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"A comprehensive clinical trial assessment with extended follow-up is, therefore, crucial to confirm or exclude the hypothetical benefits of azithromycin in COVID-19."
BMJ Open Respir Res. 2021; 8(1): e000806.
Rationale for azithromycin in COVID-19: an overview of existing evidence
Iwein Gyselinck, Wim Janssens, Peter Verhamme, and Robin Vos -
Below are the FAQs in the order of the most views as of February 2021:
Is this rosacea? By far the most frequently asked question on the internet and on the RRDi website.
Are there any Oracea Anecdotal Reports? (New FAQ) Answer shows 81.6K views
What about Mirvaso for rosacea? (New FAQ) Answer shows 23.6K views
What is demodectic rosacea? (New FAQ) Answer shows 23.2K views
What is the most viewed rosacea regimen on the RRDi website? (New FAQ) Answer shows 19.7K views
What about Isotretinoin for Rosacea? (New FAQ) Answer shows 18.2K views
Is Carbohydrate Essential For Human Survival? (New FAQ) Answer shows 16.4K views
What about sugar and rosacea? (New FAQ) Answer shows 14.8K views
What is Horse Paste for Rosacea? (New FAQ) Answer shows 13.5K views
What about researching diet/lifestyle and rosacea? (New FAQ) Answer shows 13.4K views
What does a dietician nutritionist have to say about rosacea? (New FAQ) Answer shows 13.1K views
What is Steroid Rosacea? (New FAQ) Answer shows 12.1K views
Why Form Another Non Profit Organization For Rosacea? (New FAQ) Answer shows 11.4K views
Do Rosaceans Suffer from Nutritional Deficiencies? 959 views in FAQs (The answer shows 10.8K views)
What is Seborrheic Dermatitis? (New FAQ) Answer shows 10.3K views
What should a newbie rosacean learn about rosacea? (New FAQ) Answer shows 9.6K views
What Prescription and Non Prescription Flushing Avoidance Treatments are there? (New FAQ) Answer shows 9.2K views
What are the latest theories on the cause of rosacea? (New FAQ) Answer shows 9.1K views
What about Antibiotic Resistance, Bacterial Overgrowth, Side Effects? (New FAQ) Answer shows 8.6K views
Can Rosacea Go Into Remission? 7.5K views
What rosacea trigger factors are there? (New FAQ) Answer shows 7.5K views
What about NSAIDs For Rosacea? (New FAQ) Answer shows 7.4K views
What is Oracea for rosacea? (New FAQ) Answer shows 7.2K views
Does Yogurt Or Liver Trigger Rosacea? 3.1K views in FAQs (The article with the answer shows 7.2K views)
Are there any Doxycycline Anecdotal Reports? (New FAQ) Answer shows 7.1K views
Is the Subtype Classification Of Rosacea Controversial? (New FAQ) Answer shows 6.8K views
What is Keratosis Pilaris Rubra Faceii (KPRF)? (New FAQ) Answer shows 6.6K views
Do You Have A Gut Feeling About Your Rosacea? (New FAQ) Answer shows 6.5K views
What full coverage make up foundation is for rosacea? (New FAQ) Answer shows 6.5K views)
How do you make a home made ivermectin cream? (New FAQ) Answer shows 6.5K views)
What about aspirin for rosacea? (New FAQ) Answer shows 6.4K views)
Is Carbohydrate A Rosacea Trigger? (new FAQ) Answer shows 6.1K views
What is Periorol Dermatitis? (New FAQ) Answer shows 6K views
What cosmetics are there for rosacea? (New FAQ) Answers show 5.9K views
What is the Innate Immune Response Disorder theory on rosacea? (New FAQ) Answers show 5.7K views
Are there any Anecdotal Reports of Carbohydrate and Sugar Rosacea Trigger Avoidance? (New FAQ) Answers show 5.7K views
Is Coffee A Rosacea Trigger? 5.6K views
How is a Differential Diagnosis Of Rosacea Obtained? (New FAQ) Answer shows 5.6K views
What is Keratosis Pilaris Rubra Faceii? (New FAQ) Answer shows 5.6K views
Is Rosacea A ‘Complicated Diagnosis Path’ And Mysterious Disorder? (New FAQ) Answer shows 5.4K views
What Sugars Should I Avoid to Control My Rosacea? (New FAQ) Answer shows 5.4K views
What is the Ketamine 0.5% and Amitriptyline 1% Treatment for Rosacea? (New FAQ) Answer shows 5.4K views
What about IBS and Rosacea? (New FAQ) Answer shows 5.4K views
What is Gram-Negative Folliculitis? (New FAQ) Answer shows 5.3K views
What is Neurogenic Rosacea? (New FAQ) Answer shows 5.3K views
What about researching Gene therapy & Isolation of Rosacea Genes? (New FAQ) Answer shows 5.3K views
What Should I Ask My Physician? 5K views
What about Soolantra for rosacea? (New FAQ) Answer shows 5K views
Does Vitamin B Complex Trigger Rosacea? 4.9K views
What is Rosacea LTD-IV? (New FAQ) Answer shows 4.9K views
What diet triggers rosacea? (New FAQ) Answer shows 4.9K views
Is Lamb's Quarters A Rosacea Trigger? (New FAWQ) Answer shows 4.8K views
What Is The World Wide Number Of Cases Of Rosacea? 4.6K views
What is Telangiectasias (Phenotype 3)? (New FAWQ) Answer shows 4.6K views
What is Granulomatous Rosacea? (New FAWQ) Answer shows 4.5K views
What are some Treatments for Demodex Skin Mites? (New FAQ) Answer shows 4.4 views
What is ZOSSO (aka ZZ Cream)? (New FAQ) Answer shows 4.4 views
What is Rosacea Fulminans? (New FAQ) Answer shows 4.3 views
What is the Helicobacter Pylori Theory in Rosacea? (New FAQ) Answer shows 4.3 views
What about Zeloglin for rosacea? (New FAQ) Answer shows 4.3 views
Rosacea or Demodex, Which Came First? (New FAQ) Answer shows 4.1 views
What two rosacea mimics are called PF? (New FAQ) Answer shows 4.1 views
Can You Get A Diagnosis For Rosacea On The Internet? 4K views
What about SIBO and Rosacea? (New FAQ) Answer shows 4K views
What are some Natural Treatments For Rosacea? (New FAQ) Answer shows 3.9K views
Does IPL Kills Demodex Mites? (New FAQ) Answer shows 3.9K views
What anti-flushing drugs for rosacea are there? (New FAQ) Answer shows 3.9K views
What about oral ivermectin for Rosacea? (New FAQ) Answer shows 3.7K views
What about red clover for rosacea flushing? (New FAQ) Answer shows 3.7K views
What is the GPSkin® Barrier Device for Rosacea? (New FAQ) Answer shows 3.6K views
Does Aspirin Help for Rosacea Flushing? (New FAQ) Answer shows 3.6K views
What about Psychology and Rosacea? (New FAQ) Answer shows 3.6K views
What about low gastric acid and rosacea? (New FAQ) Answer shows 3.6K views
What is an elimination diet? (New FAQ) Answer shows 3.5K views
Is there more information on sugar and rosacea? (New FAQ) Answer shows 3.5K views
