acne rosacea patients : G Ital Dermatol Venereol. 1982 Sep-Oct;117(5):277-81. Crosti C, Menni S, Piccinno R, Sala F.
1981
Nosologic position of demodicidosis in humans Bardach HG, Raff M, Poitschek 😄 Hautarzt. 1981 Oct;32(10):512-8.	The hair follicle mites Demodex folliculorum and Demodex brevis: biology and medical importance. A review. Rufli T, Mumcuoglu Y. Dermatologica. 1981;162(1):1-11.
Demodicosis of ophthalmic concern. English FP, Nutting WB: Am J Ophthalmol. 1981 Mar;91(3):362-72.	Metronidazole and Demodex folliculorum. Persi A, Rebora A: Acta Derm Venereol. 1981;61(2):182-3
Demodex folliculorum: aetiopathogenesis and therapy of rosacea and perioral dermatitis Rufli T, Mumcuoglu Y, Cajacob A, Büchner S Dermatologica. 1981;162(1):12-26.
1980
Demodex folliculorum and rosacea: experimental and immunological studies Grosshans E, Dungler T, Kien TT, Kremer M: Z Hautkr. 1980 Sep 15;55(18):1211-8. Abstract
1978
Perioral dermatitis--an allergic disease? Arutjunow V: Hautarzt. 1978 Feb;29(2):89-91.	211-
1977
Pyroglyphid mites, xerophilic fungi and allergenic activity in dust from hospital mattresses. v d Lustgraaf B, Jorde W: Acta Allergol. 1977 Dec;32(6):406-12.	Pathogenesis associated with hair follicle mites (Demodex spp.) in Australian Aborigines. Nutting WB, Green AC: Br J Dermatol. 1976 Mar;94(3):307-12.
1976
Demodex folliculorum in rosacea. Ayers S Jr, Mihan R, Marks R, Harcourt-Webster JN.	Demodecidosis and rosaceiform dermatitis Hojyo Tomoka MT, Dominguez Soto L: Med Cutan Ibero Lat Am. 1976;4(2):83-90.
1974
Demodex folliculorum and the histogenesis of granulomatous rosacea Grosshans EM, Kremer M, Maleville J. Hautarzt. 1974 Apr;25(4):166-77.
1970
The role of the acarid Demodex folliculorum in ophthalmology. English FP: Trans Aust Coll Ophthalmol. 1970;2:89-92.
1967
The role of demodex mites in the development of acne rosacea Kiselev OA: Vestn Dermatol Venerol. 1967 Oct;41(10):90-1.	Rosacea-like demodicidosis involving the eyelids. A case report. Ayres S, Mihan R: Arch Dermatol. 1967 Jan;95(1):63-6.
1966
Demodex folliculorum in patients with rosacea Baksht BP: Vestn Dermatol Venerol. 1966 Aug;40(8):15-22.	The pathogenic role of the mite Demodex and the clinical forms of demodicosis in man Akbulatova LKh: Vestn Dermatol Venerol. 1966 Dec;40(12):57-61.
1965
Demodex folliculorum and rosacea. A clinical and histological study. Robinson TW: Arch Dermatol. 1965 Nov;92(5):542-4.
1964
DEMODICOSIS IN MAN AKBULATOVA LKh: Vestn Dermatol Venerol. 1964 Mar;38:34-42.
1963
Rosacdea-Like Demodicidosis Samuel Ayres, Jr. Calif Med. 1963 June; 98(6): 328–330. Full Article
1961
Demodectic eruptions (demodicidosis) in the human. 30 years' experience with 2 commonly unrecognized entities: pityriasis folliculorum (Demodex) and acne rosacea (Demodex type). AYRES S Jr, AYRES S 3rd: Arch Dermatol. 1961 May;83:816-27.
1952
Rosacea: the role of demodex folliculorum. BRODIE RC: Aust J Dermatol. 1952 Apr;1(3):149-52.	Home
1886
Demodex Folliculorum in Diseased Conditions of the Human Face Geo. E. Fell Proceedings of the American Society of Microscopists Published by: Wiley-Blackwell on behalf of American Microscopical Society

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- Posting On Our Website
  
  By Guide · Posted January 11
  
  We do not allow guests to post (read why not?) So if you want the subscription fee waived why not volunteer? All that is required is you remain an active volunteer member posting at least one valid rosacea topic a month. Or simply subscribe to view all the rosacea research data we have accumulated in logical categories for your investigative insight into this horrific skin condition. Or view our guest forum to get an idea of what we have in our member area.
- Members Only
  
  By Guide · Posted December 27, 2024
  
  Our website is open to 5% of the rosacea free information for guests, however, only members can view all the rosacea data in our member areas of the website and POST. Because of the spammers and trolls we have securely quarantined our website not only from such nefarious individuals, but also especially for our registered subscribed private members who are seeking to deep dive into rosacea research and development. Our non profit grassroots patient advocacy organization is not sponsored by the skin industry (unlike other rosacea non profit organizations) and relies totally on whether members donate two dollars a month (or $1/month for three or more months if you subscribe) to keep this website and non profit organization going. If you care to donate and deep dive into our member forum which has 95% of our rosacea data, please subscribe. Spammers and trolls, please read our rules and go somewhere else. If you have rosacea you are a rosacean and have found the only grassroots patient advocacy non profit organization for rosacea sufferers • We need 100 Active Subscribers! This would keep our non profit organization going keeping the lights on. Running a non profit organization does indeed cost money and we rely on our members, not the skin industry.
- Subscription Fatigue?
  
  By Guide · Posted December 27, 2024
  
  We understand subscription fatigue. However, the internet has moved in this direction for years now. We have tried giving all our rosacea data for free and that simply doesn't work. We do have a few subscribers. Our goal is 100 subscribers to keep our non profit organization going. Can you be one of the 100? If you are sensitive about subscribing we are here is help explain any issue you may have. There are payment methods (usually debit or credit cards or bank transfers - read this Verifone article) and then there are online payment processors (Hostgator lists the top ten). We have chosen PayPal and Stripe. If you have issues with payment methods or payment processors, we suggest contacting us on how you would prefer to subscribe since we listen. Just fill out the contact form and explain your issue. We may be able to resolve your payment method or processor issue if you simply donate (mail us a check or money order) and we setup an active member account for you. Of course, we will need to have your email address you feel comfortable giving us which our privacy policy explains. We waive the subscription fee if you volunteer and post.
- Wanted 100 RRDi Subscribers
  
  By Guide · Posted June 9, 2024
  
  If we had 100 core members who subscribe a dollar a month we could keep the RRDi website and non profit organization going. Would you be one the core 100 members who subscribe a dollar a month?
- Final Appeal
  
  By Guide · Posted October 23, 2023
  
  Due to a generous donation we have opened up the website and most of the forums to guests who can now access free rosacea information. Subscribers (members) are allowed to post, guests can only view and read topics.
- Final Appeal
  
  By Guide · Posted July 3, 2023
  
  Why do you think not one of our members posts anymore? We do have a few active subscribers and posts are just not happening. Could one of our subscribers please give an opinion why posts are not happening in our guest or member forum? We opted for the subscription service for our non profit organization since the only other options are to provided totally free information with or without advertisements. We cannot afford to give free rosacea information as we did for years since donations are not coming in. We prefer not to have advertisements on our website as a source of income to keep our non profit organization going. The website is are largest expense. If we don't get enough subscribers or donations, we will be closing down this non profit for rosacea which is the only patient advocacy, grassroots non profit for rosacea that is legally a 501 c 3 non profit organization recognized by the IRS and the states of Alabama and Hawai'i. Please consider giving your thoughtful post.
- Rosacea Research Integrity
  
  By Guide · Posted May 22, 2023
  
  Most, if not all of the rosacea research being done is being funded by pharmaceutical companies or what is called the skin industry who have a vested interest in rosacea. The only non profit organizations for rosacea doing any rosacea research are the NRS and the AARS (possibly others) who clearly state that on their financial reports that they are heavily funded by pharmaceutical companies that offer rosacea prescription treatments or cosmetic companies offering non prescription treatments for rosacea. These non profits, as well as any rosacea research, or any rosacea research is funded by the skin industry. If you can find rosacea research funded by independent sponsors who have no affiliation with the skin industry, refer to this rosacea research and list it. The skin industry includes not only pharmaceutical companies that offer rosacea treatments but also the cosmetic companies that offer over the counter treatments for rosacea. Science is assumed to be researched in integrity, after all it is science. "Science is a systematic endeavor that builds and organizes knowledge in the form of testable explanations and predictions about the universe." [1] Research is the "creative and systematic work undertaken to increase the stock of knowledge". [2] Integrity is "the practice of being honest and showing a consistent and uncompromising adherence to strong moral and ethical principles and values." [3] While most science research is without question done in integrity, there is a small unknown percentage of dark science worth investigating that results in retractable published research papers due to fraud or other data misinformation. [4] The Rosacea Research & Development Institute [RRDi] was formed for the purpose of engaging in novel rosacea research that rosacea sufferers want done which is totally in contrast to the current rosacea research being done by the skin industry. For example, if 10K members of the RRDi each donated a dollar and decided what should be researched on rosacea, this non profit organization could actually engage in a different direction than how the skin industry does their research for their own agenda. While we appreciate any rosacea research being done, it would be incredible if enough rosaceans got together and actually funded their own rosacea research. Are you in? Join the RRDi. End Notes [1] Science, Wikipedia [2] Research, Wikipedia [3] Integrity, Wikipedia [4] The Truth Police, BBC
- RRDi Most Viewed FAQs List
  
