phlika29 Posted September 24, 2006 Report Share Posted September 24, 2006 Hello I've posted this in the sticky thread but thought I had better post it as a new thread aswell. I would be happy to help you do some PR work. I've got a little bit of experience as I presently work in an environmental health department where we have to carry out health promotion intiatives that involve raisiing awareness of particular issues. Let me know what you want. Sarah Link to comment Share on other sites More sharing options...
bastet0201 Posted September 25, 2006 Report Share Posted September 25, 2006 Sarah, Welcome to the RRDi! Take a look around the forum and the RRDi website, then let us know your ideas. We can certainly use your talents! Link to comment Share on other sites More sharing options...
Root Admin Guide Posted September 25, 2006 Root Admin Report Share Posted September 25, 2006 The current need in PR is we need someone to take on the responsibility of being the editor of the newsletter (no timetable on when it is published - you decide), getting the word out to the public that the RRDi is here using the brochure we are publishing, and getting more members. Link to comment Share on other sites More sharing options...
Guests Guest Jenny Posted September 28, 2006 Guests Report Share Posted September 28, 2006 Hi Sarah Welcome to the RRDi. Great to have you here. Fantastic! Looking forward to hearing some of your ideas. Jenny Link to comment Share on other sites More sharing options...
Guests Guest Jenny Posted September 29, 2006 Guests Report Share Posted September 29, 2006 Hi Sarah I have just posted, in what was a sticky thread, to explain that Adrian is no longer able to assist with the PR Commiittee. So, at this point in time, it's just you. I am more than happy to help where I can, once you have some ideas to run with. Hopefully more members may put there hand up to help too. Jenny Link to comment Share on other sites More sharing options...
phlika29 Posted September 30, 2006 Author Report Share Posted September 30, 2006 Jenny I'll get my thinking cap on. Will pm you next week once I've got my brothers wedding and a laser treatment out of the way. Sarah Link to comment Share on other sites More sharing options...
Guests Guest Jenny Posted September 30, 2006 Guests Report Share Posted September 30, 2006 No probs. Have fun at your brother's weddding and 'break a leg' for your laser treatment...or do they only say that before you head out on the stage? Jenny Link to comment Share on other sites More sharing options...
phlika29 Posted October 31, 2006 Author Report Share Posted October 31, 2006 Hi everyone I'm ready to start working on the next newletter but I need to know what the expectations are with regards content. What is the newsletter designed to do?-update poeple on the work of the institute and/or update on rosacea advances, give information about treatments, q+a from consulatants, etc. I have been learning about laying out newsletters and attaching photos and video's and think there are quite alot of possiblities. Sarah Link to comment Share on other sites More sharing options...
Guests Guest Posted November 10, 2006 Guests Report Share Posted November 10, 2006 Sarah, You have the ball in your court. Come up with a newsletter and we will send it out to the members. We need volunteers to increase membership and donations. Getting members to volunteer is what is needed. Hi everyone I'm ready to start working on the next newletter but I need to know what the expectations are with regards content. What is the newsletter designed to do?-update poeple on the work of the institute and/or update on rosacea advances, give information about treatments, q+a from consulatants, etc. I have been learning about laying out newsletters and attaching photos and video's and think there are quite alot of possiblities. Sarah Link to comment Share on other sites More sharing options...
Matthew Posted November 20, 2006 Report Share Posted November 20, 2006 Sorry for my late response to your request Brady, but i would be more than happy to help as well. Sarah, If there is any way I can help you please let me know. We can work together if you want. Matthew. Link to comment Share on other sites More sharing options...
Guests Guest Jenny Posted December 5, 2006 Guests Report Share Posted December 5, 2006 Great to have you onboard Matthew. Hopefully I haven't taken up too much of Sarah's time with her acceptance to be a Moderator of the Rosacea Forum. Sarah, when you have some ideas, please do let us know. Oh, Matthew, maybe you have some ideas too that we can run with? Jenny Link to comment Share on other sites More sharing options...
Matthew Posted December 18, 2006 Report Share Posted December 18, 2006 Hi Jenny, I thought why not start at the top? start with a well known figure sympathetic to suffering, and with the resources available to assist us. I think we should draft a letter and get one of our American friends to send it to Oprah or approach one of her organisers. A brief letter/presentation could be written to her explaining what Rosacea is, the burden that it inflicts on the sufferer (Physical burning and mental anguish) along with the fact it's estimated occurrence is 1 in 20 Americans1 and as of yet there is no cure or even a definite known cause! Although Rosacea is not life threatening, I think it would be easy to convince her that it is still a debilitating disorder. This could be achieved with a small ‘day in the life of a rosacea sufferer’ type story, similar to that presented in the start of Dr Nase’s book. We could detail the impact on the quality of life, i.e having to avoid things that normal people enjoy, like being out in the sun, alcohol, warm/humid environments, and then explain how this all makes us feel, and why excuses are even made to avoid these scenarios. Add to that the physical pain of an intense flush and the negative affects it has on a sufferers self esteem. What do you think? References 1) http://www.postgradmed.com/issues/1999/02_99/millikan.htm Link to comment Share on other sites More sharing options...
Guests Guest Posted December 22, 2006 Guests Report Share Posted December 22, 2006 Go for it. Hi Jenny, I thought why not start at the top? start with a well known figure sympathetic to suffering, and with the resources available to assist us. I think we should draft a letter and get one of our American friends to send it to Oprah or approach one of her organisers. A brief letter/presentation could be written to her explaining what Rosacea is, the burden that it inflicts on the sufferer (Physical burning and mental anguish) along with the fact it's estimated occurrence is 1 in 20 Americans1 and as of yet there is no cure or even a definite known cause! Although Rosacea is not life threatening, I think it would be easy to convince her that it is still a debilitating disorder. This could be achieved with a small ‘day in the life of a rosacea sufferer’ type story, similar to that presented in the start of Dr Nase’s book. We could detail the impact on the quality of life, i.e having to avoid things that normal people enjoy, like being out in the sun, alcohol, warm/humid environments, and then explain how this all makes us feel, and why excuses are even made to avoid these scenarios. Add to that the physical pain of an intense flush and the negative affects it has on a sufferers self esteem. What do you think? References 1) http://www.postgradmed.com/issues/1999/02_99/millikan.htm Link to comment Share on other sites More sharing options...
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