How can I avoid blushing? (New FAQ) Answer shows 3.5K views
What Is The Rosacea Butterfly Or T Zone? 3.4K views
If My Rosacea Is Severe What Treatments Are Available? 3.4K views
What is the difference between a Papule, Pustule, Pimple, Comedo, Lesion, Cyst? (New FAQ) Answers shows 3.4K views
What is Pyoderma Faciale? (New FAQ) Answers shows 3.4K views
What is Dr. Dray Anti-Redness Regimen? (New FAQ) Answers shows 3.4K views
Is rosacea caused by bacteria? (New FAQ) Answers shows 3.4K views
Is Rosacea Triggered By A Vitamin B Complex Supplement? (New FAQ) Answers shows 3.4K views
What Causes Rosacea? 3.3K views (New FAQ) Answer shows 3.3K views
What is Argan Organics anti redness + rosacea cream? (New FAQ) Answer shows 3.3K views
Is Rosacea Caused by Genetics? (New FAQ) Answer shows 3.3K views
What about Sodium Sulfacetamide - Sulfur for rosacea? (New FAQ) Answer shows 3.2K views
What are some rosacea rare flareups? (New FAQ) Answer shows 3.2K views
Is Sugar A Rosacea Trigger? 3.1 views
What is the Gold Standard for Rosacea Treatment? (New FAQ) Answer shows 3.1K views
What about Lutein with Zeaxanthin for Rosacea? (New FAQ) Answer shows 3.1K views
What about metronidazole and rosacea? (New FAQ) Answer shows 3.1K views
What about flushing and rosacea? (New FAQ) Answer shows 3.1K views
Is Flushing Rosacea? 3K views
Does Rosacea Progress In Stages? 3K views
Do Acne Treatments Irritate Rosacea? 3K views
What is Erysipelas? (New FAQ) Answer shows 2.9K views
What about Immunosuppressants for rosacea? New FAQ) Answer shows 2.9K views
What Is A Rosacea Trigger? 2.8K views
What is the difference between a Variant, a Subtype and a Phenotype? New FAQ) Answer shows 2.8K views
What is Gastrointestinal Rosacea [GR] (aka, Gut Rosacea)? (New FAQ) Answer shows 2.8K views
Does a honey mask improve rosacea? (New FAQ) Answer shows 2.8K views
What about Cathelicidin Peptide LL-37 and Vitamin D3 in rosacea? (New FAQ) Answer shows 2.8K views
Is Rosacea Misdiagnosed? (New FAQ) Answer shows 2.7K views
What is Erythromelalgia? (New FAQ) Answer shows 2.7K views
What is the history of ivermectin? (New FAQ) Answer shows 2.7K views
What is Lupoid Rosacea? (New FAQ) Answer shows 2.6K views
Are Migraine Headaches Related To Rosacea? 2.5K views
Can a doctor diagnose rosacea in five minutes or less? (New FAQ) Answer shows 2.5K views
What is Eczema (Atopic Dermatitis)? (New FAQ) Answer shows 2.5K views
What is Rosacea Conglobata? (New FAQ) Answer shows 2.5K views
What is the Angiogenesis & VEGF theory on rosacea? (New FAQ) Answer shows 2.5K views
How can I volunteer for the RRDi? (New FAQ) Answer shows 2.5K views
Do any of the royal family in the UK have rosacea? (New FAQ) Answer shows 2.5K views
Is Lupus a rosacea mimic? (New FAQ) Answer shows 2.4K views
What is ProSkin Rosacea Natural Skin Cream by Mama Nature? (New FAQ) Answer shows 2.4K views
What is Azelaic Acid for rosacea? (New FAQ) Answer shows 2.4K views
Is Sugar Addictive? (New FAQ) Answer shows 2.4K views
Has anyone committed suicide because of blushing? (New FAQ) Answer shows 2.4K views
Is Flushing Rosacea? 2.4K views
When posting on the RRDi website how can I balance Anonymity and Transparency? (New FAQ) Answer shows 2.4K views
What rosacea panel recommended the phenotype classification? (New FAQ) Answer shows 2.4K views
Can You Self Diagnose Rosacea? 2.3K views
What is the X Factor in Rosacea? 2.3K views
What is Glandular Rosacea? (New FAQ) Answer shows 2.3K views
What is Low Dose Naltrexone for rosacea? (New FAQ) Answer shows 2.3K views
Is Perioral Dermatitis a rosacea variant? (New FAQ) Answer shows 2.3K views
What is Dermatomyositis? (New FAQ) Answer shows 2.3K views
What does Cathelicidin have to do with rosacea? (New FAQ) Answer shows 2.2K views
Does a vacation to the South Pacific which includes snorkeling improve rosacea? 2.1K views
What If I Don't Want To Lose Weight Or I Need Carbohydrate For Athletics? 2.1K views
What about LED for rosacea? (New FAQ) Answer shows 2.1K views
What about Antibiotics For Rosacea? (New FAQ) Answer shows 2.1K views
What about Rhofade for rosacea? (New FAQ) Answer shows 2.1K views
How do you use the RRDi FAQs? 2.1K views
What is the Autoimmune Protocol Diet? (New FAQ) Answer shows 2.1K views
Will a Humidifier Help Rosacea? 2K views
Are there any Demodex Mite Videos? (New FAQ) Answer shows 2K vews
What is the difference between a rosacea flare up and flushing? 2K views
What is the History of Demodectic Rosacea? (New FAQ) Answer shows 2K views
What about ETS and rosacea? (New FAQ) Answer 2K views
Is The Lymphatic System Involved With Rosacea? 1.9K views
What is an Alternative to Soolantra's (Ivermectin) High Cost? (New FAQ) Answer shows 1.9K views
What is Tranexamic Acid Solution for rosacea? (New FAQ) Answer shows 1.9K views
What about MSM and Grapefruit Seed Extract for Rosacea? (New FAQ) Answer shows 1.9K views
What is the Hanacure Face Mask? (New FAQ) Answer shows 1.9K views
What brand of laser for rosacea? (New FAQ) Answer shows 1.8K views
Are there any IPL Anecdotal Negative Reports? (New FAQ) Answer shows 1.8K views
What do alarmins have to do with rosacea? (New FAQ) Answer shows 1.8K views
What is the Rosacea Diet? (New FAQ) Answer shows 1.8K views
Spicy Food A Rosacea Trigger? (New FAQ) Answer 1.8K views
What Is An Elimination Diet? 1.7K views
Does Lifestyle Effect Rosacea? 1.7K views
What Non Prescription Treatments Are Available? 1.7K views
Is Obesity A Factor In Rosacea? 1.7K views
Does Coconut Oil Improve Rosacea? (New FAQ) Answer shows 1.7K views
Are there any Laser Anecdotal Negative Reports? (New FAQ) Answer shows 1.7K views
Is there a generic ivermectin cream? (New FAQ) Answer shows 1.7K views
Does Lifestyle Effect Rosacea? 1.7K views
What are 7 Things Girls With Rosacea Are Tired Of Hearing? (New FAQ) Answer shows 1.7K views
Will I Get Rhinophyma? 1.6K views
What is sulfur butter for rosacea? (New FAQ) Answer shows 1.6K views
What About Steroid Induced Rosacea? 1.6K views
If you take Soolantra continuously does it get worse before it gets better? (New FAQ) Answer shows 1.6K views