  By Guide · Posted May 17, 2023
  
  Most Viewed FAQs List Guide • Please note: If you click and receive a message that 'you do not have permission to view" that means you need to Join the RRDi to View ($2 minimum subscription). Maybe you have some of the same questions and want to do some research. That is what the RRDi is all about. Below are the FAQs in the order of the most views as of February 2021: Is this rosacea? By far the most frequently asked question on the internet and on the RRDi website. Are there any Oracea Anecdotal Reports? Answer shows 81.6K views What about Mirvaso for rosacea? Answer shows 23.6K views What is demodectic rosacea? Answer shows 23.2K views What is the most viewed rosacea regimen on the RRDi website? Answer shows 19.7K views What about Isotretinoin for Rosacea? Answer shows 18.2K views Is Carbohydrate Essential For Human Survival? Answer shows 16.4K views What about sugar and rosacea? Answer shows 14.8K views What is Horse Paste for Rosacea? Answer shows 13.5K views What about researching diet/lifestyle and rosacea? Answer shows 13.4K views What does a dietician nutritionist have to say about rosacea? Answer shows 13.1K views What is Steroid Rosacea? Answer shows 12.1K views Why Form Another Non Profit Organization For Rosacea? Answer shows 11.4K views Do Rosaceans Suffer from Nutritional Deficiencies? 959 views in FAQs (The answer shows 10.8K views) What is Seborrheic Dermatitis? Answer shows 10.3K views What should a newbie rosacean learn about rosacea? Answer shows 9.6K views What Prescription and Non Prescription Flushing Avoidance Treatments are there? Answer shows 9.2K views What are the latest theories on the cause of rosacea? Answer shows 9.1K views What about Antibiotic Resistance, Bacterial Overgrowth, Side Effects? Answer shows 8.6K views Can Rosacea Go Into Remission? 7.5K views What rosacea trigger factors are there? Answer shows 7.5K views What about NSAIDs For Rosacea? Answer shows 7.4K views What is Oracea for rosacea? (New FAQ) Answer shows 7.2K views Does Yogurt Or Liver Trigger Rosacea? 3.1K views in FAQs (The article with the answer shows 7.2K views) Are there any Doxycycline Anecdotal Reports? Answer shows 7.1K views Is the Subtype Classification Of Rosacea Controversial? Answer shows 6.8K views What is Keratosis Pilaris Rubra Faceii (KPRF)? Answer shows 6.6K views Do You Have A Gut Feeling About Your Rosacea? Answer shows 6.5K views What full coverage make up foundation is for rosacea? Answer shows 6.5K views) How do you make a home made ivermectin cream? Answer shows 6.5K views) What about aspirin for rosacea? Answer shows 6.4K views) Is Carbohydrate A Rosacea Trigger? Answer shows 6.1K views What is Periorol Dermatitis? Answer shows 6K views What cosmetics are there for rosacea? Answers show 5.9K views What is the Innate Immune Response Disorder theory on rosacea? 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- Final Appeal
  
  By Guide · Posted April 27, 2023
  
  You are spot on with your comment. Just need someone like you to post some more and engage as a volunteer to implement your insight into all this. Change your membership status from inactive to active, which would be helpful.
- Final Appeal
  
  By Guide · Posted April 27, 2023
  
  Just an update on our financial situation. We were able to continue with Invision Community for our website, but this has depleted our donations to just $152.86 at the end of March. Not sure if we can continue unless we get 100 active subscribers which would keep us going. Donations in 2022 including subscriptions totaled $357.94. Expenses in 2022 amounted to $415.82. We also need some active subscribers who post as well as any volunteers who would like to serve on the board of directors. Could you post in this thread your thoughts on whether you think the RRDi should keep going or not? In order to post in this thread you will need to join the RRDi. If you want to volunteer to serve on the board of directors please post why and what you would do to make the RRDi an active non profit organization for rosacea sufferers. This final appeal has been going on now since June 2021 and we scrapped by with just barely covering our expenses to keep this non profit organization going. It is estimated that in 2023 we will need at least $1K in donations to keep going. Subscriptions help but we simply don't have enough subscribers to meet our expenses. Here is a list of the major expenses: Invision Community website forum Registering our domains Apple Developer account (to be able to use Sign in with Apple If you want all the details of our financial situation, click here.
- Active Members Posting
  
  By Guide · Posted November 15, 2022
  
  We do have a few active members now who have subscribed. We need about 100 members who subscribe to keep this website going which means keeping the RRDi going. Why we chose the subscription vs the freemium version of using our website is explained here. The active members still do not post which is not a requirement, the only requirement is to subscribe. Do you have any comment about any of this? You can post for a minimum of a two dollar subscription or if you just donate two dollars we can make you an active member for one month so you can post for a month. You simply donate through a multitude of services listed on our donation page and then CONTACT us explaining you made a minimum two dollar donation and we can activate your membership for a month (or longer if you donate more). If you don't like subscriptions, why not post and explain how we should be operating our website. Your comment could be published in this thread, ACTIVE MEMBERS POSTING, or anywhere you want to post on our website. Maybe you have some insight into why our ACTIVE members don't post at all? Read more.
- Active vs Inactive Members
  
  By Guide · Posted November 15, 2022
  
  Our website is now a subscription based members only website. 95% of our website requires a donation of a minimum of $2/month ($1/month for three or more months) so we can keep this website going. Guests can only view about 5% of our website. We no longer allow free membership unless you are on our volunteer staff. Please register and donate $12 for a twelve month subscription. Thanks for your donation! All members will have to purchase a subscription to be active again for at least one month or longer. The RRDi is now showing the active members vs the inactive members in member's profiles, since the non voting and the voting members haven't been engaging in any rosacea discussion for some time now. All you do is login to your account. Look at your account profile and it shows whether you are active or inactive. If you haven't posted in the last 30 days you are automatically placed in the inactive member group. Just post in any area open to guests and you automatically become active again and have access to the member area. Because of a relatively inactive forum 'engagement' with fellow rosaceans which is really core to our mission (view the RRDi Mission) we have attempted to encourage members to post. Members, you are our only hope! Post! Read our mission goal below: Goal #7: To allow volunteer members to have a platform to voice their concerns about rosacea and to contribute information about rosacea. Our goal is 10K members. Since the vast majority of our 1.5K members are not engaging in any discussion, we inform everyone whether a member is active or inactive. The definition of an active member is one who posts a minimum of at least one post a month. If after one month a member does not post the member status is inactive. This means that access will be visible to what a 'guest' user will be able to see. Ask not what rosaceans can do for you, but what can you do for rosaceans? Rosaceans Helping Rosaceans. INACTIVE MEMBER Steps to Become Active Simply login to your account and donate to one of our subscription plans. If you have forgotten your login credentials use our contact form and give us your email address you used to register your account and we will help you gain back your access. We will be happy to restore your active status once we have verified which subscription plan you donated for. (2) Another way to become active is donate two dollars. Contact us and explain you donated and want your inactive membership to be active again. We will need to know what email address you used to register your account and on what date you donated. (3) Become a volunteer and we waive the subscription fee. However, if you don't post in thirty days you become inactive. (4) Simply subscribe and you become active again. Members Posting How can inactive members post and become an active member again? Simple. Subscribe. Find an area you would like to post something, For example, any area still open to guests allows you to START A NEW TOPIC or QUOTE button. Just be sure you are logged into your RRDi member account. Post. If you are having issues logging into your RRDi member account use the contact form and explain your issue. Be sure to include your email address so we can resolve your login issue for you, if you want a resolution. New Members Subscribe to one of our subscription plans. We are trying to encourage engagement. Rosaceans helping Rosaceans.
- Erythromelalgia
  
