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The Burden of Illness of Erythematotelangiectatic Rosacea and Papulopustular Rosacea: Findings From a Web-based Survey.

J Clin Aesthet Dermatol. 2017 Jun;10(6):17-31

Authors: Del Rosso JQ, Tanghetti EA, Baldwin HE, Rodriguez DA, Ferrusi IL

Abstract
Objective: Evaluate patients' perceptions of rosacea symptoms and treatments. Design: Cross-sectional, web-based survey conducted from May 8 to July 1,2015. Setting: E-mail invitation. Participants: Male and female adults in the United States who self-reported having a physician's diagnosis of rosacea. Measurements: Sociodemographic and clinical characteristics were collected for eligible respondents using the Self-Assessment of Rosacea Facial Redness scale and the Symptom Assessment for Rosacea Facial Bumps and Pimples questionnaire. Respondents were instructed how to differentiate erythematotelangiectatic rosacea and papulopustular rosacea. Use of different treatments and satisfaction with treatment were assessed, as were coping mechanisms. Results: More than 4,000 individuals responded and 600 completed the survey. The participants' mean age was 51.7 years and more than 90 percent rated their rosacea severity as mild or moderate. Most practiced stress and/or anxiety management, used makeup to cover rosacea, used sun protection, and changed their exercise regimens to cope with rosacea flare-ups. Participants reported avoiding sun exposure, hot baths and saunas, and specific skin care products to circumvent potential rosacea flare-ups. More than half (55.7%) had used a prescribed topical agent for rosacea in the preceding month, and 26.3 percent had used a prescribed oral antibiotic. Fewer than half were satisfied with treatment outcomes. Conclusion: Despite the chronic nature of rosacea, participants commonly used prescription agents only to treat flare-ups and relied on sun protection and other avoidance mechanisms to reduce their frequency. Education is needed to communicate the long-term nature of rosacea and the need for continued treatment to maintain long-term control.

PMID: 28979654 [PubMed]

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[smart2005ct]

I agree with:

1. Fewer than half were satisfied with treatment outcomes.   -  I am among them

2. Conclusion 1: Education is needed to communicate the long-term nature of rosacea and the need for continued treatment to maintain long-term control. - I think they should become members of RRDi as there is so much useful information here but there still is a lot to be done to find a cure.

3. Conclusion 2: Rosaceans should unite their financial efforts in a single organization able to really do a change in what is happening at this moment asap.

 

[Guest]

smart2005ct,

Thanks for your comment. Hope other feel the same about this.

[smart2005ct]

It is heartbreaking seeing Rosacea organisations spending the little money they collect on other things than research and Roseceans spending money on products that make no difference for them. Sad sad sad. Somehow someone someday should unite these people suffering of diverse forms of Rosacea and find finally a cure. I think all Rosaceans are fed up with trying and hoping. Hallelujah!!!