What about Fluorescent Lights (and other artificial lights) and rosacea? (New FAQ) Answer shows 1.6K views
Does Sai Pallavi suffer from rosacea? (New FAQ) Answer shows 1.6K views
Does Lex Gillies, Beauty Blogger Have Rosacea? (New FAQ) Answer shows 1.6K views
Does Amy Schumer suffer from rosacea? (New FAQ) Answer shows 1.6K views
Is Sofia Vergara “prone to rosacea”? (New FAQ) Answer shows 1.6K views
What is the Antioxidant System Defect Hypothesis Theory in rosacea? (New FAQ) Answer shows 1.6K views
What Prescription Treatments Are Prescribed For Rosacea? 1.5K view
Is Rosacea A Genetic Disease Or Caused By The Environment? 1.5K views
What are the Jennifer Brown Soolantra Videos? (New FAQ) Answer shows 1.5K views
What about amberin for hot flashes? (New FAQ) Answer shows 1.5K views
How can I post a review of an item in the RRDi affiliate store? (New FAQ) Answer shows 1.5K views
Do Renee Zellweger and Cameron Diaz Both have Rosacea? (New FAQ) Answer shows 1.5K views
What is radio frequency for rosacea? (New FAQ) Answer shows 1.4K views
What is the difference between demodex, dust mites, bed bugs and scabies? (New FAQ) Answer shows 1.4K views
What treatments are there for Phymatous (Rhinophyma) Phenotype 5? (New FAQ) Answer shows 1.4K views
What is a rosacea mimic (video)? (New FAQ) Answer shows 1.4K views
What is Kwellada-P Lotion for rosacea? (New FAQ) Answer shows 1.4K views
What is IPL for rosacea? (New FAQ) Answer shows 1.4K views
Are there other light devices for rosacea besides laser, LED and IPL? (New FAQ) Answer shows 1.4K views
What about Oral Ivermectin Compared with Ivermectin–Metronidazole Combined Therapy? (New FAQ) Answer shows 1.4K views
What about Melanotan (Afamelanotide) for rosacea? (New FAQ) Answer shows 1.4K views
What does Chlamydophila Pneumoniae have to do with rosacea? (New FAQ) Answer shows 1.4K views
How does the AARS spend its donations? (New FAQ) Answer shows 1.4K views (New FAQ) Answer shows 1.4K views
Is there any treatment for rosacea that works on everyone? (New FAQ) Answer shows 1.4K views
What about Rossoseq for Rosacea? (New FAQ) Answer shows 1.4K views
Which Alcohol is Your Rosacea Trigger? 1.3K views
What Natural Treatments Are There For Rosacea? 1.3K views
What are some free or inexpensive treatments for rosacea? 1.3K views
Is The Nervous System Involved With Rosacea? 1.3K views
Is Rosacea Confusing, A Bewilderment And A Mystery? 1.3K views
Do Children Get Rosacea? 1.3K views
What About The Immune System Theory On Rosacea? 1.3K views
What Is The Vascular Theory On Rosacea? 1.3K views
What Bacteria Is Associated With Rosacea? 1.3K views
What is Persistent Erythema ( Phenotype 2)? (New FAQ) Answer 1.3K views
What is Avenova? (New FAQ) Answer 1.3K views
Does Going to the Beach Improve Rosacea? (New FAQ) Answer 1.3K views
What about Botox for Rosacea? (New FAQ) Answer 1.3K views
What about Praziquantel for rosacea? (New FAQ) Answer 1.3K views
How does the NRS spend its donations? (New FAQ) Answer 1.3K views
What are the steps to receive a free RRDi G Suite account? (New FAQ) Answer 1.3K views
What is Medscape Clinical Advances in Rosacea? (New FAQ) Answer 1.3K views
Does William Shatner suffer from rosacea? (New FAQ) Answer 1.3K views
Did Rembrandt suffer from rosacea? (New FAQ) Answer 1.3K views
What about Multistat® For Treatment Of Rosacea? (New FAQ) Answer 1.3K views
What about Multistat® For Treatment Of Rosacea? (New FAQ) Answer 1.3K views
Can Rosacea be Cured? 1.2K views
What is Nu-Stock? (New FAQ) Answer shows 1.2K views
Demodex Density Count - What are the Numbers? (New FAQ) Answer shows 1.2K views
What is Arquebusade Herbal Water for Rosacea? (New FAQ) Answer shows 1.2K views
Is Carbohydrate a Rosacea Trigger? 1.2K views
Do You Have A Gut Feeling? 1.2K views
What does Tom Busby have to say about ocular rosacea (phenotype 6)? (New FAQ) Answer shows 1.2K views
What is broad band light for rosacea? (New FAQ) Answer shows 1.2K views
What about Brimonidine for rosacea? (New FAQ) Answer shows 1.2K views
What about Taurine Bromamine for rosacea? (New FAQ) Answer shows 1.2K views
What does Propionibacterium Acnes have to do with rosacea? (New FAQ) Answer shows 1.2K views
Name Five Five Celebrities with Rosacea? (New FAQ) Answer shows 1.2K views
Does William Clinton suffer from rosacea? (New FAQ) Answer shows 1.2K views
Who is the rosacea poster boy? (New FAQ) Answer shows 1.2K views
Does Infrared Sauna Hurt or Help Rosacea? (New FAQ) Answer shows 1.2K views
Does Kristin Chenoweth Have Rosacea? (New FAQ) Answer shows 1.2K views
What About Candida Albicans And Rosacea? 1.1K views
What Is The Inflammatory Theory On Rosacea? 1.1K views
What is Halogen rosacea? (New FAQ) Answer 1.1K views
What is the Ivermectin for Rosacea Horse Paste Poll? (New FAQ) Answer 1.1K views
What is Cat's Claw for Rosacea? (New FAQ) Answer 1.1K views
What Is PDT? 1.1K views
What are some treatments for Phenotype 2? (New FAQ) Answer 1.1K views
What is the Thoemmes Demodex DNA Test? (New FAQ) Answer 1.1K views
What is Endothelyol for Erythematotelangiectatic Rosacea? (New FAQ) Answer 1.1K views
What Light Devices are available for rosacea? (New FAQ) Answer 1.1K views
How do you wash off Soolantra? (New FAQ) Answer 1.1K views
Do Anti-Anxiety Prescriptions Improve Rosacea? (New FAQ) Answer 1.1K views
What is Nonpathogenic E. coli strain Nissle 1917 in Probiotics? (New FAQ) Answer 1.1K views
What is Rosacea Beyond the Visible? (New FAQ) Answer 1.1K views
Is the painting in the Lourve, The Old Man and His Grandson Phenotype 5? (New FAQ) Answer 1.1K views
Can I join the RRDi with just an email address? (New FAQ) Answer 1.1K views
How is rosacea research compared with other skin conditions? (New FAQ) Answer 1.1K views
Is this rosacea? 1K views
Is there a steroid rosacea video? (New FAQ) Answer shows 1K views
Does Salvia hispanica kills mites in 7 minutes? (New FAQ) Answer shows 1K views
What About H Pylori And Rosacea? 1K views
What about alcohol and rosacea? 1K views
What about Plaquenil (Hydroxychloroquine) for Rosacea? (New FAQ) Answer shows 1K views
Does Levothyroxine ( L-thyroxine) Exacerbates Rosacea? (New FAQ) Answer shows 1K views
What about Caper Extract Cream for Rosacea? (New FAQ) Answer shows 1K views