  By Guide · Posted October 23, 2022
  
  image courtesy of the TEA non profit organization Erythromelagia (EM) is one possible diagnosis to differentiate from rosacea. What is it? According to the TEA web site: "Erythromelalgia is a rare and frequently devastating disorder that typically affects the skin of the feet or hands, or both, and causes visible redness, intense heat and burning pain. The term erythromelalgia describes the syndrome: erythros (redness), melos (extremity) and algia (pain). An alternate name is “erythermalgia” that emphasizes the thermos (heat) – an essential part of the syndrome. While usually affecting the lower extremities (legs and feet) and upper extremities (arms and hands) other body parts like faces or just ears or the nose may be involved. It usually affects both sides of the body, but can affect just one. The associated pain and burning sensations can be extremely severe. People with EM often make major adjustments to their lifestyles to avoid flare-ups. Even in mild-to-moderate cases, normal functioning such as walking, standing, working, socializing, exercising, and sleeping may be impaired." What is EM? "In 2004 erythromelalgia became the first human disorder in which it has been possible to associate an ion channel mutation with chronic neuropathic pain, when its link to the SCN9A gene was initially published in the Journal of Medical Genetics." Wikipedia EM can involve the face.[5] Diagnosis "Experts indicate that the intermittent nature of erythromelalgia in some cases may potentially lead to difficulties or delays in its diagnosis. Therefore, because symptoms may be reduced or absent until late in the day, for example, physicians may recommend that affected individuals take pictures of the involved regions during flaring and/or schedule clinical examinations late in the day if possible. In addition, during diagnostic assessment, physicians may possibly recommend exercise or immersion of an affected region in hot water for a certain period (e.g., approximately 10 to 30 minutes), to provoke a flare so a diagnosis may be made." [7] Treatmentt "In this informal survey, the use of high oral doses of magnesium produced good and sometimes dramatic results in 8 of 13 patients who had been unresponsive to many other treatments. These results suggest a possible role for high-dose oral magnesium in the treatment of EM and, perhaps, other vascular disorders." [1] "We tried oral mexiletine, a class Ib antiarrythmic agent, in view of its reported role in various chronic painful conditions. Dramatic improvement was observed with its use. Both patients improved after several weeks of use, and there were fewer soaking episodes. We observed no adverse effects with mexilitine therapy." [2] "Lumbar sympathetic block and TSB are useful methods for treatment of primary erythromelalgia." [3] "We conclude that thalamic stimulation was successful in this case of primary erythromelalgia." [4] Ketamine 0.5% and Amitriptyline 1% has been used as a treatment not only for EM but also for rosacea. "Even when the correct diagnosis of erythromelalgiais made, treatment is difficult, with no single therapy consistently effective." [5] "One clinical study has demonstrated the efficacy of IV lidocaine or oral mexilitine, though differences between the primary and secondary forms were not studied. Another trial has shown promise for misoprostol, while other have shown that gabapentin, venlafaxine and oral magnesium may also be effective, but no further testing was carried out as newer research superseded this combination. Strong anecdotal evidence from EM patients shows that a combination of drugs such as duloxetine and pregabalin is an effective way of reducing the stabbing pains and burning sensation symptoms of erythromelalgia in conjunction with the appropriate analgesia. In some cases, antihistamines may give some relief. Most people with erythromelalgia never go into remission and the symptoms are ever present at some level, whilst others get worse, or the EM is eventually a symptom of another disease such as systemic scleroderma." [6] Support EM Thread at RF EM Yahoo Group TEA We have a post on The Erythromelalgia Association [TEA] and give high marks to this non profit on how it spends its donations. If only the members of the RRDi would follow the example of TEA. We can only hope our members see the need to volunteer and make donations for rosacea as TEA members have done. If not, you can always have the other non profit rosacea organizations who are run by non rosaceans and follow how these other non profit organizations spend their donations. Reply to this Topic There is a reply to this topic button somewhere on the device you are reading this post. End Notes [1] Ann Pharmacother. 2002 Feb;36(2):255-60. High-dose oral magnesium treatment of chronic, intractable erythromelalgia. Cohen JS. [2] Ann Saudi Med. 2009 Jul-Aug;29(4):316-8. Experience with oral mexiletine in primary erythromelalgia in children. Iqbal J, Bhat MI, Charoo BA, Syed WA, Sheikh MA, Bhat IN. [3] Masui. 1989 Mar;38(3):388-93. [A case of primary erythromelalgia (erythermalgia) treated with neural blockade]. Takeda S, Tomaru T, Higuchi M. [4] Neurosurgery. 2005 Oct;57(4 Suppl):E404; discussion E404. Thalamic stimulation as a treatment for primary erythromelalgia: technical case report. Delye H, Lagae L, Vermylen J, Nuttin B. [5] Dermatol Online J. 2017 Apr 15;23(4): Erythromelalgia involving the face. Gilmore RR, Applebaum DS, Parsons JL, Hsu S [6] Erythromelalgia, Wikipedia [7] Erythromelalgia, NORD
- The Erythromelalgia Association
  
  By Guide · Posted October 23, 2022
  
  First off, if you don't know what Erythromelalgia is, it is listed as a rosacea mimic and should be ruled out in a differential diagnosis of rosacea. Someone kindly pointed out to me that The Erythromelalgia Association website is very user friendly and was impressed with the free Guide it offers on its website indicating to me that the RRDi needs to be more 'user friendly' and offering such a guide. So I decided to investigate and contacted TEA and asked for a copy of the latest Form 990 which was emailed to me and I have given a cursory investigation and am very impressed with how this 501 c 3 non profit organization spends its donations. Form 990 First off, the board of directors are all volunteers. TEA has 2000 members, is a grassroots patient advocacy 501 c 3 non profit organization, and more importantly in 2018 received over $50K in donations which were 100% public (no private donations). They spent $103K which breaks down to this: $75,000 for Grants and similar amounts paid (list in Schedule O) "Gift for research directly related to erythromelalgia" $13,398 for Professional fees and other payments to independent contractors $14,230 for Printing, publications, postage, and shipping (newsletter) $884 for other expenses Total Expenses $103,512 Download Form 990 EZ for 2018 and read it yourself: Form990Package.2018.pdf The RRDi Imitates the TEA So the TEA is definitely how a non profit organization should be run and I give the highest marks (4 stars) possible to TEA for how it is helping Erythromelalgia sufferers. We wish that the members of the RRDi would be interested in imitating the TEA and help make the RRDi just like how TEA is run. The RRDi is very similar in how the board of directors are volunteers. We just need volunteers to step up to plate like the TEA volunteers are doing. It would be good for members of the RRDi to ask questions about the above or comment on this post. Just like the RRDi whose board of directors all suffer from rosacea, TEA's board of directors have at least five who suffer from EM. In 2018 these volunteers donated $50K for EM research, and actually spent $75K on 'research directly related to erythromelalgia.' Isn't that the way a non profit organization should work? Compare that with the three other non profits for rosacea who spend most of the donations on private contractors owned by one of the board of directors or spend most of the donations on the members who are mostly dermatologists for meetings and conventions, and very little, around ten percent on rosacea research. The three other non profit organizations for rosacea are run by business professionals or dermatologists and not one of the board members suffer from rosacea which explains why and how these three other non profit organizations for rosacea spend the donations. Will rosaceans ever be united and support a non profit organization like TEA? Hope.
- What Community Support Means To You?
  
  By Guide · Posted October 10, 2022
  
  image courtesy of Free paper chain v.2 Stock Photo We obviously aren't sure of what community support means to you, but we are trying to figure that out by forming a NON PROFIT organization for rosacea patient advocacy and encouraging rosaceans to come together by joining the RRDi and taking steps to obtain and disseminate community support for those who are suffering from rosacea. What has the RRDi done in this regard? (1) Creating a website with pages of information, a public forum of rosacea topics, a community support category, a private forum, member driven rosacea blogs, galleries and clubs, as well as the tools discussed in the article, RRDi and the Medical Digital Revolution. (2) Journal of the RRDi and the ability for anyone (amateur or professional) to submit a paper on rosacea to be published. (3) A legal non profit organization to allow donations to be tax deductible. (4) Education grants and the ability to volunteer as a grant writer as a non profit organization grant writer (possibly being reimbursed for your effort). (5) A way for you to volunteer to help rosacea sufferers. (6) Attracting sponsors to support our non profit organization. (7) Instructions on how to use our forum. (8) Our charter allows members to be compensated for services if we have the funds to do this. So, what does community support mean to you? Please find the reply button and post what it means to you? We would love to understand what you think community support means to you or what you think a non profit for rosacea should be doing? You may think that posting in a community of rosacea sufferers your experience with rosacea and getting some feedback is what community support means to you? If so, this is the correct forum category to do that by finding the green reply button and post your concern.
- What is a grassroots rosacea patient advocacy non profit organization?
  