Who do Male Patients With Telangiectasia, Rosacea Tend To Wait To Seek Treatment? (New FAQ) Answer shows 1K views
What are the benefits of volunteering for the RRDi? (New FAQ) Answer shows 1K views
What is the difference between acne and rosacea? 943 views
What about florescent lights and rosacea? 943 views
What is the Rosacea Rescue Web Site? (New FAQ) Answer shows 935 views
What do demodex mites have to do with rosacea? 927 views
What Rosacea Treatment And Skin Care Tips Are Available? 911 views
What Microorganisms Have Been Associated With Rosacea? 878 views
What Oxidative Stress, Ferritin and Rosacea? (New FAQ) Answer shows 844 views
What About Accutane For Rosacea? 839 views
Does treatment for rosacea usually gets worse before it gets better? (New FAQ) Answer shows 837 views
Can Rosacea Be Misdiagnosed? 826 views
What About Demodex Mites And Rosacea? 821 views
Who is Amelia Fais Harnas and her Art, Wine, & Rosacea? (New FAQ) Answer shows 817 views
What is Rosacea? - Talk with Neal Schultz, MD 812 views
Can Rosacea Co-Exist With Other Skin Conditions? 800 views
What is Bionect Cream for rosacea? (New FAQ) Answer shows 780 views
Is Rosacea Contagious? 773 views
What's The Difference Between A Subtype And A Variant Of Rosacea? 772 views
How Do I Deal With Rosacea Emotionally? 760 views
What About Steroids For Rosacea? 744 views
Can You Use the Skin Microbiome to Clear Rosacea? (New FAQ) Answer shows 721 views
What is a Grassroots Rosacea Non Profit? (New FAQ) Answer shows 719 views
What Is Neurogenic Rosacea? 717 views
Any tips for reducing or preventing flushing or flare ups caused by exercise? 716 views
What is a grassroots non profit organization for rosacea? (New FAQ) Answer shows 711 views
What Anti-Flushing Drugs Are Available? 707 views
What about Callistemon Viminalis for rosacea? (New FAQ) Answer shows 703 views
What about Quassia amara for rosacea? (New FAQ) Answer shows 699 views
What is the Placebo/Nocebo Effect in Rosacea? (New FAQ) Answer shows 676 views
What skin conditions mimic rosacea? (New FAQ) Answer shows 672 views
What is the Bradykinin Rosacea Theory? (New FAQ) Answer shows 672 views
How do I submit an article to the RRDi? (New FAQ) Answer shows 659 views
Does rosacea spread beyond the facial region? 654 views
Who funds most rosacea research? (New FAQ) Answer shows 632 views
What are blood filled cysts? 590 views
Is there a Holistic Approach to Rosacea? (New FAQ) Answer shows 589 views
What is a simple method to control rosacea? (New FAQ) Answer shows 576 views
Is the Epidermal Barrier Dysfunction something to consider? (New FAQ) Answer shows 555 views
What does rosacea look like? 550 views
What is Rosacea? 534 views
Who are some famous rosaceans? 534 views
What is the Butterfly Effect in Rosacea? 519 views
Does Rosacea Cause Emotional Pain? (New FAQ) Answer shows 516 views
What is it about demodex mites that may trigger rosacea? (New FAQ) Answer shows 516 views
Can I create my own free rosacea blog? (New FAQ) Answer shows 506 views
What are 13 questions proposed by two rosacea researchers? (New FAQ) Answer shows 492 views
What are some Topical Probiotic Treatments for Rosacea? (New FAQ) Answer shows 472 views
What about HLA-DRA Locus and Rosacea? (New FAQ) Answer shows 451 views
What about Rosacea and Glioma? (New FAQ) Answer shows 441 views
What is causing the rosacea fire in our diet? (New FAQ) Answer shows 433 views
Is the Epidermal Barrier Dysfunction something to consider? (New FAQ) Answer shows 433 views
What is the Skin Barrier Integrity with Fatty Acids Theory? (New FAQ) Answer shows 426 views
What is Rosacea Rebound? 418 views
What about Artemesinin for Rosacea? (New FAQ) Answer shows 408 views
What about IBD and Rosacea? (New FAQ) Answer shows 407 views
Why is the phenotype classification superior to the subtype classification? 405 views
What about depression and rosacea? (New FAQ) Answer shows 405 views
When treating rosacea is more or less better? (New FAQ) Answer shows 395 views
How do contraceptives effect rosacea? 394 views
What do Cytokines have to do with Rosacea? (New FAQ) Answer shows 388 views
Are Peer Reviewed Papers the Gold Standard? (New FAQ) Answer shows 388 views
How much does the American Academy of Dermatologists spend on research? (New FAQ) Answer shows 385 views
What Moisturizer for Rosacea? 370 views
What is radiofrequency for rosacea? 370 views
Where have all the rosaceans gone? (New FAQ) Answer shows 354 views
What does Cathlecidin have to do with rosacea? 348 views
What is ImageJ for Rosacea Research? (New FAQ) Answer shows 344 views
What is the Risk-benefit Ratio in Rosacea Research & Development? (New FAQ) Answer shows 339 views
How Many Skin Types? Renée Rouleau Says Nine Types! 335 views
Do more women or men have rosacea? 326 views
What is the difference between a Trigger, a Tripwire, a Flareup, and a Flush? 298 views
Is Folliculitis a Rosacea Mimic? (New FAQ) Answer shows 262 views
What is the difference between sensitive skin and rosacea? (New FAQ) Answer shows 226 views
What would you prefer rosacea research to be focused on? 226 views
Is Rosacea Associated with Other Diseases? 216 views
How does Phenotype Classification work? (New FAQ) Answer shows 214 views
How Can I Reduce Large Pores? 190 views
What Oral Treatments for Rosacea Are Available? 164 views
What about Raynaud syndrome and Rosacea? (New FAQ) Answer shows 158 views
Do Dermatological Textbooks have any Conflict of Interests? (New FAQ) Answer shows 142 views
How can I win a free jar of the ZZ cream? (New FAQ) Answer shows 101 views
Will Rosacea Develop into Phenotype 5 - Phymatous? 19 views
What does Staphylococcus epidermidis have to do with rosacea? (New FAQ) Answer shows 17 views
Does the skin industry use social media to advertise? (New FAQ) Answer shows 10 views
What if I want to volunteer for the RRDi as Grant Writer? (New FAQ) 4 views
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Many fear that rosacea progresses into stages and ends with phymatous phenotype, This is another example of the butterfly effect in rosacea of initial conditions of a false myth.
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Updates on my regimen are found at my rosacea blog.
Reply to this Topic
There is a reply to this topic button somewhere on the device you are reading this post. If you never heard about this topic and you learned about it here first, wouldn't it be a gracious act on your part to show your appreciation for this topic by registering with just your email address and show your appreciation with a post? And if registering is too much to ask, could you post your appreciation for this topic by finding the START NEW TOPIC button in our guest forum where you don't have to register? We know how many have viewed this topic because our forum software shows the number of views. However, most rosaceans don't engage or show their appreciation for our website and the RRDi would simply ask that you show your appreciation, please, simply by a post.
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This question has come up at RF whether Finasteride or Minoxidil causes flushing or may be a rosacea trigger and you may be interested in knowing that apparently there isn't any consensus on this and these two drugs haven't been listed on any rosacea trigger list as far as we know. If you have anything to add to this or your experience using either of these treatments with your rosacea, please find the reply to topic button.
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We have a new video, Welcome to the RRDi Official Website found on our WELCOME PAGE for rosacea newbies.
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Gladskin makes a cream or gel for rosacea that is available in the UK on Amazon. The RRDi doesn't have an affiliate relationship with Amazon UK but in the the spirit of 'everything rosacea' we would hope rosaceans in the UK would let us know about this treatment and find the reply to topic button to report if they have success using this cream or gel. The USA Gladskin website doesn't mention this treatment. The Gladskin UK website has more information as well as the following video:
Ingredients
Aqua, Propylene glycol, Hydroxypropyl methylcellulose, Glycerin, Arginine HCl, Sodium chloride, Trometamol, Staphefekt™ SA.100 C2.4, Calcium chloride.Reply to this Topic
There is a reply to this topic button somewhere on the device you are reading this post. If you never heard about this topic and you learned about it here first, wouldn't it be a gracious act on your part to show your appreciation for this topic by registering with just your email address and show your appreciation with a post? And if registering is too much to ask, could you post your appreciation for this topic by finding the START NEW TOPIC button in our guest forum where you don't have to register? We know how many have viewed this topic because our forum software shows the number of views. However, most rosaceans don't engage or show their appreciation for our website and the RRDi would simply ask that you show your appreciation, please, simply by a post.
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Demodex Solutions, one of our sponsors, has graciously allowed us to award a free jar of the ZZ Cream to the best poster on our website if you subscribe for 120 month subscription. If you subscribe for 120 month subscription, you will receive a free jar of the ZZ Cream shipped to your address from us which costs the RRDi about $8 to ship in the USA and if out of the USA depends on what country you live in and it will cost the RRDi even more money to ship.. So subscribe for 120 month subscription !!! By subscribing the RRDi receives less than the PayPal or Stripe fee for your ten year subscription, whatever that fee is (probably around $100), you receive a free jar of the ZZ cream shipped to your address which we pay the shipping for, and hopefully this will show your support for the RRDi (as long as Demodex Solutions, one of our affiliate sponsors, keeps allowing us to continue giving away a free jar for your subscription.
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6 hours ago, Apurva Tathe said:
Hello Rosaceans, if you can donate some money to our non-profit organization it would propel us to post more matter on this topic. I know that many rosaceans view our site, read each and every material, gain knowledge from this site which you will never find anywhere on other rosacea website but you never appreciate us giving some donation money. We keep asking members for some donation but I think its all throwing stone in water and admin has already declared that if we don't get money he will close the organization and then where will you read such good material from? think on this.
Thanks Apurva.
We have a little more than $300 left in the bank which may keep us going for a few months. I can't keep this non profit organization going by myself and have devoted a huge number of volunteer hours keeping this non profit organization legal to keep our IRS exempt status going which means donating to the RRDi is tax deductible. Keeping a non profit organization exempt, legal and active requires many volunteer hours. As you mentioned, we know that thousands visit our website each month and obviously take away huge amounts of rosacea treatment data which the amount on our website is significant since it reflects over seventeen years of rosacea research data to help rosaceans control their rosacea. It would be a simple gesture of appreciation if just half the members would donate ONE DOLLAR using the PayPal Giving Fund and that would keep us going probably for a year. That is less than the cost of a cup of coffee. -
Apurva,
Thanks for your post. Sure hope you are not having any Covid 19 repurcussions or other health issues. Thank God you are ok and got through your illness. Sorry your rosacea flamed up during your stressful period which without a doubt added to your illness. Keep us informed of any other issues you may experience and update us using this thread.
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“Many types of non-501(c)(3) tax-exempt organizations including social welfare organizations, business leagues and trade associations, social clubs, voluntary employees’ beneficiary associations, cemetery companies, and veterans’ organizations, among others, are prohibited, by statute, from allowing inurement of net earnings or assets of the organization to benefit any insider. An insider is a person who has a personal or private interest in the activities of the organization such as an officer, director, or a key employee. An example of prohibited inurement would include payment of unreasonable compensation to an insider.”
Private Benefit and Inurement, Page 5, Compliance Guide for Tax-Exempt Organizations
From 1998 thru 2019 the NRS has received in donations/revenue $15.5 million and spent over $10 million (65%) on private contractors owned by Sam Huff who serves on the board of directors of the NRS. During this same period the NRS spent less than 10% of the revenue on rosacea research. For details on the math for this period click here.