  By Guide · Posted October 10, 2022
  
  Grassroots Non Profit "Grassroots movements are associated with bottom-up, rather than top-down decision making, and are sometimes considered more natural or spontaneous than more traditional power structures." [1] Invision Community Over Tapatalk or any Social Media Rosacea Group We have chosen the Invision Community platform to interface between members (allowing also a private Tapatalk private forum). We prefer Invision over Tapatalk or any of the rosacea social media platforms which are obviously more popular, however, we do have accounts with the major social media platforms if you prefer that sort of engagement (scroll down to the subheading RRDi Social Media Accounts). If you are interested in volunteering at any of the social media RRDi accounts please join and volunteer (mention this when you register that you would like to volunteer to post in one of the RRDi social media accounts, i.e., Facebook, Instagram, Reddit, etc.). We need volunteers to moderate the RRDi social media accounts! Watch Less than one minute eight second trailer for the following longer 7 minutes 27 second grassroots video. If you really volunteer we waive the subscription fee for you. If you don't like the Invision platform, then join, engage by posting, and suggest how a rosacea non profit organization should be run. Volunteer. LONGER GRASSROOTS VIDEO Social Media Groups are Top Down Decision Making All the rosacea social media groups (except those run by the RRDi) are top-down decision making groups. Whoever runs the rosacea group, i.e., Facebook, Instagram, Reddit, Twitter, etc., make all the rules and you have no choice who runs the rosacea group. Whoever 'owns' the rosacea group makes all the decisions (rules) and are not grassroots decision making. There are few, if any, rosacea social media groups that are grassroots, letting the members make the decisions on how the social media group is run. Are you aware of any rosacea social media group that allows the members to remove who runs the group? The exception is our RRDi social media accounts which allows the members to choose who sits on the board of directors of the RRDi. The reason we are explaining this is that all the rosaceans have gone to social media. It you want to volunteer and manage or be a moderator of the RRDi Social Media accounts read this post and watch the video about volunteering. RRDi Grassroots Organization The RRDi is a grassroots organization founded by rosacea sufferers who are volunteers. The board of directors are all rosacea sufferers and their motive to volunteer is to help rosacea sufferers. Now compare that with who serves on the 'other' rosacea non profit organizations board of directors. [2] As far as we know there are only three other rosacea non profit organizations (ARSC, AARS, and NRS) and possibly one other, the AAD that might spend a tiny, tiny bit of money on rosacea research (guests see this list). All the board members of these 'other' non profits are NOT rosacea sufferers and are mostly comprised of businessmen and medical professionals (dermatologists) who have a vested interest in rosacea since they may receive a salary or benefit from money spent on private contractors used by the non profit organization, or receive compensation for attending conventions or meetings sponsored by the non profit organization. Follow the money where the non profit spends the most of its donations on, and if you take the time, you will discover it is very little on rosacea research. Why not watch the video on rosacea research to get you up to speed? You may wonder how non profits work? The members of the RRDi are mostly rosacea sufferers [rosaceans] and have a say who serves on the board of directors of the RRDi (the charter requires that the board members suffer from rosacea). The board of directors of the RRDi are sometimes chosen by the other board members but every five years the voting members of the RRDi may vote who may continue to serve on the board of directors. The members could replace the entire board of directors. This is bottom up decision making. The other rosacea non profit organizations are NOT grassroots and work from the top down. How do the other rosacea non profit organizations choose their board members? Answer: Top down decision making. What Motivates Board Members? Money is the motive on who makes the decisions on the spending of the donations with the 'other' top down rosacea non profits and if you follow the money you will find that the board of directors make sure they benefit in some monetary way. This is a top down direction since the other non profits are run by NON rosaceans and have their own personal agenda so that members of the board somehow benefit with some compensation with the spending of the donations. Money is usually at the root of any top down decision making process. Grassroots Motive So if you have similar grassroots philosophy why not join the RRDi and volunteer. If money is your motive, go to the 'other' rosacea non profits. [2] If volunteering by helping other rosaceans is your motive, you have found the only grassroots rosacea non profit organization on planet earth. [3] Only One Non Profit Organization Run by Rosaceans There is only one non profit organization for rosacea founded by rosacea sufferers, this one, the RRDi. All the others are founded by non rosaceans and all you do is see who is serving on the board of directors and note how the board members on each rosacea non profit benefit spend the donations (each board determines how the donations are spent). Follow the money (where does most of the donations of the non profit end up being spent on?). Donations Spent on What? If you could gather together say 10K rosaceans into one non profit organization for rosacea and fund a paper on a rosacea topic and receive from each member donating just one dollar, it would be a cinch to get a reputable medical clinician to investigate further into whatever topic is chosen and nail it to the wall with a double blind, placebo controlled, peer reviewed study. However, if you did get 10K rosaceans together to donate each $1 that would be a miracle in itself. What do you want rosacea research to be focused on? Alas, this dream, which began over sixteen years ago with the RRDi was formed, hasn't brought about such unity among rosacea sufferers. Instead, rosacea sufferers are splintered into private social media groups, i.e., Facebook, Instagram, Reddit, etc. and continue to parrot the non profit organizations for rosacea that are run by non rosacea sufferer board members with a top down decision making process. And rosaceans prefer and love it that way. Investigate all this yourself. Do these social media rosacea private groups engage in any rosacea research or do they accept donations? Grassroots Glimmer of Hope for Rosacea However, there is perhaps a glimmer of hope. The owner of the Rosacea Forum, rosaceagroup.org, formed a non profit organization [RRF] in 2004 and gathered together a group of rosacea sufferers and collected a total of $16K and donated all of this to the NRS. So, it can be done. However, the RRF non profit for rosacea dissolved. What happened? Read for yourself. This example of the RRF is a grassroots non profit that actually did something in sponsoring their own research, except they gave the $16K to a non profit that is run from the top down. A brief glimmer of grassroots hope for rosacea. The RRF was a flicker of light in a dark rosacea world who love rosacea social media groups rather than coming together into a grassroots patient advocacy non profit organization. Grassroots Non Profits Beacon of Light An example of an excellent grassroots non profit organization beacon of light is the The Erythromelalgia Association that actually sponsors their own research on erythromelalgia, so it can be done, and is done by this grassroots non profit organization. Do you know of any other grassroots non profits that are an example like this? Why not tell us about it by replying to this thread? Watch the video on this page about the EA organization. Rosacea Independent Sponsored Research Is a grassroots motive something to consider, or are you content with the current status quo rosacea research being done by a 'top down' decision making process used by the 'other non profits for rosacea' whose board members are not suffering from rosacea? Do you think the paltry rosacea research being sponsored by these 'top down' 'other' non profit organizations for rosacea is the best that can be done? Are you aware of what most rosacea research being conducted is sponsored by? Most rosacea research is being sponsored by the skin industry. [4] Do you think a grassroots non profit organization for rosacea could sponsor their own independent rosacea research? As Miracle Max points out, 'It would take a miracle." Watch the video on this topic on this page. Reply to this Topic There is a reply to this topic button somewhere on the device you are reading this post. End Notes [1] Grassroots, Wikipedia [2] Links, Other Non Profit Organizations [3] Volunteering What Community Support Means to You? [4] Rosacea Research in Perspective of Idiopathic Diseases (members only) Rosacea Research in Perspective of Funding (members only)
- Invision Community Platform
  
  By Guide · Posted September 5, 2022
  
  The RRDi has been using Invision Community forum platform since 2004. When we started in 2004 it was recommended by Warren Stuart who was the assistant director of the RRDi to use what was then called Invision Power Services (later the name was changed to Invision Community). It is a powerful platform with many add-on features and a significant number of developers adding plugins and additional features to the platform. Invision Community Clients Some very large corporations use the Invision Community platform. Do you recognize any of these companies below? Are the above companies successful using the Invision Community platform? Medical Clients Who Use Invision Community Platform While all the above companies have their social media accounts as well, these well known companies prefer to continue using the Invision Community Platform, and so does the RRDi prefer using this same platform because of its excellent features. We have invested our donations into using this platform. So if you find this platform not to your liking and prefer the social media style platform we recommend you VOLUNTEER to help us improve our website. Android & iOS Mobile Apps (Note: these apps have been deprecated and no longer in use) Historical Record However, with the advent of mobile devices and social media platforms the trend has focused on mobile apps using iOS and Android devices found in the Apple App Store and Google Play Store. The popularity of using these apps over using a browser to view a website has increased the use of social media platforms such as Reddit, Facebook, Instagram, Twitter, etc. The developers and owners of the Invision Community platform have announced beta versions of the Android app (iOS beta app has expired) for their platform which has been embedded for years using only a web browser, so we have announced with this post here asking for volunteers to download the beta versions and help test these new apps. Please consider volunteering and using these beta versions of the apps. Reply to this Topic There is a reply to this topic button somewhere on the device you are reading this post.
- Wanted 100 RRDi Subscribers
  
  By Guide · Posted August 20, 2022
  
  If you think the RRDi is heading in the correct direction but needs some improvement, why not step up the plate and volunteer. Would you like to volunteer to sit on the board of directors and make decisions to improve the RRDi? The first step it to subscribe, then post your suggestions on our website, qualify to sit on the board of directors and if the board thinks you would be an improvement to our non profit organization, you may actually be appointed to serve and volunteer on the RRDi board of directors and improve our non profit organization to go in the direction you think would be better.
- Call For Papers - Journal of the RRDi. Volume 2, No. 1
  
  By Guide · Posted August 7, 2022
  
  Note: This is for the Journal of RRDi, Volume 2, No. 1. (Review the Journal of the RRDi, Volume 1, No. 1) We welcome articles on any aspect of rosacea for the second edition of the RRDi Journal. Health professionals and researchers are invited to submit research articles, clinical trial reports, case studies, review papers and opinion pieces, which will be subject to peer review. We also welcome personal statements from rosacea patients, news bulletins, and other relevant short pieces for inclusion in the journal. Please direct all submissions (requires subscription) to: Citations should be numbered in superscript in the text, and references listed numerically. Figures should be greyscale in 300 dpi tiff format. For colour figures, please inquire. Deadline for the next edition indefinite.
- Invision Community for Over Eighteen Years!
  
  By Guide · Posted August 6, 2022
  
  The RRDi has been using Invision Community [IC] forum platform for over 18 years. When we started in 2004 it was recommended by Warren Stuart who was the assistant director of the RRDi, along with Steve Andreessen who also served on the board of directors and was instrumental in using what was then called Invision Power Services (later the name was changed to Invision Community [IC]) after going through different website stages. The result was the entire board of directors at that time came to the consensus to use IC for our website. It is a powerful platform with many add-on features and a significant number of developers adding plugins and additional features to the platform. Invision Community Clients Some very large corporations use the Invision Community platform. Do you recognize any of these companies below? Are the above companies successful using the Invision Community platform? Medical Clients Who Use Invision Community Platform While all the above companies have their social media accounts as well, all these companies prefer to continue using the Invision Community Platform, and so does the RRDi prefer using the Invision Community platform because of its excellent features. We have invested a significant percentage of our donations into using this platform. So if you find this platform not to your liking and prefer the social media style platform we recommend you VOLUNTEER to help us improve our website. To switch to another platform is a significant change that would be cost prohibitive unless some donor gives us a million dollars and then we could do just that. If that is something you could volunteer to help accomplish you either have to convince the board of directors or volunteer to be a board member and help convince your fellow board members your recommendation. Android & iOS Mobile Apps However, with the advent of mobile devices and social media platforms the trend has focused on mobile apps using iOS and Android devices found in the Apple App Store and Google Play Store. The popularity of using these apps over using a browser to view a website has increased the use of social media platforms such as Reddit, Facebook, Instagram, Twitter, etc. The developers and owners of the Invision Community platform have announced beta versions of the Android app (iOS beta app has expired) for their platform which has been embedded for years using only a web browser, so we have announced with this post here asking for volunteers to download the beta versions and help test these new apps. Please consider volunteering and using these beta versions of the apps. Reply to this Topic There is a reply to this topic button somewhere on the device you are reading this post.
- Volunteer Beta Developers Needed
  