What do you think? Sam Huff has served on the board of directors of the NRS for over twenty years. The NRS has spent over 60% of the majority of the donations/revenue received during this period on two private contractors owned by Sam Huff, Glendale Communications Group, Inc and Park Mailing and Fulfillment, Inc (see for yourself). Could Sam Huff be an 'example of prohibited inurement' [that] 'would include payment of unreasonable compensation to an insider'?
What You Can Do
Can you do anything about it? Here are two recommendations:
(1) Write the IRS that you want this non profit to be investigated:
Internal Revenue Service
Exempt Organizations Determinations
Room 4024
P.O. Box 2508
Cincinnati, OH 45201RE: National Rosacea Society (EIN: 36-4120334)
Here is a sample letter for your consideration:
You may want to include in your letter that the IRS reconsider whether the NRS qualifies as a 501 c 3 since "A tax-exempt organization that does not restrict its participation in certain activities and does not absolutely refrain from others, risks failing the operational requirements for exemption from income tax and jeopardizing its tax-exempt status." [1] The NRS acts more like a 501 c 6 since the majority of its spending benefits businessmen and dermatologists qualifying it as a business league or professional association. For more information see the post about the difference between a non profit and a not for profit or how non profits work.
(2) Support the RRDi with your donations and stop donating to the NRS which is obviously spending the vast majority of its donations/revenue not on benefiting the public but instead benefits businessmen and dermatologists. You don't have to worry about the NRS going under since the pharmaceutical companies that donate to the NRS will continue to do so since these companies are happy with how the NRS spends it money and benefit since dermatologists benefit from the money these pharmaceutical companies are giving to the NRS and you can probably figure out why this arrangement will continue on. The NRS is embedded in this relationship and both are benefiting so the NRS won't miss your paltry donation since it receives most of its funding from pharmaceutical companies that have a vested interest in how the NRS supports 10% of its donations/revenues on rosacea research.
End Notes
[1] Compliance Guide for Tax Exempt Organizations, Publication 4221-NC (Rev. 9 -2014) Catalog Number 52447N,
Department of the Treasury Internal Revenue Service -
"Recent publications certify that the disease appears to be universal and does not just affect Caucasians."
An Bras Dermatol. 2020 Nov-Dec; 95(Suppl 1): 53–69.
Consensus on the therapeutic management of rosacea – Brazilian Society of Dermatology
Clivia Maria Moraes de Oliveira, Luiz Mauricio Costa Almeida, Renan Rangel Bonamigo, Carla Wanderley Gayoso de Lima, Ediléia Bagatinf -
In harmony with this thread, it is time to review the activities of the NRS for 2019 since the NRS doesn't post its Form 990 for 2019 until the END of 2020 which anyone can download and review on its financial page by clicking here (scroll to the bottom of the page to find the Form 990 download). The page paints a very pretty picture with a graph and a list of expenses which shows 'Research Grants' in the amount of $231,526. Here is a screen shot for your enjoyment:
The Form 990 for 2019 that the NRS reports to the Internal Revenue Service shows a very different picture than the math in the above screen shot for research grants. The actual amount shown on Form 990 for research grants is only $23,315 which is ten times less what is shown above. Here is a screen shot of Form 990, Schedule I, which shows the Regents of the University of California at Irvine received the grant:
So you can choose to believe what the NRS publishes on its financial page, painting a pretty picture of how it spends ten times the amount shown on rosacea research on its website, or you can read for yourself Form 990 reported to the Internal Revenue Service and discover yourself, but the math on the Form 990 shows ten times less. The Form 990 for 2019 shows that the NRS received in donations and revenue $303,013 and the total expenses were $419,490. If you note below in the screenshot of the first page, you can see LINE 13, Grants and similar amounts paid (Part IX, column (A), lines 1-3) in the amount of $23,315. You will be hard pressed to find anywhere reported ten times that amount on research grants.
So the NRS spent 7% of its donations/revenue received in 2019 on rosacea research. To understand this better, for every dollar received by the NRS in 2019 seven cents was spent on rosacea research in 2019. What is enlightening in Form 990 for 2019 is how much the NRS spent on Glendale Communications Group in 2019 which is shown below in this screenshot reported as Section B. Independent Contractors with the same address as the NRS in the amount of $285,871:
That means that Glendale Communications group received 94% of the total amount received in donations/revenue for the 2019 year. Glendale Communications Group, Inc., is owned by Sam Huff. The Form 990 for this year also has an interesting report shown in the screenshot below on Schedule L regarding 'Business Transactions Involving Interested Persons.'
This is how the NRS operates.
For a spreadsheet of all the years reviewed: click here.
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"Ivermectin 1% cream QD had favorable incremental cost-effectiveness when compared with metronidazole 0.75% cream BID and dominated azelaic acid 15% gel BID in the treatment of papulopustular rosacea in the United States. Therefore, ivermectin 1% cream QD may be a good first-line treatment for papulopustular rosacea, providing additional clinical benefit at no or low additional cost."
Manag Care Spec Pharm. 2016 Jun;22(6):654-65. doi: 10.18553/jmcp.2016.15210. Epub 2016 Apr 28.
Cost-Effectiveness of Ivermectin 1% Cream in Adults with Papulopustular Rosacea in the United States
Alain Taieb, Linda Stein Gold, Steven R Feldman, Viktor Dansk, Evelina Bertranou -
Volunteering is at the core of the RRDi non profit organization. Watch this short video about why you should volunteer to post at the RRDi forum or at the very least donate one dollar to keep the RRDi going.
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"The formula of hypochlorous acid is HOCl. A chemist discovered hypochlorous acid in 1834. It is a primary compound of innate immunity. This acid is effective to use against a wide range of microorganisms." [1]
"0.01% hypochlorous acid (HyClear™) was effective in disinfecting hybrid contact lenses and cases contaminated with bacteria, a yeast, and adenovirus." [2]
Demodex
"HOCl has potent antimicrobial properties. Laboratory studies show that it effectively kills the nymph form of the Demodex mites, as well as the Bacillus oleronius and Staphylococcus aureus bacteria that live on eyelids and that are found inside the Demodexgut. In addition, HOCl also neutralizes the inflammatory toxins released by both mites and bacteria." [3]Bacteria
"In a recent study, a saline hygiene solution preserved with pure hypochlorous acid was shown to reduce the bacterial load significantly without altering the diversity of bacterial species on the eyelids. After 20 minutes of treatment, there was >99% reduction of the Staphylococci bacteria" [4]Fungus
"In our study, hypochlorous acid, 0.01%, effectively eliminated all molds (including Fusarium and Aspergillus) and yeasts (Candida spp.) tested, with fungicidal activity observed in as little as 15 seconds. This rapid fungicidal and sporicidal activity is a significant advantage over traditional antifungal treatments that require hours or even days to show activity and may not be active against conidia (spores). Unlike some antifungal agents that are active against certain species but not others, hypochlorous acid showed rapid and potent activity against all species tested, including the genera Acremonium, Aspergillus, Fusarium, Mucor, and Candida. This broad spectrum of activity makes hypochlorous acid an attractive candidate for a global antifungal prophylaxis agent, especially in developing countries." [5]Virus
HOCI is produced by our white blood cells, so our body recognizes it. At 200 ppm, HOCl is also listed by the FDA as Generally Recognized As Safe (GRAS), and is listed as being safe for use on food-contact surfaces by the USDA without the requirement of a rinse step. With HOCL there are no health risks with normal use, as evidenced by all zeros on safety data sheet. HOCL kills the Covid 19 virus. [6]Treatments
Clinical Reset by CelleRx is a pure hypochlorous acid, .01% as a preservative in saline. Alevicyn is another treatment.
Amazon Hypochlorous Acid Treatments
Avenova Antimicrobial Eyelid and Lash Cleanser
BRIOTECH Topical Skin Spray 4 oz
CleanSmart Antimicrobial Skin Cleanser
Curativa Bay Hypochlorous Spray Mist
Defense Antimicrobial Skin Cleanser
Heyedrate Hypochlorous Lid and Lash Cleanser
OCuSOFT HypoChlor 0.02% Hypochlorous Acid Eyelid and Eyelash Gel
Puracyn Plus Wound and Skin Cleanser
SkinSmart Antimicrobial Clear Spray
Reply to this Topic
There is a reply to this topic button somewhere on the device you are reading this post.
End Notes
HOCI image courtesy of Wikimedia Commons
[1] Does Hypochlorous Acid Eliminate Fungus?, Holistic Density, USA, Joe Doctora
[2] ARVO Annual Meeting Abstract | June 2020
The Disinfection of Bacterial, Fungal, and Viral Contaminated Contact Lenses and Cases with Hypochlorous Acid
Eric G Romanowski; Kathleen A Yates; John E Romanowski; Alex Mammen; Deepinder K Dhaliwal; Vishal Jhanji; Robert M Q Shanks; Regis P Kowalski[3] New Approaches for Fighting Demodex Mites, Dr. Kathryn Najafi-Tagol, MD, Founder and Medical Director of the Eye Institute of Marin, New Medical Life Sciences
[4] Stroman, D. W; Mintun, K; Epstein, A. B; Brimer, C. M; Patel, C. R; Branch, J. D; Najafi-Tagol, K (2017).
"Reduction in bacterial load using hypochlorous acid hygiene solution on ocular skin".
Clinical Ophthalmology. 11: 707–714. doi:10.2147/OPTH.S132851. PMC 5402722. PMID 28458509.[5] Cornea. 2015 Dec; 34(12): 1599–1605.
Fungal Infections Following Boston Type 1 Keratoprosthesis Implantation: Literature Review and In Vitro Antifungal Activity of Hypochlorous Acid
Silvia Odorcic, MD, FRCSC, Wolfgang Haas, PhD, Michael S. Gilmore, PhD, and Claes H. Dohlman, MD, PhD[6] New Study Proves That Hypochlorous Acid Kills Novel Coronavirus, The Maritime Executive
Is hypochlorous acid key to reducing coronavirus risk?, Digital Journal
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There are a growing number of members who are concerned with hiding their identity when posting in our public forum. Of course, using a cryptic display name is one way to do this and you can learn about this feature by reading this post and scrolling down to Change Your Display Name.
Hide Your Online Status
There is another feature available to you so that you can HIDE YOUR ONLINE STATUS so that you are anonymous. After you have setup your RRDi member account you login to your ACCOUNT SETTINGS.Find Settings > Security and Privacy > Hide My Online Status
Click the HIDE MY ONLINE STATUS button and Voila!!! So what does this do exactly?
There is a page where you can view what MEMBERS are currently logged in or how many guests are browsing the site. By HIDING YOUR ONLINE STATUS you are considered an ANONYMOUS member currently logged in. Here is the page:
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On 12/26/2020 at 10:12 AM, 7Cecile7 said:
Hello Brady,
I wanted to offer some explanation as to why I've not been active on this forum. First of all it's the structure of a forum. Personally, I have a challenge navigating them. For me & how my brain works I just haven't done well with seeing/understanding how to navigate forums so I've not engaged in them very much. Unlike Reddit which I've recently joined for the reselling community posts I've never noticed RRDI to send you a thread that you've posted on directly to you like Reddit does, so I will click on the heading & see what was just written & then I'll respond, otherwise I don't go on to reddit & search etc.,. I don't understand how to navigate Reddit much either and it's not a priority. Visually too much going on. I am not on social media/FB much at all especially since my husband left our marriage unexpectedly a few years ago, but when we were together & I was dealing with a lot of other health issues & my parents health issues & focusing on him & his music career. I've had a lot of health issues & life losses that have eclipsed rosacea so that it fell to the bottom of the list.
For me I've found that my acne rosacea is triggered by allergies & sensitivities that are odd so they wouldn't be easily caught. I had to eliminate these sources as much as possible, some of which are not always possible for example shopping in stores pre-pandemic my face would break out as I'm reactive to formaldehyde resin which is sprayed on a ton of items found in my fav TJ Maxx, Marshalls & Homegoods (especially) stores. I'd go out that day with a perfectly clear face & shop for several hours & end up with 4-6 rosacea pimples by the end of the night. A friend of mine joked that we should record it.
Wearing a surgical mask makes my face break out, yes the surgical ones, because they have some sort of chemical on them. Titanium dioxide, coco-betaine & prior even foods triggered it. I have to wash my face twice a day with Honest brand face cleanser as it is free of coco-betaine which is the main cleansing ingredient in all hand soaps, shampoos & cleansers. I use Dessert Essence Free (something) shampoo & conditioner because it is free of coco-betaine & I found two hand pump cleansers free of that ingredient as well. I use a handful of other skincare products (too many to list) including Renee' Rouleau's line which is fabulous, she has a acne spot treatment which will eliminate the red rosacea bumps overnight. I use titanium dioxide free makeup as well.
Another odd thing is I can use this amazing lotions, creams on my face & it helps my face but if I put it on my neck it'll break out in hives so I'm still trying to discern which ingredient I'm allergic to now, it's coming down to aloe vera & rosemary as well as blue tansy. My body chemistry is constantly changing with some health issues leaving while others enter in, including new sensitivities that give me pseudo allergic reactions even affect my heart rhythm etc., and traditional doctors do not want to hear this type of thing so I just stay away from the docs, work with a great integrative nutritionist & my own research & live a life of continuous evolving experimentation.
I have my own website beingwellwithmichelle.com that I've not posted on in about 2 years nevermind engage on. I may get back to it this year but I"m not sure. I look at the photos of me on there & they were from 2012 or so & I don't recognize that sweet innocent 40 something. I had high hopes for my life/wellness coaching practice working with other high achieving women with chronic health challenges but due to the marriage ending & all that went with that I had to focus on my mindbodywellness & not on helping others.