  By Guide · Posted August 4, 2022
  
  Volunteer Beta Developers Needed! (Android & iOS) Wish List If you are a code developer and want to volunteer for our non profit organization for rosacea to develop a mobile app for either Android or iOS please contact us. Note: We have applied our community forum with Invision Community to list us under EDUCATION and we were approved on the list. There WAS a mobile app available in beta version for Android (for Apple devices using iOS you need to scroll further down). It was on the Google Play store. It is the Invision COMMUNITIES app (not the Invision Community app which is for admins ONLY). Yes this is confusing, since it was in development for both the iOS and Android apps and are no longer in development. Here is a screen shot that was in the Google Play Store which is the second one called Invision COMMUNITIES: We listed our community, the RRDi, when the above 'Communities' apps was available in the Google Play Store and you may be able to find our listing in the category EDUCATION. Please let us know your experience with this app on your Android mobile device? Just find the reply to this topic button and let us know, please. If you are a code writer developer and would like to volunteer to make a mobile app for our RRDi Invision Community please join the RRDi and explain in your profile your volunteer spirit. Please note: The iOS beta test has expired. We are not aware when Invision Community will renew the iOS beta test again. We will announce this here whenever the beta test is available again. The Android version development has been put on hold by the Invision Community developer team. If this app ever is developed further we will announce it on this post. iOS (Apple) Version The iOS version is no longer in beta testing. When available again, You can volunteer and be a beta tester if you follow the two steps: Once you have downloaded the app, at the bottom click on DISCOVER, you will find these categories to choose from and then select EDUCATION and scroll till you find RRDi Member Forum: Reply to this Topic There is a reply to this topic button somewhere on the device you are reading this post.
- Cosmetics for Rosacea
  
  By Guide · Posted August 1, 2022
  
  "This study shows that rosacea patients show a strikingly high prevalence of contact sensitization to cosmetic allergens. We recommend the additional use of cosmetic series for patch testing, and the careful use of cosmetics in rosacea patients if cosmetic contact sensitivity is suspected." Contact sensitization to cosmetic series of allergens in patients with rosacea: A prospective controlled study. J Cosmet Dermatol. 2019 May 20
- Rosacea - More Women or Men?
  
  By Guide · Posted August 1, 2022
  
  More Women than Men Have Rosacea? In a significant number of medical papers on rosacea, the general consensus has been that more women have rosacea than men, particularly in certain variants of rosacea. Typical examples of medical authorities who report that more women than men have rosacea are shown below. We also have investigated and report what clinical papers mention which sex has what issue (rosacea variant or phenotype) more than the other. For more information (requires subscription)
- Join Arbonne
  
  By Guide · Posted July 28, 2022
  
  As the treasurer of the RRDi, I have joined arbonne and have setup a consultant account which if RRDi members join under this account all the proceeds made getting our members to join Arbonne and use their skin products and protein drinks for rosacea, or any of their products will help keep our non profit organization going. You could say arbonne is one of our affiliate sponsors. If you join and purchase a welcome kit ($49) or a preferred client ($29) purchase any of the arbonne products or services the RRDi benefits. arbonne is a member of the DSA CODE OF ETHICS. As soon as we have learned you have joined, we will waive the subscription fees and make you an active member. Contact us if you join arbonne through our independent consultant link which we will confirm. We will then send you your login account as an active member of the RRDi. Welcome Kit By the way, when you join arbonne and get your welcome kit ($49) you get discount prices and if you get others to join arbonne through your account you benefit and so does the RRDi. This is a direct selling program according to the DSA CODE OF ETHICS. Find the reply to this topic button to answer any concerns or questions about arbonne or joining arbonne. Thanks. The RRDi joined in June 2022 and we recommend you consider joining arbonne under our Independent Consultant recommendation. Preferred Client If you just want to be a preferred client ($29) which also helps the RRDi. Then when you purchase any arbonne products you get a discount. My Regimen What works for me is the following which improves my rosacea and cleanses my body, lost five pounds of weight in one month and I am now on my second month: FeelFit Pea Protein Shake Simply1 - Vanilla Flavor 30 servings SKU 2060 US BeWell Superfood Greens 30 servings SKU 6232 US CleanTox Herbal Detox Tea 20 tea bags SKU 2076 US Take the Protein shake two scoops with any liquid you desire along with one scoop of the BeWell Superfood Greens in the am and drink one tea bag of the Cleantox before bed. You can eat as much food as you want, I found I wasn't as hungry with this regimen so I ate less. I try to walk 2.6 miles each day and do thirty pull ups. My rosacea has improved. I will be showing photos next month in my blog. arbonne is quality products, natural, and has many skin products you may consider. I have lost five pounds in thirty days with this cleanse program and my rosacea is controlled. Post in this thread if you join and your results. arbonne has many other products to choose from for your skin and nutrition. All are plant based and natural.
- Is Flushing Rosacea?
  
  By Guide · Posted July 20, 2022
  
  Telangiectasia macularis eruptiva perstans (TMEP), a rare condition, should be ruled out by your dermatologist. Read More.
- Rhealba®
  
  By Guide · Posted July 9, 2022
  
  Rhealba® Oat, the DERMAtological OAT, "is found at the heart of A-DERMA, an exceptional active ingredient that rebalances, soothes and repairs fragile skin." [1] There are clinical papers published in prestigious dermatological journals and have investigated Rhealba® Oat. [2] These clinical papers investigating this 'exceptional active ingredient' are sponsored by the Pierre Fabre group according to PubMed. [3] For example, the following paper in investigating this subject concluded, "Overall, the study product was very well tolerated and may be beneficial for subjects with rosacea as an adjunct to superficial dermatological procedures or oral/topical therapies, in line with the current recommendations for rosacea management." [4] These types of clinical papers are typical of skin industry supported rosacea research that is going on which rosacea non profit organizations like the National Rosacea Society, the American Acne and Rosacea Society, and the Acne and Rosacea Society of Canada support. [5] The RRDi is the lone watchdog (or the Snoopes) of skin industry sponsored clinical papers published in such prestigious dermatological journals that puts pressure on the medical community, particularly dermatologists, to treat rosacea. The skin industry does not support the RRDi because we do not sponsor any research since we receive no donations from the skin industry and we have barely enough donations to keep our website going till the end of December 2022. [6] One of the mission statements the RRDi has published for the public is the following: Goal # 4: To allow rosacea sufferers to guide where and how the money is spent on rosacea research and be the first non profit organization to allow rosaceans to be members of the corporation. Until June 7, 2004, the date of incorporation, there had been no other non profit organization that allowed input from rosacea sufferers. [7] If you suffer from rosacea, do you want some novel rosacea research that is independently sponsored by rosaceans or do you want to continue to support skin industry sponsored rosacea research that puts positive pressure on dermatologists who read these prestigious dermatological journals? By replying to this post you could show you want change to the current rosacea research being sponsored by the skin industry. Our goal is to reach 10,000 subscribers to the RRDi who donate $1/month, so we as the only 501 c 3 non profit patient advocacy group can fulfill the following mission statement: Goal # 5: To attain a level such that the RRDi can directly impact medical articles published on the subject, information disseminated to physicians and rosacea sufferers and apply positive pressure on the medical community. [7] Help us achieve our goals. Subscribe End Notes [1] Rhealba® Oat, A-Derma, Pierre Fabre group [2] PubMed Central [3] Pierre Fabre group [4] PubMed RSS Feed - -A cream containing the sap of oat plantlets and mandarin extract soothes the symptoms of rosacea and improves the quality of life of patients [5] Links [6] The RRDi received a total of $6000 in the past twenty years from one company, Galderma, for three education grants which we have publicly disclosed, but Galderma refuses to donate or sponsor the RRDi since we spent that money. [7] Mission Statement
- Improved Member Registration with Subscriptions
  
  By Guide · Posted July 6, 2022
  
  We used to allow guests to post feedback without registering an account in this forum but now require guests to subscribe to post. Scroll below about Active vs Inactive members. Voting Member The RRDi has now over 1000 charter members who have graciously joined providing contact information so that they can vote in our decision making of who serves on the board of directors every five years. If you want voting member status we require more than just an email address to vote. We understand that many of you do not want to provide such information so that is why we have setup the non voting member group discussed below. Non Voting Member Who Registered an Account We have in the past opened up our membership to anyone who provided an email address without giving us all the contact information. These non voting members who do not provide full contact information (only providing an email address) are not be able to vote for who serves on the board of directors, l had viewing and posting privileges in the forums with access to the member areas of our website. We hoped to increase our membership since many were reluctant to join if they have to provide contact information. This way, only those who really want to vote will graciously provide such information if they want to, or, opt to be a member and be totally anonymous, with only providing an email address. By only providing an email address we are also allowing those to use their Apple or Facebook accounts to register an account with our forum, as well as Microsoft, and Google accounts. If you have any issues with registering an account, please use our support form or contact form and describe the issue so we can improve our registration process to make it as easy and user friendly as possible. By using one of the following sign in accounts below (Apple, Facebook, Microsoft, Google) it should be easy peasy (if not let us know). We are still working with Twitter and Linked in about this but you can use Apple, Facebook, Microsoft or Google login credentials with the RRDi and it should be the easiest registration. Changing to a VOTING MEMBER If you join with just an email address you are a member, however you are NOT a VOTING MEMBER. If you are a non voting member and want to become a voting member read the paragraph above on Voting Member, that explains providing contact information allows you to vote. If you do indeed provide us with your contact information, i.e., first and last name, mailing address, phone, alternate email address in your PROFILE, and want to be considered a VOTING MEMBER then contact us and explain so we can change your account setting to a voting member. The easy way is simply to subscribe. Changing to an ACTIVE MEMBER If you logged into your account and are not able to have access to parts of our website, you have become an INACTIVE MEMBER. All that is required now is to SUBSCRIBE.
- Reviewing Items in the RRDi Affiliate Store
  
  By Guide · Posted July 4, 2022
  
  We are pleased to announce that members can now post REVIEWS in our affiliate store. Here is a screen shot of a review: In the screen shot above the review can be viewed if you click on the tab PRODUCT REVIEWS and MEMBERS can RESPOND TO THIS REVIEW. So if you find an item in our store and you have used the item and want to review it all you do is, (1) Find the item in the store, (2) login with your RRDi account (only requires registering with an email address), (3) Scroll down to the product information tab and next to this tab find the PRODUCT REVIEWS tab and click on it. (4} Find the WRITE A REVIEW black button and click on it (5) Write your review in the comment box
- Anonymity, Transparency and Posting
  
  By Guide · Posted July 3, 2022
  
  You may have some thoughts on the subjects of anonymity, transparency and posting on the internet. This post is our explanation of how we understand these three subjects and if you have any thoughts on this, you are welcome to hit the REPLY TO THIS TOPIC button and add your thoughts (requires subscription to post). If you receive an error message for any link on our website, it probably is because you are a guest and are not allowed to enter the member areas of our website. (requires subscription to view or post) RRDi The RRDi is transparent when it comes to how we spend our donations with our financial page. We have the Guidestar Seal of Platinum Transparancy. Privacy Policy Our privacy policy is second to none and we challenge anyone to find any loop holes or tell us how we can improve it. Private Member Forum We have implemented measures so that only members can view the member forum using the Invision Community platform which is the most secure and private rosacea forum on the internet. If you use Sign in with Apple, you can hide your email address totally, the ultimate in privacy registration. However, Windows, Linux, and Android users are welcome and can basically have the same anonymity by reading how to do this and taking extra steps recommended to have the same security and privacy in the most private and secure rosacea forum group on planet earth. Guests Guests used to able to create a cryptic display name and post in our Guest Forum on our website for free in areas open to guests without registering an email address until the end of June 2022. Effective since then guests are not allowed to post anymore without donating for a subscribtion and gain total access to our website. Guests can only view a small percentage of our free information on rosacea. Members who subscribe gain full access. Voting Members Voting members are required to give us first and last name, address, phone number and an alternate email address. If you are concerned about your privacy when joining the RRDi as a voting member, you can rest assured our privacy policy is solid and we would never disclose your contact information with anyone without your permission. Anonymity vs Transparency Where do you stand on this issue? If you haven't given this much thought you may want to read the article published on Mashable, Transparency vs. Anonymity: Where Do You Stand? [INFOGRAPHIC & POLL]. Of course, everyone wants both anonymity and transparency, however, as the Mashable article points out usually you favor one over the other, so there is a balance to consider. The RRDi tries to balance anonymity and transparency, so, depending on where you stand on this issue you have choices. Transparency One of the core principles of the RRDi is transparency, which can be seen reading our charter. The RRDi has received the Platinum seal rating from Guidestar on Transparency. Not all non profit organizations for rosacea have this seal. For example, our charter states, "Sources of funding to the institute will be publicized including the name of the donor unless the donor requests anonymity. Expenses of the institute will be publicized down to the last cent, showing where all the spending went and for what purpose." Rule Number Two states, "To be a legal corporate member a name, mailing address, two email addresses, and a statement of whether the member is a rosacean or not a rosacean is required." While the RRDi doesn't have the volunteer editorial staff to accomplish what Snopes offers, we are doing our best to imitate what Snopes does (Snopes' staff motive is they are paid which we wish we could pay our editorial staff as much money as Snopes offers their staff, but alas, we are all volunteers and simply don't have the funds to pay our staff). Over 1000 members agreed to these two rules when joining by registration which allows the individual as a legal non profit corporate voting member of the RRDi. Anonymity Many are under the impression when joining the RRDi as a voting member that giving out their contact information is an intrusion on their privacy (which is far from the truth since our privacy policy is solid). Also, it appears that many rosaceans have moved on to social media such as Facebook, Twitter, Instagram, Reddit, etc., which seems to be less anonymous (frequently blog posters display their real name), and favors more transparency, so who can figure out why the yahoo groups and forum style posting (with cryptic [usually humorous] display names) are less used now in favor of transparent social media? Are you aware that when you join a private social media rosacea group and post, any other member of the group can now view your profile? How private is that? That depends on what your profile shows, now doesn't it? Members of the RRDi can only view what you ALLOW to be viewed in your public profile. Only the RRDi staff can view your email address. The public never sees your email address in your profile, unless you somehow allow this. Usually most rosaceans want anonymity (read below how you can hide your true identity when joining the RRDi in the subheading, CHANGE YOUR PROFILE, and learn how to Change Your Display Name to a cryptic display name), but at the same time want transparency with the non profit organization they join while totally remaining anonymous as a member. There is a fine balance between anonymity and transparency and the RRDi allows you to have both if you join as a member and has given this a great deal of thought. We hope you agree this is how a non profit organization with members should have choices regarding their anonymity as well as having transparency when it comes to the organization they join. Posting How You Can Remain Anonymous while Posting in the RRDi Member Forum? Follow these directions. As mentioned above about Sign in with Apple, you can remain totally anonymous and completely private using your Apple ID when registering and hide behind a cryptic display name and also hide your email address totally. Change Your Profile You can completely remain anonymous when you post in our member forum. You can change your display name to something cryptic or clever. Only the staff at the RRDi has your membership information. The RRDi will NEVER display or disclose to anyone your profile and contact information without your permission. Our Privacy Policy is solid. And if you join only with your email address, the staff has no idea who you are. Your email address is your only ID, so, how much more anonymous can you get? Change Your Display Name The steps to change your display name are the following: 1. Login to your member account by looking for Existing User? Sign in (Top Right Corner of your screen) (if you are having issues logging in please contact us, giving your first and last name, your email address used when registering your account as a voting member and we will assist you in being able to login to your member account. If you registered only with your email address just contact us with your email address and we will be happy to assist ) 2. Once logged in you will see your display name in the top right corner. Click on the toggle and select ACCOUNT SETTINGS. In the left column of the account settings page look for DISPLAY NAME. In the column to the right of display name type in the field box under CHANGE DISPLAY NAME (to the left of the field box it says NEW DISPLAY NAME) change to whatever new display name you want to remain anonymous. 3. Click the SAVE button. Voila! You are now anonymous. No one knows who you are. Hide Your Online Status You may also want to hide your online status. Sign in with Apple The ultimate privacy is using Sign in with Apple. Private Tapatalk Member Forum We have now sponsored a private Rosaceans Tapatalk member forum which you can join for those who prefer Tapatalk. For more information. Guests NOT Allowed to Post (requires subscription to post) We in the past have allowed guests to post here without registering. Effective at the end of June 2022 we have not allowed guests this privilege anymore and guests must subscribe to post which makes a guest a member. Reply to this Topic There is a reply to this topic button somewhere on the device you are reading this post. (requires subscription to post) Mahalo We also now have a mobile app for your device (currently this project has been paused). Why not join now since you have a better understanding of our privacy policy? If you still have questions or concerned, please read the last paragraph about REPLY TO THIS TOPIC.
- Volunteering for the RRDi
  