So many things going on in my life just trying to survive & put myself & my self-care first has been my priority & now with the pandemic things are even more disjointed. I spent over 35 years trying to figure out my health challenges rosacea being the most obvious to others & the one that first came around age 20 when I got Lyme disease then disappeared & returned 20 plus years later & I'm 51 now & still am learning how it expresses itself in my body. For now I've got it under control which is nice. I take a mindbodyspirit approach combining a bunch of philosophies & a metaphysical approach to wellness too.
I hear these people with COVID-19 speak about "long haul" symptoms & that's been the story of my life since I got mono at age 15 but doctors looked at me like I was crazy. I've had 3/4's of the symptoms people have talked about COVID causing in all systems. I had Lyme disease as well yet it wasn't properly diagnosed. I got on doxycycline for the rosacea outbreak at age 20 & within a few months my neurological symptoms left. I had tested positive ANA factor, RH factor & had signs of infection but back in the late 80's no one was putting it all together with Lyme as they do now.
To be honest, I had to take a giant step back & just try to live & do & be instead of constantly focusing on what is wrong with me & that included stepping away from the rosacea forum among many others.
I started reselling clothes online & that has been a nice distraction from illness & dysfunction. I want to still help others including sharing my experiences with rosacea but I'm not sure exactly what that's going to look like. It seems each year when I think I'm going to get off of SSDI & work again another life or health tragedy strikes & I'm just at that point of trying to live under the radar. I'm literally alone in my condo daily & haven't seen anyone in a year except for a handful of people at a distance, grocery shopping, dropping off things to my Dad etc., I've not even been able to see my Mom due to her being in a nursing home facility. I got sick last year with a respiratory virus that I've still not fully recovered from & that was last Dec-this April. So I got a head start on the quarantine.
So I apologize for not being more active here or anywhere actually, but to be honest there have been so many other things going on that I've just not wanted to focus on illness & issues whenever I don't have to. I hope you can understand.
Cecile,
Really appreciate your post. Your plate is obviously full and I understand. Hang in there and wish you much success with your website. If you have a diagnosis with rosacea you may qualify to serve on the board of directors and you can work on improving the RRDi website since I have made this run for seventeen years and would love to hand the baton to someone younger. It would be a shame for the RRDi to dissolve but the handwriting is on the wall. Interested in running the RRDi the way you think it should be run?
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As everyone knows, 2020 has been a turbulent year and is ending. So is the RRDi. Our financial situation is meager and we have about two months left and we will be making the decision to shut down and dissolve. Rosaceans have left and gone away to the social media rosacea groups and prefer it that way. We have done our best and made a run at trying to help rosacea sufferers for seventeen years and the support presently to continue simply isn't there. No donations simply means the end of the RRDi. The saddest part to me is losing all the rosacea data on this website. I care, but I can't keep this website going by myself. Hope springs eternal.
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7 hours ago, Teslasrevenge said:
I've been casually searching around the internet about rosacea help, treatment, doctors, etc. I have a doctor who is trying different things, he calls me his most stubborn case of it. What's interesting here is that it reveals classic snake oil salesmen at their craft. Facebook is a joke, so it does not surprise me that there are hidden agendas by the creators/moderators/admins of these different social media sites. Preying on people with diseases. How nice. If I could help to actively pursue the cause and cure, I would do it, but where does one start? Throwing money at every last person who has their hand out and a promise leads to an empty pocket and a broken heart.
I understand your reluctance to part with a donation to those with their hand out. It is one of the reasons I was appalled at how the other non profits for rosacea spend their donations. All you do is check it out for yourself, using Form 990 and see how the other non profits for rosacea spend their money. The two other non profits in the USA are the NRS and the AARS. The Canadian non profit, ARSC, does not disclose how they spend their donations. Compare that with what the RRDi spends its donations on, right now keeping this website going by checking the Site Index, the forums, and the articles. We believe in transparency and disclose how we spend our funds on our financial page. I encourage you to visit the other rosacea non profits and see how they spend their donations. Furthermore, the RRDi is the only one founded by rosacea sufferers. We are similar to how the Erythromelagia Association spends its donations and is run by those suffering from erythromelagia.
Where have all the rosaceans gone?
in OFF TOPIC
Posted
This thread discusses the original thought of rosaceans using the RRDi website which as of this date is near 1.4K members who don't post or engage with one another or bother to post even a 'thank you' for the rosacea data on this website, when we know that rosaceans visit our website to glean information because Google Analytics shows we have around 4K visitors at our website each month so I have been monitoring what has happened and posted the WHERE HAVE ALL THE ROSACEANS GONE? video/post mentioned in the first post of this thread.
Just noticed that this is happening all over the internet and according to Jason Kottke he has noticed the same thing happening to his website and commented on this phenomenon occurring all over the web:
"If you ask around to the creators of other established independent sites on the web (and I have talked to many of them), you’ll hear that traffic and display ad revenue have been falling for the last few years. Many factors have contributed — Facebook, readers switching to mobile, the rise of apps, social overtaking search for discovery, ad blockers, Google Reader’s shutdown, VC money flooding into online media — and smaller sites without dedicated content marketing and mobile/social development teams can’t keep up. Other strategies are necessary." kottke.org memberships
Probably the word phenomenon isn't the correct word since Jason and I agree so probably a better word for this is evolution, not in the biologic sense but in the social sense. What I can add to all this is that rosaceans in general are so skeptical of what is on the internet that they simply don't trust the data, the fake news issue. A related post is the butterfly effect in rosacea post.
I recently am engaging with a volunteer who offers to assist in our GoogleAds and Google Analytics accounts through an organization called VolunteerMatch and she doesn't trust giving our non profit organization her mailing address yet she expects us to hand over access to our Google accounts. This is a typical example. Another is the quandary of this younger generation who wants transparency and at the same time privacy which you simply can't have both at the same time, there has to be a balance in having both. I wrote about this at this post. An example is an online bank. You want to trust the bank with your personal information at the same time you want privacy. However, the bank won't let you engage unless you reveal your identity. The same is true when engaging with a non profit for rosacea, no matter what non profit you are dealing with. The difference is, what is the non profit doing with your personal data? What is the privacy policy?
In the media news as of this date is the battle Facebook is waging with Apple over Apple's proposed policy of disclosing what each app in its store does with your personal data when using any app. Facebook doesn't like what Apple is doing but the facts show and Apple is on top of this that users of the internet are not happy with how the Big Tech companies are using their personal data.
The hypocrisy of all this is that rosaceans have no qualms giving out their personal information to Facebook or Reddit, or other social media platform, even posting photos of their rosacea! What are your thoughts on all this?