  By Guide · Posted July 2, 2022
  
  Volunteer Benefits Volunteering has benefits not only in helping others but for the volunteer. Watch the three videos on this page! An Active Member is one who has posted within the last thirty days and has full access to the RRDi website. An Inactive Member is one who has not posted in the last thirty days and is therefore restricted to guest privileges of access to the site until such time as the member becomes active again with either a subscription or as an active volunteer. Only subscribers or active members may post. Any SUBSCRIBED member or active volunteer may post within thirty days. Volunteer Active Members may waive the subscription fee. If you want to have your membership as a volunteer active member and have the subscription fee waived use the fill out this form. Volunteering Reduction From 1998 through 2005 there was an incredible volunteer spirit that drove the formation of the RRDi. Since 2005 the force that motivated so many to bring together rosacea sufferers into a grassroots non profit organization has dwindled to just a flickering wick. Why is it that rosaceans (rosacea sufferers) don't volunteer anymore? Rosaceans have moved on to rosacea social media platforms. Andy Seth, an entrepreneur, has a blog post, The Way We Think About Volunteering Is Dead Wrong, states, "research shows that the happiest volunteers are those who give 2 hours per week. That’s it. 2 hours." Two Hours a Week If the RRDi could get any rosacean to volunteer 2 hours a weeks, that would be greatly appreciated. Most rosaceans want free information and visit our website but do not post. If you post on our website at least one post a month we waive the subscription fee. If you want to show your support to the RRDi and do not want to post, you can simply subscribe and boost our membership. Are there volunteers who actually volunteer two hours a week? There must be, otherwise the study is bogus. If we could get any RRDi member to just post their thought or experience with rosacea for 15 minutes a week that would be incredible. Volunteer to Post for 15 minutes We have dotted the RRDi forum with requests to RRDi members to simply post anything and over 1600 plus members as of this date are simply miniscule when it comes to posting. Getting our members to post is a challenge. If you have some insight how to get our members to post, we are all ears. You can reply to this post and comment to your heart's content. Of course, that is the issue, the RRDi members' hearts are not content to post. Why is that? Feedback suggests that the Invision Community platform which we have been using since 2004 is not easy to use and rosaceans prefer social media platforms. Our answer to this is simple, watch this short video asking for volunteers to post on the RRDi social media accounts. Win a Free Jar of the ZZ cream Demodex Solutions, one of our sponsors, has graciously allowed us to award a 120 month subscriber a free jar fo the ZZ cream while supplies last. You want a free jar? Follow these instructions. Live Long and Prosper The research Mr. Seth referred to may have been the study commented on by the American Psychological Association that reports, "Volunteers lived longer than people who didn't volunteer if they reported altruistic values or a desire for social connections as the main reasons for wanting to volunteer, according to the study." This same study, Andrea Fuhrel-Forbis, the co-author concludes: "It is reasonable for people to volunteer in part because of benefits to the self; however, our research implies that should these benefits to the self become the main motive for volunteering, they may not see those benefits." Helper's High One of the benefits is what is called 'helper's high' which has been scientifically confirmed. [1] Of course, if a RRDi member who has rosacea helps another rosacea sufferer that would be the basis for receiving the 'helper's high.' Rosaceans helping rosaceans. In trying to understand why volunteering amongst rosaceans has continued on this downward course, and googling this for an answer, The Guardian has an article about this subject and concluded, "But while the benefits of volunteering are clear, there is worrying evidence that the people who could benefit most from giving their time are precisely those least likely to be involved." The Current State of Volunteering Volunteer Match (which the RRDi has joined) has an article on this subject and states that the Bureau of Labor Statistics Report shows "that volunteer rates have been steadily declining for over a decade," [2] and comments, "There’s an endless supply of reasons that could explain why volunteer rates are falling. Last year, upon seeing the results, VolunteerMatch President Greg Baldwin argued that volunteer rates are falling because we as a nation don’t invest enough resources in the nonprofit sector. Without resources, nonprofits simply don’t have the capacity to effectively engage volunteers. Someone in the comments of that post argued that the falling rates can be attributed to the fact that more people are overworked with less time on their hands. Others say people are simply lazier than they used to be. I personally think it could be attributed to a shifting trend away from community involvement, due to the emergence of online communities, young people moving more often, and other factors." [3] In the above article mentioned [3] there are a number of comments and I think Ron from Florida's [April 16, 2016] comment is insightful: "When I was younger, volunteering and giving back was part of life. It was something that we did and didn’t think twice about it. I don’t see that same philosophy these days. It’s to the point that schools here require some level of community service to complete your graduation requirements." Stem Learning reports, "It is suggested that stagnating volunteer numbers and in some areas, reducing numbers of volunteers, along with cuts made by local authorities falling disproportionately upon the volunteering sector funding, suggests a potential fall in people volunteering per se. Furthermore the 2015/16 Community Life survey, highlighted 14.2 million people formally volunteered at least once a month in 2014/15 and although rates are mostly unchanged, it appears irregular volunteering appear to show a 5% drop!" Carey Nieuwhof lists 6 REASONS YOU'RE LOSING HIGH CAPACITY VOLUNTEERS. I don't see how those six reasons are related to the RRDi, but I am all ears to anyone who can point out to me what the RRDi isn't doing or doing with regard to Carey's six reasons that we could improve. Our page on volunteering covers most of what Carey is discussing. Without a doubt this explains the situation. Any thoughts on this subject would be much appreciated. Online Volunteering Dr. Natalie Hruska says that the studies indicating a drop in volunteering over the past decade "do not factor in kinds of volunteerism today, like virtual volunteering" and writes there is "a necessity to redefine what volunteerism is and how we understand it today." [4] Volunteering Statistics "About 25 percent of Americans volunteered in 2015, according to federal data, compared to a global average of just 10 percent." [5] "The volunteering rate has declined slightly from 27 percent in 2002 despite the efforts of many American leaders..." [5] A Long and Winding Road Volunteering for the RRDi to help fellow rosaceans is a long and winding road that leads to your door, which is without a doubt, the most difficult door to open. Can you open that door and join us to find the cure for rosacea? Volunteering for a Non Profit Organization You may want to read up on these subjects: Social Media Posters or Moderators Needed Reply to this Topic There is a reply to this topic button somewhere on the device you are reading this post. End Notes [1] Helper's High: The Benefits (and Risks) of Altruism, Psychology Today [2] According to the 2015 report, 24.9% of the U.S. population over the age of 16 volunteered at least once in the past year. In 2011, this percentage was 26.8%, and in 2005 it was 28.8%. "The volunteer rate declined by 0.4 percentage point to 24.9 percent for the year ending in September 2015..." VOLUNTEERING IN THE UNITED STATES — 2015, U.S. Bureau of Labor Statistics, Thursday, February 25, 2016 [3] The U.S. Volunteer Rate Is Still Dropping. Why?, Tess Srebro | March 25, 2016 | Industry Research | Engaging Volunteers, Volunteer Match [4] Dr. Natalie Hruska, April 12, 2016 POST to the article in end note 2. Dr. Hruska had a YouTube video that discussed online volunteering but it is no longer available. Dr. Hruska has written a book on this subject, Managing the First Global Technology: Reflections on a relevant application of the Internet, in Kindle or Paperback. [5] How to get more Americans to volunteer, The Conversation Civil society organization workforce as a share of the economically active population, by country, 1995-2000, John Hopkins Center for Civil Society Studies
- Rosacea Episodes Season 2 Episode 3 Trailer
  
  By Guide · Posted July 1, 2022
  
  Watch Full Twenty Minute Episode
- Rosacea Episodes Season 2 Episode 2 Trailer
  
  By Guide · Posted June 11, 2022
  
  Watch the full version • Dr. Tara
- Wanted 100 RRDi Subscribers
  
  By Guide · Posted June 9, 2022
  
  100 Active Subscribers Needed to keep the RRDi going. Can you. be one of the 100? If you can donate two dollars a month (minimum is one dollar if your subscribe for three or more months) by subscribing to the RRDi for one year as an active member this should be enough to keep the RRDi going. Please seriously consider this. Thanks. If you can only donate for one month we request $2 since that helps with the PayPal or Stripe fee we incur when you join. Scroll through the list of posts in just one category form, Diagnosis, to see what the members can view.
- Choice of Vehicle in Rosacea Treatment
  
  By Guide · Posted June 5, 2022
  
  A report indicates the following about the 'choice of vehicle' in treating rosacea: "The choice of vehicle is an important consideration in the treatment of acne and rosacea." [1] For example, some report irritation using the Cetaphil 'Basis for Vehicle' using Soolantra. [2] Some treatment vehicles cause not only irritability but also dryness or other issues that are termed 'adverse events' (AEs). This same report puts it succinctly: "Although topical therapy should avoid AEs associated with systemic medication administration, the efficacy, safety, and tolerability of topical therapy is influenced by percutaneous penetration, retention at the target for a sufficient time to obtain the desired therapeutic effect, and avoidance of adverse local reactions that may affect adherence. It has been noted that the drug product is only one of multiple components that determine the efficacy and tolerability of topically applied therapies such that the performance of a topical medication is also influenced by characteristics of the vehicle formulation that may influence penetration, permeation, irritancy, and patient preference." [1] The report "summarizes drug delivery systems that have been developed with the aim of improving outcomes for patients being treated for either acne or rosacea." [1] "In liquid and gel formulations, the bulk excipient that serves as a medium for conveying the active ingredient is usually called the vehicle. Petrolatum, dimethyl sulfoxide and mineral oil are common vehicles." [3] End Notes [1] J Clin Aesthet Dermatol. 2022 May; 15(5): 36–40. Enhancing Topical Pharmacotherapy for Acne and Rosacea: Vehicle Choices and Outcomes Lawrence J. Green, MD and Edward Lain, MD [2] Soolantra Mechanism of Action & Basis for the Vehicle (requires subscription) [3] Excipient, Vehicles - Wikipedia
- Feedback on Subscriptions vs Advertisements
  
  By Guide · Posted June 2, 2022
  
  The RRDi used to have a sister site relationship with the Rosacea Forum (RF), since one of our board members founded RF. David Pascoe, owner of Rosacea Support(RS), took over RF a while back. For many, many years, the RRDi and RF never had any advertisements like RS has done for years. Recently, in the past month or so, David has chosen to put advertisements on RF to help pay the bills since hosting a forum like RF is an expensive endeavor. As David points out in his reasons why he did this in this thread, the RRDi is in a similar situation and need donations to keep paying the bills which as everyone has noticed their bills are inflating and price increases on hosting are also feeling the crunch. The Invision Community platform which we have chosen to use since 2006 increased their hosting price this year by over 500%. The RRDi has chosen to resolve this with switching to a subscription based website. To access 95% of our rosacea data will require a minimum of at least $2 for one month's access or $3 for three months access. We hope this is the solution. The other option is to do as David has done with RF and put advertisements all over the website while browsing for rosacea data in the hope that these advertisements generate enough revenue to keep the site going. A third option is to have some rich donor sponsor the RRDi to keep the lights on. We still allow free posting here in our guest forum, so you can post a question about rosacea or make a comment about rosacea in our guest forum without registering and can hide behind a cryptic display name and no one ever knows who you are. Or you can donate a small donation either $2 or $3 and gain access to a wealth of rosacea data as a subscribed member. The RRDi would like some feedback in our decision to switch to a subscription based member forum. Why not find the REPLY TO THE TOPIC button and hide yourself behind a cryptic display name of your choice and tell us what you think?
- Finding Rosacea Topics on a Mobile Device
  
  By Guide · Posted May 31, 2022
  
  There are simply two sub forums available to guests: Guests or Feedback Subscribed Members To view the vast amount of rosacea topics you will need to subscribe. You may be having issues trying to navigate our website using a mobile device so here is a helpful tutorial to find Rosacea Topics. Watch Video. You will have to register as a member to view some of the content below. Step one - Finding the Menu on the Home page (iOS - hopefully Android users are similar) - Look for the three bars top right corner (click): You should then see the following menu: Just under the HOME button find the NAVIGATOR button and click on it and you should see the following menu: The first word 'Navigator' is simply the title of this menu (don't click on it). The menu choices are now shown below this word, 'Navigator,' and you should begin scrolling down till you see the following: The menu button ROSACEA TOPICS is the second to the last choice. Click on ROSACEA TOPICS which brings you to the following screen: You may want to turn your mobile device horizontally to view the videos and subforums and scroll down to see all the choices: Now you can view the subforums but you are not allowed to enter a subforum without being a member of the RRDi. Membership requires a subscription and all you do register and then you can view over 7K posts and over 5.4K rosacea topics. Learn more. Hope this helps mobile device users on how to navigate our website. If you have questions, find the reply to this topic button and ask.
- There are thousands of mites living on your face
  
  By Guide · Posted May 28, 2022
  
  "Meet Demodex, the face mite, a microscopic arachnid that lives on human skin. The pore is its humble abode and the waxy sebum we secrete is its meal of choice. It's hard to know for sure, but there are likely many thousands of mites living on our faces at any given time, as BBC Reel's Melissa Hogenboom explores." There are thousands of mites living on your face, BBC More Information on Demodex
- Photo Album Using iPhone for Your Dermatologist
  
  By Guide · Posted May 25, 2022
  
  This is just a helpful tip for those of you with an iPhone using the Photos app so you can show a history of your rosacea to your dermatologist by simply creating an album that shows a history of selfie photos of your rosacea flareups over a period of time. Follow the directions from Apple on how to do this. You could name the album MyRosacea and designate which photos in the album to easily find it and show these images to your dermatologist. Android users probably have a similar way to do this. If you really care about helping your fellow rosaceans and have an Android, wouldn't it be helpful to explain in this thread how Android users could similarly have an easy way to show a history of photos of all the selfies taken to record rosacea flareups on an Android? It is important to have a record of your rosacea flareups for your dermatologist to review to show if your rosacea is progressing worse. You should know about the stages of rosacea. (requires subscription to view)
- Rosacea Diet
  
  By Guide · Posted May 25, 2022
  
  The Rosacea Diet has been around for sometime now. Dr. Ken Berry explains it below: LEARN MORE Forum Home > Forums > Member Forum > Rosacea Topics > Trigger Avoidance > Diet Triggers (Requires Subscription)
- Zach Bush, MD
  
  By Guide · Posted May 25, 2022
  
  If you are not aware of Dr. Zach Bush you should be. Watch this video regarding how inflammatory diseases such as rosacea are on the rise and his insight into this and what to do about it. This is also related to GUT Rosacea.
- RRDi Announcement
  
  By Guide · Posted May 16, 2022
  
  Just an update on the previous announcement mentioned above, consider this Version 2. As the treasurer I have been trying to keep the RRDi non profit organization going with over a hundred videos and keeping the website going switching over to a subscription service (watch Rosacea Episodes S3:E1 and announcement) as well as sending out our latest newsletter to members (read the last newsletter dated 5/12/22). Yesterday, I went to a family reunion with my siblings and in-laws and had a short discussion with my sister-in-law who happens to be an editor for a prestigious journal in the scientific world and she explained to me that calling our ‘magazine’ a ‘journal’ is what is the issue since the title ‘journal’ implies it is a scientific journal with peer reviews and since we don’t have the funds to accomplish this since we have no rich donors, nothing to sell, and our income is derived solely from affiliate links from our store and now subscriptions to our website, we should simply use our newsletter tool we purchase through Invision Community as the medium to provide not only pro bono articles from the RRDi MAC but also from our members who may want to publish an article on rosacea. So instead of any article you wish to submit for our newsletter please follow the instructions mentioned in our previous post if you are a subscribed member of the RRDi. From henceforth, the Newsletter of the RRDi will only be available to subscribed members and we will be asking for a donation from those who do not subscribe to read the newsletter. Then, if we can obtain the funds through donations we may be able to resume publishing the Journal of the Rosacea Research and Development Institute again properly with a peer review process. We will mention any featured posts from RRDi members who post in the category of their choice in our member forum with a link to your post. So login to your RRDi member account and post your thoughts on rosacea. It may be considered as worthy of mentioning in a blurb mentioned in the next edition of the Newsletter of the RRDi.
- Azelaic Acid (AZA) for Rosacea
  
  By Guide · Posted May 12, 2022
  
  Learn More Azelaic Acid has been used to treat rosacea for many years. The brand name is Finacea, which is usually very expensive. We have information on savings card as well as generic azelaic acid prescriptions at this post. (member subscription required) There are a number of over the counter treatments using azelaic acid found in our store. Use the search tool and note the results of items found in our store. "Azelaic acid (AzA) is an organic compound with the formula HOOC(CH2)7COOH. This saturated dicarboxylic acid exists as a white powder. It is found in wheat, rye, and barley. It is a precursor to diverse industrial products including polymers and plasticizers, as well as being a component of a number of hair and skin conditioners. AzA inhibits tyrosinase." Wikipedia
- Sarecycline for Rosacea?
  
  By Guide · Posted May 10, 2022
  
  "Sarecycline (trade name Seysara; development code WC-3035) is a tetracycline-derived antibiotic. In the United States, it was approved by the FDA in October 2018 for the treatment of moderate to severe acne vulgaris". Wikipedia What about rosacea? Learn more below (members only😞
- RRDi Episodes S2:E1 Trailer
  
  By Guide · Posted May 7, 2022
  
  Watch the Full Length Nine Minute Video Watch the TRAILER below:
- RRDi Announcement
  
  By Guide · Posted May 5, 2022
  
  The RRDi is pleased to announce we are sponsoring a second edition of the Journal of the Rosacea Research & Development to be published later this year. We are accepting article submissions on the subject of rosacea from RRDi Members only. If you would like to submit your article for consideration to be published in the next edition follow these directions. (Members Only)
- RRDi Site Index
  
  By Guide · Posted May 4, 2022
  
  RRDi Site Index
- Wanted 100 RRDi Subscribers
  
  By Guide · Posted May 3, 2022
- Subscribe to the RRDi Video
  
  By Guide · Posted April 30, 2022
- ZZ Cream Anecdotal Reports
  
  By Guide · Posted April 30, 2022
  
  FREE jar of the ZZ cream! Below are anecdotal reports of ZZ cream use collected over a great deal of investigative time for your benefit and the end notes show the source of the report usually found at RF since members at the RRDi are reluctant to post. READ MORE - REQUIRES SUBSCRIPTION
- ZOSSO for Rosacea
  
  By Guide · Posted April 30, 2022
  
  Zinc Oxide Sulfur Sublimate Ointment (ZOSSO), aka Z Cream, ZZ Cream, Zhongzhou Cream FREE JAR
- Zilxi for Rosacea
  
  By Guide · Posted April 30, 2022
  
  Zilxi is the first monocycline topical foam to be approve for rosacea by the FDA and is now available. READ MORE - REQUIRES SUBSCRIPTION ª LEARN MORE
- Zeloglin for Rosacea
  
  By Guide · Posted April 30, 2022
  
  A recent report concluded: "This study shows that the fixed combination potassium azeloyl diglycinate - hydroxypropyl chitosan is effective in reducing stinging and burning sensation in patients with erythemato-telangiectatic rosacea" READ MORE - REQUIRES SUBSCRIPTION Learn More
- Will I Develop Rhinophyma?
  
  By Guide · Posted April 30, 2022
  
  Frequently some are concerned that if they have a red nose that they will end up like WC Fields, the rosacea poster boy. READ MORE - REQUIRES SUBSCRIPTION
- Why do demodex mites like human skin?
  
  By Guide · Posted April 30, 2022
  
  READ MORE - REQUIRES SUBSCRIPTION
- What is the difference between demodex, dust mites, bed bugs and scabies?
  
  By Guide · Posted April 30, 2022
  
  READ MORE - REQUIRES SUBSCRIPTION Answer Below
- What does a dietician nutritionist have to say about rosacea?
  
  By Guide · Posted April 30, 2022
  
  The Acne and Diet Connection: Or is it rosacea? A Nutritionist’s Story, Michelle Dudash READ MORE - REQUIRES SUBSCRIPTION
- What about researching diet/lifestyle and rosacea?
  
  By Guide · Posted April 30, 2022
  
  READ MORE - REQUIRES SUBSCRIPTION Forum Home > Forums > Member Forum > Rosacea Research > Diet/Lifestyle

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